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Medical Forum / Diseases and Disorders / Prostate Cancer / July 2005

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Curt's current treatments

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Lorelei - 30 Jun 2005 19:02 GMT
So since last weekend's events Curt has been trying  very hard to follow an
organic diet. what a change from candy bars, mountain dew, potato chips, and
chinese food.

he is doing a cleanse that includes blueberries, lemons, coconut oil, raw
honey and distilled water blended together. regular meals are organic fruits
and vegetables esp greens and small amount of fish and poultry. no pork no
seafood. water as the main source of hydration. he has switched to American
Spirit cigs until next month when he has to quit. He feels GREAT! next month
he is going to Steve's for fasting and sweats, Sam will be in California
visiting his Gparents then and he will go to Steve's for a ceremony-not sure
if Sam will participate fully- we have to think about that.

a few other changes. I haven't taken my Prozac for a week and no mood
crashes. Sam met Steve and he really liked him. Steve is also a healer in
the ways of the spirit. I saw Sam smile more on Monday morning than he has
for 18 months!

I want to thank this group again for your support. I know that there are a
lot of charlatans out there. even in Western medicine. we had a doc get in
big trouble for prescribing human growth hormone to children who didn't need
it. he got kickbacks from the company and the kids had to endure shots they
didn't need. so it's everywhere. the alt.support.cancer group was very
vicous with me. at least people here know that I am not about to mortgage my
house or sell my stuff to some scamartist.

I just want harmony in the home again. we will have that for awhile again.
and better eating can only help all of us.

I'll keep you posted. Curt's next appointment with dr bloom is July 10. he
is going to decline chemo but still take his Zometa and Procrit. he isn't
due for a Lupron shot for 3 months.

Lori
Ron B - 30 Jun 2005 19:38 GMT
Lori and Curt...

We pray for you, we send good thoughts your way and we hope for the
best.

We all wish you healing and peace.

Ron B.

Chicago
David S. - 30 Jun 2005 20:33 GMT
Lori:
   Not sure what you mean by "vicous"?

>   <snip>   the alt.support.cancer group was very
> vicous with me. at least people here know that I am not about to mortgage my
> house or sell my stuff to some scamartist.
>   <snip>
>
> Lori
Lorelei - 30 Jun 2005 20:55 GMT
> Lori:
>    Not sure what you mean by "vicous"?
[quoted text clipped - 6 lines]
>>
>> Lori

telling me I was being scammed, that I was putting my children in danger,
treating me as if I was some loose cannon who could be taken for a ride.
basically replying to me with derision. even when I explained what was going
on it didn't stop. that is what I mean. do you frequent both groups?
Lori
David S. - 01 Jul 2005 00:59 GMT
Lori:
   I did not see those posts!  What do you mean by "both groups"?  Are you
active on another prostate cancer newsgroup?  Sorry to appear so naive.  I
am just not up to date on what all you were hit with.
   Sorry you are under such pressure.  I hope you make it through all this
okay.
David

> telling me I was being scammed, that I was putting my children in danger,
> treating me as if I was some loose cannon who could be taken for a ride.
> basically replying to me with derision. even when I explained what was
> going on it didn't stop. that is what I mean. do you frequent both groups?
> Lori
J - 30 Jun 2005 22:35 GMT
> Lori:
>     Not sure what you mean by "vicous"?
[quoted text clipped - 4 lines]
> > house or sell my stuff to some scamartist.
> >   <snip>

Hello David,
Lori misspelled "vicious".
We're sceptics on alt.support.cancer
We've seen far too many go down that road (of false hope) not to be (skeptics).

We also have the benefit of Peter Moran who has investigated almost every altie
claim in the world.
They're almost all testimonial claims of cures not properly documented.

We also have Mike R who palliates (hospice) patients who've been down that road
and they've died bitter at the "quacks" who gave them false hope.  Also people
who were led astray, who could have been cured, but went with a quack cure.
That's sad.

