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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2005

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Deciding on treatment path....

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USC Gamecock - 24 Jun 2005 17:50 GMT
I'm planning to visit with or talk with doctors at the Medical
University of South Carolina, Emory University Hospital, Johns Hopkins,
and MD Anderson.  That, I know.

Should I talk to others?  Should I be looking for specific doctors
(like Walsh at JH)?

Who are the experts that you, if you were 37 years old like me with a
Gleason 6, T1c tumor, want to talk to or consider treating you?

Thanks again!
Wes
c palmer - 24 Jun 2005 18:39 GMT
hi wes - overall rule of thumb on treatments,,,,,,

if still gland contained - remove by surgery
if has positive margins - either surgery or radiation.

as a rule, there is an order in the treatments.........

if you have surgery, and if you were to have recurrence of pca, then you
can have radiation for a second chance of a cure.

if you have radiation, and if you were to have recurrence of pca, then
you normally can not have surgery and would have to procedure to the
next step of treatment, which would be hormone therapy.

general comments.........

at age 37, given your gleason and stage, you might want to look at
surgery with nerve sparing.  gives the best of both worlds.  they got
the surgery down pretty pat and the results have been very good now.

by the same way, they are improving on the radiation treatments too.  

bottom line - what you feel comfortable with.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Stephen Jordan - 24 Jun 2005 19:35 GMT
On June 24, c palmer replied to Wes, in pertinent part:

> if you have surgery, and if you were to have recurrence of pca, then
>  you can have radiation for a second chance of a cure.

A second chance *if* the PCa is still confined to what's called the "bed."
IOW, if it's still localized. In the case of recurrence postulated by
Curtis, there is a good chance that the PCa is not localized but is
systemic. So radiotherapy, a local tx, is a gamble; it may not lead to a
cure.

But so is every other tx.

Just by way of complicating matters, though, IMRT can be used not only
to treat the prostate itself but also the seminal vesicles and pelvic lymph
nodes where PCa cells are most likely initially to take up residence
after escape from the capsule. How do I know? That's what was done in
the case of my salvage IMRT after failed cryosurgery.

Regards,

Steve J

"Facts are stubborn things; and whatever may be our wishes, our
inclination, or the dictates of our passions, they cannot alter the
state of facts and evidence."
 --John Adams
SY - 24 Jun 2005 18:55 GMT
>I'm planning to visit with or talk with doctors at the Medical
>University of South Carolina, Emory University Hospital, Johns Hopkins,
[quoted text clipped - 5 lines]
>Who are the experts that you, if you were 37 years old like me with a
>Gleason 6, T1c tumor, want to talk to or consider treating you?

If you choose surgery, then given your age and assuming that your
future sexual performance is important to you, I'd suggest either
Sloan-Kettering or Baylor Prostate Center.  At both places they do
(or, at least, used to) a simultaneous nerve transplant from the lower
leg to compensate for the nerves they sever during surgery.  It's not
a guarantee, but supposed to make at least some difference.
Sandy K. - 24 Jun 2005 20:07 GMT
> I'm planning to visit with or talk with doctors at the Medical
> University of South Carolina, Emory University Hospital, Johns Hopkins,
[quoted text clipped - 8 lines]
> Thanks again!
> Wes

At your age you will most likely be recommended to receive nerve sparing RP.
Also, if you haven't sired all the kids you've planned on, you probably want
to bank some of your sperm.

That said, I had Dr. Peter Scardino, the chief of urology at Memorial Sloane
Kettering Cancer Center in NYC do my surgery last year.  I was 47.  A year
later I'm doing quite well.  I highly recommend him.

Sandy K.
Steve Kramer - 24 Jun 2005 20:18 GMT
Wes,

If you're in the area, I wouls almost certainly look up Walsh.  He's the
king of surgeons, at least wherein name-recognition is concerned.  However,
there are many surgeons who have done nerve sparing operations since Walsh
perfected it.  And they are now all over the U.S.

Search for a surgeon who has done a lot of them and then find out from him
how many of them are still limp.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

> I'm planning to visit with or talk with doctors at the Medical
> University of South Carolina, Emory University Hospital, Johns Hopkins,
[quoted text clipped - 8 lines]
> Thanks again!
> Wes
MAJ - 24 Jun 2005 21:08 GMT
If you are planning to visit M.D. Anderson in Houston I would recommend that
you start with Dr. Richard J. Babaian in the Urology department.

