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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2005

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Night pain in leg/s post EBRT

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Clarence Crow - 23 Jun 2005 11:54 GMT
I'm back as myself again :-(
The workplace banned me from using the net (again) as Arch Villain.

However, apart from urinary frequency of 1.5 to 2.0 hrs apart at
night, I now have pains in my L knee and up to the hip at 6 wks post
EBRT. (I'm also still on ADT Lucrin 3mthly injections till the end of
the year.)
The only relief is to get out of bed about 01:00 hrs and stay up.
Urinating again sometimes helps plus a couple of Aspirin. The pain
seems to disperse after that and it then recurs the following night.
The sleep deprivation is a real PITA!

Has anyone in the group experienced these Symptoms?
Maybe I have some form of Prostatitis developed?

I'll be seeing my GP (PCP) come Monday and be putting it to him, plus
the Uro at the end of the month, for a setup run-thru for the HDRB.

I still have an enlarged Prostate (65cc) after 7 mths of treatment. It
was 55cc prior to treatment. [supposed to shrink???]
This is possibly still big from the BPH and TURP I had 17 yrs ago.
Maybe the Uro will suggest another TURP?

Otherwise, I'm PSA <0.1 lately (due to the ADT.)

Partly Pissed

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-- CC
Alan Meyer - 24 Jun 2005 03:25 GMT
> ...
> However, apart from urinary frequency of 1.5 to 2.0 hrs apart at
> night, I now have pains in my L knee and up to the hip at 6 wks post
> EBRT. (I'm also still on ADT Lucrin 3mthly injections till the end of
> the year.)
> ...

I did not experience any knee pain.

I and others (e.g., Stavros) have experienced joint pain in the
fingers that I attribute to the ADT.  Joint pain is a known
side effect of ADT, but I don't know which joints are likely
to be involved.

The solution to my finger pain was very frequent (many times
per day) exercises to keep the muscles strong and the joints
flexible.  A year and a half after ADT I'm still doing the
exercises and still keeping the fingers in good shape.

I'm guessing that, because only one joint is affected, it's
not caused by your treatment.  But who knows?

You might try frequent exercise, trying for both strength and
flexibility, but being careful not to overdo anything.  This
might be helpful if the cause is something other than the drugs
too.  However if the exercise makes things worse, back off.

It might not help, but it might be worth trying.

As for the frequent urination, that may take 3-6 months after
the end of radiation to subside.  I started to get significantly
better around 3 months after.  By six months I was pretty much
back to normal.

   Alan
kh - 24 Jun 2005 11:05 GMT
> I did not experience any knee pain.
>
[quoted text clipped - 24 lines]
>
>     Alan

Ditto here.  

About 4, 5, 6th month on Lupron, I noticed a pain in my toes, mostly
the left foot that was like a skewer going in.   I had some finger
joint pain too but not as bad as my feet.  

I've tried flexing and stamping my feet.  That helps a little.  Even
now, 5 months after my last declined Lupron shot, I still have toe
pains on occasion but not as bad as before.

Exactly like you on the urination.  1-2 hours between "going" at the
1 month point, weak stream, stream-of-fire, low volume, but
improving each month. I'm 9 months post seeding and I can drink a 32
ounce glass of water then sleep for 8 hours.

I can't "go" quite as hard as before. The burning is gone but there
is still some "stinging".  All in all, I'm OK on the starting and
stopping.


Clarence Crow - 25 Jun 2005 00:25 GMT
>> ...
>> However, apart from urinary frequency of 1.5 to 2.0 hrs apart at
>> night, I now have pains in my L knee and up to the hip at 6 wks post
>> EBRT. (I'm also still on ADT Lucrin 3mthly injections till the end of
>> the year.)
>> ...

<snip>

>You might try frequent exercise, trying for both strength and
>flexibility, but being careful not to overdo anything.  This
>might be helpful if the cause is something other than the drugs
>too.  However if the exercise makes things worse, back off.

Alan
If you saw me, you wouldn't suggest that. I'm not an Olympic athlete
on Steroids, but a crippled old man just 1/2 a spoke away from a
wheelchair.
I have chronic Osteo-Arthritis (OA) to both feet, ankles and legs.
I also suffer from Peripheral Neuropathy in both feet and ankles as a
spin-off from Diabetes type II (NIDDM).

The EXTRA pain I mentioned in the post above runs all up the Left leg,
and has only surfaced since I completed the Radiation, which also
caused Lymphedema in both feet and ankles, during the last sessions of
Rad and up until a week ago.


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Alan Meyer - 27 Jun 2005 02:34 GMT
> <snip>
>>You might try frequent exercise, trying for both strength and
[quoted text clipped - 14 lines]
> caused Lymphedema in both feet and ankles, during the last sessions of
> Rad and up until a week ago.

I know that exercise seems out of the question to a guy with
chronic arthritis, but there is a lot of evidence that it helps.

One thing that has helped some sufferers is to get in the water.
I read a book by a woman who was truly crippled and in a wheelchair.
She couldn't move her head without pain.  She couldn't walk.  She
was in terrible shape.

Her doctor got her to go to a pool where she was helped in to the
water - just to be able to move her joints in a place where there was
no gravity bearing everything down.

She moved more and more.  She wasn't doing any strength exercises,
just flexibility, using the water to support her weight.  Eventually she
was actually able to swim and still later to walk.  Thinking she was
over the arthritis she stopped swimming and all the pain came back
within a few weeks.  So she resumed swimming, spending 1-2
hours every day in the pool.

She never became an athlete.  She was never able to lift heavy weights
or do athletic things.  But she did regain her mobility and greatly reduce
her pain.

Check with others that have tried this.  It might do you more good than
you would imagine, and a lot more good than pain killers and
anti-inflammatories.

Best of luck.

   Alan
 
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