She came in posting about Steven the Shaman, something about plants and Peru,
and visions.
If I recall, he claims to have cured someone with liver cancer. One liver
cancer can be cured with surgery.
Actually these days, there's more surgery for the run of the mill liver cancer,
thereby extending life.
Undocumented testimonials aren't very helpful.

Apparently he (Steven) only shows up at night for meetings. they met at someone
else's place and soon after, they arranged for him to stay the night at her
home.  When I heard that, I posted this
http://www.biopark.org/peru/shamans_peru.html
"The curandero administers the hallucinogenic brew to his or her clients to
bring about a period of revelation when questions are asked of the intoxicated
person."

So I asked her to be careful having her kids around such. I mentioned food and
drinks.
Whoosh!  She came back at me with nasty language.
I don't think she'd intentionally hurt her children, but I know that children
can sip on their parents drinks or accidentally get ahold of things they
shouldn't.
I don't even know if I'd invite a complete stranger into my home that quickly
and certainly would watch my kids with such a person, as she describes, staying
overnight in my home.

Some of the responses (MB) might have a bit over-the-top (but well-meaning),
but we've seen far too much to believe that a Shaman can inpact on Curt's
cancer.
Apparently Lori only wants replies from people who agree with her.

That's my side of the story.
J
David S. - 01 Jul 2005 01:20 GMT
Now I see.  I paid a visit to alt.support.cancer and read the posts.  I
misunderstood the ng name.  I thought Lori was referring to this ng.  I
added the "prostate" automatically in my mind I guess.

>> Lori:
>>     Not sure what you mean by "vicous"?
[quoted text clipped - 69 lines]
> That's my side of the story.
> J
Lorelei - 01 Jul 2005 19:44 GMT
> Hello David,
> Lori misspelled "vicious".
[quoted text clipped - 19 lines]
> and visions.
> If I recall, he claims to have cured someone with liver cancer.

He had liver cancer himself, he was cured at the clinic there first. several
people have corroborated his story.

>One liver
> cancer can be cured with surgery.
[quoted text clipped - 14 lines]
> intoxicated
> person."

You don't listen very well. He was there Friday at 5pm in the light of day.
he doesn't do ceremony until dark. He was supposed to stay at the Holiday
Inn but had some travel problems with connections etc. He stayed at TM's
F-Su night. My husband OFFERED him a bed at our house because he wanted to
ask him specifically what to buy to eat etc and to inquire about cost as we
had been told that we were invited and exempt, we like to pay our own way so
we offerred him a place to stay out in the countryside and a ride to the
airport the next day.

> So I asked her to be careful having her kids around such. I mentioned food
> and
[quoted text clipped - 4 lines]
> can sip on their parents drinks or accidentally get ahold of things they
> shouldn't.

My kids know better and there was none of that stuff done in our home. we
talked about diet and how the environment is poisoning us. No funny stuff in
anyone's drink for any child to get into. I resented that yes. like we are
so dumb that we'd put our children at risk...

>I don't  even know if I'd invite a complete stranger into my home that
quickly
> and certainly would watch my kids with such a person, as she describes,
> staying
> overnight in my home.

Well, I believe in service work and loving our fellow man. I dare say that
in my lifetime of experiences I've learned to peg people pretty well,
especially if I've spent time with them and they come with referrals. I work
with  a lady who was cured of her breast cancer at a Peruvian clinic and has
given up her lucrative medical career including lecturing, teaching, and
textbook writing to become a Shaman. Many people in the medical community in
Minnesota respected her before and continue to.  Have you ever heard of Dr
Day http://www.drday.com/ in California? she has also been on TM's radio
show and she cured herself of cancer with a raw diet. just what Curt's
doing.

> Some of the responses (MB) might have a bit over-the-top (but
> well-meaning),
[quoted text clipped - 3 lines]
>
> That's my side of the story.

