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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2003

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Still sore, my bottom, not about the spam

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David S. - 21 Sep 2003 02:02 GMT
   I still have the discomfort in the peritoneum.  No improvement in the
incontinence.  Today I worked around the house and yard and felt myself
leaking all day long.  I also have some soreness in the urinary tract.
Between the soreness in my bottom and the discomfort in the urethra I am
starting to lose patience.  I have had a hard time at work due to being
tired.  After the RRP one, or more, of you told me that it would take
several months to get back to normal.  I believe that now.
   It hurts to sit at the computer.  Going to sit in a different chair and
channel surf.  Not that I expect to find anything worth watching out there.
   Thanks for the virtual shoulder.
David S.

P.S.  Just so you know that I do have some optimism, yesterday I ordered
more Viagra.  When I pick that up tomorrow (forgot today) I will get a pill
cutter and "therapy" will commence.  I will report the results, but do not
hold your breath.  That stuff did not do the trick pre RRP, so it is a
longshot for it to help now.
MH - 21 Sep 2003 04:07 GMT
Hi, David...
Might be good to give that doc a call on Monday... get him to check you.
I know we can all react a bit differently, but I didn't have the soreness
you describe in the perineum.  I'd just want the doctor to take a look-see
to be sure there was no infection there.  Perhaps some anti-inflammatories
would help?

Take care....
MikeH

>     I still have the discomfort in the peritoneum.  No improvement in the
> incontinence.  Today I worked around the house and yard and felt myself
[quoted text clipped - 13 lines]
> hold your breath.  That stuff did not do the trick pre RRP, so it is a
> longshot for it to help now.
David S. - 21 Sep 2003 08:00 GMT
Mike:
   Yes, the ibuprofen definitely helps.  I had Vioxx for pain when they
discharged me from the hospital, but it did not help at all.  When I stopped
that and started taking the regular ibuprofen it helped right away.  I take
3 at a time.
   Thank you.
David

> Hi, David...
> Might be good to give that doc a call on Monday... get him to check you.
[quoted text clipped - 26 lines]
> > hold your breath.  That stuff did not do the trick pre RRP, so it is a
> > longshot for it to help now.
Steve M. - 21 Sep 2003 13:41 GMT
David,
  Sorry about your continued discomfort in the peritoneum and the
urethra and the need to take the three ibuprofen regularly at this
time. I definitely agree with Mike that it is time to get the doctor
to check you. It is not particularly unusual to get a urinary
infection. We are all different and this may be normal for you in the
healing process. I have not experienced the pain you are discussing
and have not required pain medication. At times there is dicomfort
when I over do the Kegels on a particular day. Over doing also impacts
my urinary control late in the day.
  Hope you find the Viagra helpful. I still haven't started it. I
have contacted the doctor's office to see what is the delay. I suspect
the insurance is delaying the preapproval. To heck with the insurance,
I am ready to get on with it.

Steve M  


> Mike:
>     Yes, the ibuprofen definitely helps.  I had Vioxx for pain when they
[quoted text clipped - 36 lines]
> > > hold your breath.  That stuff did not do the trick pre RRP, so it is a
> > > longshot for it to help now.
jk - 21 Sep 2003 04:26 GMT
>     I still have the discomfort in the peritoneum.  No improvement in the
> incontinence.  Today I worked around the house and yard and felt myself
[quoted text clipped - 13 lines]
> hold your breath.  That stuff did not do the trick pre RRP, so it is a
> longshot for it to help now.

  Having gone through it, here's my take. Seems to me you fell much better
the first few days to a week. Then the various nerves start to "wake up" and
you feel sore in new places everyday for awhile till it all wakes up and
calms down. I ate raisins everyday, and drank lots of water. You need to
rest more, and increase as you fell up to it. By the end of the day you get
leakier, due to tiring of the muscles. Hang in there, it gets better, and
the cancer is gone!

