Medical Forum / Diseases and Disorders / Prostate Cancer / April 2005
Head up his b*tt
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Clarence Crow - 10 Apr 2005 19:54 GMT Hi again all
You may recall I posted about the pompous Brit in the XRT waiting room a couple of weeks ago. He's 73, PSA was 24.0, 3 cores G9, 2 cores G7 and others benign. Well, under introspective interrogation, I learned he was not eligible for the Clinical Trials Study I'm in as his pre-qualification Scans showed ECE, viz: Seminal Vesicle and Lymph Node Involvement. So he had to fork out for his treatment and meds via his Health Insurance, which only pay a sizeable portion of the costs. Under the Clinical Trials Study, my whole treatment regime is 99% Free! At the moment, he's getting exactly the same treatment and doctors as I am. I tried to offer him some friendly advice on his condition and verbally referred him to this ng plus some helpful kosher websites. His reply was "I'm paying these people, here, over $30,000.00 to look after me and don't need to waste time working the net to get inundated with Spam about Viagra and Penis Enlargement schemes!" I just said "OK, only trying to help", so we parted company on that note, as his Rad phase was completed. He will also be having HDRB down the track, like me and back on to ADT like me.. I just felt like saying "You've got your head up your b*tt! and don't think you can buy your way out of this one to make it go away!" He's also an author of paperback stories of his own exploits and rural Australia, but admitted it was not a commercially viable venture. (he markets these on the web (possibly to keep paying his Health Insurance premiums).
Any comments from you lot?
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James A Honeychuck - 10 Apr 2005 20:24 GMT Some people are not convinced of the need to be active participants in their treatment.
Wonder why he's not getting his treatment free in the UK? Maybe he's a US resident. UK citizens not resident in the UK are not eligible for treatment there.
jimhoney
> Hi again all > [quoted text clipped - 33 lines] > > -- CC Clarence Crow - 10 Apr 2005 22:44 GMT >Some people are not convinced of the need to be active participants in >their treatment. [quoted text clipped - 4 lines] > >jimhoney <snip> He is a Brit, but has Australian citizenship and lives in Western Australia about 20 miles up the road from me in a newer developed 'burb, but nothing exclusive. The thing that riled me about it was originally his uppity wife lied about it all and said "we opted out of the Clinical Trial, because we wanted the BEST treatment for my husband". (so she was lying about it as her husband was not eligible for it, which we didn't know then). That was when my wife explained to her that I was getting exactly the same treatment and doctors as her husband. She was somewhat astounded and exhibited signs of disbelief. I feel a little sorry for them as they seem to be in denial and the guy's PCa is a tad more aggressive than mine, which may cause him to seek some outside help later on.
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c palmer - 10 Apr 2005 20:25 GMT hi clarence - your country doesn't have all of those type people there. they are scattered all over the world.
all you can do if what you did - offer them some advice. it's up to them to take it or leave it.
i've met them in waiting rooms, on the streets and in hospitals. they all think they know it all or what they are doing is right and you're not going to tell them a thing.
here's an example - i was at the urology dept waiting for my appt. the surgeon had just came out of his office with a couple. i could tell by the look on their faces, that they got the "word". the husband was in a state of disbelief and you could have blew him over with a feather. the wife - from the sounds she was making - appeared to be the authority of the family.
as the surgeon tried to explain the husband's condition - it was in the early stages, that surgery or radiation was a curable option.
she piped right up in the waiting room. "he's NOT having any surgery!!! the radiation will do just fine!!!"
as i heard those words, i thought to myself, "gee, do you think the owner of that prostate cancer should have a say too?"
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
I. P. Freely - 10 Apr 2005 22:22 GMT "c palmer" <PALMER_ENT@webtv.net> wrote . . . >
> she piped right up in the waiting room. "he's NOT having any surgery!!! > the radiation will do just fine!!!" > > as i heard those words, i thought to myself, "gee, do you think the > owner of that prostate cancer should have a say too?" Reckon she DID "own" his prostate . . . and everything else in that neighborhood?
I.P.
Clarence Crow - 10 Apr 2005 22:49 GMT >hi clarence - your country doesn't have all of those type people there. >they are scattered all over the world. [quoted text clipped - 21 lines] >as i heard those words, i thought to myself, "gee, do you think the >owner of that prostate cancer should have a say too?" curtis I'm just glad it wasn't my loud overbearing attitude that was so off-putting ;)
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Debbie Trujillo - 11 Apr 2005 15:42 GMT > she piped right up in the waiting room. "he's NOT having any surgery!!! > the radiation will do just fine!!!" > > as i heard those words, i thought to myself, "gee, do you think the > owner of that prostate cancer should have a say too?" I might not have liked all the decisions John made but I realized it was his body and he had to live with it. When he was feeling so lousy taking the iron after his pre-surgery blood donations, he said that if he was going to be feeling this lousy he didn't know if he wanted to live. He was supposed to donate 3 times - however, I contacted his sister and asked for her help so thanks to her he only had to donate twice.