Why do you feel compelled to defend yourself over here. why does this
threaten you so much that you need to? no one asked you to eat organic. no
one told you to try this option or to encourage anyone to....why would you
think that your opinion on this would mean any more to me than mine does to
you?  I was even accused of "shilling" now That made me laugh. I never
mentioned the radio station or anyone's full name but I am shilling...funny.
sorry that J hijacked another thread of mine. he seems to like to do that. I
won't be responding to him here anymore because I respect this ng and won't
engage in (any more) pettiness : )

Lori
> J
J - 01 Jul 2005 23:00 GMT
> Well, I believe in service work and loving our fellow man. I dare say that
> in my lifetime of experiences I've learned to peg people pretty well,
[quoted text clipped - 6 lines]
> show and she cured herself of cancer with a raw diet. just what Curt's
> doing.

Of course we've heard of Dr. Day. She sells books ;-)

There are uncertainties about her own story.   She has refused to allow her full

medical records to be examined.   There are grounds for believing that she
has had additional conventional treatment not revealed in her videotapes or
her web site

They give a rather vague inconsistent account of her story.  There is no
final photograph enabling us to be sure that cured her cancer without
surgery or radiotherapy, as she claims.  She does not reveal that the very
reason her cancer grew to a huge size was that she refused the normal
treatments advised after her initially small cancer was biopsied.

She claims that it grew to that size in three weeks, which is a medical
impossibility.   In a separate radio interview she once divulged that she
took Essiac and it did not work for her.   That is presumably during the
period in which her inadequately treated cancer was growing to this huge
size, despite her likely trial of many other  'alternative' methods.

Lorraine Day's cancer grew to the size it did precisely because she
refused conventional treatment and also while she was using a swag of
"alternative" treatments
She did have further surgery later but is vague about the details and refuses to

release (to Peter Moran who I mentioned is in touch with people who claim
alternative cures) her medical records.

Go ahead, contact him. He'll tell you all the details and what's missing in her
testimony.
http://www.home.gil.com.au/~moringa/index.htm
J
J - 01 Jul 2005 23:23 GMT
> "J" <online@privacy.net> wrote in message
> [...]
[quoted text clipped - 11 lines]
> we offerred him a place to stay out in the countryside and a ride to the
> airport the next day.

You posted "evening". 5's not evening.

"I won't get too involved but let me say that when Curt and I arrived at
T.M's house Friday evening we were very nervous. we met Steven (the Shaman)
and the others that were going to be there. Steven can't work until dark and
since it doesn't get dark in Minnesota until almost 10 pm we had a bit of
time to kill. First Curt and I went to eat and when we got back everyone
wanted to go get a coffee so we walked up to a coffee shop and got better
aquainted."

> [...]
>
[quoted text clipped - 29 lines]
> Why do you feel compelled to defend yourself over here. why does this
> threaten you so much that you need to?

Doesn't threaten me. You came here telling tales. I defend.
If you hadn't mentioned a.s.c., I'd not have posted at all.

> no one asked you to eat organic. no
> one told you to try this option or to encourage anyone to....why would you
> think that your opinion on this would mean any more to me than mine does to
> you?  I was even accused of "shilling" now

And I defended you on that also.

> That made me laugh. I never
> mentioned the radio station or anyone's full name but I am shilling...funny.
> sorry that J

No need to apologize to me. I'm not the one who accused you of shillling. (just
for the record)

> hijacked another thread of mine. he seems to like to do that. I
> won't be responding to him here anymore because I respect this ng and won't
> engage in (any more) pettiness : )

That's good. :-)
J
Beverley - 01 Jul 2005 16:20 GMT
Lori, I think the biggest thing and most positive thing in your life right
now is the peace that you all are feeling. I'm very skeptic that someone can
"cure" a cancer but I do know from experience that things like acupuncture
can relieve pain. So I'm sure there are many alternatives that can work
wonders. They may not cure anything but if someone can get peace of mind and
a more positive outlook then it is often very worth the added effort.

Curt is sliding down a slippery slope. If this helps him (and you) to get
through this time then it is important. Our diets are filled with all sorts
of lousy toxic things. I think the fact that Curt is eating better even if
it seems a bit odd to the rest of the folks is important. Clear the toxins
and allow the medicine to do its job without interference. I would ask and
be careful not to accidentally cleanse the meds from his system. But
cleansing the bowels and feeding the good bacteria will help him to properly
digest his food. Then keeping the irrigation and elimination system in good
order will be very beneficial.

