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Medical Forum / Diseases and Disorders / Prostate Cancer / May 2005

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Catheter out today, but ---

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PeteBos - 17 May 2005 21:04 GMT
My catheter was removed today following RRP on May 5th. Also got my
pathology report and all is well. Doc believes the cancer was all
contained within the prostate gland. I will be getting a PSA test soon
to make sure.

Before removing the catheter doc filled my bladder with water. He then
removed the catheter and asked me to hold the water in. To my amazement
I was able to. He then asked me to pee in a jug and I could release it
and pee!!! I thought I was home free!

However, after leaving his office I now find that I dribble. The
holding a full bladder trick is good if you can get a full bladder, but
I can't. As soon as I get any small amount of urine in my bladder, it
drips out. I'm filling up depends and can't stop it.

Have any others who have been down this path had this experience? Any
advice on how to stop this dripping? I know it takes time but any
advice on how to accelerate things is appreciated.

Pete
OCL - 17 May 2005 21:16 GMT
> My catheter was removed today following RRP on May 5th. Also got my
> pathology report and all is well. Doc believes the cancer was all
[quoted text clipped - 14 lines]
> advice on how to stop this dripping? I know it takes time but any
> advice on how to accelerate things is appreciated.

Pete: Great news about the pathology report and your surgery!  I don't
know what getting a PSA test "soon" means because it takes a while
for the PSA in your system to go away and I have been led to believe
that a PSA before three months after surgery won't be too reliable.

About the dribbling - hey brother, I am with you!  I did the same when
I had my catheter out.  No problem holding it when it was full.  I am
maybe in a little better place in holding it than it sounds like you are,
but I find that I dribble some now and then and if I sneeze or pass gas
or laugh or whatever that I dribble a little more.  Yesterday morning I
woke up with a start when I realized that I had shot a stream of urine
over my leg in bed.  I jumped up and ran to the bathroom.

My advice is to do what you can to strengthen those external sphincter
muscles that you still have.  They are the key to stopping the dribbling.
I know that I've read a lot of guys on here say that doing kegels -
clenching and relaxing those external sphincter muscles - doesn't
help them, but it's worth a try!

Otherwise, I suspect it's time that's needed.....

All the best,

OCL
Stephen Jordan - 17 May 2005 22:21 GMT
(ka-snip)

>> However, after leaving his office I now find that I dribble. The
>> holding a full bladder trick is good if you can get a full bladder,
[quoted text clipped - 4 lines]
>>  advice on how to stop this dripping? I know it takes time but any
>> advice on how to accelerate things is appreciated.

OCL responded in pertinent part:

(su-nip)

> My advice is to do what you can to strengthen those external sphincter
> muscles that you still have.  They are the key to stopping the
[quoted text clipped - 3 lines]
>
> Otherwise, I suspect it's time that's needed.....

Try having the sphincters, but being unable to use them. That's what
having a suprapubic catheter means.

After the failed cryosurgery of November, 2003, I had such a catheter for
several weeks, until it became necessary to remove it because of the risk
of continuing with it in place (I'm a slow healer). Thereafter for about a
month that seemed like a year, I would leak from the catheter wound,
directly from the bladder, whenever trying to urinate normally.

BTW, the damned uro never mentioned this prospect.

I suppose I should be grateful, though, that it only happened when I tried
to urinate -- no leakage otherwise.

I wore taped-on surgical pads over the wound. Sat a lot ;-)

Regards,

Steve J

"Always do right. This will gratify some people & astonish the rest."
-- Mark Twain
Alan Meyer - 20 May 2005 00:49 GMT
> ...
> After the failed cryosurgery of November, 2003, I had such a
[quoted text clipped - 4 lines]
> from the bladder, whenever trying to urinate normally.
> ...

Steve,

If I ever feel sorry for myself thinking about things
that could have gone better with my treatment, or about
nasty side effects I experienced, all I have to do is
search for your postings.

Man, you really got put through the mill.

Your good humor about any of this is an inspiration to
us all.