> I'm planning to visit with or talk with doctors at the Medical
> University of South Carolina, Emory University Hospital, Johns Hopkins,
[quoted text clipped - 8 lines]
> Thanks again!
> Wes
Leonard Evens - 24 Jun 2005 21:28 GMT
> I'm planning to visit with or talk with doctors at the Medical
> University of South Carolina, Emory University Hospital, Johns Hopkins,
[quoted text clipped - 8 lines]
> Thanks again!
> Wes

At your age, the great majority of specialists would recommend surgery.
   Also, at your age, you stand an excellent chance of avoiding side
effects, but you should find the most skilled surgeon you can.  My guess
is that the very best surgeons would be interested because your case is
pretty exceptional.  Wlash at Hopkins, Scardino at Sloan Kettering, and
Catalona at Northwestern Memorial in chicago come to mind.

You shouls also discuss saving some sperm in case you want to father
children in the future.

Good luck.
pm4hire@gmail.com - 24 Jun 2005 21:42 GMT
At your age, and assuming that you're
in good health, the best path surgery,
PERIOD!

Surgery is the gold standard, so you'll still
have other options left if that does stop the
cancer.

I would go to  JH and forget the rest.  BTW,
Patrick Walsh specializes in younger men
like yourself, my doctor told me that!

Tom Welch, 60 years old
Surgery, followed by radiation
PSA less than 0.1
judamd@aol.com - 24 Jun 2005 22:09 GMT
Here is another reason why you have to be well informed.  When you ask
doctors about their success at maintaining erectile function and
continence be alert to the fact that many doctors count needing Viagra
as part of their success statistics.  Counting Viagra usage as part of
"normal erectile function sufficient for penetration" can increase a
doctor's stats well above a physician who only counts successes who
don't use Viagra.  Obviously, if Walsh specializes in younger men and
counts Viagra users (which he does), it's no wonder his success rate at
maintaining normal erectile function is as high as it is, somewhere
around 85%.  Be sure to ask the right questions to get good (useful)
answers.
Dave Perry
SY - 24 Jun 2005 22:24 GMT
Re: preserving erectile function.  Rahul Nash was the microsurgeon who
did my nerve graft at Baylor in October 2000.  At that time, he
claimed 145 cases, with 20-30 more every month.  His result to date,
according to the handout I kept: percentage of successful intercourse
with a unilateral graft, 75% (without, 20-40%), with bilateral grafts,
60% (without, 0%).  Obviously, this is with one or both original
nerves severed.
James A Honeychuck - 24 Jun 2005 22:50 GMT
> Here is another reason why you have to be well informed.  When you ask
> doctors about their success at maintaining erectile function and
[quoted text clipped - 3 lines]
> doctor's stats well above a physician who only counts successes who
> don't use Viagra.  Obviously, if Walsh specializes in younger men

Cite?

and
> counts Viagra users (which he does), it's no wonder his success rate at
> maintaining normal erectile function is as high as it is, somewhere
> around 85%.  Be sure to ask the right questions to get good (useful)
> answers.
> Dave Perry
judamd@aol.com - 25 Jun 2005 00:15 GMT
My inquiry into these statistics was initiated when my doctor in June,
2003 said Walsh gets good numbers but does so by including patients on
Viagra whereas many other doctors do not.  I had no confirmation of
this comment until an article came out in "Johns Hopkins - Advanced
Studies in Medicine" July/August 2003 which had an article entitled
"Issues in Prostate Cancer:  An Update and Review of Screening and
Treatment Options" by Drs. Karnath and Rodriguez in which they quote
Walsh as having 86% normal sexual function and another study which had
44% of men at 2 years with complete inability to obtain an erection.

I sent off a Letter to the Editor asking about the Walsh statistics and
if he did indeed include Viagra in his study.  My letter, much to my
surprise, was published in the November/December 2003 issue along with
the authors' response which conceded that the Walsh study included
Viagra and the other study was mostly pre-Viagra and did not include
any erectile enhancing drugs.

