Medical Forum / Diseases and Disorders / Prostate Cancer / April 2005
CUT IT OUT, IS A SIMPLISTIC SOLUTION
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Barbara Harris - 02 Apr 2005 15:57 GMT why do all you guys think a rp is the solution. Cut it out, and therefore the problem is minimized. surgery only benefits the surgeon, ie., his wallet gets fatter. i have seen studies, showing that rp vs do nothing at multiple stages of diagnosis, does nothing to contribute to a longer life, but contributes to a lower quality.
Richard - 02 Apr 2005 16:46 GMT What would Barbara do if she had breast cancer? Her statement is also simplistic, as she has no research to back it up.
I don't regret having my prostate removed.
Anyway , I don't think we need personal opinions from females on this site.
Richard
> why do all you guys think a rp is the solution. Cut it out, and therefore > the problem is minimized. [quoted text clipped - 3 lines] > longer life, but contributes to a lower > quality. Tom Cular - 02 Apr 2005 18:14 GMT Richard, Everyone is entitled to their opinion, but I think your comment regarding females in this group are way off base.
The few regular wives that participate in discussions here have contributed a lot in the year and a half or so that I've been here.
I don't agree with Barbara Harris either, but that's another matter.
Tom
> What would Barbara do if she had breast cancer? Her statement is also > simplistic, as she has no research to back it up. [quoted text clipped - 14 lines] > > longer life, but contributes to a lower > > quality. Unquestionably Confused - 03 Apr 2005 00:55 GMT > What would Barbara do if she had breast cancer? Her statement is also > simplistic, as she has no research to back it up. > > I don't regret having my prostate removed. > > Anyway , I don't think we need personal opinions from females on this site. Easy, Richard. I think what you perhaps meant to say was "we don't need personal opinions from female trolls on this site>'
From hanging around this usenet group for a bit over five years now, I would definitely take issue with your "no girls allowed" stance.<g>
They can't have it (PCa) but the ones here (save, perhaps, Barbara Troll) are "partners" in our trevails. Many have done the same research that we've done and come to the same conclusions, others may not be as on top of it but they're "standing by their man" so to speak.
I received a lot of good information and support from one such lady, Beth Steward, a DVM, who's partner was going through RRP a month or so before I had mine.
As for Barbara? Consider the source, consider the dearth of information she provided to support her conclusions/opinions/troll, etc. and then forget it.
Ron B - 03 Apr 2005 15:25 GMT I agree with "Puzzled" on this, too.
The women who are partners of the PC guys, or who are close to one are always welcome.
Trolls, of course, are a different story.
A cute, or ironic or 'hand of fate' story on this:
The day I came home from the hospital...I was watching TV.
I flipped around and saw a 'Golden Girls' episode.
I watched them all when they were 'first-run' but had never watched a rerun.
I tuned in just at the point where Sophia (the older lady), who was helping out at a hospital was telling someone about going through prostate surgery.
Another woman overheard this and came up to her and said...
"YOU had prostate surgery?"
Sophia responded:
"What, do I look like a cross-dresser? My HUSBAND had the surgery but "I" went through it."
Very true. The women really go through it too.
I welcome them.
Feel Good All,
Ron B.
Chicago
Debbie Trujillo - 09 Apr 2005 14:45 GMT This female would like to put in her 2 cents if you don't mind. In our situation, surgery was the best alternative. John's (my husband) cancer was very spread out (11 of 12 cores removed infected). Therefore, freezing and seeding were out of the question. Radiation was the alternative -however, after studying the literature from the doctor we agreed surgery was the best solution since it is very difficult if not impossible to go that route once radiation has been done (this is true in any cancer situation). It turned out that the doctor had to cut a wide margin because John was just starting to go into Stage 3 with his cancer.
Surgery was definitely not chosen in this situation to make the doctor richer. When we went to family counseling with John's uro, the doctor offered to refer John to a radiologist for a second opinion but John said he had decided on the surgery.
I realize in some situations surgery is not the best option but it was in ours.
Thanks.