   Alan
Steve Kramer - 17 May 2005 22:17 GMT
> My catheter was removed today following RRP on May 5th. Also got my
> pathology report and all is well. Doc believes the cancer was all
> contained within the prostate gland. I will be getting a PSA test soon
> to make sure.

I don't mean to pee on your parade, but I hope you realize that one PSA test
will not make you "sure" one way or the other.  Twenty years of PSA tests
might.

> I'm filling up depends and can't stop it.
>
> Have any others who have been down this path had this experience? Any
> advice on how to stop this dripping? I know it takes time but any
> advice on how to accelerate things is appreciated.

WE ALL EXPERIENCED THIS!!!  Well, most of us.  Some are very lucky, but
there are very few people in this ng who had any control at all on the first
day or two after removal of the catheter.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05
non Illegitimi carborundum

Dave LaCourse - 17 May 2005 22:23 GMT
>My catheter was removed today following RRP on May 5th. Also got my
>pathology report and all is well. Doc believes the cancer was all
[quoted text clipped - 16 lines]
>
>Pete

Great news, Pete.  Cheers to you and your docs.  When my cath was
removed after my rrp, the doc asked me to pee in the toilet.  I did,
and he told me to stop the flow.  I did (eventually), but a few drops
came before I could totally hold it back.  He told me to work on that.

That was 10 years ago.  I can hold my water now, but only for too
long; if I have the urge to pee, Katie bar the door, 'cause I'm coming
through, unzipping as I move.  d;o)  I would say I have to go at least
once every 2 1/2 hours, depending on how much I drink.  Right now I'm
consuming copious amounts of diet lemonade, and I find that I'm going
more often, probably once an hour.  But I seldom drip or squirt and if
I do it is only because I have that giant urge to uninate and after
awhile, I dribble a few drops.  

I think your future looks good, Pete.  If you could hold it as soon as
the cath was removed and could stop the flow, I think everything will
eventually be ok.  

Good luck and best wishes.

Dave
dale.j. - 18 May 2005 00:38 GMT
> My catheter was removed today following RRP on May 5th. Also got my
> pathology report and all is well. Doc believes the cancer was all
[quoted text clipped - 16 lines]
>
> Pete

Pete, give yourself a couple of months.  It takes a while for the
bladder to get back to normal and stuff to heal up.  My doc it can take
up to three years.  My crystal ball says you'll be fine.

dale j

Signature

Email:  dalej2@mac.com

I. P. Freely - 18 May 2005 01:36 GMT
> My crystal ball says you'll be fine.

Did that crystal ball surprise your uro? ;-)
Was it of any use in predicting your treatment outcome?
Does it supercede Partin's tables?

I.P.
Reuben Rothstein - 18 May 2005 06:54 GMT
Hi Pete,

You need to KEGEL -
Check out http://www.childbirth.org/articles/kegel.html

Reuben

>My catheter was removed today following RRP on May 5th. Also got my
>pathology report and all is well. Doc believes the cancer was all
[quoted text clipped - 16 lines]
>
>Pete
Ron B - 18 May 2005 15:39 GMT
Hi Pete and congrats.

What's happening is very normal.

From research and the guys here I've learned...

the bladder has been out of work while the cath was in so it takes a
while to get back it's regular feelings.

Urine is produced in small amounts and the bladder...after all the area
has been through...doesn't pick up on these smaller amounts...thus we
leak. (Tell it, I.P.  :-)

At 8 weeks...I'm leaking and squirting but it's better than it was.

You will be too.

As much as we'd like...the bladder just doen't "get full."

It fills slowly.

After a while...you'll hold better and you'll feel the sense of fullness
you had before.

I get that now during the night (no leaking...getting full) and
sometimes during the day.

You'll leak less and get better.

These great guys are telling the truth.

You're very early in this.

Hang in there.

All the best,

Ron B.

Chicago

(I should say...I always sign this way cuz of the other "Rons" here
:-), not because I'm on the "Visit Chicago Council" :-)
 
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