Signature

JK Sinrod NY
Sinrod Stained Glass
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

David S. - 21 Sep 2003 08:07 GMT
JK:
   I guess it is like the bladder spasms.  Going in to the surgery that was
the thing I was most worried about.  Then never had one.  Here, the pain in
the bottom, most guys did not have that, and surely not as long as me.
   To be real honest, after calling the doctor's office twice on this
subject, and receiving the response "the doctor is not worried about it", I
guess I have no choice but to try to hang tough.  I do, however, understand
why "he" is not worried about it.
   Today was just a bad day because I was active and felt the urine coming
out all the time.  Tonight I had an accident for the second time where I did
not change the pad soon enough and ended up with wet pants and a wet seat
cushion.  Soreness in the peritoneum and incontinence at the same time is no
fun for sure.
   Now if I could just sleep at night.
   Thank you.
David S.

>    Having gone through it, here's my take. Seems to me you fell much better
> the first few days to a week. Then the various nerves start to "wake up" and
[quoted text clipped - 3 lines]
> leakier, due to tiring of the muscles. Hang in there, it gets better, and
> the cancer is gone!
Dale J. - 21 Sep 2003 09:50 GMT
>     I still have the discomfort in the peritoneum.  No improvement in the
> incontinence.  Today I worked around the house and yard and felt myself
[quoted text clipped - 13 lines]
> hold your breath.  That stuff did not do the trick pre RRP, so it is a
> longshot for it to help now.

David,

Based on my small experience I would have thought you'd be getting a
tiny bit better every few days.  I'd call your doctor, perhaps you have
a bladder infection.  They will have you come in for a urine sample.  I
would call tommorw and get it checked out.

Dale J.

Signature


David S. - 21 Sep 2003 12:37 GMT
Dale:
   The last time I was ready to call the pain went away for two days, then
came back one day at work in the afternoon.  I will call tomorrow, but when
I did before they just told me that it was normal and that it would take
care of itself.  The discomfort is nothing like what it was in weeks two and
three post op, and back then it involved the testicles too.  That stopped
before I returned to work after Labor Day.
   On the bladder infection, wouldn't there be other symptoms?  I do not
have pain urinating, although I do have a soreness that feels like it is in
the urinary tract, there is no blood, etc.  I will call again this week and
we will see.
   Thank you.
David S.

> >     I still have the discomfort in the peritoneum.  No improvement in the
> > incontinence.  Today I worked around the house and yard and felt myself
[quoted text clipped - 22 lines]
>
> Dale J.
Dale J. - 21 Sep 2003 15:29 GMT
After the cath was out plus a couple weeks I had concerns that I might
have an infection as I had the drips and was getting impatient so I  
called the office they said to come in and get it checked which I did.  
Turned out that I did not have anything, so they gave me a talk about
not using caffeen products and to be patient ect ect, but the point is
they did not hesitate to have me in to get it checked.

I think one of the symptoms of bladder infection is leaking.  There may
be others too.  It's a fairly common problem.  My mother, who is 87 is
just getting over a bladder infection.  I think she was running a low
grade fever as well.  Treatment is antibiotics.

Dale J.

> Dale:
>     The last time I was ready to call the pain went away for two days, then
[quoted text clipped - 41 lines]
> >
> > Dale J.

Signature


chuck@nopain.com - 21 Sep 2003 14:32 GMT
Hi David: The pain does go away.  I had the same issues.  Coudn't sit,
pain always there.  I thought that it would never go away and one day
I woke up and it was gone.  I have just come off a 3,000 mile trip
which is five months postop with no problems related to surgery.  No
pee problem, no pain.  It will get better.

Chuck H.
David S. - 21 Sep 2003 14:55 GMT
Chuck:
   Thank you for the encouraging words.  Hardly anyone else has had this
problem, so I have been wondering if I just had hemorrhoids, could my
constipation be causing the discomfort, or - did they leave something in
there that shouldn't have been!  Hard to be fully rational when one's rectum
hurts all the time.
   Thank you again.  By the way, I hope your 3,000 mile trip was for
enjoyment and that you had a good time.
David S.