To me the spiritual end of this is no different than someone going away for
a weekend retreat with the church for intense prayer and faith renewal. If
that was happening I doubt an eyebrow would be lifted since most of the
posters here seems to have strong connections to either a specific church or
a belief in an omnipotent deity. But you say shaman and the group sucks in a
deep breath and figures it is snake oil. I don't think it matters if someone
finds peace through their faith in a god or through some other means. What
is important is the overall feeling it produces.

Medically it is known that a positive attitude does seem to help the body
and researchers cannot figure out why. There is probably nothing that will
be able to help Curt all the way through his journey but at least maybe this
will help him along his path.
((HUGS))
Bev

> So since last weekend's events Curt has been trying  very hard to follow an
> organic diet. what a change from candy bars, mountain dew, potato chips, and
[quoted text clipped - 30 lines]
>
> Lori
John Loomis - 02 Jul 2005 00:33 GMT
Hello Lorelei and Curt.
I am wishing you success with your latest plan.
With all our knowledge and such, and all our failures and such,
having belief in a cure, or a way, or and idea,  is of most importance.
I would rather go down with my beliefs, than give in.
What you are doing cannot harm you or Curt.
It can only help.
You are very brave, and Curt is wonderful for finding a new avenue when the
others have proven a loss.
Like Maynard Berkowitz.....He was a warrior and a fighter.
He was a friend that helped me in 1999 on this news group.
Good wishes my friends.
John Loomis rp 1999 49 years old.
Still kickin....
> So since last weekend's events Curt has been trying  very hard to follow
> an organic diet. what a change from candy bars, mountain dew, potato
[quoted text clipped - 31 lines]
>
> Lori
James A Honeychuck - 02 Jul 2005 14:25 GMT
As usual, someone else has said it better than I can.  It pains me to
Curt and Lori mocked for this latest effort.  I have been thinking for
weeks now that Curt needs to rise to some spiritual plane, any spiritual
plane.  I wish them success, however they define it.

jimhoney

> Hello Lorelei and Curt.
> I am wishing you success with your latest plan.
[quoted text clipped - 46 lines]
>>
>>Lori
Lorelei - 02 Jul 2005 20:48 GMT
> As usual, someone else has said it better than I can.  It pains me to Curt
> and Lori mocked for this latest effort.  I have been thinking for weeks
[quoted text clipped - 17 lines]
>> John Loomis rp 1999 49 years old.
>> Still kickin....

thanks guys, i guess folks like J want Curt to just accept that conventional
medicine can't do anymore so he should just curl up and die or something.
This is the first spark of fight I've seen in him for 6 months!! He has been
so difficult and selfish and all about himself for the last 6 months because
he has been told "you are dying" and he isn't ready yet. apparently hope is
not considered good form by some people. I don't see how Curt trying an
organic diet and some other "alternative" things should be so threatening to
someone like J.
oh well, guess he ain't married to a 41 yo man who's been told for 18 months
"you look great, now try this {poison} treatment" though it has only shown
to extend life expectancy a few months and makes him WANT to die because he
feels so icky.
I need to quit responding to J. he is negativity and we don't like
negativity. it's bad for the spirits <g>
Lori
I. P. Freely - 04 Jul 2005 01:50 GMT
> I need to quit responding to J. he is negativity and we don't like
> negativity. it's bad for the spirits <g>

Lori --

People going through what you and Curt are, especially at this age, have the
right to try any means available of relieving your pain and anguish. J is
just your typical cyberspace whiner and nitpicker ("5 is not evening!"), not
worth a moment of your (or our) time. Completely ignore him; you guys have
infinitely more important things to worry about. I'd be trying voodoo,
hypnotism, crystals, and tin foil hats at your stage, critics be damned,
ESPECIALLY if one of then showed even a glimmer of help in any way. If Curt
feels and/or acts better living on Chinese cigarettes, jalapeno buttermilk,
and birch borer beetle livers, GO FOR IT. NO one -- not a minister, a
mother, a best friend -- has any right to tell you guys how to maken the
best of what's left of your lives together; only you two can make that
decision now, and J isn't helping one whit.

