 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005BBC News: Prostate cancer 'priority' call
Prostate cancer patients are demanding the disease is given a higher priority by the government and the NHS. http://news.bbc.co.uk/1/hi/health/4682299.stm jimhoney moved from the US to the UK last Thursday At our July M2M meeting one of the speakers told us a cure could be found a lot sooner if the Drs had more monies to do larger scale experimental trials i.e. (more participants 100 vs 1000 or more in the trials) which would show the most effective new treatments. In the US the list for most monies spent on research is Breast Cancer, Aids, and then Prostate Caner. We need to make Congress more aware of this as PCA kills more men than Aids in the US. Yours truly, bob r That makes a hell of a lot of sense. Most money spend on breast cancer? What was that stat? 1 of 5 women get breast cancer? And AIDS?!?!? You gotta be kidding me! Last I heard, AIDS affects about 0.0005% of the population. However, PCa is virtually guaranteed in every man who lives long enough. Of course, one thing that breast cancer has going for it is that 100% of the population is interested in female breasts.  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > At our July M2M meeting one of the speakers told us a cure could be > found a lot sooner if the Drs had more monies to do larger scale [quoted text clipped - 7 lines] > Yours truly, > bob r Hi Steve, Just wanted to let you know that men can get breast cancer also....? Might have something to do with hormonal therapy for PCa . yours truly, bob r Yes, I know that breast cancer is a rare occurrence in men. And, I wonder how close to the breast cancer cure that PCa cure will be. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > Hi Steve, > Just wanted to let you know that men can get breast cancer also....? > Might have something to do with hormonal therapy for PCa . > yours truly, > bob r If I still lived in the UK (where they don't test PSA unless you really push them), right now my PCa would be bubbling away learning how to metastasize and I would have gotten to walk in my poor father's footsteps. Or, hey, maybe I would have been lucky and gotten diagnosed and been operated on by someone who does it 5 times a year and has no clue how to do it right. The wonderful British NHS was a significant part of our reasoning when we decided to move to the USA. If any man I know in the UK gets diagnosed with treatable PCa I will beg them to blow their savings and come to someone good in the USA for treatment. My "favourite" quote is wimmin who say "if men got breast cancer we would have had a cure 20 years ago". Hey - maybe it's time we got militant and had telethons, charity walks and some icky mucous coloured ribbons. :-) SignaturePeter Headland On July 16, Peter Headland wrote, in pertinent part: (snip) > My "favourite" quote is wimmin who say "if men got breast cancer we > would have had a cure 20 years ago". Hey - maybe it's time we got > militant and had telethons, charity walks and some icky mucous coloured > ribbons. :-) Good point. The girls are, in terms of research money, far ahead of us guys. Um, well, there are blue PCa-awareness ribbon pins available. I wear one everywhere I go. Ask me where to get them. As for the rest, it is IMO an unfortunate fact that guys simply WILL NOT take care of themselves. Not until their noses are rubbed in their diseases, which is often too late to save them.... It isn't manly. It isn't macho. It's stupid. Regards, Steve J PS: Tell us, ladies, does testosterone degrade intellect? > there are blue PCa-awareness ribbon pins available. > [...] Ask me where to get them Stephen, please tell me where I can get a nice blue PCa awareness pin. :-) SignaturePeter Headland On July 18, Peter Headland quoted me: >> there are blue PCa-awareness ribbon pins available. [...] Ask me >> where to get them And replied: > Stephen, please tell me where I can get a nice blue PCa awareness > pin. Rick Ward at www.PCaAwareness.net/pins_ribbons.html IIRC my one-inch pin cost ~a dollar. Rick even pays postage. One can also check on other similar offerings at PSA-Rising, http://www.psa-rising.com Look in the left-hand column under "Community." Regards, Steve J "No man is an Island, entire of itself; every man is a piece of the Continent, a part of the main; if a clod be washed away by the sea, Europe is the less, as well as if a promontory were, as well as if a manor of thy friends or of thine own were; any man's death diminishes me, because I am involved in Mankind; And therefore never send to know for whom the bell tolls; It tolls for thee." -- John Donne "Stephen Jordan" <mycroftscj@earthlink.net> wrote... > On July 18, Peter Headland quoted me: > [quoted text clipped - 17 lines] > > Steve J No blue ribbon with a black line there... Douwe On July 18, Douwe wrote, quoting the exchange between Peter and me: Peter: >>> Stephen, please tell me where I can get a nice blue PCa awareness >>> pin. Me: >> Rick Ward at www.PCaAwareness.net/pins_ribbons.html >> [quoted text clipped - 3 lines] >> http://www.psa-rising.com Look in the left-hand column under >> "Community." > No blue ribbon with a black line there... No, there is not, *nor should there be*. Douwe, it seems to me that you have no hope. Please do not give up. Do not surrender to the beast. Another PCa survivor said it much better than I can: "Never -- never -- never give up! Never go gently. There will be plenty of gentle after we die, so until then -- fight -- control the rhythms and tempo of the