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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2005At last in-depends-ence
two weeks after RRP and had the catheter removed. I expected pain, but It was nothing. My question is: Anyone else have practically no control over urination? I know its just day one, But I've done the Kegals for 3 mos now, and thought It would be better. Laying down is O.K. but when I getup to walk - GUSH !! Doc says it will progress O.K. Arfey From: arfarf@greenapple.com (arfey) two weeks after RRP and had the catheter removed. I expected pain, but It was nothing. My question is: Anyone else have practically no control over urination? I know its just day one, But I've done the Kegals for 3 mos now, and thought It would be better. Laying down is O.K. but when I getup to walk - GUSH !! Doc says it will progress O.K. Arfey ==========it's perfectly normal arfey. i had NO control right after they pulled out the catheter. after the nurse pulled it out, she had me stand there was she made a computer entry and when she turned around, i had about a 1/4 of a cup on urine on the floor and still dripping. then, she said to me, those words that can make you feel so small, "you can put your depends on now....." there are three levels of continence control to give you some guildlines. 1. dry while lying down. 2. dry while sitting 3. dry while walking squirting or gushing when getting up, sneezing, farting, is called 'stress continence' and takes more control that i listed above. so, now, you can see how well you are progressing. as to how long it takes to become totally dry, some make it right away. i was 99% in 11 months, so there's quite a range. hope the info helps. curtis knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc I had no control when the catheter was removed. That degree of incontinence only lasted ten days or so though. I continued to improve over the next few weeks. I remember getting up in the morning and being able to stop the stream, but it immediately started up again even though I was still clamping down hard. If I remember correctly it took two months before I could stop the stream and keep it stopped. However, for me, the leaking continued and for many months I was using four pads a day. I never leaked while lying down, but I sleep on my back and side, i.e., I am not a stomach sleeper. Not sure what would happen if I tried to sleep on my stomach. I am 21 months out from RRP and still use 1-2 pads per day due to leakage. The leakage during the work week does vary and I cannot see any reason why. On the weekends, when I am more active, lifting, etc., I understand why I leak more. But sitting at my desk at work ??? So, just give it time. Good luck. > two weeks after RRP and had the catheter removed. I expected pain, but It > was nothing. [quoted text clipped - 4 lines] > Doc says it will progress O.K. > Arfey good Grief David ! you mirrored my situation exactly. Thanks for the reply---It's quite timely for me... Arfey In article <2124c41abdd6f02d0bdaafcbc39ceeaf@localhost.talkaboutsupport.com>, arfarf@greenapple.com says... >two weeks after RRP and had the catheter removed. I expected pain, but It >was nothing. [quoted text clipped - 4 lines] > Doc says it will progress O.K. > Arfey Believe the doc. I understand every story is different, but here's mine. I'm at one month post-RRP. Wore catheter 2 weeks, and two weeks since without it. The day it was removed was like you describe, couldnt be worse or wetter. Late the second day I started getting faint urges that I needed to go pee (so I did of course - my doc says do that at every opportunity). This continually got noticeably better every day. End of first week was a vastly better story, much more dry, but far from perfect, but still good news, extremely hopeful. I was "pretty much" dry at two weeks. End of that second week (4 weeks from surgery), I was still wearing a pad during the day, and a diaper at night, just in case, but they always seemed dry and light when removed... was no longer aware of accidents. I was seriously debating the need for them... I even weighed them before and after (Depends diaper is 3 ounces), just to judge my perception, and there was no difference in weight either (on a postal scale). The big problem in my story is that I've developed some blockage, and was having considerable trouble peeing. Doctor put me back on a leg cathether yesterday (at 4+ weeks) to be worn one more week, hopefully to solve this. Cathether seems worse this second time, cant get it comfortable, at least on day one. First time was mostly comfortable, just awkward. So due to the blockage, my "success" may be artifically true to some extent. I've wondered if I was dry early because I couldnt pee much (weak stream mostly, but eventually couldnt go at all). But much of that early progress seemed very real, when I was still peeing easier (but still a small stream). There was real progress every day. Point is, Day One is not the day to judge it. :) I never did Kegals, although the doc mentioned it once in passing. Mosty he just said go pee at every urge, and that it will work out soon. I have tried stopping the flow quite a few times, and that's fairly easy, control seems good in that regard. Walsh's book doesnt seem to mention Kegals, in fact page 247 (speaking of stopping the flow) specifically says: "Note: Only perform these excercises when you're urinating". From: nospam@invalid.com (Wayne Fulton) Believe the doc. I understand every story is different, but here's mine. I'm at one month post-RRP. Wore catheter 2 weeks, and two weeks since without it. The day it was removed was like you describe, couldnt be worse or wetter. Late the second day I