Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005
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Wayne - 04 Jul 2005 02:36 GMT I shudder and cringe at the idea of this dilation procedure, but it really does appear to work wonders to help peeing problems after RRP.
I'm just past 3 months, and so far have had two failed tries, and then two successful dilation procedures. First one was good for nearly 3 weeks before slowdown again, and it's still early yet on the second, but after weeks of problems, peeing is a real joy now. No more dribbling - it's more like old times, and this seems to considerably help the leaking situation.
I suppose this procedure is common practice, and it is getting easier, but I sure hope not many more are necessary.
Jimmie - 04 Jul 2005 19:19 GMT >I shudder and cringe at the idea of this dilation procedure, but it > really does appear to work wonders to help peeing problems after RRP. [quoted text clipped - 8 lines] > I suppose this procedure is common practice, and it is getting easier, > but I sure hope not many more are necessary. Wayne, I haven't heard of the dilation procedure. Can you explain? I had the seeding on May 9. All I do is run to the bathroom many times a day and dribble an ounce or two. Can't go far from home unless I know there are washrooms conveniently located along the route. Jimmie
Wayne - 04 Jul 2005 23:49 GMT >Wayne, >I haven't heard of the dilation procedure. Can you explain? >I had the seeding on May 9. All I do is run to the bathroom many times a >day and dribble an ounce or two. Can't go far from home unless I know there >are washrooms conveniently located along the route. >Jimmie I cant speak for radiation, my case was RRP surgery 3 months ago, and I suspect these are different situations. I cant describe dilation very well, but it involves the urologist inserting a metal tool up the penis to stretch the urethra larger. I think it is done for more reasons than just RRP surgery, but after prostate surgery, scar tissue can form where the urethra was reattached to the bladder, or some other form of stricture blockage can develop. After surgery, I had peeing problems, usually a worrisome small slow stream, sometimes just a dribble and getting worse, and there were three times I had to go to the doctors office because I was totally unable to pee at all after trying for a few hours (and this gets urgent). Seemed to be a complete blockage. A routine temp catheter procedure fixes that for a few days, but isnt a cure. I think dilation is intended to be the cure.
I had two failed attempts at dilation, no doubt stopped due to my hollering and complaining. It hurt and bled, my first time big time, but that first time was a different urologist because my own surgeon wasnt in then, when I went in totally stopped up. My impression of that first one was like inserting barbed wire, lots of very red blood. I suspect he didnt lubricate it, at least I wasnt aware of it. My own doctor is very much more gentle, and injects some lubrication into me first.
The two successful procedures were much easier, almost more like normal catheter insertion, except there is a strong pop or snap felt when the dilation tool is pushed in to enter the small blocked area in there. I was still scared stiff, which doesnt help, but the last time was fairly easy and uneventful, and it worked well and helped a lot, that time with no more bleeding and no soreness afterwards. The doctor said he was pleased to have accomplished fr 26, which is about 1/3 inch diameter, which seems pretty large to me.
After the dilation, the urethra is a clear path, and peeing a regular strong stream is accomplished, at least as good as normal old times. That is a real pleasure after weeks of problems. The time before also worked well too, but it finally slowed some and was repeated at 3 weeks, which was already scheduled in advance. The next future one is already scheduled at 4 weeks. I am much less scared of it now, but nevertheless I hope the stream is still strong then, so that maybe I can talk him out of it :)
I am not aware of anyone else mentioning this, so I have no idea how often it is necessary after RRP. I suspect fairly routinely, at least it seems old hat to the urologist.
Alan Meyer - 05 Jul 2005 04:46 GMT > ... > I haven't heard of the dilation procedure. Can you explain? > I had the seeding on May 9. All I do is run to the bathroom many times a day and > dribble an ounce or two. Can't go far from home unless I know there are washrooms > conveniently located along the route. > Jimmie Jimmie,
Don't despair. You're in the worst part of it now. But the problem will very likely clear up by itself.
After seeding the radiation causes the prostate tissue to swell, closing off the urethra. When pressure builds up in the bladder you're able to force a little out, but only enough to reduce the pressure a little. So you have to go many times a day and only urinate a bit each time.