Dave Perry
judamd@aol.com - 24 Jun 2005 21:57 GMT
At your age surgery is probably the way to go and you have a few
options to choose from.  No matter what you pick, you will want the
most experienced person you can find to do the surgery and I would ask
each person you talk to the same questions so you can compare answers
and see what seems most favorable to you.  Be sure to ask about the
advantages/disadvantages of the most common forms of surgery.  These
are:

RRP - Retropubic Radical Prostatectomy, the gold standard.  It's what
all the long-standing surgical gurus perform.  As compared to the
laparoscopic approach, open surgery goes faster and the doctor can feel
things with his fingers.  However, there is usually more blood loss and
of course there is a large abdominal scar requiring a bit more recovery
time.
LRP - Laparascopic Radical Prostatectomy is fairly new ( last 7+ years
or so) but there are many surgeons who have performed hundreds of them
so finding an experienced surgeon should not be a problem.  A
disadvantage is it does take longer so more time under anesthesia.
Advantages include:  Your stomach is pumped full of gas so that the
increased pressure helps to close off blood vessels, hence less blood
loss.  The field of view is magnified about 15 times and projected onto
a TV monitor so the surgeon has a better view of things due to both
magnification and less blood sloshing around.
RLRP - Same as LRP except with the aid of a robotic device.  With LRP
the doctor is standing over the patient manipulating the tools by hand
while watching what's happening on a TV monitor placed a couple of feet
away.  With the RLRP, the doctor is sitting a few feet away
manipulating levers and wheels while looking at a monitor, and the
tools are operated indirectly through the robotic device.  One drawback
to the robot, it takes up to an hour to set it up while the patient is
under anesthesia so the patient is typically "under" that much longer
over standard LRP.

One word of caution that each of the doctors I consulted told me
independently - two at Stanford, two at Kaiser Permanente, and one
independent surgeon.  There are a few doctors out there who feel that
in order to promote their careers they have to advertise that they are
on the cutting edge of new technology and use the robot devices as
advertising ploys to attact business.  So, it is possible to get a
doctor who might have graduated at the bottom of his class yet has
plenty of experience with the robot.  This of course would be an
exception, but just be aware of the hype that's out there.  Also, if
you go the laparoscopic route, make sure the doctor also has performed
plenty of open surgeries just in case he has to open you up if
something goes wrong.  All that said, I went the non-robot laparoscopic
route with a doctor who had performed many hundreds of open surgeries,
40 RLRPs using a robot that a nearby medical facility had purchased and
another 125 LRPs.  He had long stopped using the robot because he felt
he could do the surgery better and faster without it.  That said, I am
two years out from surgery still wearing a pad/day and little Willie
stirring but not awake.  So, you take your chances no matter who/what
you go with.  I'm sure even Drs. Walsh/Catalona shudder at a few bad
outcomes and would love to do them over again.  So, once more, go with
the best and most experienced you can find because you want the stats
in your favor, and once it's done, never say "Gee, if only---".  All
three surgical methods have essentially the same outcome statistics
with regard to positive margins, recurrence, etc..  That makes the
choice of method tougher (gee, which one?) but also easier (it doesn't
make a whole lot of difference.)

Finally, if you are near or visit a medical center you might be able to
use their medical library.  If so, go to the urology section and read,
read, read.  The more informed you are, the better.

Dave Perry
I. P. Freely - 24 Jun 2005 23:26 GMT
Given that surgeons can tell a lot about a specific tissue's cancer
involvement by feeling it with educated fingers, I can't help but wonder if
that advantage is sacrificed to healing expediency with remote surgery,
whether lap or robotic.

I.P.
judamd@aol.com - 25 Jun 2005 00:34 GMT
I asked my surgeon about that and he said that most of the "feeling" is
done after the prostate is removed - at least that's what he does.
Apparently it is groped, squeezed, and examined in its entirety outside
the body to see if there is anything of significance at the margins.
If so, they dig a little deeper in that area just to be sure.  As for
the nerve sparing, it's apparently a wash - either you feel 'em and
can't see 'em or you see 'em and can't feel 'em.  The statistics show
virtually no difference among procedures with doctors of equivalent
experience and talent although a larger difference among doctors with
different levels of skill and experience.
Dave Perry
Stephen Jordan - 25 Jun 2005 04:55 GMT
> I'm planning to visit with or talk with doctors at the Medical
> University of South Carolina, Emory University Hospital, Johns
> Hopkins, and MD Anderson.  That, I know.

(snip)

I've been following this thread, and note that Wes is being practically
shoved in the direction of surgery by almost all of the folks who have
responded to him.

I'll say this: none, absolutely *none* of the people who recommend
surgery to Wes have the slightest idea of the details of his medical
history and might be influencing him to select a tx that is inappropriate
for him. This is dangerous. It reminds me of a fellow I've encountered
who operates a large PCa site on which he frequently gives medical advice,
which he is unqualified to do, and even runs an ersatz P2P service.

