Hi all.
My father started his radiation treatment for a recurrent prostate cancer
(elevated post-RRP PSA) about two weeks ago. Unfortunately, the machine that
they are using on him keeps breaking down quite often. This means that he
has to take breaks between his treatments, sometimes for a day, two, or even
three until they fix the machine. Yesterday, the machine broke down again,
so they cannot schedule him until Friday.
Should we be upset about this? Is it potentially problematic for the success
of the treatment if he has to keep taking pauses between the treatments
because of the machine that keeps breaking down? He is thinking about
changing the hospital, but it would take some time, since things move quite
slowly here in Canada (and he has already started radiation).
Any ideas?
Thanks!
Gordan
John Loomis - 14 Apr 2005 02:11 GMT
Jees....They have a program that puts you under radiaton for 5 days...2 days
rest....5 days......2 days rest...5 weeks
I would not be very happy.
Since he is already going through this radiation process, and with a certain
hospital, I cannot imagine him changing horses in the middle of the race.
I would, complain, and stick with the hospital you have.
Talk to the Dr. that is prescribing radiation, and ask him about the machine
failure, and the missing time.....
Good wishes...machine failure happens...
Do they have a backup?
what is the seriousness of your father missing the treatments as
prescribed.?
I would consult the Dr. responsible first.
Then make a decision after that.
So Sorry....John Loomis down below.....
> Hi all.
>
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>
> Gordan
Alan Meyer - 14 Apr 2005 06:30 GMT
> Hi all.
>
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>
> Any ideas?
My understanding is that it is important not to allow too much time
to pass between treatments so that the cancer cells don't have
much time to recover.
On the other hand some time between treatments is desirable to
give the non-cancer cells time to recover.
Whether the conventional 5 days on plus 2 days off is really the
optimum, or whether it just fits the work week of patients and staff, is
a question I've always wondered about. In my case, my treatment
fell over the Christmas holidays and so I got no treatment on the
Thursday, Friday, Saturday and Sunday of Christmas weekend,
and no treatment on New Year's day.
For that matter, is 24 hours the optimum time between treatments?
Or is it 17 hours, 31.6 hours, or some other odd period of time?
You can ask the rad onc about this. My guess is that neither he
nor anyone else really knows for sure what the exact optimum times
are, and whether 5+2 is better than what your Dad is getting or not.
I speculate that the treatment your Dad is getting is pretty close to
the same effectiveness as if the machine did not break, but I
really don't know. I hope your doctor does know, and I hope he
will be honest with you rather than just cover over the problem on
the theory that he can't do anything about it anyway.
You might also ask the doctor about the possibility of makeup time
during weekends.
Alan
Clarence Crow - 14 Apr 2005 08:40 GMT
<snip>
>My understanding is that it is important not to allow too much time
>to pass between treatments so that the cancer cells don't have
[quoted text clipped - 9 lines]
>Thursday, Friday, Saturday and Sunday of Christmas weekend,
>and no treatment on New Year's day.
<snip>
I started on mine March 21, so I'm having a 4 day week, Easter break
no XRT for 4 days, another 4 day week, then a complete 5 day week,
another 4 day week (Friday off for scheduled maintenance), another 5
day week and then a Monday off for Anzac Day and finally a 1 day week.
All weekends also nil XRT.
So I get 23 Fractions of XRT over a lapsed period of 5 weeks and 2
days. = 23/35.
This is not considered detrimental to the treatment, but machine
breakdowns are not factored in, as this Clinic has 2 Units operating
full time and can handle the overload by sharing. The patients just
have to wait longer during breakdowns and overtime is worked to pick
up the slack.
Unfortunately, this doesn't help our Canadian friend but may
demonstrate that some intervals of no treatment are acceptable.
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-- CC
Clarence Crow - 14 Apr 2005 08:53 GMT
oopps!
23/37 (from prev post)
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Marshall Schuon - 15 Apr 2005 07:58 GMT
>Hi all.
>
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>
>Gordan
_________
I finished up last Aug. 10, and the course of treatment was extended
from 42 days to 48 days to make up for the time the machine was down
over the summer. I was told -- and believed the doc who is quite good
-- that the occasional erratic schedule didn't hurt anything. In
fact, I was pleased to have occasional extended recuperative time.
Those machines, big as they are, are rather delicate and get hard use.
I wouldn't worry about it.
Marshall
Gordan - 15 Apr 2005 20:43 GMT
Thank you all for the replies.
My dad complained to the hospital yesterday and today and they transferred
him to a different hospital in the city. He had a radiation treatment there
and they were nice enough to tell him to come back again if there are any
problems again.
Sometimes complaining works....
Thank you all for your insights. They are very much appreciated. They eased
my and my dad's mind.
Gordan
Stavros Moschos - 15 Apr 2005 21:10 GMT
Good heavens, what hospital is that? I'm scheduled to have my radiation at
Princess Margaret here in Toronto in about two weeks.
> Hi all.
>
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>
> Gordan
Heather - 16 Apr 2005 00:05 GMT
I am wondering about that as well. They have many, many radiation machines
at both Princess Margaret and Sunnybrook, but they are in use all day. Some
times when Ron went, his particular machine was usually OK but there was a
30 minute wait, and there were other ones that were down for an hour or
two.....never more than that. I don't know what the differences are with
the machines and never asked. But at Sunnybrook there is a *neon-type* sign
that tells you exactly how long you might have to wait for a certain type of
machine.
You can count on at least one day that you might either be told the day
before, or get a call that day, to say your machine is down for the day, but
that is of no concern. When you think how many people they treat here in
Toronto per day, it is amazing they are not down more often. I would guess
they are running about 12 hours a day.....probably more.
Cheers.....Heather
> Good heavens, what hospital is that? I'm scheduled to have my radiation at
> Princess Margaret here in Toronto in about two weeks.
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> >
> > Gordan
Gordan - 16 Apr 2005 02:18 GMT
Hello Stavros.
It is General Hospital in Ottawa. They wanted to transfer my dad to Toronto
when we complained, but that would not have been a
logical/practical/feasable solution to us at all. Finally, they managed to
make him an appointment at the Civic Hospital in Ottawa.
You know, you would think that just going through radiation procedures would
be stressful enough, he really doesn't need all this extra-worrying.
Gordan
> Good heavens, what hospital is that? I'm scheduled to have my radiation
> at Princess Margaret here in Toronto in about two weeks.
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>>
>> Gordan