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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2005

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Howard and Hope - 23 Jul 2005 14:52 GMT
Just want to keep in touch..PSA still undetectable..BUT URO said he cut
(As a precautionary measure???) all erectile nerves!!!! so Mr Weenie
still inactive...will he EVER come to life? Pumps do not work..they suck
and then HURT!!! so I trashed that idea.  Howie
Justin Case - 23 Jul 2005 18:06 GMT
> Just want to keep in touch..PSA still undetectable..BUT URO said he cut
> (As a precautionary measure???) all erectile nerves!!!! so Mr Weenie
> still inactive...will he EVER come to life? Pumps do not work..they suck
> and then HURT!!! so I trashed that idea.  Howie

Your surgeon probably cut the nerves, not to be mean but because the
prostate capsule had begun to rupture, or the Gleason score was high, and it
was necessary to remove as much of the infection as he could.  These radical
prostate surgeries are often classified as nerve-sparing (retropubic
prostatectomy) and perineal prostectomy.  Radical perineal prostectomy
usually (always?) removes the nerves around the prostate and normal erection
thereafter is doubtful.

What was your PSA prior to the surgery?  Pretty high, I imagine.

Talk to your surgeon, you will no doubt be back to see him for checkups.  My
comments are from personal experience.

Ken Bland
Howard and Hope - 23 Jul 2005 23:15 GMT
PSA before surgery was 5.65 August of 04. Gleason ? (Have to find..have
too many papers) Path rep0rt indicated cancer did not get out or close
to outer skin of prostate..FOUND IT..Gleason 3+3=6 Tumor location left
and right lobes 5% all else NEG and no evidence of malignancy..Howie
Steve Kramer - 23 Jul 2005 19:52 GMT
Howie,

Mr. Happy came back for me after almost 2½ years, but only after using the
pump.  I was only able to use the pump for sex once, but I believe the light
pumping on a constant basis helped Mr. Happy come to life on his own.

Oh, and I too had no nerve sparing.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> Just want to keep in touch..PSA still undetectable..BUT URO said he cut
> (As a precautionary measure???) all erectile nerves!!!! so Mr Weenie
> still inactive...will he EVER come to life? Pumps do not work..they suck
> and then HURT!!! so I trashed that idea.  Howie
roger - 23 Jul 2005 23:56 GMT
Just have to ask:
How is it possible to ever regain erection with a "no nervsparing rp"?

is it so that the nerves grow together again over time
or is it that them nerves isn't 100 percent essential for erection?

>Howie,
>
[quoted text clipped - 3 lines]
>
>Oh, and I too had no nerve sparing.
Leonard Evens - 24 Jul 2005 00:42 GMT
> Just have to ask:
> How is it possible to ever regain erection with a "no nervsparing rp"?
>
> is it so that the nerves grow together again over time
> or is it that them nerves isn't 100 percent essential for erection?

Without those nerves, I don't believe it is possible to have an erection
by the usual mechanism.  I don't think they ever grow back, but if they
are not cut, they may recover from the trauma of surgery over time.
That would explain why men do recover erections up to four years after
surgery.  There are some rare examples where the surgeon says he cut the
nerves but erection return.  There could be various explanations for
that.  The nerves are not actually visible to the naked eye during
surgery, but the surgeon assumes he has cut the nerves if he cuts in a
certain region close to the prostate.  In principle, in some men the
nerves could take a different route than the usual one, so those men
might not be affected by cutting in that region.

Be that as it may,  it is still possible to have an erection even if the
nerves are cut.  The purpose of the nerves is, when the man is aroused,
 to initiate a biochemical reaction in the penis which relaxes the
blood vessels and allows blood to fill the penis.  That can be short
circuited by injecting appropriate drugs directly into the penis.   Many
men manage to deal with impotence this way.  One can also use a vacuum
evacuation device or pump.  This creates partial vacuum around the penis
 and that draws blood into it.  A tension ring is then used at the base
of the pinis to keep the blood there.  Finally, a surgeon can implant a
device which allows a man to produce an erection.

It is best to discuss these options with a physician who specializes in
the treatment of impotence.