IOW, the folks I'm complaining about have little or no medical training,
same as me, and seem unaware that having had the surgery does not
make one an expert in the field of RP. No more than does having a baby
make a woman a qualified obstetrician. Nor does having had failed cryo
and salvage IMRT make me an expert in those fields.

We can certainly tell one another about our experiences and what, if
anything, we would do differently; and we can pass along information
we have garnered elsewhere. But that is as far as we should go.

I earnestly recommend that we here refrain from recommending anything
more to the new guys than that they study their disease and ask lots of
questions, and*only then* with the advice of their medic select the tx that
is best for them. The choice is theirs, and we can best serve their
interests
by pointing them in the direction of sources of information.

//Rant over. I will now tuck away my soapbox and scuttle for cover.....

Regards,

Steve J

"You must pay for conformity. All goes well as long as you run with
conformists. But you, who are honest men in other particulars, know
that there is alive somewhere a man whose honesty reaches to this
point also: that he shall not kneel to false gods, and, on the day when
you meet him, you sink into the class of counterfeits."
--Ralph Waldo Emerson
c palmer - 25 Jun 2005 10:02 GMT
I've been following this thread, and note that Wes is being practically
shoved in the direction of surgery by almost all of the folks who have
responded to him.
I'll say this: none, absolutely *none* of the people who recommend
surgery to Wes have the slightest idea of the details of his medical
history and might be influencing him to select a tx that is
inappropriate for him. This is dangerous. It reminds me of a fellow I've
encountered who operates a large PCa site on which he frequently gives
medical advice, which he is unqualified to do, and even runs an ersatz
P2P service.
=========

hi steve - if you notice in my post, the poster said, "if you were 37
years old like me with a Gleason 6, T1c tumor, want to talk to or
consider treating you? "

i responded by stating the true facts as i know them.  surgery is the
first line of defense...... normally......under these conditions.  

you are right in the fact that the poster may have health problems that
this may not be the best option, but that was not mentioned in the post.

nor has anyone mention cyrosurgery, and hi frequency treatment.  

i can only speak for myself and state that if a person who was under 40,
in good health, and no other medical problems, that surgery would
probably be his best option - logically.  

will it be the cure that we all hope for?  there are no guarantees in
life.  that is why i posted the response the way i did.  
even though i've had an RP doesn't mean that i was for it at the time.
in fact, i was going to have seeds, but logic won out - it my case and
because of the surgery, they found that i was in the process of having a
total urine shutdown because of a growth of the BPH tissue had folded
the bladder wall over and had almost closed of the output hole.  in
fact, the surgeon said that i would on that table within 6 months
because of what was going on.  but at the time i made my choice i didn't
know.  

bottom line, you research, research, research and then decided what the
best option that is right for you, then after you decide, never look
back and go for it. and remember each treatment is like a roll of the
dice.  not every roll is a winner.   that is my advice and i'm standing
by it.

~ curtis

knowledge is power - growing old is mandatory - growing wise is optional    
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
http://community.webtv.net/PALMER_ENT/doc
Ron B - 25 Jun 2005 18:34 GMT
You folks have been so helpful to ME, that I don't like to see any
bickering about posts regarding helping others.

All the advice is good and I'm sure that Wes will consider it as he
makes his choices.

A question...I didn't go back and look...but didn't Wes (and Wes...you
can answer here...I'm not trying to talk like you're not present  :-),
say that there was some family history or something that caused him to
have a biopsy with a usually-low-for-a-37 year-old .7 PSA?

Since the biopsy DID show cancer...a treatment method WILL be chosen.

Wes, nobody is pushing you, and everyone wants you to do as much
research as you can for the best outcome.

All signs say you're gonna do great!

Wishing you the smoothest of sailing,

Ron B.

Chicago
Bob r - 28 Jun 2005 01:06 GMT
Wes, Why search for a cure when perhaps no cure is necessary? Keep an
eye on your psa and go on with your life....if it should rise in 5 or 10
years then go ahead and make your choice...read everything you can and
you will be able to make your own decision, if one is ever needed...
       yours truly,
bob r

most men die with Pca not from it!!
Joe Price - 28 Jun 2005 06:07 GMT
Every 15 minutes an American man dies OF prostate cancer.  Every 2 hours a
Canadian man dies OF prostate cancer.

I'm sorry, I don't know the statistics for the rest of the world but I think
it is safe to extrapolate and say that every few minutes somewhere in the
world some man dies OF prostate cancer.

