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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2005

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Still bleeding...

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(Jack)ie - 03 Aug 2005 07:10 GMT
Question:  How long does it take until there is no more blood in your
urine after RRP?  My RRP was done on March 24th of this year and I have
yet to stop bleeding when I urinate.  If I exercise or just go shopping
it is almost like pure blood, bright red.  Regardless of what I do
though there is blood in my urine.

One month post RRP and I went to my uro just to get a PSA done.  It came
back 0.06 and another visit was scheduled 3 months post surgery.  Had
another PSA done on July 12th and saw my uro on July 19th who said that
my PSA was down to 0.02 but there was blood in my urine (which I already
knew and had informed him of weeks earlier)

Was put on Bactrim DS which I immediately had an allergic reaction to so
it was switched to Cipro twice a day for 7 days.  Took all the
antibiotic but still passing blood which is still made worse by almost
any type of exertion.

I'm beginning to think that maybe he left a damn surgical instrument of
some kind inside since the bleeding just won't stop.

Anyone had this type of problem or have any suggestion to the cause of
this continual bleeding problem?

Thanks,

    Jackie
c palmer - 03 Aug 2005 12:06 GMT
Question: How long does it take until there is no more blood in your
urine after RRP? My RRP was done on March 24th of this year and I have
yet to stop bleeding when I urinate. If I exercise or just go shopping
it is almost like pure blood, bright red. Regardless of what I do though
there is blood in my urine.
One month post RRP and I went to my uro just to get a PSA done. It came
back 0.06 and another visit was scheduled 3 months post surgery. Had
another PSA done on July 12th and saw my uro on July 19th who said that
my PSA was down to 0.02 but there was blood in my urine (which I already
knew and had informed him of weeks earlier)
Was put on Bactrim DS which I immediately had an allergic reaction to so
it was switched to Cipro twice a day for 7 days. Took all the antibiotic
but still passing blood which is still made worse by almost any type of
exertion.
I'm beginning to think that maybe he left a damn surgical instrument of
some kind inside since the bleeding just won't stop.
Anyone had this type of problem or have any suggestion to the cause of
this continual bleeding problem?
Thanks,
          Jackie
=============hi jackie - that is way, way too long.  i can only speak for myself and
i had no blood in the urine when the catheter was pulled out 22 days
after surgery.

but i also had complications from scarring and had to have two
procedures.   the first one, i only had to wear the catheter for two
days and i had no blood when it was pulled out.

the second procedure they did cut downs into the scar tissue and when i
left the hospital my blood was bright red that was in the urine bag.  it
was a three hour drive back at it had lighten up to a almost a  clear
cherry red.  the next day, it was back to light yellow.  i got to pull
the catheter out on the fifth day.  

but again,  i've not heard and anyone bleeding that much as you have
described.

my advice - to keep going back to the medical profession until you get
some answers.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
David S. - 03 Aug 2005 13:06 GMT
Jackie:
   That is way too long.  You need to see a doctor about that pronto!   If
the uro that did the RRP just shoves pills at you I would get another
doctor.  Do you have a primary care doctor?  That kind of bleeding this long
out is just not normal.  Get some medical help.
   Good luck.
David S.

> Question:  How long does it take until there is no more blood in your
> urine after RRP?  My RRP was done on March 24th of this year and I have
[quoted text clipped - 22 lines]
>
>      Jackie
(Jack)ie - 03 Aug 2005 17:09 GMT
> Jackie:
>    That is way too long.  You need to see a doctor about that pronto!
[quoted text clipped - 5 lines]
>    Good luck.
> David S.

Called my uro's office and have an appointment to see a nurse
practitioner tomorrow.  Can't see the doctor because he is out of town
but the nurses there are very good so I don't feel real bad about that.

It does seem that from everything I've read and from the replies here
also that this just isn't right to bleed this long.  I intend to make it
clear tomorrow though that I want something done in the way of finding
out what the problem is for certain instead of taking pot shots at it.

Thanks,

    Jackie
Roy - 03 Aug 2005 18:39 GMT
My brother-in-law had bleeding like that and he has bladder cancer.
He has not had any prostate cancer.
Alan Meyer - 03 Aug 2005 20:16 GMT
> Question:  How long does it take until there is no more blood in your
> urine after RRP?  My RRP was done on March 24th of this year and I have
[quoted text clipped - 22 lines]
>
>      Jackie

Jackie,

Are you taking any drugs or food supplements that could be
contributing to the problem?  I'm thinking of blood thinners
or maybe some vitamins that may prevent clotting.

I've been told that very small amounts of blood in the urine
will cause it to appear bright red.  So the blood loss might
not be as awful as it looks.  But of course you still need
to get medical help.

I should think that the doctors should do some blood tests on
you to find out if your blood cell counts are normal or low.
If they're normal, then your blood loss may not be dangerous.
But if they're low, you want to get someone to pay serious
attention to this now.

