Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005
How dry is dry?
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Ron B - 10 Jul 2005 19:20 GMT As always, I want to thank everyone here for past help and support.
This question is not high on the scale of importance at this time but your comments are always more than appreciated.
I'm just over 3 months out of RRP by Dr. Catalona here in Chicago with good pathology so I can't (and won't) complain.
I took the groups advice and didn't buy cases of Depends or pads until I saw how things went.
From Depends at the start...to pads IN the Depends to save them...to Depends Guards, to Serenity pads in my old Jockeys...I'm doing very well, I feel.
I'm now using a Serenity Extra in the jockeys and I can use one pretty much all day.
There ARE some squirts and leaks but NOTHING like the 'pee rag' (Thanks Curtis) that I had to hold in front of me to get to the toilet during the night for the first few weeks.
What I'd like to know is:
when you guys talk about being 'almost dry' and 'dry at 3 months'...what exactly does that mean?
I know that I'm prone to be obsessive about things...so it's no wonder that I want to know the details. :-)
Though I'm doing fine...if I were NOT to wear a pad...I might have wet underpants.
:-) (A great rock band name, no? .."Wet Underpants")
I'll be going on my first short trip to Las Vegas this weekend and I wondered how others have dealt with this. I know that I won't need Depends. Jockeys and pads seem to be the way I'll go.
Is 'almost dry'...a pad?
Is 'dry'...NO pad?
I know what the various hospitals call continence but I wanted to know what you regular guys thought and did.
If you are 'dry'...does that mean that you won't leak all day?
Or just a little and have to change the jockeys?
Thanks so much for reading this.
Best of health to all,
Ron B.
Chicago
I. P. Freely - 10 Jul 2005 22:09 GMT I may stay dry enough not to spot trousers through Jockey shorts one day, then half-soak a pair of Depends the next day. Too many variables to trust myself anymore, and I'm at 8 months now after a surgery with zero KNOWN complications (there must still be some unknowns, just as there were until Walsh discovered the nerve bundles in the '80s). So, for me, the issue is, "How SURE do I need to be today?" If I need to be certain -- restaurant, shopping, office -- it's a Depends. If a leak's no big deal (e.g., mowing the lawn), I may wear much less protection. Day at the beach? Swim suit/board shorts and get in the water often. The "dryness" comments I've seen in most sources usually say something like "under normal circumstances", allowing leeway for physical exertion.
I.P.
Ron B. - 10 Jul 2005 22:22 GMT Thanks I.P.
Good response.
Ron B.
Chicago
Leonard Evens - 10 Jul 2005 22:59 GMT > As always, I want to thank everyone here for past help and support. > [quoted text clipped - 22 lines] > when you guys talk about being 'almost dry' and 'dry at 3 months'...what > exactly does that mean? You are "dry" when you don't need to wear pads. Unfortunately, whether or not you feel you have to wear pads is to some extent up to you, so the definition is ultimately personal towards the end. You can try not wearing a pad and see what happens.
One thing to keep in mind is that men who've never had prostate surgery probably get a few drops of urine on their underpants after they urinate. That is particularly true of older men who suffer from BPH. Yet such men don't consider themselve incontinent. Because of your experience, you may still consider yourself not quite continent in the same circumstances.
I consider myself continent, but I still ocasionally have a problem. With only one sphincter, it may sometimes not be possible to get to the bathroom on time. Also, I have to be careful after I urinate not to drip on my pants. On occasion, when I know I will be someplace where I won't be able to find a men's room for several hours, I will wear a pad just for security. It is rare that I have to use it. So perhaps I should describe myself as continent with an asterisk next to the word. In any event it is not really a big issue in my life. It sounds as if you are close to that point if not there already.
> I know that I'm prone to be obsessive about things...so it's no wonder > that I want to know the details. :-) [quoted text clipped - 31 lines] > > Ron B - 11 Jul 2005 00:14 GMT Thanks Len and I.P.
I got those "Health Newsgroup" responses and had to sign up to reply.
I'm not familiar with them and then saw your responses here in the group also.
Anyway, I see the point.
I like your comment Len about being "continent with an asterisk".
:-) That's pretty true.
I'm not worried about it at this stage...I just wondered how others classified their progress...and what 'almost dry', and 'dry' was considered.
Like...before surgery...I might have dripped a bit or "missed the bowl" and my shorts were wet...but they'd dry.
I'd call myself continent.
Now...I'm close...with a pad and an asterisk. :-)
Thanks again.
Ron B.
