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Medical Forum / Diseases and Disorders / Prostate Cancer / April 2005Incontinence question.
I was just wondering if anyone else in the "leakers club" notices variation day to day in how many pads they need? I am an office worker and sit in front of a pc all day. On the weekends, when I work in the yard for example, I understand why I leak more due to the additional activity. However, during the week sometimes one pad will do from dawn to dusk, but on other days I have to make a change by late afternoon or risk an accident. A week or so ago I had to change around 4:00 P.M., and then that one had to go before I went to bed. My eating and drinking habits did not change (I do drink coffee, but try to stick to decaf). Why the big difference in the leakage? Any thoughts? My "leakage", more accurately known as a minor flood until recently, did and still varies significantly. Examples: I've stayed dry most nights (5 months now), yet have simply wet the bed, as in overflowed a large Depends, 2 or 3 times, as recently as a month or two ago. The apparent difference? Went to bed unusually tired and simply slept through a complete bladder dump. I tend lo leak more in the evening than earlier, presumably from localized fatigue. What it feels more like, however, is that a tired leak-sensing mechanism is giving me no warning in the evening. I might spend a day virtually dry doing landscaping in my yard, then spill many ounces into my diaper between supper and bedtime. I'll probably keep wearing diapers for a year until they get too hot as summer nears, just in case, as it sounds like we're never sure of ourselves. I'd far rather wear a diaper unnecessarily than wish to heck I HAD worn them. If I go dry for a month or three, THEN I'll start thinking about pads in place of diapers. But don't pads require jockey shorts? If so I'll probably wear diapers until REALLY continent, as both are equally uncomfortable to someone accustomed to boxers. I.P. > I was just wondering if anyone else in the "leakers club" notices > variation day to day in how many pads they need? I am an office worker [quoted text clipped - 11 lines] > drink coffee, but try to stick to decaf). Why the big difference in the > leakage? Any thoughts? For I.P., pads do require something other than boxer shorts. I use the brief things (no fly). They hold the pad nicely. Never used the diapers. For David S., yes I also have variation in leakage from day to day for no obvious reason. Some days I turn in a pad at the end of the day about 1/3 full, other days I have to change around dinner out of a nearly full pad. Sometimes I squirt for no reason even with a bladder nearly empty which probably comes from small bladder spasms which could be controlled by medication but I don't bother with the meds since I mostly leak from stress incontinence which the meds won't help. I tried the women's pads but since they are considerably smaller than the Depends pads, I have to change them 2 or 3 times a day. I much prefer the ease of mind knowing I have a lot more reserve capacity if I go out somewhere. I still carry a spare Depends pad in my rear pocket at all times. I mentioned in an earlier post that I'm still noticing progress at almost 2 years. I have more 1/3 pad days than I did a couple of months ago inspite of doing a lot more heavy yard/shed-building work. So, there's still hope for a pad-free day. Good luck with this business. Dave Perry Hello Dave Perry! Long time no see...hear...read, whatever. Believe me, it is very encouraging to me to hear that you are still seeing improvement, even almost two years down the road. My neighbor that was getting biofeedback treatments was told by that practitioner that things can improve up to two and one half years post RRP. My uro told me after 16 months that I should not expect to ever get any better. That really bummed me out. Good luck to you. It was good to hear from you again. Thank you. David S. > For I.P., pads do require something other than boxer shorts. I use the > brief things (no fly). They hold the pad nicely. Never used the [quoted text clipped - 18 lines] > Good luck with this business. > Dave Perry No way the depends will work with boxer shorts. The jockey type is definitely necessary unfortunately. I have had accidents even with the jockeys. For example when the pad is getting full and is heavy, the shorts will start to sag. Lean the wrong way and the leakage goes on your pants instead of in the pad. > <snip> But don't pads require jockey shorts? If so I'll > probably wear diapers until REALLY continent, as both are equally > uncomfortable to someone accustomed to boxers. > > I.P. > No way the depends will work with boxer shorts. The jockey type is > definitely necessary unfortunately. I have had accidents even with the [quoted text clipped - 7 lines] > > > > I.P. To all: My RRP surgery is scheduled for May 5th so I have no idea what incontinence problems I will have to deal with. I have a question though; everyone talks about using depends, diapers and pads. Is there a device available that fits over the penis and collects the urine in a plastic bag? It seems something like this would be much more practical. Pete Hi Pete: There is an external catheter that you can purchase. I have never tried that, but my neighbor did and he did not like it. I do not remember his specific complaints. Sorry. One knock on the external catheter, and the penis clamps that can also be purchased, is that making that move will jeopardize your further recovery. The theory, as I understand it, is that when you use and artificial means to control the urine your body adjusts to that and the ability to use the natural means to control the flow, the sphincter, will diminish. In other words you end up dependent on the artificial device. Most, I think, would suggest giving it at least a year and a half to regain control before giving up and going to other alternatives. There are surgical interventions available too btw. Some here have reported using the clamp to play golf and the like, but they do not wear it all the time. So, my suggestion is to think positive because most men will regain control after three months give or take. If you end up joining the "leakers" club, a select minority, rest assured that Depends Guards will allow you to lead a normal life. Other than swimming