Hello again all
On July 14, I was discharged after HDRB on a melon-sized prostate,
wearing a Foley catheter for 3 wks minimum. I was lucky enough to have
that removed after voiding trials on Aug 04. I had 3 days of voiding
trials locally and was considered "marginal" only, due to the urinary
retention being from 200-300ml. She gave me some "self-catheter" kits
to use in case I got blocked. (I haven't succumbed to these as yet).
Even on Flomax, my urinary flow is very poor and practically
non-existent at nights when I have to go about 3-4 times. I figured I
should see the (outsourced) Urologist who did the HDRB implant, to
discuss another TURP.
To keep within the parameters of the free Clinical Trial I'm in, I
went back to the chief Rad Onc who's running the Trial and requested a
referral back to the outsourced Uro for a follow-up appointment. He
dashed this off without a blink, but here's where the sh*t hits the
fan, bigtime. Because I'm in the Public Health system, I cannot get an
appointment with the Uro till MID OCT!!. (If I block up in the
meantime, I'm obliged to fall back on the DIY catheters or worst case
scenario get fitted up for another Foley!!)
I phoned the outsourced Uro's receptionist yesterday and offered to
pay CASH for an earlier appointment. She REFUSED the CASH, on the
basis that if I needed an operation in the near future, only Patients
who had PRIVATE Health Cover would be considered. Plus, because I'm in
the Clinical Trial under the Public Health system , I will breach it's
parameters if I get any treatment regarding the Prostate done
Privately.
IMO, this really sucks as I'm going broke refusing work, until my
urinary problems are sorted out.
Having vented my spleen, any comments, guys?
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-- Regards
-- CC
c palmer - 19 Aug 2005 06:18 GMT
hi clarence - i really feel for you on your medical treatment. you are
bringing to light the pros and cons of different medical systems. it is
not all one big family of doctors.
while some countries may boast like they have a great system in place,
there are these cases that fall through the cracks.
one doctor told me a long time ago that medical insurance is offered to
the people who don't need it and the ones who need it can't afford it.
that's seems to be true still today.
i know only too well about the rules in clinical trials. my wife was in
one for angiogensis - the growing of new blood vessels for the heart
after her heart attack.
she was kicked out of the trial because she was too healthy - huh?
yet, she's inoperative because there is nothing that they can do for her
in case her has another heart attack.
so, here we are - in limbo. nothing on the market -that any money can
buy to help her, and not sick enough to qualify for the treatments that
can help her. it will be years before these treatments will be
available to the public.
so what do you do in the meanwhile?
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Clarence Crow - 20 Aug 2005 02:48 GMT
<snip>
>one doctor told me a long time ago that medical insurance is offered to
>the people who don't need it and the ones who need it can't afford it.
>
>that's seems to be true still today.
Agreed!
<snip>
It seems these Clinical Trials just need you to fill in the black dots
on the forms at each significant milestone. Then they feed it into the
main computer and they forget about you.
I've even had a weekly consultation by one of the doctors during my
EBRT, where he questioned "Well, Mr Williams, has your diarrhoea
gotten any better, since I prescribed the Lomatil?"
I screamed back at him "I'm NOT Mr. Williams and I feel a sudden urge
to crap all over your desk!"
(wrong file LOL)
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-- Please reply to this ng as my email adress is fake:
-- Regards
-- CC
c palmer - 20 Aug 2005 08:45 GMT
well mr williams........oops!!!! clarence :))
did mr. williams diarrhea get any better? i doubt it if they keep
records like what you are saying.
and since you've last brought this up. i have a VA ID picture card
that i have to leave with the nurse's station when i get my treatment at
the hospital. when they made my next appointment, they gave me back my
card only to have a message on my answering machine that they had given
me another man's card and that person was upset. so, you see, it IS one
world in mass confusion.
no, confusion have many relatives.
military types - general confusion
- major confusion
maybe one of those were in charge that day. whatcha think?
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc