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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2005

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Hand Paiins after RT

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Stavros Moschos - 04 Sep 2005 18:10 GMT
Hi all,

I've been here lurking and trying to get my energy back and not think too
much about my PCa. Don't know if I said in my last post that the oncologist
thinks my higher PSA after RT may be due to my large prostate. the effects
of ADT wearing off, and a tem-delay for the RT to take full effect. Anyway,
my next PSA is a couple of months away and I am relaxed about the whole
thing. The oncologist thinks it will t ake a year to assess it all. O, and I
took all that advice about diet and am not torturing myself with foods I
don't like and thinking about it all the time. Just normal, fairly healthy
diet.

But now I am writing about something I mentioned before--really bad pains in
the hands, inability to make a fist, fingers getting stuck, all that. I had
some good replies and tried exercises (little squeezing device that was
recommended, a small ball to squeeze, etc) but for me they just made it
worse. Then I found Arnica cream, a homeopathic thing, and it has helped a
lot. So I want to pass that idea along to you.

But I'm also writing to see if I can test a theory about it here. During the
RT I was given a circular device to hold onto with my hands (to keep my arms
in place) and I really think that may have caused the problem. I was
gripping it fairly hard. I was very unsure of this hunch of mine urn till
the other day when I drove the car a bit (getting back to normal) and the
next day the hands were much worse and have still not gotten back to the
improvement they have been showing I think it was from gripping the steering
wheel.

So I wonder if anyone else who has had this problem had been gripping onto
that wheel during RT? If so, I want tot ell my oncologist because he doesn't
have a clue about this, just says, O yes, I hear about that once a year, it
will eventually go away.

Signature

July 2005  DX PCa  Age 75  PSA 26.5  Gleason 7 (4+3)  Stage T2a Biopsy (15
samples), digital examination, and CT body scan showed the cancer confined
to a single nodule in the prostate.

August 2004  ADT  First injection (2 drugs--I have forgotten their names)

December 2004  ADT  Second injection  PSA 4

April 2005  PSA 2.6

May 2005  Started RT 33 treatments, high beam, powerful doses

August 2005  Six weeks after ADT  PSA 2.9

Steve Kramer - 04 Sep 2005 19:19 GMT
I'm sorry, Fr.  I've had EBRT and ADT and never had what you're describing.

I have soreness in my hands and cannot easily make a fist.  But, I
attributed that to being 50 and slightly arthritic.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> Hi all,
>
[quoted text clipped - 28 lines]
> have a clue about this, just says, O yes, I hear about that once a year, it
> will eventually go away.
Stavros Moschos - 04 Sep 2005 20:09 GMT
So you didn't have it BEFORE the treatments?  Apparently very few do.  It
strikes me that you are young to have this problem.

> I'm sorry, Fr.  I've had EBRT and ADT and never had what you're
> describing.
[quoted text clipped - 49 lines]
> it
>> will eventually go away.
Steve Kramer - 05 Sep 2005 12:18 GMT
You may be right.  I busted my knuckles as a mechanic for about 10 years,
but that was always part time while going through high school and as a
second job.  Otherwise, the most abuse has been at a keyboard.  So, maybe ti
is another side effect.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> So you didn't have it BEFORE the treatments?  Apparently very few do.  It
> strikes me that you are young to have this problem.
[quoted text clipped - 15 lines]
> > Anyway,
> >> my next PSA is a couple of months away and I am relaxed about the whole

> >> thing. The oncologist thinks it will t ake a year to assess it all. O,
> >> and
[quoted text clipped - 33 lines]
> > it
> >> will eventually go away.
kh - 07 Sep 2005 01:37 GMT
> Hi all,> diet.
>
> But now I am writing about something I mentioned before--really bad pains in
> the hands, inability to make a fist, fingers getting stuck, all that.

> So I wonder if anyone else who has had this problem had been gripping onto
> that wheel during RT?

It's not the radiation, it's the hormones.   Search on Lupron and
joint pain.  It's very common.  I got it bad in my toes, the left
worse than the right.  It might have a basis in arthrytis but the
Lupron seems to aggrevate it.


