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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2005Brachytherapy story
My story: Age 56. Brachytherapy 16 days ago. Almost no side effects at all. I am very surprised. Normal urination (maybe a little more frequent). No catheter. Erection and ejaculation (bloody - sorry to the squeamish) - similar to following a prostate biopsy. Hope it works. Lack of side effects is very pleasing. I know it can get worse, but I'm happy now. I am posting this as a guide if you are considering this treatment. > My story: > [quoted text clipped - 5 lines] > > I am posting this as a guide if you are considering this treatment. About the same for results for my Brachytherapy. Age 57, seed implants almost 9 months ago. Virtually no side affects to speak of. Initially no ED problems but some minor as time passed but solved with cialis and now getting better. I went back to work the day after the implants and even had friends over for dinner the day of the implants. Six month PSA was 1.01 and go for 9 month test next week. > > My story: > > [quoted text clipped - 12 lines] > had friends over for dinner the day of the implants. Six month PSA was > 1.01 and go for 9 month test next week. Day after the seeding, things had returned to normal, other than pee'ing-pink from the meds, and feeling starved from the Decadron. My side effects were having to "go" every couple hours after the seeding. Each month, the time lengthened by about an hour and now, at +6 months, I've slept 10 hours without getting up to pee. I had exhaustion, maybe from the Lupron but that's listed as a SE of radiation. It also "burns" or "stings" to pee. Not badly, just an odd sensation. ED? Things were flat until 2 months after I declined the Lupron shot. Then it started stirring. Not like being 18 of course but I'm 58 and slowing down. The good news is that things are working, I'd call it about half throttle without Vitamin-V and a SOLID 80% performance with 50 mg. PSA < 0.1 in March. Just saw the rad-doc and he's pleased but not as happy as I am. Rad-doc did caution about the possibility of a PSA bounce and reminded me that I'd be seeing him (or the Uro) for PSA's every 3 months for the next year, then twice a year there after. Hi Guys, Had Lupron for 7 mos. prior to Pd103 seeds in June 04, continued Lupron through a 4 mo. shot in Oct. 04. Urinary problems were minimal, with urgency and retention peaking somewhere around the 4-6 week post implant time, I've had a steady improvement since, possibly getting up once/twice during the night. I've found that spicy foods ( I love'em) will aggravate the situation. Just got the first PSA post implant and lupron, <.1. There is most likely some Lupron influence remaining and a rise with the next test results would not be surprising. Libidio, been gone so long, I can't even spell it 8-)) Tom > > > My story: > > > [quoted text clipped - 35 lines] > PSA's every 3 months for the next year, then twice a year there > after. A couple of important things I failed to mention; If I had the decision to do over again, it would not change. Others, wiser than I, have repeatedly said" read, research, ask questions" of your medical team (and your peers); call your play and run with the ball. There are a few participants in this group that discount anecdotal experiences, only giving credibility to professional, peer reviewed studies/trials . I think it may be beneficial to look at it all and give each source its due credibility, ie: Tom (2), Walsh, Strum, Blasco, (98). My point being; the professionals don't know it all and those of who have experienced it are not without some real knowledge. Tom > ... > Just got the first PSA post implant and lupron, <.1. There is most likely > some Lupron influence remaining and a rise with the next test results would > not be surprising. Libidio, been gone so long, I can't even spell it 8-)) > ... Great result on the PSA test Tom. Here's hoping for many more. The PSA may still go up a little since PSA apparently lags the return of testosterone. But don't be alarmed by that. You've got excellent first numbers. As for the libido, it really does come back. Get the old lady in gear and see what she can do to bring it back. Practice helps. Alan I don't expect to return to pre-Lupron/SI overnight, I realize it's a gradual process, but,I DO think there's a lot to be said for the "Use It or Lose It" theory, or in other words, "Ashes to ashes, dust to dust, use what God gave you or it's gonna rust". Thanks, Tom > > ... > > Just got the first PSA post implant and lupron, <.1. There is most likely [quoted text clipped - 14 lines] > > Alan > My story: > [quoted text clipped - 5 lines] > > I am posting this as a guide if you are considering this treatment. Glad you're doing OK. You do realize that you still have a functioning prostate, and that any side effects no matter how severe are yet to come. Eventually over the next 6 months to a year your prostate and it's tissue will die off. That's when you'll see if the radiation has effected any of the surrounding organs and tissues. This was explained to you before you were seeded right?  SignatureJK Sinrod Sinrod Stained Glass Studios www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories >> My story: >> [quoted text clipped - 13 lines] > the surrounding organs and tissues. This was explained to you before you > were seeded right? FWIW I'm still doing fine (just a bit more frequent than before); I was seeded 5 months ago yesterday. At about 3 months there were a couple of weeks where I'd lose a few drops if I didn't get to a toilet soon after the urge was first felt. Uro said prostate was a bit swollen and bladder a bit hyperactive. That seems to be better now. I was told that the worst brachytherapy side effects usually come at 4-6 weeks. I remember telling the primary nurse at weel 6, "if this is as bad as it gets I've no complaint." She replied, "yup, you're there." Bit of a burning feeling while voiding, stream rather slow at the end, need to get up two or three times in the night -- that was it. Next thing is to see if it worked; the only way to know that for sure is to die of something else or to have the cancer recur. No hurry here... SignatureGreg Louis T1C, 3+3, PSA 5.4 at Dx, prostate 27cc, 55 I-125 seeds 2004-11-16. Good to hear from you again, Greg. I imagine you've had a PSA test since November. How did that turn out? SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > >> My story: > >> [quoted text clipped - 28 lines] > Next thing is to see if it worked; the only way to know that for sure is > to die of something else or to have the cancer recur. No hurry here... > Good to hear from you again, Greg. I imagine you've had a PSA test > since November. How did that turn out? Hi, Steve! Thanks for the interest. There was one early in January that I haven't actually seen the result of (too soon to worry about), and one in March (1.7). My radiation oncologist likes to get a biopsy done two years after implant, no matter what the PSA level is; people take vastly different amounts of time to reach nadir, so maybe he thinks early PSA readings aren't necessarily very informative. SignatureGreg Louis With Brachy, that first one, compared to the second, is pretty important. However, 1.7 is fantastic at this stage of the game. Congratulations! SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > > Good to hear from you again, Greg. I imagine you've had a PSA test > > since November. How did that turn out? [quoted text clipped - 5 lines] > different amounts of time to reach nadir, so maybe he thinks early PSA > readings aren't necessarily very informative. > Good to hear from you again, Greg. I imagine you've had a PSA test since > November. How did that turn out? [quoted text clipped - 51 lines] > > Greg Louis > > T1C, 3+3, PSA 5.4 at Dx, prostate 27cc, 55 I-125 seeds 2004-11-16. > I was told that the worst brachytherapy side effects usually come at 4-6 > weeks. I remember telling the primary nurse at weel 6, "if this is as bad > as it gets I've no complaint." She replied, "yup, you're there." Bit of > a burning feeling while voiding, stream rather slow at the end, need to > get up two or three times in the night -- that was it. Almost exactly at the 4 week mark for me. I was getting up 2 and 3 times a night to pee. During the day, I was heading for the head at least every 2 hours. Not a problem as I have a desk job and I sit about 20-30 feet from the mensroom. Now it's a waiting game, go in for the numbers every 3 months. Next one will be at the end of June, then I go see the Uro. I'm still taking Flomax but will try dropping it next week. I am the editor of a newspaper covering Coney Island. If you would like to write something about the Coney Island Renaissance for the paper, please send to: elevy2124@yahoo.com. Thanks. Eric Levy Editor Astella Action News |
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