Chicago
David S. - 11 Jul 2005 12:26 GMT Hi Ron: How was Vegas? When I was diagnosed in my research I found it odd that Hopkins reported something like 97% of men "continent" after one year, and Harvard reported something around 50%. Turns out, of course, that Harvard classifies a man as "incontintent" if he has to wear a pad at all. Hopkins considers one pad a day guys like us "continent". Not sure the definitions mean much. Even the one or two pads a day are not really meaningful I do not think. For example, you probably saw my post a couple weeks ago when my wife told me I was not changing my pads soon enough. I figured if the pad was not leaking it was okay. Now I change more frequently, more like three pads in a 24 hour period, but the leaking is really no different. So again, this is a moving target. In the end I guess "dry" means "dry" = no need for a pad. Wear a pad, and you are not "dry". Before the surgery you were "dry". After the surgery you are a faithful Depends supporter (or did you say you switched to Serentiy?). Hope you enjoyed your vacation. David
P.S. Someone here suggested that I carry some plastic zip lock bags to put soiled pads in if I was at a friends home and did not want to leave it in the waste paper basket. That worked out for me. I was able to discretely make my way to put it in my car. Deserved or not, I felt embarrased to leave it in the tiny flowery plastic trash can in the bathroom.
Ron B - 11 Jul 2005 13:08 GMT The Vegas trip is not until NEXT weekend.
:-) I'm glad that I won't need to send a case of Depends ahead.
I think you guys are all correct about the dryness thing.
There is the 'definition' and then there is the actual condition.
I just wondered how many guys were truly "dry"...with no pad...after a 6-8 month period.
And David...I once mentioned these Hefty brand 'Handy-Saks' which are neat packs of 10 white plastic bags that are like grocery bags.
You can put used stuff in them and just tie it up.
Nobody can see through it.
Worked nice with Depends and large pads.
Now...a smaller bag will hold a small pad.
Thanks again all,
Ron B.
Chicago
Leonard Evens - 11 Jul 2005 15:53 GMT > Hi Ron: > How was Vegas? [quoted text clipped - 3 lines] > as "incontintent" if he has to wear a pad at all. Hopkins considers one pad > a day guys like us "continent". I don't believe that is true. In Walsh's Guide to Surviving Prostate Cancer, he reports on results at Hopkins on p. 254. He says that at one year 93 percent of men reported not having to use a pad in the previous 4 weeks. I haven't seen a 97 percent figure reported anywhere for Hopkins.
I think a figure like 50 percent is way off. It is unlikely that the surgeons at Harvard can't do better than that.
Where did you see these figures?
Not sure the definitions mean much. Even
> the one or two pads a day are not really meaningful I do not think. For > example, you probably saw my post a couple weeks ago when my wife told me I [quoted text clipped - 13 lines] > make my way to put it in my car. Deserved or not, I felt embarrased to > leave it in the tiny flowery plastic trash can in the bathroom. David S. - 11 Jul 2005 17:21 GMT Hi Leonard: Those were numbers that I got off the net during research before joining the newsgroup and getting Walsh's books. As I recall at the same time the American Cancer Society was reporting a figure around 63% of men being continent after the surgery. I remember being very confused, and concerned, by the widely different numbers. I cannot remember exactly where I read about the difference in how the respective medical centers defined "continence" for purposes of their statistical reporting, but the one pad thing was the main difference between Hopkins and Harvard. That seemed to make sense to and it has stuck with me. I have never attempted to verify this, however. I am also not sure about the time frames, e.g., the Harvard 50% may be after three months and not one year. My uro is a Walsh trained guy, and I know he has appeared to be genuinely puzzled by my continued incontinence. On Wednesday I see a urologist that specializes in incontinence for men and women. I will have a cysto and a couple other tests. I am hopeful that they will be able to do something for me so I can forget the pads. Thank you. David S.
> > Hi Ron: > > How was Vegas? [quoted text clipped - 32 lines] > > make my way to put it in my car. Deserved or not, I felt embarrased to > > leave it in the tiny flowery plastic trash can in the bathroom. Ron B - 11 Jul 2005 20:13 GMT Best wishes for Wednesday David. I'm sure they'll help you.
I asked this question cuz it seemed like there were MANY answers to the question.
The definitions of various hospitals...guys personal stories, etc.
I just thought...when someone said that they were 'dry' after 5 months...did this mean that they used no pad and never leaked?
If so...SUPER GREAT! (better than GREAT :-)
But if it depended upon time of day, or being tired and dribbling...was that, too, 'dry' to some guys?
I just wanted to know. Thoughts and ideas...not to challenge anyone's progress.
Best of health to all,
Ron B.
Chicago
Steve Kramer - 11 Jul 2005 21:12 GMT When I first reported "dry" about June 2001, I meant dry, dry. During my ordinary day, I had no slips or leaks. If I recall correctly, while moving furniture I always risked a leak, especially if I wasn't thinking about it. And, for a short time, sexual thoughts caught be by surprise.