Alan Meyer - 09 Sep 2005 06:48 GMT
>> Hi all,> diet.
>>
[quoted text clipped - 8 lines]
> worse than the right.  It might have a basis in arthrytis but the
> Lupron seems to aggrevate it.

I also got it in my toes - though it was much worse in my fingers.
Apparently it hits the small joints.

My toes also responded to frequent exercise - pushing down
with the toes, then lifting them up - over and over again.

   Alan
Steve Kramer - 09 Sep 2005 18:01 GMT
Having seen these messages, I am firmly convinced that my problems are
related.  I used to think it was an early onset of arthritis.  But, the
pains I've had in both sets of fingers and right set of toes are concidental
with my Lupron treatment.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> >> Hi all,> diet.
> >>
[quoted text clipped - 16 lines]
>
>     Alan
Heather - 09 Sep 2005 18:42 GMT
Hi Guys......

Perhaps you can help me out with a major problem Ron is having and while the
oncologist says it is not related to HT, 3 other doctors have said it is
(family doc, gynaecologist & chiropractor, grin).  Women also get Zoladex
shots, so my gynie knows of the side effects.....just as an explanation.
Plus the chiro has 3 other patients on HT that are complaining of the same
problem.  As he put it....."do you feel like your legs won't support your
torso"??  Yes.....says Ron.  (He is on Zoladex, Casodex and Megace)

How to put it best......his legs and hands sometimes swell with water
retention.....but his legs feel like *someone else's*......they are leaden
or weak and he feels very unsteady.  He is out of breath very easily and has
to rest a lot.  Ordinary gardening or house chores are too much for him on
hot days.

All of the above didn't start until we got the extremely hot & humid weather
and according to the oncologist, none of his 200 patients have reported
this.  And he cites that this didn't show up till some 8 months after he
started HT.  But perhaps they don't realize that the weak legs are part of
this.  On cool days he feels quite good.  No water retention either.

He has had all sorts of blood tests and it is not thyroid, low iron or any
other weakening-type of problem.  In fact, other than a higher level of
creatinin, his tests came back totally normal.

Anyone else on Zoladex, Casodex and Megace feeling like the above?
Oh.....the Megace worked like a charm on the night sweats.  And I should add
that he has been on HT since last October.  I will explain the whys and
wherefores later, but I was way too devastated for way too long to tell any
of you.  Never knew I was that private!!  Not to mention immensely
depressed.

A special thank you to Curtis and Steve K for just being there while the
doctors figured it out and we were able to cope with the dx.  It has been
one hell of a year!!  8-(((

Best....Heather

> Having seen these messages, I am firmly convinced that my problems are
> related.  I used to think it was an early onset of arthritis.  But, the
[quoted text clipped - 26 lines]
> >
> >     Alan
Alan Meyer - 10 Sep 2005 04:27 GMT
> Hi Guys......
>
[quoted text clipped - 22 lines]
> creatinin, his tests came back totally normal.
> ...

Hi Heather,

I had Lupron for about 6 months, before, during and after radiation.

During that period, my stamina went down, and my ability to jog
went way down.  I had been jogging about 4 miles at a time, 9
minute miles.  During the Lupron and radiation I was down to 1 mile
in 12 minutes and feeling like I was barely making it.

I never knew whether the radiation or the Lupron was the cause of
this, but I suspect the Lupron was at least a major factor.

I know this will sound facile, but I recommend exercise as the best
way to fight through it.  If Ron's legs are weak, then walking, bike riding,
or riding a stationary bike may help.

The goal of this exercise is not to become athletic again.  It's just to
keep enough strength and stamina to be able to resist the negative
effects of the drugs.  It may be that if Ron walks a couple of miles
a day he'll build and keep enough muscle and stamina that he'll
be able to get around normally without feeling like his legs are going
to collapse under him.