I.P.
Beverley - 04 Jul 2005 03:27 GMT
Lori, I've known J for a long time. I know she is worried about what is
happening to you and Curt. She just wants to make sure you are not lead down
the wrong path. There is a difference between hope and grabbing at straws.
So far it seems this is providing hope and a better life-style. Just keep
your eyes open. I still think this sounds like the most positive thing that
has happened for Curt.

To be honest I'm skeptical about a cure but I think a healthy life-style is
going to be a major boost to his body's ability to fight the cancer. And it
hopefully will keep him feeling better much longer.

Have you check on things like bone marrow transplants and stem cell stuff? I
know that is cutting edge stuff and doesn't always work but if there is a
chance ....

Oh, Lori, I wish I could wave a magic wand and make it all go away. You and
Curt deserve that chance!
((HUGS))
Bev

> thanks guys, i guess folks like J want Curt to just accept that conventional
> medicine can't do anymore so he should just curl up and die or something.
[quoted text clipped - 11 lines]
> negativity. it's bad for the spirits <g>
> Lori
Glassman - 02 Jul 2005 02:41 GMT
> So since last weekend's events Curt has been trying  very hard to follow an
> organic diet. what a change from candy bars, mountain dew, potato chips, and
> chinese food.

  Surely there must be something in between these two extremes? It's either
Twinkies or treebark it seems! LOL

Signature

JK Sinrod
Sinrod Stained Glass Studios
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

Marshall Schuon - 02 Jul 2005 06:12 GMT
>> So since last weekend's events Curt has been trying  very hard to follow
>an
[quoted text clipped - 4 lines]
>   Surely there must be something in between these two extremes? It's either
>Twinkies or treebark it seems! LOL
_______

Hmm, Twinkies and treebark?  There may be a book in that diet!

Marshall
Lorelei - 02 Jul 2005 20:43 GMT
>>> So since last weekend's events Curt has been trying  very hard to follow
>>an
[quoted text clipped - 10 lines]
>
> Marshall

LOL, like how I cured my myopia, lost 250 lbs, won the lottery and cured
cancer with the Twinkie/Treebark diet!  <G>
Lori
David S. - 03 Jul 2005 12:23 GMT
There was an article in "Atlantic Monthly" a few years ago about food
additives.  In there they said that a person could not get down a McDonald's
hamburger without the additives that add flavor, odor, etc.  In other words
(my words) it is really just a chemical concoction.  I remember someone
giving me hell for not thoroughly washing a piece of fruit before biting
into it.  Why?  All the chemicals that are sprayed on the fruit trees for
everything from fertilizer to killing bugs.  Bottom line is that although I,
in all honesty, do not follow any kind of natural or organic diet it is only
common sense that the chemicals that we are exposed to every day have some
effect, so who is to say that choosing a diet that avoids all that stuff is
the one that is far out?

>>>> So since last weekend's events Curt has been trying  very hard to
>>>> follow
[quoted text clipped - 16 lines]
> cancer with the Twinkie/Treebark diet!  <G>
> Lori
Beverley - 04 Jul 2005 03:13 GMT
Do a good job washing because most apples and other veggies in the
supermarkets are waxed. Guess what is under the wax? Probably chemicals. I
prefer buying my produce from local organic farmers but it isn't always
possible.
Bev

> There was an article in "Atlantic Monthly" a few years ago about food
> additives.  In there they said that a person could not get down a McDonald's
[quoted text clipped - 28 lines]
> > cancer with the Twinkie/Treebark diet!  <G>
> > Lori
David S. - 04 Jul 2005 12:47 GMT
Groan...forgot the wax, and whatever else they put on the fruit to make it
look appealing.

> Do a good job washing because most apples and other veggies in the
> supermarkets are waxed. Guess what is under the wax? Probably chemicals. I
[quoted text clipped - 41 lines]
>> > cancer with the Twinkie/Treebark diet!  <G>
>> > Lori
 
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