Eventually, two things happen. The radiation from the seeds abates (how long that takes depends on which type of seeds you got), and the prostate tissue adapts to the situation and the swelling goes down.
It took me about three months for things to get better and by 6 months or so I was completely back to normal. While it was bad I kept a urinal in my car so that on a long trip over an hour or two I could pull over and pee in the urinal if I had to.
If you haven't gotten it yet, ask your doctor about Flowmax or a similar drug. It helps a lot.
Alan
David S. - 05 Jul 2005 12:05 GMT Wayne: Curtis will chime in eventually (busy working weekend holiday for him). He had the problems you are encountering and, as I recall, had to undergo a corrective procedure twice before they got it fixed. I do not, however, believe that what he had was just stretching. I think they went in and cut out the strictures. I am sure that Curtis will give you the full scoop. In any case, if what you are experiencing has to do with strictures it can be fixed. Good luck to you. David S.
> I shudder and cringe at the idea of this dilation procedure, but it > really does appear to work wonders to help peeing problems after RRP. [quoted text clipped - 8 lines] > I suppose this procedure is common practice, and it is getting easier, > but I sure hope not many more are necessary. c palmer - 06 Jul 2005 17:24 GMT From: nospam@invalid.com (Wayne) I shudder and cringe at the idea of this dilation procedure, but it really does appear to work wonders to help peeing problems after RRP. I'm just past 3 months, and so far have had two failed tries, and then two successful dilation procedures. First one was good for nearly 3 weeks before slowdown again, and it's still early yet on the second, but after weeks of problems, peeing is a real joy now. No more dribbling - it's more like old times, and this seems to considerably help the leaking situation. I suppose this procedure is common practice, and it is getting easier, but I sure hope not many more are necessary. =======
hi wayne - i started having restrictions about 60 days after my RP. they did a dilatation of stricture, which i got some relief, but it was short lived - only lasted about 8 days, then i started getting a slower and slower stream.
at 5 1/2 months post RP - my surgeon got me into the hospital again on same day for the cut down procedure where he made two cut downs through the scar tissue.
i also had lesions inside the bladder and i had to go all the time. 16 times in 90 minutes - 24/7 - no rest - day or night. my life was a living hell.
the surgeon said that the cut down procedure would last about 20-30 minutes, but ended up taking 2 1/2 hours. i wore a catheter for 5 days and removed it at home. since then, i've had NO problems whatsoever. it feels like i did before i had surgery in that dept. it's been over 2 years now, and i can still empty my bladder in 15 seconds.
while i was going through what you are, i was told that this is correctable. it's sure is a pain while you are going through it.
another poster had similar symptoms but did not have the cutdown about a year ago. his surgeon did dilatation procedures at his office every week for a period of time. said his goal was to "stretch" the scar tissue. after a month, he said it was lasting longer before the symptoms appeared. he was still getting treatments 3 months after he started having troubles. i haven't talked with him for about 6 months, so i don't have any more feedback for you.
it seems like it is up to the surgeon as to what they want to do in this dept, but it's the person who had the pca is the one who feels it. maybe they should be on the other side to see just how miserable it is.
best of luck.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
Wayne - 06 Jul 2005 23:25 GMT >while i was going through what you are, i was told that this is >correctable. it's sure is a pain while you are going through it. Thanks Curtis. Yes, peeing does become real important. :) I sure dont envy your experience, and I'm glad it finally worked out for you. I knew additional surgery was sometimes needed, but of course I'm hoping I wont need that.
My first two dilation attempts failed and were no fun at all, but the next two worked, and were bearable (the last one was actually easy except for the mental). The progress makes my wishful thinking suggest that maybe the diameter is increasing in there. They did do a lot of good. The first good one did slow in 3 weeks, but it was still better than prior to it. Next one was a week ago, and it is still effective so far. I asked the doctor how many more dilations would be necessary, and only got a vague "hard to tell" reply, but he did schedule another at 4 weeks.
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