I kept jogging throughout my treatment.  My mileage went way down
and my times went way up.  But I never felt that I lacked the energy
for ordinary life.  I never felt that I couldn't climb a few flights of stairs,
or go on a long walk with friends.  I suspect that my efforts to continue
exercising gave me enough reserve that I could do all that.

Ron's situation is worse than mine.  He's older than I am, and he's been
on the drugs for a longer period than I was, and he's dealing with all
this in the summer whereas my treatment took place from November
to April.  He may not be able to do as well as I did.  But I think it's
worth a try.  I'm hoping he can stabilize his condition and improve
it just enough that it's no longer a significant problem for him.

As for the oncologist not believing any of this - well, I sometimes
wonder if they give special classes in arrogance at the medical
schools.

Best of luck,

   Alan
Heather - 10 Sep 2005 06:01 GMT
> > Hi Guys......
> >
> > How to put it best......his legs and hands sometimes swell with water
> > retention.....but his legs feel like *someone else's*......they are leaden
> > or weak and he feels very unsteady.  He is out of breath very easily and
has to rest a lot.  Ordinary gardening or house chores are too much for him
on hot days.

> > All of the above didn't start until we got the extremely hot & humid
weather and according to the oncologist, none of his 200 patients have
reported this.

Hi Heather,

> I had Lupron for about 6 months, before, during and after radiation.
>
[quoted text clipped - 33 lines]
> wonder if they give special classes in arrogance at the medical
> schools.

Thank you so much, Alan.  It was so disconcerting to hear the oncologist say
it had nothing to do with the HT.  Ron thought he was going to end up in a
wheel chair......seriously.  And this has physically & mentally aged him a
lot, which breaks my heart!!  He is 73 but used to look about 60.  He was
just fine until early June when the humid days started.

He is walking every morning when it is cooler (still hot up here).....but
some mornings he is totally pooped out.  He thinks it is helping build some
stamina, but if it gets very humid, it does him in.  Today was not a good
day.  And going up to 30+ by Monday.  (about 86F??)

He has been on the meds since Oct. 26th and this started in early June.  So
roughly 7 months.  That is why the oncologist refuses to consider it as a
side effect.  He is an excellent doctor, btw......and quite outgoing.  Which
is why it surprised me.

I am tempted to call the rad onc at Sunnybrook who gave him his first
shot....he was going to alternate with the local oncologist, but the latter
wanted to look after him.  I have always liked this man and he is an
excellent oncologist.  But he and I are at loggerheads over this.

One other question for the HT guys......the doc at Sunnybrook was adamant
that the tri-monthly shots had to be given exactly to the day.  The local
guy fits him into his schedule (and he is really busy)......but the next
shot is just 10 weeks from the last one.....not 12.  Does this matter a lot?

I have had so many questions since June......but because I had not told many
that his cancer had metastasized to the lungs, I couldn't post them.  One
saving grace tho.......his PSA shot up a year ago and they found it quickly,
once they ruled out *someone else's results and infection*.  Had it been
ordinary lung cancer, he would have had no symptoms.

And there is no sign of it in the prostate area......or bones.....or lymph
nodes.  So it must have spread before treatment.

Thanks, Alan......I appreciate your answers.  Perhaps I will look into a
bike for him.  But getting him to use it may be a battle, grin.  He does
enjoy the walks, and goes only a mile or so.  I feel so bad for him.  He
hates being like this, but what choice does he have.....he can't go off the
meds.

Cheers.......Heather
Steve Kramer - 10 Sep 2005 19:43 GMT
> One other question for the HT guys......the doc at Sunnybrook was adamant
> that the tri-monthly shots had to be given exactly to the day.  The local
> guy fits him into his schedule (and he is really busy)......but the next
> shot is just 10 weeks from the last one.....not 12.  Does this matter a lot?

I don't know, but my doc changed my next shot by one full month.  I'm
guessing it's not a terrible problem.  I'm hoping it gives me a month to
play, but it sounds like the half-life of Lupron will work against me.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

Heather - 10 Sep 2005 19:53 GMT
Interesting.  One doc was adamant about the number of days....the other
shifts a week or two either way.  I shall look into this more.