Yes, it is a fact that many more die WITH prostate cancer than OF it but the
number who are killed outright by this disease is not trivial and for those
many who die OF it, it is a lousy way to die.

I don't mean to jump on you and I don't mean to single you out.  I'm just
starting to feel like we are giving those who decide what illnesses are
worthy of spending research funds on a way to rationalise underfunding
prostate cancer research when we make it sound like this disease is more a
nuisance than a serious killer.

I'll get off my soapbox now.

JP

> most men die with Pca not from it!!
Stephen Jordan - 25 Jun 2005 19:52 GMT
At an ungodly hour on June 25, Curtis Palmer replied in pertinent part
to me:

(ka-snip)

> bottom line, you research, research, research and then decided what
> the best option that is right for you, then after you decide, never
> look back and go for it. and remember each treatment is like a roll
> of the dice.  not every roll is a winner.   that is my advice and i'm
>  standing by it.

My post was not directed at Curtis, nor anyone else individually. Only
at the atmosphere being created that surgery is the best choice. My
point is that it may be and it may not. There are ways to gather
information that will aid in the selection of the tx. These include the
research that both Curtis and I advocate. And research includes staging
tests, of which there are many (all too infrequently used) which can
prevent going blindly into a tx regimen that might not be appropriate.

And for Ron's edification, my training and inclination, when posting to
a NG,  is to use the third-person parliamentary form of address, directing
my remarks to the group. If I want to use the second-person form, I go
to e-mail.

I have in my checkered past been referred to (in both second- and
third-person forms) as "Stuffy Steve." I just live with it :-)

Regards,

Steve J

"It is not the critic who counts: not the man who points out how the
strong man stumbles or where the doer of deeds could have done better.
The credit belongs to the man who is actually in the arena, whose face
is marred by dust and sweat and blood, who strives valiantly, who errs
and comes up short again and again, because there is no effort without
error or shortcoming, but who knows the great enthusiasms, the great
devotions, who spends himself for a worthy cause; who, at the best,
knows, in the end, the triumph of high achievement, and who, at the
worst, if he fails, at least he fails while daring greatly, so that his
place shall never be with those cold and timid souls who knew neither
victory nor defeat."
--Theodore Roosevelt
"Citizenship in a Republic,"
Speech at the Sorbonne, Paris, April 23, 1910
Ron B - 26 Jun 2005 00:20 GMT
Steve J. wrote:

"third-person parliamentary form of address, directing my remarks to the
group. If I want to use the second-person form, I go to e-mail.

I have in my checkered past been referred to (in both second- and
third-person forms) as "Stuffy Steve." I just live with it :-)"

You're a great helpful guy Steve...not stuffy...and I doubt you have a
checkered past. :-)

But the different parts of speech had me reaching for E.B. White's

"The Elements of Style" until I realized that I never even HAD that
book.

I guess nobody's plu-perfect. :-)

Be well all,

Ron B.
USC Gamecock - 26 Jun 2005 01:10 GMT
I don't take this as bickering, I appreciate ALL of the different
perspectives here.  I just want to gather as much info, hear as many
different opinions as I can to help in my decision-making process.

I do have a family history of CaP -- my Dad (age 54 when diagnosed),
his 3 brothers, and his Dad (my grandfather).  Even then, I haven't
been getting a DRE or PSA each year...just feel like the Lord pushed me
in that direction 3 weeks ago.  That may not be a popular thing to say
here, but I have a group of fervent prayer partners that are active as
we seek wisdom to make this huge decision for Tx.

I've heard Baylor Prostate Center, Mem Sloan-Kettering, and Walsh at
JH.  Any other RP surgeons or centers I should check out?  What about
IMRT?  My Dad had radiation 15 years ago at MD Anderson...I'm thinking
about calling his doctor there (Swanson).

thanks!

> Steve J. wrote:
>
[quoted text clipped - 17 lines]
>
> Ron B.
Steve U - 26 Jun 2005 11:43 GMT
USC Gamecock,
Staying local with Dr.Joseph Wagner at Hartford Hospital in Connecticut
worked well for me. He does Lap RP using the DaVinci Robotic system.
Among the things that impressed me about Dr.Wagner were:
1.)He has kept a database of survey results about how all his patients
have done. Every visit includes a written survey about relevant quality
of life issues.
2.)At the initial consultation he gives out a list of patients who said
they are willing to talk about their experience. Any patient who is
willing is eligable. He doesn't limit it to guys with good results. I
called about 15 guys. They all liked him, and said they would chose him
again. Now I'm on the list. I'm almost 14 months post op, and very
pleased with my results and with him. That part had more credibility
with me than physician's touting their success.
3.) Relatively large series of cases using DaVinci. He was a pioneer
starting this technology at Beth Isreal in NYC.
4.) I like him. He gets back to me promptly with answers and advice.

