Hello,
I have been lurking, reading the newsgroup for a few weeks and I have
decided to begin to post. I have been active, on and off in various
newsgroups since 1994, initially in alt.support.depression and most
recently in rec.sport.soccer.
My name is Chris Merrow, I live in West Hartford Ct. and I was
diagnosed with PC in March. I don¹t hesitate in saying who I am
because its all accessible via ISPO¹s and such to anyone who wants to
find out.
My particulars are as follows
3/04 PSA 3.0
3/05 PSA 5.0
3/05 Biopsy 2 of 8 cores positive
Gleason 7 (4+3)
Staging T1C
4/6/05 RP Hartford Hospital, Hartford Conn
4/14/05 Path results-Organ confined, negative margins (1/4 of one nerve
removed)
I am 53 years old, retired and a semi-professional athlete. I have
ranked in the USTA¹s top 10 in senior tennis in New England for the
past 6 years. I say this because I was in great shape going into
surgery which I feel helped significantly in my recovery.
My career was in public service. My last job was as Executive Director
of the Greater Hartford HIV Planning Council-which controlled the bulk
of HIV funding and programs in Connecticut. This is relevant because I
bring considerable understanding of the vagaries of the medical system
to the table-the jargon, obfuscation, the politics of scarce resources
and managed care, as well as clinical trials and the realities of
living with a life threatening illness. I never thought I would be
applying these skills to myself.
About my PC and choices. I had open surgery rather that robotic
because during my workups my doctor found two hernias, which were
repaired at the same time as my RP. It would have been difficult to do
so after the fact. Without the hernias I would have chosen robotic
I had a couple of noteworthy complications that I haven¹t seen
mentioned here. I developed a blood clot in my leg-which is more of a
life threatening situation than the surgery or PC and I developed
gaseous colonic edema which blew me up like a pregnant whale and kept
me in the hospital for 4 additional days glued to the morphine drip.
Regarding the former I can¹t stress enough the importance of reporting
any leg pain to your doctor after surgery. I didn¹t, I thought it was
a pulled muscle from cramping up, and I almost paid dearly.
The blood clot has now resolved. Otherwise I have been lucky or
blessed or both. I was 98% continent from the time the catheter was
removed (after 8 days), leaking for a while only when I passed gas.
After an additional 2 weeks that too has resolved and I have not needed
or used pads for the last 3 weeks. I experienced my first erection
about 4 weeks after surgery and my first post RP orgasm a week after
that. (a question about this later). I regard this as nearly
miraculous and testimony to my surgeon's great skill. (Dr. Vincent
Laudone-Hartford Hospital who was overwhelming the most recommended
surgeon in central Conn. by other doctors for what its worth)
I almost regret sharing my good fortune with the surgery because I have
read the stories of some of you who haven¹t been as lucky. But then
again I did have a Gleason 7 and my first post RP PSA test is coming up
in a couple of weeks and I am scared as hell knowing I am far from
being out of the woods.
I have a couple of questions for the group which I will ask under
separate headings.
I hope I am able to make a meaningful contribution to the group.
Chris M
James A Honeychuck - 23 May 2005 18:52 GMT
Welcome Chris. Thanks for the thorough report. Another dangerous case
caught and cured early.
jimhoney
standard RRP age 52, cured, no significant aftereffects
ron - 23 May 2005 19:23 GMT
Hi Chris...Thanks for telling your story. Welcome to the club, someone
will get a hold of you in a few weeks and show you the secret
handshake...Best wishes and good health, Ron
Steve U - 23 May 2005 23:35 GMT
Chis M,
Sounds like you are doing great. I'm also a Hartford Hospital case, but
I went for the robot with Dr.Wagner, with excellent results. Local docs
also think very highly of him. I was 50 when I got the bad news. We are
fortunate to have such good care close to home.
Steve U
chris m - 24 May 2005 13:22 GMT
> Chis M,
> Sounds like you are doing great. I'm also a Hartford Hospital case, but
> I went for the robot with Dr.Wagner, with excellent results. Local docs
> also think very highly of him. I was 50 when I got the bad news. We are
> fortunate to have such good care close to home.
> Steve U
hi steve,
Small world. Going for the robot with Dr. Wagner was my first
choice but I couldn't do the robot. He is very highly thought of, as
I understand it, the hospital had to spend a lot of money to get him
away from Sloan-Kettering.
chris m
Steve U - 24 May 2005 17:15 GMT
Chris M,
Dr.Wagner was recruited from Beth Isreal, where he was the head of
uro-oncology. Dr.Laudone did a fellowship at Sloan. There is an odd
symmetry here, in that Dr.Laudone was my first choice if I was going to
have the open procedure. It was a tough choice, because Dr.Laudone had
a very long local track record doing them. Dr.Wagner had a relatively
large series in NY, but was new to this area. Hartford Hospital had
their first RLRP in Dec 2003, the same month I got the bad news. I was
seduced by the technology, and the hope that I could get the same good
results with less misery. I think there is less pain and suffering. I
could have gone home the same day as the operation. No pain meds at
all! I was driving by day 4 and ready to go back to work day 5. I have
heard that hernia surgery is bad enough on its own. If I were in your
situation I would have had everything at once, same as you did.
Steve U
MH - 24 May 2005 01:16 GMT
Welcome to the club, Chris. From your story, it sounds as if you meet the
criteria for membership. :(
Butit sounds as if you are doing great! Glad to have you amongst us and
hope that you will find your time here useful and productive, both in the
receiving and in the giving!
Take care!
MikeH
> Hello,
>
[quoted text clipped - 70 lines]
>
> Chris M
Steve Kramer - 24 May 2005 21:34 GMT
Welcome to the group, Chris. It's a damned shame that you were in such good
shape and then get stuck with a serious disease, but you have every reason
to believe in your chances for full recovery.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA .07 .05 .06 .05
non Illegitimi carborundum
> Hello,
>
[quoted text clipped - 70 lines]
>
> Chris M