Heather

> > One other question for the HT guys......the doc at Sunnybrook was adamant
> > that the tri-monthly shots had to be given exactly to the day.  The local
[quoted text clipped - 5 lines]
> guessing it's not a terrible problem.  I'm hoping it gives me a month to
> play, but it sounds like the half-life of Lupron will work against me.
Alan Meyer - 11 Sep 2005 23:48 GMT
Hi Heather,

I looked at the FDA labelling information for Zoladex.  It's not
up to date on the website.  They have the 1998 labelling and
they said that new labelling came out in 2004 but was not yet
posted.  See:

http://www.accessdata.fda.gov/scripts/cder/drugsatfda/index.cfm?fuseaction=Searc
h.Label_ApprovalHistory


for all their info on Zoladex.

I did notice in the 1998 label that "edema" and "peripheral edema"
were mentioned as possible side effects - which I presume
accounts for the water retention and swelling in the legs.

> Perhaps I will look into a bike for him.  But getting him to use
> it may be a battle, grin.

Here are two suggestions for the use of a stationary bike:

1. Put it in front of a TV set.

2. Get one of the recombent style bikes where the
rider sits back and it's easy to put a book on his lap.
The recombent bike might also be better if there's edema
by raising the legs.

I read books while riding a stationary bike and, when I used
to run on a treadmill, I watched TV.  Rip-roaring, rock-em sock-em,
shoot-em up TV shows like "Walker Texas Ranger" turned out to
be great for getting the heart rate up and running faster.  I could
always run faster when watching a show like that :)

Incidentally, if the doctor prescribes this kind of exercise, will
the Canadian insurance pay for the bike?  I guess it would be
too over the top to ask them to pay for the TV :)

   Alan
Heather - 12 Sep 2005 00:19 GMT
Hi Alan......

I read the information and yes, the edema side effect would account for what
he gets on the really hot days.  He has gained at least 20 lbs, which does
not make him happy.  8-((  Btw...it was the chiropractor who suggested
either a bike or a treadmill.

I did talk to him about the bike, but for now he just wants to walk while
the weather is good.  He usually goes out early in the morning.....I am the
night owl!!

Grinning at your comment re the Gov't. paying for a bike......or a TV!!
LOL.  Not bloody likely.  But my neighbour has an extra one and I may cadge
the older one from her.  Just to see if he will use it.  He does have a
rowing machine from eons ago, which is gathering dust in the basement.  He
tried it, but prefers a brisk walk.

I really see the difference in him......we were out shopping this afternoon
and he uses the grocery-type cart to lean on.   Not much else he can do for
any of this.  But I will most definitely print out a lot of what you guys
have found for me and take it to the oncologist.  He is as outspoken as I
am, so it will be interesting.  He is a very good oncologist, which is why
it baffled me so much when he insisted this was not a side effect.  We shall
see.

Thanks again...I really appreciate your help.

Cheers....Heather

> Hi Heather,
>
> I looked at the FDA labelling information for Zoladex.  It's not
> up to date on the website.  They have the 1998 labelling and
> they said that new labelling came out in 2004 but was not yet
> posted.  See:

http://www.accessdata.fda.gov/scripts/cder/drugsatfda/index.cfm?fuseaction=Searc
h.Label_ApprovalHistory


> for all their info on Zoladex.
>
[quoted text clipped - 25 lines]
>
>     Alan
Steve Kramer - 10 Sep 2005 19:35 GMT
> > Hi Guys......

> As for the oncologist not believing any of this - well, I sometimes
> wonder if they give special classes in arrogance at the medical
> schools.

Personally, I think that anyone considering a career in urological surgery
or oncology ought to have the archives of this news group as required
reading.  There is no substitute for prostate victims frankly discussing
their issues with other prostate victims.

Heather, for that reason, I'm very happy you decided to come out of the
closet.  You cannot get information like this from a doctor.  I guarantee,
as close as my doc and I have become, he doesn't know 90% of what y'all know
about me, my cancer, and my side effects.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

Heather - 10 Sep 2005 19:52 GMT
My thanks again to you and Curtis.......you know how hard it hit me and
probably didn't really understand why I couldn't talk about it.  I frankly
don't know either, but I was in a severe depression to say the least.