I tried to encourage John to try seeding but learned his cancer was too spread out. When I read the literature, I realized the surgery would be the best option. So far nothing further has been necessary except the checkups.
John has said that he will not do radiation if it is suggested. I don't like it but I can't force him either. I do wish, however, that his doctor would do a DRE on him to make sure there is no mass in there.
I. P. Freely - 11 Apr 2005 16:56 GMT Several surgeons dissuaded me from pre-surg blood donation, as it inhibits recovery and healing by depleting our blood of several critical factors AND does not reduce the risk of transfusion problems.
I.P.
> When he was feeling so lousy taking the > iron after his pre-surgery blood donations, he said that if he was going [quoted text clipped - 3 lines] > to donate 3 times - however, I contacted his sister and asked for her help > so thanks to her he only had to donate twice. Clarence Crow - 11 Apr 2005 18:59 GMT >Several surgeons dissuaded me from pre-surg blood donation, as it inhibits >recovery and healing by depleting our blood of several critical factors AND >does not reduce the risk of transfusion problems. > >I.P. What do "blood donations" have to do with "head up your b*tt". Saw you bitchin' a while back 'cos Aunty Virus (Heather) hijacked someone's thread and now you're doing it !!
You're not only loud and arrogant, but ignorant too. Typical Yank Aussie basher !!
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I. P. Freely - 12 Apr 2005 01:35 GMT "Clarence Crow" <crow@perch.biz> wrote "I. P. Freely" wrote:
>>Several surgeons dissuaded me from pre-surg blood donation, as it inhibits >>recovery and healing by depleting our blood of several critical factors >>AND >>does not reduce the risk of transfusion problems. > > What do "blood donations" have to do with "head up your b*tt". I don't know; ask Debbie, whose comments I was responding to but which you omitted:
"Debbie Trujillo" <deborah.trujillo@verizon.net> wrote
> When he was feeling so lousy taking the iron after his > pre-surgery blood donations, he said that if he was going > to be feeling this lousy he didn't know if he wanted to live. > He was supposed to donate 3 times - however, I > contacted his sister and asked for her help > so thanks to her he only had to donate twice. Several people have brought up self-donation recently, and I took this opportunity to mention to people again that self-donation introduces distinct risks with minimal, if any, benefit.
> Saw you bitchin' a while back 'cos Aunty Virus (Heather) hijacked > someone's thread and now you're doing it !! Hijacking refers to diverting a thread's to one's own self-interest. I have no stake or interest in autologous blood donation. In fact, it's not clear to me what this thread IS about (some guy wants to pay for his own treatment and make his own choices? Heavens!!!). You did ask for comments, though, and you accepted Debbie's comments as on topic. If my hopping on that tangent offends you, I apologize.
> You're not only loud I thought loud in print looked LIKE THIS.
> and arrogant, I don't remember ever saying or implying I was "important" (arrogant). Can you back that up from the archives? I thought not.
> but ignorant too. Now, THAT, I'll grant. But since I try not to make anything up, and try to distinguish facts from opinions, I hope my ignorance is MY problem, not anyone else's. I entered this forum to reduce my ignorance, and it's helping.
> Typical Yank Aussie basher !! Back it up. The archives are at your fingertips. Tip: save yer energy; it never happened. I don't give a damn where anyone comes from or lives, what church they do or don't go to, or even what color car they drive. The only ethnic/national derision I've noticed lately is your "pompous Brit" comment.
I.P.
DebbieCCLS - 12 Apr 2005 06:04 GMT > "Clarence Crow" <crow@perch.biz> wrote > "I. P. Freely" wrote: [quoted text clipped - 16 lines] > > contacted his sister and asked for her help > > so thanks to her he only had to donate twice. I was merely referring back to the comment in response to the person who heard a man's wife say that he wasn't going to have surgery that radiation would do just fine. I was agreeing with that person's comment and then relaying my own experience with dealing with my husband John's cancer. He was complaining about feeling lousy after his autologous (sp?) blood donations. It was hard for me to listen to this and I tried to dissuade him from any further donations after the first one because I wanted him to be well for the surgery. However, I certainly didn't force him. BTW, they put his blood back into him the day after his surgery and he told me he sure felt better after they did that.
Clarence Crow - 12 Apr 2005 06:56 GMT <snip> So I've managed to convert a zealous Top Poster to a conforming, analytical, "in-line" Poster. Seems like you can do it if it suits you. Steve Jordan would be urinating out of control with glee.
I admit Debbie originally Hijacked the thread from a part of Curtis' example reply.
If you suggest my inclusion of a "Brit" in the post seemed a bit off, I've been married to one for 45 yrs, but she is not pompous.
I'm sorry you didn't understand or really care about the gist of my original post, so it leaves me wondering why you participated in a skewed thread anyway.
I will not continue in Flame wars as they can be forever.
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DebbieCCLS - 12 Apr 2005 15:10 GMT > <snip> > So I've managed to convert a zealous Top Poster to a conforming, [quoted text clipped - 19 lines] > > -- CC It had not been my intention to hijack the thread to my own self-interest. As I explained before, I was merely responding to another person's reaction to a man's wife saying he wasn't going to have the surgery. John autologous blood donation was just part of his entire care and what we were dealing with. I had not intended to start another topic on autologous blood donations in this thread. I will make no further comments as I certainly don't want to see a flame war transpire. This is a support newsgroup that saved my sanity when John and I were dealing with his cancer.