Now, I guess my standard is more like "moist". When I'm having a good time or period of time, I don't leak so much that my briefs aren't sufficient. I have to use pads for golf and thin pads every once in a while on a day that I just don't seem to be able to control myself.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum
> As always, I want to thank everyone here for past help and support. > [quoted text clipped - 55 lines] > > Chicago Steve U - 11 Jul 2005 22:52 GMT Ron, you have raised a very important issue. As David S said, different places use different definitions. That makes comparisons between place and docs more like talking to used car salesman than it should be. I have always considered "dry" to mean NO URINE leaves unless you decide to let it go! I started our totaly incontinent after RLRP, ans was down to one pad a day by 1 month. I was dry for normal everyday activity at 3 months and dry when lifting weights and running by 3.5. I worked very hard at in the begining. I found there was the most trouble after coffee, and when lifting things. So I made a point of drinking coffee then lifting weights afterward with the idea that if I could hold on then, the rest of the day would be OK. Maybe I just got lucky, but I think it helped. Now I NEVER EVER leak, and I can get 9 hours of uninterupted sleep. I believe in the use it or loose it theory, and think we do better when we train against maximal challenge rather than trying to avoid it, Steve U
David S. - 12 Jul 2005 12:46 GMT Hi Gang: I wish I could understand the wide range of leakage that I experience. Last week I was throwing away pads before going to bed that I had put on in the morning and, although soiled, they were very light so the leakage was not that great. Last evening, about 5:30 P.M., I wet my pants because the pad was too full and I did not bother to check it when I got home. Then later that evening, 9:30 P.M. or so, I had a major leak while stooping and wet my pants again. When I disposed of that pad it was heavier than the pads I was throwing away last week that were worn for well over 12 hours. Why? Maybe the doc tomorrow can make some sense of all of this. I do drink coffee all morning and sometimes have a cup in the afternoon. I try to drink decaf after the first cup in the morning. My guess is that tomorrow they will tell me to stop drinking coffee altogether. Not sure if the leaking is worse than going without the coffee? Thanks for the ear. David S.
> <snip> have to use pads for golf and thin pads every once in a while on a day that
> I just don't seem to be able to control myself. Ron B - 12 Jul 2005 13:53 GMT Good luck with the doc tomorrow David.
I bet you're right about stopping coffee.
They'll probably suggest that you do that since it's a bladder irritant.
On the other hand...I've always liked Steve U.'s thoughts on the dryness topic.
Seems that if you can 'hold it' under tougher times...easier times should be easier.
But...this plan might work better for Steve than others.
I have a cup or 2 of coffee in the morning and don't hold back on activities.
We'll see how it goes.
Thanks to all.
Ron B.
Chicago
chris m - 13 Jul 2005 13:43 GMT Hi,
Coffee, probably caffiene, imho, affects continience, especially urge incontinience, more than anything else. I can't go near the stuff anymore.
I was continient, ie totally off pads 4 weeks after my RP. The only time I leak at all now, and this is occaissional, is when I fart. I find if I don't force passing gas I am okay. No one has mentioned passing gas in this thread but for me its the only problem but one that can be controlled. Save the passing of gas until you are standing over a toilet.
Last week I was away for a brief vacation in Maine and a couple of days I had coffee with breakfast instead of my now usual decaf tea. I spent both days feeling I had to piss nearly all the time. I have a photo album of the public restrooms in the mid-coast area that I shot for fun. Its easy to waste shots with a digital camera. All the small harbor towns seem to have public restrooms dockside. I visited them all, with some urgency, at least once.
In short my message is stay away from coffee if worried about leaking.
chris m
> Hi Gang: > I wish I could understand the wide range of leakage that I experience. [quoted text clipped - 16 lines] > a day that > > I just don't seem to be able to control myself. Sandy K. - 13 Jul 2005 22:09 GMT > Hi, > [quoted text clipped - 20 lines] > > chris m I would have to agree with Chris. The only time I leak is when I force myself to pass gas. So, I consiously try to not force myself.
As for what constitutes dry? I stopped using pads altogether just over 3 months after surgery. I'm one year out now and the only time I get a minor leak is when forcing myself to pass gas.
As for coffee - it's a direretic - so it makes you want to pee. I've recently gone back to drinking caffinated coffee after a 15 year hiatus - however, I only drink it on the weekends - and I only drink espresso - I get the jolt, but am not consuming lots of fluid...
Sandy K.
David S. - 14 Jul 2005 18:49 GMT As long as we are talking about farting, has anyone noticed that you leak when you fart, but if you fart while you are peeing it stops the stream for a second? It does for me and I cannot understand the flip flop???
> > Hi, > > [quoted text clipped - 7 lines] > I would have to agree with Chris. The only time I leak is when I force > myself to pass gas. So, I consiously try to not force myself.
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