Just when you think life is getting back to normal, you get hit by a semi,
so to speak.  And the fast rising PSA was most abnormal.

It *does* feel good to be able to talk about it.  I have gotten more info
and confirmation in 24 hours than I do from doctors.  You are
right.....there is more info here than anywhere.

XX  Heather

> Heather, for that reason, I'm very happy you decided to come out of the
> closet.  You cannot get information like this from a doctor.  I guarantee,
> as close as my doc and I have become, he doesn't know 90% of what y'all
know about me, my cancer, and my side effects.
Tom Cular - 10 Sep 2005 12:39 GMT
Heather,
I was on Lupron for about 6 mos. prior to and 6 mos. post seeding, with the
side effects (lethargy, hot flashes, some joint discomfort) noticably
diminished about 6 mos. after the last 3 mo. injection. While the two drugs
are different, the the results and side effects are similar.

Here's a link to the AstraZeneca Zoladex site.
http://www.zoladex.com/professional/zoladex/

Look at the FAQs for dosing intervals, click on the Zoladex tab then
Important Safety Info. at the bottom of that page for the expected side
effects.

Tom

> Hi Guys......
>
[quoted text clipped - 66 lines]
> > >
> > >     Alan
Heather - 10 Sep 2005 18:05 GMT
Thank you, Tom.  Yes, I was right.  12 weeks is the proper timing.  Dr.
Loblaw at Sunnybrook Hospital was adamant that they be given at the right
time.  This oncologist here is a bit loose on that.  I guess I could get the
Zoladex kit and have the family doctor inject it......which would probably
tick the oncologist off.   Puts me between a rock and a hard place due to
him being local in case of trouble.  The hospital doctor is a 3-4 hour round
trip.
In his defence, he runs an incredibly busy practice (doctors in Toronto
refer their patients to him out here)......plus he runs the Oncology Ward at
the hospital.  He surprised me when called here late one night just as we
were leaving for a Quebec holiday.....to make sure Ron felt OK.

Ron's first shot of HT (by the hospital doctor) was called *Suprefact* which
is not available in the US.  I checked that site too and it particularly
mentioned *leg weakness* as one of the primary side effects and to tell your
doctor if you have it.   But it is not mentioned for Zoladex.  Which could
be why this oncologist doesn't acknowledge it.  He only uses Zoladex.

I feel so much better being able to talk to you folks about
this......keeping it all inside was not a good thing!!  But I am past the
stages of shock, depression and anger now........I just worry if he seems a
bit weak.  It never stops, does it.

All the best.....Heather

> Heather,
> I was on Lupron for about 6 mos. prior to and 6 mos. post seeding, with the
[quoted text clipped - 10 lines]
>
> Tom
Steve Jordan - 10 Sep 2005 18:19 GMT
> Thank you, Tom.  Yes, I was right.  12 weeks is the proper timing.  Dr.
> Loblaw at Sunnybrook Hospital was adamant that they be given at the right
[quoted text clipped - 3 lines]
> him being local in case of trouble.  The hospital doctor is a 3-4 hour round
> trip.

The package insert, which is available online, specifies "12 weeks (84
days)" IIRC. Judging from what I've seen Stephen Strum write to a patient
on P2P, the timing is critical.

> I feel so much better being able to talk to you folks about
> this......keeping it all inside was not a good thing!!  But I am past the
> stages of shock, depression and anger now........I just worry if he seems a
> bit weak.  It never stops, does it.

No indeed, this damned thing never stops. I no sooner clear one problem
than another crops up.