dance, even when you have to let the PCa dancing bear lead for awhile -- even when you have to wear the lead suit as you dance -- never let the bear set the rhythm and tempo of your dance with life -- when the bear finally takes control, it will be a very hollow feeling for him, because I will be gone -- dancing in a better place." --E. B. (Burns) Mixon, PCa survivor, June 14, 2005 on The Prostate Problems Mailing List Thank you, Burns. In Dutch: Nr, daar is niet, * noch zou daar * moeten zijn. Douwe, het schijnt aan me dat u geen hoop hebt. Gelieve te geven niet op. Me geef niet aan het dier over. Een andere overlevende PCa zei het veel beter dan ik kan: "Nooit -- nooit -- geef nooit op! Ga nooit zacht. Er zal overvloed van zacht zijn nadat wij sterven, zodat tot -- strijd -- dan de ritmen en het tempo van de dans controleer, zelfs wanneer u PCa moet laten dansend lood voor enkele ogenblikken dragen -- zelfs wanneer u het loodkostuum moet dragen aangezien u danst -- laat nooit de beer het ritme en het tempo van uw dans met het leven plaatsen -- wanneer de beer definitief controle neemt, zal het een zeer hol gevoel voor hem zijn, omdat ik zal zijn gegaan -- dansend in een betere plaats." EE. B. (Brandwonden) Mixon, PCa overlevende, 14 Juni..2005 op de Prostate Adressenlijst van Problemen dankt u, Brandwonden. "Stephen Jordan" <mycroftscj@earthlink.net> wrote... > > No blue ribbon with a black line there... > > No, there is not, *nor should there be*. > > Douwe, it seems to me that you have no hope. Please do not give > up. Do not surrender to the beast. You don't get is, do you? If there is a cure against my type of cancer, (and maybe there is, Gen-therapy) I do have to be carefull not to bump my leg against a door, or I'll break a toe, ancle or the leg. But I'm living!? Need medicine to sh.t, need a tool to pee, need medicine to avoid stomach acid, but I'm living? Who wrote 'never give up'? It's so easy to say for bystanders. Douwe http://www.vumc.nl/communicatie/nieuws/index.html?../nieuws/persberichten2004/in houd.html~hoofd (sorry, in Dutch) I am at least happy that you live in a humane country, my friend. Please make sure to make all the necessary arrangements in plenty of time and make sure you have a calm face for the officals so they know you are quite sane and quite determined. SignaturePeter Headland > I do have to be carefull not to bump > my leg against a door, or I'll break a toe, ancle or the leg. But I'm [quoted text clipped - 3 lines] > > Who wrote 'never give up'? It's so easy to say for bystanders. Your situation is identical to my father's during later 1981 and through 1982 to June 28. He never gave up. He fought throughout. When they said he'd live 2-5 years, he lived 8. When they said six months, he lived almost two more years. When they said a couple of weeks, he lived another few months. When they told the family (he was in a coma) a few days at most, he lived almost two more weeks. Once, they said "come to the hospital, he won't last 20 minutes". After I got there, he stopped breathing. Then, he lifted his leg, dropped it and began breathing again. He lived another three days. During his last couple of years, he had a heart attack, bone pain, and broken bones from sneezing, bumping, and sometimes just breathing. I never understood why he fought it so hard. Was he brave? Certainly! A U.S. Marine with three Purple Hearts in Korea. Then a cop in a major U.S. city. Was he scared? Maybe. I don't know. But, I swore I'd never fight death that hard. I intended originally to never take chemo (thought improvements have changed my mind). I honestly understand your reaction better than I understand my father's. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum "Steve Kramer" <skramer@cinci.rr.com> wrote... > "Douwe" <Douwe_in_nl@yahoo.com> wrote in message > [quoted text clipped - 28 lines] > > I honestly understand your reaction better than I understand my father's. Thank you Steve, for telling. Doctors told me it could take anything between 4 month and 6 years, because of the patients they had 'treated'. Because of my condition, I should calculate between 4 month and 2 years. I don't mind much what they say. The day we heard, we disided to start living the live, so I gave up my bussiness (exept 2 clients, who probably die sooner than me). "Don't give up" is a slogan, just random words. I do appriciate your way of telling about your dad and the fight he had. If you could listen to our son, you'd smile, I think. He is proud of me. Than, as a mental coach for a long time, I do know a lot about the brain and how it works. Didn't read here "Never give in..." which is much more important, for any person and not only the sick. "Don't give up", the American way of telling one should go through the pinhole, to reach what ever there is. So people die of trying to reach silly goals. Never heard "Live is worth living, if you have a smile" and believe me, within sports, school or hospital, this works a lot better than the vague words "don't give up". Say those words to a 100 meter sprinter, having an adductor injury in the run. I think he's going to try boxing, the next few minutes. Say those to a cancer patient with no future... he/she doesn't agree. Regards Douwe On July 19, Douwe responded to me, in pertinent part: > Who wrote 'never give up'? It's so easy to say for bystanders. Read it again, Douwe. The man who wrote it has been fighting PCa for years, and is better qualified than I am to write on the subject. Regards, Steve J |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.