> Hi David: The pain does go away.  I had the same issues.  Coudn't sit,
> pain always there.  I thought that it would never go away and one day
[quoted text clipped - 3 lines]
>
> Chuck H.
chuck@dump.com - 21 Sep 2003 18:23 GMT
Hi David.  One of the reasons for the pain is possibly because the
prostate resides right in front of the rectum.  That's why when you
have a biopsy, the needle is directed through the rectum into the
prostate. So the wall of the rectum having been irritated and inflamed
by the needle will also be subject to a lot of pushing and shoving
when the surgeon is removing the prostate.  I think that between the
biopsy and the surgical procedure itself a lot of tissues become very
painful following the procedure.  Constipation is a common
postoperative complication which is the reason for the stool softener.
It is important not to strain when having a BM as this further
irritates tiissues and you don't want to pop any clips by straining.
So with stool softeners and lots of water you might avoid this issue.
No matter what though some degree of constipation may very well occur
and again as in many postoperative issues, it will disappear in time.

Chuck H.
BillyBob@nowhere.com - 24 Sep 2003 19:36 GMT
Dave,

The anesthesias causes the natural parastology contractions to cease
during and after your surgery. My doctor had me on a stool softener,
Ducolax - available over the counter - for almost a month until things
got moving again. In some people, especially older persons, the
anesthesia takes a while to work it's way out of your system and at
LEAST 6 months to get out of the fat calls in your brain.

Jim

>Chuck:
>    Thank you for the encouraging words.  Hardly anyone else has had this
[quoted text clipped - 13 lines]
>>
>> Chuck H.

Jim (AKA BillyBob, but only to newsgroups!)  
jjoy_DONT_USE_THIS_PART@austin_DONT_USE_THIS_PART.rr.com

Pre-op. PSA: 5.1 11-2000. Age 56
Biopsy 1-3-2001: 3+3=6, only 10% difused cells, left side only
RRP: 3-12-01, 20%  difused cells, 20% capsular penetration, neg lymph & Sem. ves.
Erection - 6 weeks and earier; 6wk; first decent one
PSA's - .5,1.1,.5,.3,.4,.7,.7,.7,.6,.7,.7.,.9
NO ONE, not even my med school Pathology Prof. Step-Sister
EVER said "radiation" - "Wait until it gets to 2.0, i.e. serious."
(Last - Quote of urologist who did RRP!)

Can't beat that deal at ANY price! AND I have a 30 year old car with only
26,000 miles on it that a little old lady only used to drive to church on
Sundays. Want to buy that as well?


Steve Kramer - 29 Sep 2003 07:25 GMT
Hate to ruin for anyone, but my Dad had to sit on a donut the rest of his
life.

Signature

Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HT 07/21&09/04/2003 @ 48

> Hi David: The pain does go away.  I had the same issues.  Coudn't sit,
> pain always there.  I thought that it would never go away and one day
[quoted text clipped - 3 lines]
>
> Chuck H.
David S. - 23 Sep 2003 01:25 GMT
   Called the doctor's office today and got the same message back as
before.  Do not worry, the discomfort is normal, take nothing stronger than
ibuprofen for the pain (what would I take that is stronger?), and use the
donut cushion.
   At least it is busy at work so it takes my mind off of it.
   Thank you.
David S.

>     I still have the discomfort in the peritoneum.  No improvement in the
> incontinence.  Today I worked around the house and yard and felt myself
[quoted text clipped - 13 lines]
> hold your breath.  That stuff did not do the trick pre RRP, so it is a
> longshot for it to help now.
Dale J. - 23 Sep 2003 08:08 GMT
>     Called the doctor's office today and got the same message back as
> before.  Do not worry, the discomfort is normal, take nothing stronger than
[quoted text clipped - 24 lines]
> > hold your breath.  That stuff did not do the trick pre RRP, so it is a
> > longshot for it to help now.