Regards,

Steve J

"Never -- never -- never give up!  Never go gently.  There will be plenty of
gentle after we die, so until then -- fight -- control the rhythms and tempo
of the dance, even when you have to let the PCa dancing bear lead for awhile
-- even when you have to wear the lead suit as you dance -- never let the
bear set the rhythm and tempo of your dance with life -- when the bear
finally takes control, it will be a very hollow feeling for him, because I
will be gone -- dancing in a better place."
--E. B. (Burns) Mixon, PCa survivor, June 14, 2005 on The Prostate Problems
Mailing List
Thank you, Burns. Live long and prosper.
Tom Cular - 10 Sep 2005 20:17 GMT
Heather,
The Zoladex info. states that 22% of patients receiving a combination of
Casodex and Zoladex reported asthenia (from The American Heritage
Dictionary:  NOUN: Loss or lack of bodily strength; weakness; debility.)

     Tom

> Thank you, Tom.  Yes, I was right.  12 weeks is the proper timing.  Dr.
> Loblaw at Sunnybrook Hospital was adamant that they be given at the right
[quoted text clipped - 37 lines]
> >
> > Tom
Heather - 10 Sep 2005 23:28 GMT
Thanks again, Tom.  I missed that one.  I think I will do some printouts and
take them with us when we next visit the doctor.

The odd thing is that it didn't start until the really hot, humid weather
hit.  He had been on the 3 of them since the end of October.  Coincidence?
Or does the weather exacerbate this sort of thing.  Just musing on this.

I can't thank all of you enough.  I wanted to ask so many times, but just
couldn't.  I always seemed to find *reasons* not to post the bad
news......sometimes I don't even know ME (G).  I hope this makes sense.

We wives go thru our own peculiar set of emotions when dealing with this and
while a lot are the same, they are also much different in many ways.  It is
so hard to deal with.

Thanks again to you all......

Cheers....Heather
> Heather,
>  The Zoladex info. states that 22% of patients receiving a combination of
[quoted text clipped - 50 lines]
> > >
> > > Tom
Steve Jordan - 11 Sep 2005 00:32 GMT
On September 10, Heather wrote, in pertinent part:

(snip)

> I feel so much better being able to talk to you folks about
> this......keeping it all inside was not a good thing!!  But I am past the
> stages of shock, depression and anger now........I just worry if he seems a
> bit weak.  It never stops, does it.

Here is a support site for families, especially wives, of PCa patients:

http://www.prostatepointers.org/circle/

Regards,

Steve J

"No man is an Island, entire of itself; every man is a piece of the
Continent, a part of the main; if a clod be washed away by the sea, Europe
is the less, as well as if a promontory were, as well as if a manor of thy
friends or of thine own were; any man's death diminishes me, because I am
involved in Mankind; And therefore never send to know for whom the bell
tolls; It tolls for thee."
-- John Donne
Heather - 11 Sep 2005 07:16 GMT
> On September 10, Heather wrote, in pertinent part:
>
[quoted text clipped - 8 lines]
>
> http://www.prostatepointers.org/circle/

Thanks Steve.....I tend to keep things to myself, which is obvious, but
realized a few weeks back that is not the best way.  I spoke to the family
doctor and his door is open any time I want to talk.  I will look into a
family support group.

Best....Heather
bowichpapa@webtv.net - 11 Sep 2005 15:26 GMT
A brief comment on the timing of HT shots.  My husband is on Medicare
and they will only pay for his Lupron shots every three months not
counting the day of injection,  so we make sure to count 92 days between
shots.  Don't know how critical this would be under other insurance
plans. Bowich
kh - 10 Sep 2005 00:08 GMT
> Having seen these messages, I am firmly convinced that my problems are
> related.  I used to think it was an early onset of arthritis.  But, the
> pains I've had in both sets of fingers and right set of toes are concidental
> with my Lupron treatment.

I'm sure it's the Lupron.  While I have a "touch" of arthrytis, a
few months after the first shot, I noticed that I was stamping my
foot because there were stabbing pains in my toes.  

I had some pain in my fingers too.  

I declined the 3rd shot about 8 months ago and the pain has faded
to a mild nuisance.
Heather - 07 Sep 2005 21:23 GMT
Hi Stavros.........