I. P. Freely - 12 Apr 2005 17:30 GMT Not to worry, Debbie . . . No one considered your earnest tangent as a highjacking, and it was clearly not in self-inteest anyway. I was just illustrating to Clarence the selectiveness of his jab. As for flame wars, I haven't flamed anyone but spammers, trolls, and literal online cash thieves (it got me my money and had people rolling in the aisles, they claimed) in WAY over 20,000 forum posts so far . . . and that's before disease confines me to a chair some day so all I CAN to is type.
I.P.
"DebbieCCLS" <deborah.trujillo@verizon.net> wrote>
> It had not been my intention to hijack the thread to my own > self-interest. I certainly don't want to see a flame war. I. P. Freely - 12 Apr 2005 17:21 GMT > So I've managed to convert a zealous Top Poster to a conforming, > analytical, "in-line" Poster. Seems like you can do it if it suits > you. Steve Jordan would be urinating out of control with glee. > > I will not continue in Flame wars as they can be forever. Don't get too optimistic over that inline response or this bottom feeder: '-) -- I swing three ways: I choose top, bottom, or in-line according to the scenario, in an attempt to make it simplest for the reader to follow, and a complexly interleaved response is best . . . well . . . interleaved. If I can bring a little glee into Jordan's life (or a squirt into his pad) by bending over backwards, glad to oblige; just don't expect me to bend over FORWARDS for anyone's benefit. alt.greek this ain't!
And, hell, aren't MANY of us urinating out of control anyway? I'll stay dry most of the day any more, even doing hard work, but put me in a dryuit out in the surf where both mind and body are taxed to the max and my MaxiDepends is bagged to the max toot sweet.
No flame risk here; I do not flame (def: ad hominem/personal attacks) unless a deliberate troll like "Barbara" or a spammer happens to catch me with time on my hands and my imagination in overdrive.
I.P.
Clarence Crow - 12 Apr 2005 19:59 GMT <snip>
>Don't get too optimistic over that inline response or this bottom feeder: >'-) -- I swing three ways: I choose top, bottom, or in-line according to [quoted text clipped - 12 lines] >a deliberate troll like "Barbara" or a spammer happens to catch me with time >on my hands and my imagination in overdrive. <snip> I must've had a "bad hair" day and you seemed to be a viable target for spleen-venting lol. Anyways, we know Jordan's still motoring on ;)
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Stephen Jordan - 12 Apr 2005 18:40 GMT On 04/11/2005 22:56:54 Clarence Crow <crow@perch.biz> wrote, in pertinent part:
> On Mon, 11 Apr 2005 17:35:24 -0700, "I. P. Freely" > <fuhgheddaboutit@noway.nohow> wrote:
> So I've managed to convert a zealous Top Poster to a conforming, > analytical, "in-line" Poster. Seems like you can do it if it suits you. > Steve Jordan would be urinating out of control with glee. Hee hee, but not quite.
After some urgency due to SE of IMRT, I quit Flomax in January and have been OK since. Except that when it's time to go it's *time to go*.
I've been lurking for some while, just didn't see anything on which I wanted to comment.
Also, installed Mac OS X v. 10.3.8 and lost many files. Some of them were e-mail addresses, including CC's. Turns out that OS X is to a great extent an add-on to OS 9, not a completely new OS. Sometimes awkward. And Emoticons don't work :-(
Regards,
Steve J
__ "I will accept any rules that you feel necessary to your freedom. I am free, no matter what rules surround me. If I find them tolerable, I tolerate them; if I find them too obnoxious, I break them. I am free because I know that I alone am morally responsible for everything I do." --Professor Bernardo de la Paz
Clarence Crow - 12 Apr 2005 20:08 GMT <snip>
>Also, installed Mac OS X v. 10.3.8 and lost many files. Some of them were e-mail addresses, including CC's. Turns out that OS X is to a great extent an add-on to OS 9, not a completely new OS. Sometimes awkward. And Emoticons don't work :-( <snip> Seems a few people are having 'puter probs. I was even thinking of a Linux machine as a portal and running the 2 Win machines thru it, but I'm too old and tired to get excited enough to do it.
for email, try nevdevofwestnetblobcomblobau if you feel the need. of = @ and blob = "."
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Steve Kramer - 10 Apr 2005 23:58 GMT > You may recall I posted about the pompous Brit in the XRT waiting room > a couple of weeks ago.
> I tried to offer him some friendly advice on his condition and > verbally referred him to this ng plus some helpful kosher websites. > His reply was "I'm paying these people, here, over $30,000.00 to look > after me and don't need to waste time working the net to get inundated > with Spam about Viagra and Penis Enlargement schemes!"
> Any comments from you lot? I don't recall pomposity, importance or affluence being listed as a criteria in the Partin Tables.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum
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