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Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005ONE YEAR LATER
One year ago today, I had RRP performed by Dr James Eastham of Memorial Sloan-Kettering Cancer Center. My outcome was tremendous. My only complication was low blood pressure, for which I received a blood transfusion (of my own blood). I had little pain. I was walking 1+ miles the day after I got home. I did have some bladder spasms, with some leakage of blood, but thanks to reading the experiences of others, I knew what it was. I was very continent after removal of the catheter, and within a few weeks, did not leak at all (except for passing gas when standing still-- same muscle group). I had volunteered for a drug trial (GPI 1485). This substance was supposed to help protect my nerves from damage during surgery and help them heal afterwards. I did regain erectile function faster than normal, and I am 85-90% of my pre-surgical function now. Most important, I am cancer-free, and have undetectable PSAs. According to MSKCC models, I have a 99% chance of being cancer-free ten years from now. Some thanks are in order: To my surgeon, one of the "artists" you read about. He has a great manner, has a great staff and did a great job. Also to this group: I learned how to select a treatment here, I found my surgeon on these posts, I read the experiences of dozens of men that helped me out when it was my turn. Thanks.  SignatureAge 46 at time of surgery PSA: 1.4 (12/00), 2.0 (7/02), 10.3 (3/2/04), 6.0 (retest 3/18/04) Biopsy 4/5/04 cancer in 10% of one core Gleason 6 (3+3); clinical stage T1c Bone Scan negative; pre-surgery PSA 2.8 RRP 7/27/2004 Pathological stage T2a, Gleason 6 (3+3) ³Tumor confined to prostate" and "Surgical margins free of tumor² You lucky guy you! I had the opposite. Although I also had my PCA caught early, and was relatively young at the time of the RRP (2 years ago, 53 y.o., and quite physically active), I had about as bad an outcome as you could get from Dr. John Garnett at Northwestern Hospital in Chicago. Big time incontinence, had to have the bladder neck routed out a couple weeks ago, 'cause the anastomosis point was like a pinhole. And that procedure left more pain for a couple weeks than the RRP. Big time bladder spasms like I never saw before with the urine contacting the abrasion wound in the bladder neck from the routing procedure. I only wish it could be known whether he committed malpractice, or was it my (peculiar?) physiology that caused the bad outcome - not so much that I want compensation, but to just know what happened. I'm having an AMS 800 implanted in a few weeks. Be sure to post your experience with the AMS 800. I am leaning toward doing this myself (also beginning to think seriously about the penile implant). On the bad experience with the surgery, I really think a large part of this is the luck of the draw. I am not athletic, not in good physical condition, I am overweight, etc., but I was able to get up, unassisted, less than twelve hours after leaving the OR (RRP) and walk a bit. By that evening I was walking around the entire floor and went home the next morning. No pain. No bleeding. No hard drugs. Why? I have read where guys who think nothing of riding bicycles up mountains have a lot of trouble. Why? No doubt surgeon skill has a lot to do with it, but I seriously doubt that you got a dud at Northwestern. Good luck with the AMS 800. Did they tell you that you should expect to still need to wear a pad of some kind (see my next post)? > You lucky guy you! I had the opposite. Although I also had my PCA > caught early, and was relatively young at the time of the RRP (2 years [quoted text clipped - 9 lines] > outcome - not so much that I want compensation, but to just know what > happened. I'm having an AMS 800 implanted in a few weeks. Congratulations, Glenn. Thanks for posting your success story. jimhoney standard RRP age 52, cured, no significant aftereffects > One year ago today, I had RRP performed by Dr James Eastham of Memorial > Sloan-Kettering Cancer Center. My outcome was tremendous. My only [quoted text clipped - 22 lines] > > Thanks. Good for you Glenn. And thank you for the follow up. Speaking just for myself, it feels good to read where someone found the information on this group helpful. I know that just doing the posting is in itself therapeutic for me, i.e., a selfish satisfaction, but it really feels good when someone says that what has been posted here is useful to others. Good luck to you. David S. > One year ago today, I had RRP performed by Dr James Eastham of Memorial > Sloan-Kettering Cancer Center. My outcome was tremendous. My only [quoted text clipped - 22 lines] > > Thanks. Wearing a pad after an AMS 800 implant would be no problem for me - as it is now, I am so restricted on the adventures I can undertake, that the 800+pad will be a big relief. yea, I know what you mean. I just got up from my desk to get a book and got a big squirt in the Depends. This is getting old. > Wearing a pad after an AMS 800 implant would be no problem for me - as > it is now, I am so restricted on the adventures I can undertake, that > the 800+pad will be a big relief. > One year ago today, I had RRP performed by Dr James Eastham of Memorial > Sloan-Kettering Cancer Center. My outcome was tremendous. My only [quoted text clipped - 22 lines] > > Thanks. Glenn - Good to hear all is well. I too am doing well, zero PSA's and erectile function begining to return. Sandy K. Yippee!!!! I'm so glad things have turned out so well for you. I hope that 10 years from now you will look back on your RP as just a speed bump on the road of life. Bev > One year ago today, I had RRP performed by Dr James Eastham of Memorial > Sloan-Kettering Cancer Center. My outcome was tremendous. My only [quoted text clipped - 22 lines] > > Thanks. Glenn, Happy Anniversary! Glad you did so well. SteveU Happy to hear you're doing well, Glenn. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > One year ago today, I had RRP performed by Dr James Eastham of Memorial > Sloan-Kettering Cancer Center. My outcome was tremendous. My only [quoted text clipped - 22 lines] > > Thanks.
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