at the community pool, I do not hesitate to do anything I want Good luck to you. Thank you. David S. > To all: > [quoted text clipped - 7 lines] > > Pete Pete, I tried the plastic bag things. They're called McGuire Male Urinals. I bought two - one to use, the other a spare. They run around $45 from the internet suppliers, about $20 on ebay. I used one for 15 minutes and found it to be very unsatisfactory. Little Willie slipped out of the rubber sheath (they're one size fits all including MDs - Mule Dicks), the straps holding the bag are a pain to fasten, much easier to use the pads although there are a couple of guys on this group who have worn the urinals in the past and think they're pretty good. I tried to give them away (one was unopened in the package) to anyone on this newsgroup but I had no takers so they are landfill now. Some archeologist grad student a thousand years from now will probably get a PhD figuring out what they heck they are. The pads are really no big deal, come in a package of 52, cost $15 not on sale, about $11 on sale, and around $8 whenever Big Lots has some although I don't bother to go there anymore. Let's hope you won't need anything or if you do then for only a short time. Good luck with the surgery and keep us posted on your progress. Dave Perry This question is for anyone willing to comment. I hope this is not too personal. When you are incontinent is it possible to have sexual intercourse? Since urine leakage could occur during intercourse it seems like a bad idea to try it. Maybe with a condum? Pete I used a condom the first few times because I am still incontinent. In my case it appears that I do not leak while erect (I use trimix injections to get the erection) so I have stopped using the condoms. Please note, however, that my wife is not concerned about a little leakage. You need to be sure of how your partner feels on that subject. The condom may be useful "insurance" if the prospect of leakage is an issue for that person. > This question is for anyone willing to comment. I hope this is not too > personal. [quoted text clipped - 4 lines] > > Pete Condum is okay. But, urine is clean and for all intents and purposes, if you wife has had children, then urine has probably been exchanged during sex for years. It was my experience that when I became more continent in life, I also leaked less during sex.  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > This question is for anyone willing to comment. I hope this is not too > personal. [quoted text clipped - 4 lines] > > Pete > I have a question though; everyone talks about using depends, diapers > and pads. Is there a device available that fits over the penis and > collects the urine in a plastic bag? It seems something like this would > be much more practical. > > Pete Here is one person's suggestion for using this method: http://prostate-help.org/cadbd.htm Al What a great date! 05/05/05. Good luck, Pete. I'll be praying for you. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > My RRP surgery is scheduled for May 5th so I have no idea what > incontinence problems I will have to deal with. David S. I had the same problem so I solve it by using the Depend underwear with a Depend Mens Guard inside it, then pull my briefs up over the top of the Depend underwear. When it leaks, the underwear gets wet and the briefs stay dry 98% of the time. I can go 2 to 3 hours between changes of the Depend mens guard in this way and only use most days four pair of the Depend underwear. I'm only postOp seven weeks but each day is getting a little better than the previous. I started after the catheter was removed, changing the Depend mens guard pad every half to one hour. Now it's two to three hours between changes of the pad. The Best To You And All In Our Group! Dave M. Stevens Point, WI No way the depends will work with boxer shorts. The jockey type is definitely necessary unfortunately. I have had accidents even with the jockeys. For example when the pad is getting full and is heavy, the shorts will start to sag. Lean the wrong way and the leakage goes on your pants instead of in the pad. "I. P. Freely" <fuhgheddaboutit@noway.nohow> wrote in message news:w1e5e.2096$%p7.750@fe04.lga... > <snip> But don't pads require jockey shorts? If so I'll > probably wear diapers until REALLY continent, as both are equally > uncomfortable to someone accustomed to boxers. > > I.P. > > I was just wondering if anyone else in the "leakers club" notices > variation day to day in how many pads they need? I am an office worker and [quoted text clipped - 6 lines] > drink coffee, but try to stick to decaf). Why the big difference in the > leakage? Any thoughts? I forgot David, how long has it been from the surgery? Dale j SignatureEmail: dalej2@mac.com Hi Dale: The RRP was August 1, 2003. Catheter out August 23, 2003 (one of the happiest days of my adult life!). I was 55 then, but my birthday is in September (9-11 if you can believe that) so I was only a month away from 56. Thank you. David S. > > I was just wondering if anyone else in the "leakers club" notices > > variation day to day in how many pads they need? I am an office worker and [quoted text clipped - 10 lines] > > Dale j > I was just wondering if anyone else in the "leakers club" notices > variation day to day in how many pads they need? I am an office worker and [quoted text clipped - 6 lines] > drink coffee, but try to stick to decaf). Why the big difference in the > leakage? Any thoughts? You don't say how long out of treatment you are? It took me a good 6 months to be dry, and after 2 3/4 years post RP I still do occassionally leak a bit, but still see improvement. In the beginning, stressful actvity casued leakage, as well as end of day tiredness. Almost everyome does get better and dry eventually. Hang in there! SignatureJK Sinrod Sinrod Stained Glass Studios www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories David S.? 1?+ years. Remember the ball clamps? SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > > I was just wondering if anyone else in the "leakers club" notices > > variation day to day in how many pads they need? I am an office worker [quoted text clipped - 17 lines] > casued leakage, as well as end of day tiredness. Almost everyome does get > better and dry eventually. Hang in there! |
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