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Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005

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completed HDRB - now wearing catheter

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Clarence Crow - 14 Jul 2005 11:38 GMT
Hello again all

I've been offline for about a week due to my having HDRB (3 fractions
in 48 hrs). No glitches there.

Unfortunately my legacy watermelon sized BPH prostate TURPED 18 yrs
ago by a general surgeon with possibly a "Swiss Army Knife" has caused
temporary blockage, so I have to wear a catheter for approx 4-6 wks,
still on Flomax. Hopefully, this will rectify itself on a couple of
supervised voiding trials and preclude the possibility of yet another
TURP somewhere down the road.

PSA is currently 0.02 and T is below bottom levels. (This is all
cloaked by ADT which ends Dec 2005.) Then after the Lucrin leaves my
body, we'll be monitoring for a bounce, say late 2006.

Feeling a little fragile.


-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
Steve U - 14 Jul 2005 22:34 GMT
Clarence,
Welcome back! You have been through a lot. I hope you feel better soon.
Steve U
Clarence Crow - 15 Jul 2005 23:32 GMT
>Hello again all
>
[quoted text clipped - 13 lines]
>
>Feeling a little fragile.

Thanks for the SOLE reply Steve U

Obviously my Yank Bashing worked ;p

-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
Stephen Jordan - 16 Jul 2005 01:12 GMT
> Hello again all
>
[quoted text clipped - 7 lines]
> couple of supervised voiding trials and preclude the possibility of
> yet another TURP somewhere down the road.

Um, I'm unsure whether I could "void" under supervision. Best of luck.

> PSA is currently 0.02 and T is below bottom levels. (This is all
> cloaked by ADT which ends Dec 2005.) Then after the Lucrin leaves my
>  body, we'll be monitoring for a bounce, say late 2006.
>
> Feeling a little fragile.

Glad to see that CC got through the HDR procedure more or less intact.
I've read about it and shudder.

The PSA is very good, especially considering the fact that it must have been
tested within a very short time after the HDR.

I presume that the catheter is a member of the Foley family. Mine, after
the botched cryo, was a suprapubic. I hope that, when it's removed, CC will
find himself in the category of horses -- or maybe bulls.

Of course, the T level and PSA artifacts of the ADT. In the new year,
after stopping ADT, I reckon that an increase in PSA (and T) can be
expected. Some is OK, but too much calls for restarting the ADT.

By way of comparison, I can report that my last six PSA's clocked in at
<0.01. I intend to suspend ADT in October and observe the result. I do
expect a rise in PSA, and will resume ADT if it rises to 1.0 ng/mL,
which is my chosen cutpoint. This is much lower than my med onc's idea.
Well, she doesn't have a prostate; I do and it's MY call.

On the whole it appears that CC is progressing. Considering his starting
point, I'm glad to see it.

Regards,

Steve J

"Never -- never -- never give up!  Never go gently.  There will be plenty of
gentle after we die, so until then -- fight -- control the rhythms and tempo
of the dance, even when you have to let the PCa dancing bear lead for awhile
-- even when you have to wear the lead suit as you dance -- never let the
bear set the rhythm and tempo of your dance with life -- when the bear
finally takes control, it will be a very hollow feeling for him, because I
will be gone -- dancing in a better place."
--E. B. (Burns) Mixon, PCa survivor, June 14, 2005 on The Prostate
Problems Mailing List
Thank you, Burns.

> -- Reader to complete... -- Please reply to this ng as my email
> adress is fake:
>
> -- Regards
>
> -- CC
Alan Meyer - 16 Jul 2005 20:57 GMT
> Hello again all
>
[quoted text clipped - 13 lines]
>
> Feeling a little fragile.

I'm glad that the treatment is all over for you and all you've
got to do now is finish off with the Lucrin.

As you may recall, my treatment was very similar to yours - two
HDRB treatments + 25 EBRT + Lupron.  My PSA has bounced around
like crazy since the Lupron wore off, but so far I'm doing okay
and don't have any real evidence of disease progression.

Don't be alarmed if you do get bounces.  My highest post treatment
PSA was 1.8, but it's down to 0.6 at the last reading.  I hope your
urinary symptoms clear up quickly, and here's hoping we both, and
everyone else with this disease, pull through.

    Alan
Clarence Crow - 17 Jul 2005 00:50 GMT
Thanks also to Steve and Alan

I'm having difficulties "learning" the catheter BAG positions.
The leg bag is only 500ml and soon fills up, causing a downward pull
and paining the end of "john henry" :(
I seemed to solve this by using an old pair of underpants as a support
sling.
Now I have to clip the 2,000ml night bag onto the drain of the leg bag
and then hang the big one on something like a small towel rack on the
side of the bed (theoretically). Something wrong with the fluid
dynamics here??
Problem is I thrash around a lot at night and the large bag can
sometimes slap me in the face! (women used to do that to me lol).
So I'm up re-stringing the whole mess a few times a night.

Hope I can void (RSN) Real Soon Now!!

Soldiering on....

-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
Stephen Jordan - 17 Jul 2005 02:42 GMT
On July 16 in Aridzona USA, Clarence Crow wrote from his Winter Wonderland:

(su-nip)

> Now I have to clip the 2,000ml night bag onto the drain of the leg bag
> and then hang the big one on something like a small towel rack on the
[quoted text clipped - 3 lines]
> sometimes slap me in the face! (women used to do that to me lol).
> So I'm up re-stringing the whole mess a few times a night.

Well. thank Bog, I don't sleep with CC; but I'd suggest doing what I
did: hang
the night bag on the bed rail, which I hope is well below the level of CC's
bladder, etc.

And learn, as I did, to sleep on his back.

I'm told that a pillow under the knees will prevent rolling over....

> Soldiering on....

Aren't we all.....

Regards,

Steve J
Steve Kramer - 17 Jul 2005 15:59 GMT
I never wore the leg bag except when I was up and walking or expecting to be
in a straight chair or car seat.  At all other times, I had the big bag on
the floor next to my chair or bed.

I don't know how you answer the thrashing about.  Though I wanted to lie on
my left and on my right, while I had the tube I was on my back or on my left
all night, every night.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> Thanks also to Steve and Alan
>
[quoted text clipped - 21 lines]
>
> -- CC
Clarence Crow - 18 Jul 2005 04:40 GMT
Thanks guys for all the BAG info and tips.

I'll just have to find what's best for me.

-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
 
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