I would ask the doctors or nurse practitioners the following
questions:

Are blood counts normal?  What are the numbers?  How do they
compare from before the operation, if they have that data.

What are the possible causes of bleeding?

Should an XRay be performed to check for a staple, or clamp
or something else still in the body?

Should a specialist be consulted?  What kind?  Will they give
you a referral to one?

Are there foods or drugs to take or stay away from?

What were the longest lasting cases of blood in the urine that
they've seen in the past?  What happened to the patients?  Were
the causes ever determined?

I suggest you write your questions down before the visit so you
don't forget any of them, and bring a notebook and pen with you
get write down the answers.

Best of luck.

   Alan
Ron B - 03 Aug 2005 21:22 GMT
Great questions Alan.

I'm sure Jackie will ask them tomorrow.

Ron B.

Chicago
(Jack)ie - 03 Aug 2005 22:48 GMT
Thanks Alan.  Like Ron said, those are some great questions to ask and a
few that I hadn't thought of that are now on my list.

The only regular meds I take are Tenormin, Pravachol and Klonopin which
I have taken for more than 10 years with no problems.  I avoid aspirin
and such and only take a 'one a day' type vit/mineral and omega-3 caps
which again I've taken for years.

I will get some answers tomorrow or I'll be getting me another doctor.

Thanks again,

   Jackie

> Jackie,
>
[quoted text clipped - 5 lines]
>
>    Alan
Stephen Jordan - 03 Aug 2005 22:54 GMT
On August 3, (Jack)ie wrote, in pertinent part:

(su-nip)

> I will get some answers tomorrow or I'll be getting me another doctor.

Good!

Regards,

Steve J

"'MD' does not mean 'Medical Deity.'"
-- Stephen B. Strum, MD
Pops - 04 Aug 2005 12:45 GMT
Jackie,

This one is a no brainer IMHO. I don't care how much blood. You should
not be bleeding at all 4 months after surgery. There is something
wrong. Get in there and don't leave until you know what's wrong and how
they're gonna fix it.

My best - you are in my thoughts
(Jack)ie - 04 Aug 2005 17:52 GMT
Went to my uro today and spoke to the nurse practitioner.  Had  a cbc
and urine done.  Blood still in urine but cbc came back ok with my hemo.
count at 14.9.  NP said she would have liked it better around 16 but
mine was still within normal range so there's not that much concern
about being or becoming anemic.  No signs of infection.

After consulting with one of the doctors a cyctoscopy is scheduled in 8
days.  I took Alan's list of questions as well as a few of my own and
got the following answers.

When asked about the frequency of something like this happening I was
told about 1 in every 10 patients.  My regular meds should not be a
factor.  Chances of something being left inside during surgery was put
at 0%.

Since I had an incident with my catheter just 2 days prior of having it
removed the doctor believe that some damage could have been sustained
and that exertion is keeping it an ongoing problem.  A cat scan is also
being considered but I believe they are holding off on that pending the
outcome of the cystoscopy.

I should know more after the cystoscopy on the 12th.

Thanks to everyone for your concern and opinions.

(Jack)ie

> Jackie,
>
[quoted text clipped - 5 lines]
>
> My best - you are in my thoughts
Ron B - 04 Aug 2005 22:31 GMT
I'm glad that something is scheduled.

Good that the hemo count is pretty good.

Sending the best your way Jackie,

Ron B.

Chicago
David S. - 05 Aug 2005 14:05 GMT
Good luck to you Jackie.  Hopefully they will find something easily fixable.

> I'm glad that something is scheduled.
>
[quoted text clipped - 5 lines]
>
> Chicago
(Jack)ie - 12 Aug 2005 20:20 GMT
Saw my uro today and had a cystoscope done.  Apparently he believes the
continual bleeding problem was/is due to scarring and tissue buildup.
Went through a somewhat uncomfortable procedure to open up everything
and left wearing a leg catheter until Monday.  If things haven't
improved by the time the catheter is removed then will have to be
hospitalized to remove more scar tissue.

It seemed that the blockage was just enough that a little too much force
was needed to urinate and this straining was causing the bleeding.
Everything seemed ok with me but this is his take.  Anyway, the next few
days will tell if what I went through today has worked or if more needs
to be done.

(Jack)ie

> Question:  How long does it take until there is no more blood in your
> urine after RRP?  My RRP was done on March 24th of this year and I
[quoted text clipped - 22 lines]
>
>     Jackie
c palmer - 12 Aug 2005 20:31 GMT
Went through a somewhat uncomfortable procedure to open up everything
and left wearing a leg catheter until Monday.

======

hi jack - that was the dilatation of stricture procedure.  if the
condition stays improved for over two weeks after you remove the
catheter, you home free, otherwise, you may have to go back.  

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
 
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