>>Howie,
>>
[quoted text clipped - 3 lines]
>>
>>Oh, and I too had no nerve sparing.
Steve Kramer - 24 Jul 2005 03:12 GMT
That's a great question.  I had no nerve sparing, yet there was the
erection.  Then, I had radiation and no more erections for a long time...
then there was another erection almost a year later.  I can't figure it out.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> Just have to ask:
> How is it possible to ever regain erection with a "no nervsparing rp"?
[quoted text clipped - 9 lines]
> >
> >Oh, and I too had no nerve sparing.
David S. - 24 Jul 2005 22:01 GMT
Haven't you heard of the immaculate erection?

> That's a great question.  I had no nerve sparing, yet there was the
> erection.  Then, I had radiation and no more erections for a long time...
[quoted text clipped - 16 lines]
>> >
>> >Oh, and I too had no nerve sparing.
Steve Kramer - 25 Jul 2005 00:42 GMT
Hmmmmmmmm.  Maybe.

And maybe, for the next miracle, a ready, willing and able wife!

> Haven't you heard of the immaculate erection?
>
[quoted text clipped - 18 lines]
> >> >
> >> >Oh, and I too had no nerve sparing.
Beverley - 25 Jul 2005 02:37 GMT
ROTFLMAO!

> Hmmmmmmmm.  Maybe.
>
[quoted text clipped - 23 lines]
> > >> >
> > >> >Oh, and I too had no nerve sparing.
Heather - 25 Jul 2005 04:11 GMT
DITTO!!  Bloody dry sense of humour, grin!!

Heather

> ROTFLMAO!
>
[quoted text clipped - 30 lines]
> > > >> >
> > > >> >Oh, and I too had no nerve sparing.
Radical R P'er - 25 Jul 2005 21:04 GMT
| Hmmmmmmmm.  Maybe.
|
| And maybe, for the next miracle, a ready, willing and able wife!

--
I assume Preferably your own (Wife), right.  ha-ha. I'd offer mine, but I'm
not done with her yet..Anyway I feel for Ya. It's the one thing I dreaded
before my operation..

O.L.
Steve Kramer - 26 Jul 2005 11:13 GMT
> | Hmmmmmmmm.  Maybe.
> |
[quoted text clipped - 4 lines]
> not done with her yet..Anyway I feel for Ya. It's the one thing I dreaded
> before my operation..

Nah.  In December, we celebrate 30 years of wedded bliss.  I long ago forgot
how to find another.
Radical R P'er - 27 Jul 2005 13:25 GMT
| > | Hmmmmmmmm.  Maybe.
| > |
[quoted text clipped - 8 lines]
| Nah.  In December, we celebrate 30 years of wedded bliss.  I long ago forgot
| how to find another.

I hear ya. 33 years here....That reminds me of something my Uro told me
during one of my follow-ups. My wife attended every appt I had, before and
after, as she is a non-working Surgical-Tech.
Well on one of the last follow-ups she had some volenteer work she had to
do, and did not attend.
The first thing the Doc said was 'Where's your wife? She didn't leave you
did she?"
I said 'No' and explained, to which he said "You'd be surprised at how many
leave before treatment ends" .  Wow I said I never thought of that. But
after 33 years I must be doing something right.

Take care to all.
Owen
Heather - 27 Jul 2005 20:21 GMT
> I hear ya. 33 years here....That reminds me of something my Uro told me
> during one of my follow-ups. My wife attended every appt I had, before and
after, as she is a non-working Surgical-Tech.
>  Well on one of the last follow-ups she had some volenteer work she had to
do, and did not attend.
> The first thing the Doc said was 'Where's your wife? She didn't leave you
> did she?"
>  I said 'No' and explained, to which he said "You'd be surprised at how
many leave before treatment ends" .  Wow I said I never thought of that. But
> after 33 years I must be doing something right.

Owen......perhaps I am a bit naive, but any wife that would leave her
husband when he is battling cancer is not worth a sou!!  I would argue that
point with your Uro.  In fact, I have never, ever heard of anyone leaving at
a critical time like that.  Sad, really.  Obviously cancer is not the
problem, but just that one straw too many.

My sister is rather heartless, I hate to admit.  She didn't bother going to
the hospital when her husband had surgery for colon cancer.  Her feeble
excuse was that there was no point in sitting around while he was out of it.
So she took a 4 hour drive to buy some special cheese with our Dad.  I have
never quite forgiven her for that.....nor has her husband.