started getting faint urges that I needed to go pee (so I did of course - my doc says do that at every opportunity). This continually got noticeably better every day. End of first week was a vastly better story, much more dry, but far from perfect, but still good news, extremely hopeful. I was "pretty much" dry at two weeks. End of that second week (4 weeks from surgery), I was still wearing a pad during the day, and a diaper at night, just in case, but they always seemed dry and light when removed... was no longer aware of accidents. I was seriously debating the need for them... I even weighed them before and after (Depends diaper is 3 ounces), just to judge my perception, and there was no difference in weight either (on a postal scale). The big problem in my story is that I've developed some blockage, and was having considerable trouble peeing. Doctor put me back on a leg cathether yesterday (at 4+ weeks) to be worn one more week, hopefully to solve this. Cathether seems worse this second time, cant get it comfortable, at least on day one. First time was mostly comfortable, just awkward. So due to the blockage, my "success" may be artifically true to some extent. I've wondered if I was dry early because I couldnt pee much (weak stream mostly, but eventually couldnt go at all). But much of that early progress seemed very real, when I was still peeing easier (but still a small stream). There was real progress every day. Point is, Day One is not the day to judge it. :) ===========hi wayne - sounds like you are having a bout of scarring. been there - done that. if you have any questions, give me a holler. there about a 15% chance that this can happen. the great news is that it's curable. i'm proof of this. boy, the complications from this will bring you to your knees. but they did an excellent job and i'm peeing like a teenager, and had no problems since. ~ curtis knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc >hi wayne - sounds like you are having a bout of scarring. been there - >done that. [quoted text clipped - 7 lines] >your knees. but they did an excellent job and i'm peeing like a >teenager, and had no problems since. Thanks Curtis, that is encouraging. I was aware of the procedure to go in and clean it out, which was my fear about what would happen, but the doc really seems to think that a catheter for a week may fix it. Seems a good first try to me too. He also gave me 10 days of SMZ/TMP antibotics which he said was "real strong". I didnt think to ask if it was preventive, or if he thought infection might be playing any part now. I guess it doesnt really matter which, I just try to do as I'm told. :) I failed to mention that my age is 66, and I had read that the incontinence was harder for older guys. So it was a really big fear for me, but so far, not nearly the problem I expected. This blockage problem complicates evaluating it, but I have really high hopes about it now. Hi Wayne. Curtis is indeed very encouraging. SMZ-TMP is generic Bactrim and whether he thinks an infection is playing a part or not...it's not a bad thing to take. Best, Ron B. >SMZ-TMP is generic Bactrim and whether he thinks an infection is playing >a part or not...it's not a bad thing to take. Except that reading up on the side effect warnings for any prescription is usually more spooky than the original problem. :) I'm hoping that is also going to be true of RRP. > Gimel@webtv.net says... >> >>SMZ-TMP is generic Bactrim and whether he thinks an infection is playing >>a part or not...it's not a bad thing to take. Before taking an antibiotic regimen, we should know that we have a bacterial infection and that it's the right antibiotic for it. > Except that reading up on the side effect warnings for any prescription > is usually more spooky than the original problem. :) > I'm hoping that is also going to be true of RRP. At least with PC treatments we can find statistics on the incidences, sometimes even on the severities, of their SEs. Prescription med warnings list primarily possibilities (i.e., some guy had a problem after taking it), and many otherwise apparently credible websites even say just, "If you experience any of these symptoms, call "Dial-a Prayer"" . . . or thereabouts. The latter two are all but useless; I would have made some very different treatment choices without substantive data on benefits and SEs. I hope that you've STUDIED the benefits and SEs of all your options in the light of YOUR SPECIFIC PC NUMBERS. I.P. >>>SMZ-TMP is generic Bactrim and whether he thinks an infection is playing >>>a part or not...it's not a bad thing to take. > >Before taking an antibiotic regimen, we should know that we have a bacterial >infection and that it's the right antibiotic for it. The data sheets for this one says "used to treat or prevent infections". An ounce of prevention... Sounds good to me. Thanks Wayne--I guess comfort comes in the fact someone else has been there, and it's similar to your own situation.. This Web site has been A god Send to me in ALL the staqes. Keith Arfey, I was completly incontinent when the catheter came out and completly dry at 3 months. Keep at it. Next, you will be betteer while sitting, then for increasing distances walking. I lift weights and run on a regular basis with NO problems at all. The odds are in your favor. Steve U Thanks Steve for the progression. I'm getting better at the sitting thing, but still flowing freely on the Pads. I'm walking a mile every Morning, and was lifting weights prior to surgery. I want to get back to that. I'll ask the Doctor when I can begin some light lifting.( weights) My grass is getting high, and I need to do something. Ha! |
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