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Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005

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Post RP Progress

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Sonny - 05 Jul 2005 23:46 GMT
I  have for the past two years monitored and read  all the posts to this
newsgroup since I was diagnosed in Aug of 2004 with prostate cancer after a
2nd biopsy resulting in a Gleason of 6 with a PSA of 3.7.  Only 1 of  16
core samples  of the 2nd biopsy showed cancer and  then only 1% of  that
sample was involved.  I was  told  I had  the options of surgery, radiation
(seed and  IMRT), or  even  watchful  waiting.  Because I  wanted the cancer
out with the ability to have the gland carefully checked to  see if  it was
contained, I  chose  for personal  reasons surgery.

Surgery was conducted on Nov 12th of 2004 and resulted in a confirmation of
the Gleason with no cancer found in the margins or seminal vessels.  The
nerves  in both cases  were  able to be spared.

Since  then the following  has occurred  for the benefit  of those
interested.

Incontinence:  I did have problems for about  5  weeks that were very
discouraging.  I  started  out using about 4-5 pads  a day and by the end of
a month I was down to about 1-2  pads.  But, by the end of about  5  weeks
or so no pads were required.  I must admit though that very infrequently  I
do have a "squirt" or two that is of no consequence.  But its no problem.

PSA:   My first  follow up PSA  blood  test  in March resulted in a reading
of less than  .006  which is undetectable.

My second  PSA test as of today resulted  in the same reading of less than
.006 (undetectable)  so I am extremely pleased.

I am scheduled for my next  PSA blood  test in early January of  2006 and
according to the doctor if the reading is the same as the previous two, then
he will only require yearly checking.

Erectile:  Since surgery, I have had no activity whatsoever  even after
trying a vacuum pump and Levitra/Viagra.  I do have an appointment with a
specialist to go over the use of injections  to see if this will help.

All in all, I am  extremely  pleased  with the decision to have surgery and
have no regrets  regardless of the erectile problem.

In order of priority, my goal  was to first get out the cancer,  hopefully
not have incontinence, and then  have  no  erectile  problems.  I'll take 2
out of three  any time!!!

Good luck to all  that are  in the process of deciding on options  to them
based on being diagnosed with prostate cancer.

Life  goes  on.

Sonny
Leonard Evens - 06 Jul 2005 02:01 GMT
> I  have for the past two years monitored and read  all the posts to this
> newsgroup since I was diagnosed in Aug of 2004 with prostate cancer after a
[quoted text clipped - 30 lines]
> Erectile:  Since surgery, I have had no activity whatsoever  even after
> trying a vacuum pump and Levitra/Viagra.

The pump works purely mechanically.   I don't know the exact figures,
but almost all men should be able to produce an errection with a pump.
(Of course, you also have to use a tension ring to keep it from
collapsing once the vacuum is withdrawn.)   You might give it another
try.  It does require some practice---as much as two weeks, once or
twice a day---before using the tension rings.

I used a pump for 18 months before erections began to return.

> I do have an appointment with a
> specialist to go over the use of injections  to see if this will help.
[quoted text clipped - 12 lines]
>
> Sonny
John Loomis - 06 Jul 2005 02:14 GMT
Hello Sonny,
   I cannot say it better.
It seems you have all your priorities in line.
I was pee free the day the catheter came out....except may I say a dribble
now and then.....and then dry.
It took me 2 years after RP to gain EF(erectile function...)
I did use the Dr.s help, injection, pump, and Viagra.
One nerve was spared.....I was 49 at the time of RP
I am 55 now.
I think you have your concerns in order, and you sound like you are heading
for a "great recovery"
Good wishes my friend.
John Loomis
>I  have for the past two years monitored and read  all the posts to this
>newsgroup since I was diagnosed in Aug of 2004 with prostate cancer after a
[quoted text clipped - 46 lines]
>
> Sonny
Larry - 06 Jul 2005 04:33 GMT
Practice Practice Practice.
Your main goal should be to keep it exercised until things improve.
Hang in there!

Larry

> Erectile:  Since surgery, I have had no activity whatsoever  even after
> trying a vacuum pump and Levitra/Viagra.  I do have an appointment with a
> specialist to go over the use of injections  to see if this will help.
David S. - 06 Jul 2005 12:52 GMT
Sonny:
   If you have any problems with the injections at first, do not give up.
You may need to experiment in order to get what is right for you.  The drug
in the Caverject, which is also in MUSE and tri-mix, is painful for me.  The
bi-mix, which does not have that medication, does not work.  I am going to
ask the ED specialist for a lower dose of the, I think it is
"prostaglandin", to see if that works in the tri-mix.
   Good luck.
David S.

> I  have for the past two years monitored and read  all the posts to this
> newsgroup since I was diagnosed in Aug of 2004 with prostate cancer after a
[quoted text clipped - 45 lines]
>
> Sonny
Steve U - 06 Jul 2005 23:12 GMT
Sonny,
While you are waiting for your function to improve, I highly recommend
the shots. My experience with them has been excellent.I think frequent
use helped me get my natural erection back.My PCa stuff is:
age 50 PSA 4.5
Bx showed High Grade PIN
5 months later PSA 5.6
repeat Bx 1/12 cores <1mm gleason 3+3=6 stage T1c
RLRP 2-11-04 at age 50
Favorable path, 5 small foci of 3+3, organ contained
Post op PCAs  <0.1

Steve U

> I  have for the past two years monitored and read  all the posts to this
> newsgroup since I was diagnosed in Aug of 2004 with prostate cancer after a
[quoted text clipped - 45 lines]
>
> Sonny
 
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