My PCa stuff is:
age 50 PSA 4.5
Bx showed High Grade PIN
5 months later PSA 5.6
repeat Bx 1/12 cores <1mm gleason 3+3=6 stage T1c
RLRP 2-11-04 at age 50
Favorable path, 5 small foci of 3+3, organ contained
Post op PCAs  <0.1

I was able to go home 20 hours later, and back to work day 6. I never
leak, and I've gotten most of my erection back.
Good luck.
Steve U
Beverley - 27 Jun 2005 13:29 GMT
Based on age I think you are probably looking at surgery but if you want one
of the top radiation oncologists then consider Michael Hagan. He's at the
Massey Cancer Center, Medical College of Virginia, Richmond Virginia. He is
also at the McGuire VA Hospital in Richmond. He's a straight shooter and
he'll tell you flat out if he can help you. Email me and I'll give you his
email addy and phone number and some other details.
Bev

> I don't take this as bickering, I appreciate ALL of the different
> perspectives here.  I just want to gather as much info, hear as many
[quoted text clipped - 35 lines]
> >
> > Ron B.
Glassman - 27 Jun 2005 20:38 GMT
 I think that most of the searching for the perfect resource for treatment
is nothing more than busy work. Of course I didn't ewant to hear this when
it was my turn to decide. There are thousands of wonderfully skilled
surgeons out there that can all produce the exact same results. Maybe the
dropoff from the top 5% to the worst 5% would be somewhat different, but I
doubt it. Will he be drunk or shaky that day? As crazy as that sounds, what
else is there to consider? The top guys have done hundreds of these RP's a
year with mostly the same results. If you're a 6 and it's contained, and
you're fairly young, you can count on being dead of something other than PCa
when you die. You will have a few months of incontinence, and will work for
a few years to overcome ED effectively with the help of Viagra. This is the
case for most of us. It may make more sense to find a great hospital that
will be competent in your comfort as well.  As I said, when I met my
superstar surgeon I knew instantly that he was the one I would be
comfortable in turning all the decision making over to.

Signature

JK Sinrod
Sinrod Stained Glass Studios
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

Alan Meyer - 28 Jun 2005 17:47 GMT
> ...
> I've heard Baylor Prostate Center, Mem Sloan-Kettering, and Walsh at
> JH.  Any other RP surgeons or centers I should check out?

There must be hundreds of excellent surgeons in the country,
but you really only need one.  If you find one with a good
reputation, lots of experience, and you "click" with him (your
intuition about him is that he cares about curing you), then
I would think you can stop looking.  It would be better to
invest your time in getting ready for the surgery and the
aftermath than in finding yet more good surgeons.

> What about
> IMRT?  My Dad had radiation 15 years ago at MD Anderson...I'm thinking
> about calling his doctor there (Swanson).

The consensus here, and in most of the medical community, seems
to be that younger men, and you are as young as I've heard of
with prostate cancer, should have surgery.  The theory is that
if the cancer is organ contained, and the entire organ is
removed, then there is no possibility of recurrence no matter
how many years go by.  If the surgeon gets it all (not all
surgeons do get it all, but the really good ones probably do),
then there is no more prostate tissue to ever become
cancerous.

Having said that, I'll also say that I chose radiation myself
at age 57.  I picked it because I believed the statistics that
said the outcomes are the same as for surgery, and thought that
the side effects would be less.  It sounds like your father has
done well with radiation too.

I don't want to recommend radiation.  As I said, the consensus
is that surgery is preferred for men your age.  However you might
wish to consult with a radiation oncologist as well as a surgeon.
He or she might tell you to have surgery, or might explain the
radiation options.

Best of luck.

   Alan
Stephen Jordan - 26 Jun 2005 01:33 GMT
On June 25, Ron B replied to me:

(su-nip what I think are kind comments)

> But the different parts of speech had me reaching for E.B. White's
> "The Elements of Style" until I realized that I never even HAD that
> book.
>
> I guess nobody's plu-perfect. :-)

Hee hee, well done.

Regards,

Steve J

"When I play with my cat, who knows whether she isn't amusing herself
with me more than I am with her?"
--Montaigne

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