Hello David,

How long has it been now from your operation?  

Ibuprofen is my favorite because I can take them every three or four
hours and they worked much better for the paracardites I had some time
ago.  The product Aleive is slightly better, but you can take it only
like twice a day.  It too is a anti-inflamitory over the counter, the
doctors can prescribe a stronger version though, I have some of those
left.  I guess what the doc is saying not enough time has passed yet,
but mine had me come right in when I expressed concerns about infection.

I'm up again early this morning, too much on my mind I guess.

Dale J.

Signature


David S. - 23 Sep 2003 11:50 GMT
Dale:
   My surgery was August 1st this year.  The catheter was removed on August
21st.
   At least the ibuprofen does work, but I hate taking medication all the
time.  In the past I read that the ibuprofen can cause kidney problems if
taken too long, so I am a little afraid of it.
   Thank you.  Off to work now.
David S.

> >     Called the doctor's office today and got the same message back as
> > before.  Do not worry, the discomfort is normal, take nothing stronger than
[quoted text clipped - 40 lines]
>
> Dale J.
Dale J. - 23 Sep 2003 19:21 GMT
At 34 days from the cath out I would say based on my own time that it's
still early to call general quarters.  Let's be optimistic and say you
will be improved big time one month from now.  As for the ibu, I took it
every  three hours for days when I had the paracarditis and other stuff
for weeks including prednisone, (spelling NG).  I don't know if
everybody is at risk with it.

Dale J.

> Dale:
>     My surgery was August 1st this year.  The catheter was removed on August
[quoted text clipped - 58 lines]
> >
> > Dale J.

Signature


Heather - 24 Sep 2003 03:24 GMT
Hi Dale.......

Ibuprofen and aspirin can affect the kidneys over a long period of time
with continual use........tylenol (acetaminaphen) can affect the liver.
But you would have to be taking them a lot longer than you guys are.

My mother took Anacin way too much and after she died from pancreatic
cancer, they told us that there were holes in her stomach from it.

So even the most innocuous over the counter meds have their own set of
problems......best to check with your pharmacist on combinations and OTC
drugs.

Best.....Heather

> At 34 days from the cath out I would say based on my own time that it's
> still early to call general quarters.  Let's be optimistic and say you
[quoted text clipped - 67 lines]
> > >
> > > Dale J.
Dale J. - 24 Sep 2003 09:44 GMT
In article
<sf7cb.35677$Lnr1.32488@news01.bloor.is.net.cable.rogers.com>,

> Hi Dale.......
>
[quoted text clipped - 10 lines]
>
> Best.....Heather

As recommended by my GP I take one 325 mg asprin everyday, so far so
good, but yes over doing it is not good either.  The ibuprofin I rairly
take except for that 3  month battle with paracardites which I think was
worse than the pca.  Anyway I'm over that.

Dale J.

> > At 34 days from the cath out I would say based on my own time that
> it's
[quoted text clipped - 95 lines]
> > > >
> > > > Dale J.

Signature


Steve Kramer - 29 Sep 2003 07:23 GMT
Just keep your guard up.  Eventually, you will begin to feel like it's never
coming back.  Get through that phobia as fast as possible.

Signature

Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .3  .4  .8
EBRT 05-07/2002 @ 47
PSA  .3 .2  .2  .2 .3
Erection 05/12/2003 @ 48
HT 07/21&09/04/2003 @ 48

>     I still have the discomfort in the peritoneum.  No improvement in the
> incontinence.  Today I worked around the house and yard and felt myself
[quoted text clipped - 13 lines]
> hold your breath.  That stuff did not do the trick pre RRP, so it is a
> longshot for it to help now.
 
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