Needless to say, she was never with him during his Pca treatment either.  He
was quite astounded when he found out I accompanied Ron to most of his
radiation treatments, which was a boring, 4 hour round trip, but we had a
chance to talk and have a meal after, etc.  Nor did she bother to call this
house to find out how Ron was doing for about 5 months.

And my other self-absorbed sister has never, ever called.....what a family!!
The word *dysfunctional* comes to mind.

I think I was adopted!!  (VBG)

Cheers.....Heather
Steve Kramer - 27 Jul 2005 22:23 GMT
There have been a couple here, Heather.  But, I might inquire during my next
uro's visit.  I can certainly see how it could happen.  I can certainly see
how a man might leave for greener pastures before he goes -- I think my dad
did.  I can also see how a woman might consider it too much to handle.  In
either case, it takes it would be a manifestation of low class.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> > I hear ya. 33 years here....That reminds me of something my Uro told me
> > during one of my follow-ups. My wife attended every appt I had, before and
[quoted text clipped - 31 lines]
>
> Cheers.....Heather
Heather - 28 Jul 2005 01:20 GMT
Thanks, Steve......

I guess I was considering this on two levels.  My own personal viewpoint and
also that of 20 years in the legal field.  I do not recall ever doing a
divorce or separation for this reason.  But that is not to say it doesn't
happen.  My feeling is that there was very little holding such a marriage
together if one party cuts and runs because of illness.

As for personally......I guess I covered that with the behaviour of my two
sisters.    No support there at all....either for me or my husband.  But
they are the losers....not me.  I just never expected their lack of empathy
and/or support.  C'est la vie!!

Cheers.....Heather, and I think I will adopt your pithy saying......non
Illegitimi carborundum!!  (VBG)

> There have been a couple here, Heather.  But, I might inquire during my next
> uro's visit.  I can certainly see how it could happen.  I can certainly see
[quoted text clipped - 49 lines]
> >
> > Cheers.....Heather
Beverley - 29 Jul 2005 00:58 GMT
It's not at all unusual. I think the term social workers, etc.  use is:
broken spouse syndrome. Many spouses cannot handle a severe medical problem
with the spouse, rather than facing the problem of their own insecurity it
is easier for them to leave, walk out and never come back. I think it
effects more women than men because women tend to rely on husbands for
everything and if their confidence is shook they lose that ability to depend
on their man so they find another man. OTOH, men probably do just as much
but they tend to blame other things for the break up of the marriage.

Some people have no coping skills.
Bev

> Thanks, Steve......
>
[quoted text clipped - 73 lines]
> > >
> > > Cheers.....Heather
Steve Kramer - 27 Jul 2005 22:20 GMT
Owen?  Portland Owen?

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> | > | Hmmmmmmmm.  Maybe.
> | > |
[quoted text clipped - 24 lines]
> Take care to all.
> Owen
Radical R P'er - 28 Jul 2005 12:55 GMT
| Owen?  Portland Owen?

   Hi Steve, Yes I am the Portland Owen, RRP 5-6-03 and glad to report am
still undectectable at 0.04psa. Next reading is on Aug 16th.,
This one will be ironic in that before I was diagnosed and I was looking
for a Primary Care Dr. He was the first one I had for my initial Physical
that I had when the Co. stopped having mandatory Co, physicals. Back in '95'
I think.
 After going through 4 or 5 more Dr's in the facility my last Dr got done
in June and set me back up with my original dr.
 What's Ironic about it is for awhile there he was not around, Well I
learned from the staff that he too had a RRP just around the same time as I
Did. He's a few Yrs older than I , But I'm sure we'll have something to talk
about, beside the weather..

Take, Care
Owen L.
Steve Kramer - 30 Jul 2005 16:54 GMT
Glad to hear you're still doing well.  You almost through me off with that
new handle.  And invalidmain.rrp.com doesn't seem to be a good URL  ;-)

I should have caught the "Maine" part of it.  Damn.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> | Owen?  Portland Owen?
>
[quoted text clipped - 13 lines]
> Take, Care
> Owen L.
Gogarty - 04 Aug 2005 13:56 GMT
>Hmmmmmmmm.  Maybe.
>
>And maybe, for the next miracle, a ready, willing and able wife!

THAT is the single most important factor. But what price domestic tranquility?
 
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