Alan Meyer must be away, but he reported a few times that the hormone
therapy caused his arthritis to really flare up!!  Particularly in his
hands, if I recall correctly.

Cheers....Heather

> But I'm also writing to see if I can test a theory about it here. During the
> RT I was given a circular device to hold onto with my hands (to keep my arms
[quoted text clipped - 9 lines]
> have a clue about this, just says, O yes, I hear about that once a year, it
> will eventually go away.
Howard and Hope - 08 Sep 2005 02:19 GMT
After I came out of the OR and woke up in a hospital bed.(Feb 1st) My
left hand was DEAD! No feeling like asleep but I could use it. Both
shoulders were RAW from the bracket they had me in to do the robotic
sugery. The hand woke up in a day or so..but to date I have hand
pains..started in right hand now into left..hurts to clench a
fist..feels like swollen? Then hurts a bit to stretch out fingers..hands
just feel sore and puffy end of day.  Howie
Stavros Moschos - 08 Sep 2005 16:14 GMT
Just back from having a kidney stone removed, so I missed some of these
posts.  But the connection between the therapy and the hands is clear.  My
oncologist is so cavalier about this, but it is a scary thing.  Really
crippling.  I will tell him of these messages.

Don't know if I ever posted about the absurd, comic opera tale of the kidney
stone, and I won't now as being OT, but it's a lesson on how important it is
to have a good doctor and hospital.  . I warn  everyone now here in Toronto
to stay away from Western and Scarborough.  St. Michael's is superb..

> Hi all,
>
[quoted text clipped - 28 lines]
> doesn't have a clue about this, just says, O yes, I hear about that once a
> year, it will eventually go away.
Alan Meyer - 09 Sep 2005 06:29 GMT
Hello Stavros,

I've been out of town and just saw your message tonight.

I also find that clutching something hard for a long time
causes pains in my hands.  However I'd have to say that, except
for that, my hand pain problem is entirely cured - or at least
entirely under control.

I don't know if you did as much exercise as I did.  I did the
exercises 10, 20 or more times each day.  I did them when I
woke up at night.  I did them early in the morning when I got
up and late at night just before going to sleep.  I did them
while driving my car and during quick breaks while working.

I found a hand squeezer or a rubber ball both to be useful,
but if your hands are hurting a lot, then I'd recommend just
exercising them with no equipment.  Open and close your fists,
many, many, many, many times.  100 times, 20 times per day is
not too many times.  If 100 is too hard for you, then try 50
times, 20 times per day, or even 25 times 20 times per day.
I think it's better to do 25 hand squeezes 20 times per day
than to do 1000 of them all at once, just once per day.

Try putting the finger tips of one hand against the finger tips
of the other and pushing.  Try putting the finger tips of one
hand over the tips of the other so that you push in with one
hand and out with another.  Try pushing each finger against
the thumb of the same hand, first pushing down on the
thumbnail, then pushing up with the fingernail against the
pad of the thumb.

If the exercises hurt, then try running your hands under cold
water before and during the exercises, and do them gently.
But don't give up.

I think the absolute worst thing is too much rest.  If the
hands aren't moving, they seize up, become stiff, and become
painful.

Your problem may be completely unlike mine.  But if it's like
mine, exercise can do wonders if it you pursue it.

One other thing I did, and still do, is to sleep with my fingers
curled up rather than extended straight.  At first this was
difficult for me.  Now it's second nature.  With the fingers
straight, I'd wake up at night and in the morning with very
stiff fingers that wouldn't bend.  But with the fingers bent
all night, I'd wake up with them more flexible.

I personally had no luck at all with anti-inflammatory pills, and
only a little luck with the creams, but I never tried Arnica.
I'm generally suspicious of homeopathy, which I think is
scientifically invalid.  But I think I may have gotten some small
benefit from the mentholated creams that cool the skin.

Best of luck,

    Alan

> Hi all,
>
[quoted text clipped - 23 lines]
> during RT? If so, I want tot ell my oncologist because he doesn't have a clue about
> this, just says, O yes, I hear about that once a year, it will eventually go away.
 
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