 Signature Debbie Trujillo
Please visit my website at http://mysite.verizon.net/res21yh8/index.html
On 4/2/05 8:46 AM, in article w7z3e.504195$w62.467536@bgtnsc05-news.ops.worldnet.att.net, "Richard" <fburda@worldnet.att.net> wrote:
> What would Barbara do if she had breast cancer? Her statement is also > simplistic, as she has no research to back it up. [quoted text clipped - 14 lines] >> longer life, but contributes to a lower >> quality. James A Honeychuck - 09 Apr 2005 14:51 GMT Debbie,
This post is very important to someone I know who is in read-only mode. Could I trouble you to remind us of John's pre-surgery PSA, Gleason score, and age? Thanks.
jimhoney
> This female would like to put in her 2 cents if you don't mind. In our > situation, surgery was the best alternative. John's (my husband) cancer was [quoted text clipped - 15 lines] > > Thanks. Debbie Trujillo - 09 Apr 2005 15:00 GMT Before the biopsy, his 2 PSAs were 4.07 and 4.17 (somewhere around there. However, the day before his surgery is only 2.1 (apparently he had an infection that drove his PSA up).
His Gleason score was 3 + 3. John turned 58 three days after his surgery.
 Signature Debbie Trujillo
Please visit my website at http://mysite.verizon.net/res21yh8/index.html
On 4/9/05 6:51 AM, in article P5R5e.57963$cg1.28028@bgtnsc04-news.ops.worldnet.att.net, "James A Honeychuck" <jimhoney@worldnet.att.net> wrote:
> Debbie, > [quoted text clipped - 23 lines] >> >> Thanks. I. P. Freely - 09 Apr 2005 19:16 GMT I was in the same boat, but consulted radiological and medical oncologists anyway for a reality check. Both advised surgery.
I.P.
> When we went to family counseling with John's uro, the doctor > offered to refer John to a radiologist for a second opinion but John said > he > had decided on the surgery. ron - 02 Apr 2005 16:54 GMT > why do all you guys think a rp is the solution. Cut it out, and therefore > the problem is minimized. surgery only benefits the surgeon, ie., his
> wallet gets fatter. i have seen studies, showing that rp vs do nothing at
> multiple stages of diagnosis, does nothing to contribute to a > longer life, but contributes to a lower quality. Barbara...What studies are you referring to? I am aware of one study along these lines, the Holmberg study. In the Holmberg study, the underlying PCa population was divided into two arms, one was treated by RP and the other practiced WW, and results were compared over time. At the 6-year point
it was found that RP had reduced the rate of local progression by 63%, reduced distant metastasis by 35%, and reduced PCa-specific deaths by 48%. Further, the surgical branch had 14.5% less overall mortality than those on WW. This last difference did not test statistically significant at 6 years. So while it is true that, in this study at 6 years, there is no statistically significant difference in overall mortality between surgery and "doing nothing", that is a misleading statement given the other striking differences in disease progression that have been observed. Note that PCa is often a slowly progressing disease, so it is perhaps not to surprising that a difference in overall mortality did not test significant at 6 years into the study, although it was certainly very significant to the extra 14.5% men still alive in the surgical arm. Presumably as time goes on and the differences already seen in progression and mets increase further, the overall mortality difference will increase further and test significant. On the other hand, if the study goes long enough, eventually all men in both arms will be dead of one thing or another, so again, surgery would not show an advantage in overall mortality. This is the problem with overall mortality as an indicator of PCa treatment efficacy; early on and later on in the study a statistically significant difference may not be seen, even if there really is an effect. In any case, disease progression, PCa-specific and overall mortality rates were lower in the RP arm as compared to the WW arm.
As to QOL, studies have shown that "doing nothing" impacts QOL as well. For example, men who have RP tend to have better urinary function and worry less than men on WW. Of course, just how much QOL a men may be willing to trade for longevity is an individual decision...Best wishes and good health, Ron
smu53@aol.com - 02 Apr 2005 17:11 GMT Barbara, The urology literature is a sea of doubt. You can find individual articles supporting any position. If you keep reading, you may find that many studies suggest ( not prove) that when enough time has elapsed to tell what the end results are in men diagnosed at an early stage, especially in younger men, RP will have a survival benefit. When I was diagnosed at age 50, I decided I didn't have time to wait several years for proof to come in. I needed to act then on my best guess about what would be best for me. I chose surgery because I wanted to know how much cancer I had, how bad it was, and I wanted to be cured if possible. I wanted to take the side effects hit up front, and then improve after that. When surgery works, it works very well. We are all placing a big bet no matter what we do. I have enjoyed excellent results, and would go the surgical route again if I had it to do over. The group is not as monolithic as you think. Many guys here had other treatments, for good reasons, and are happy with them. If the best way of caring for PCA was established, there would be no controversy. Ergo, there is no proof yet. Steve U
James A Honeychuck - 02 Apr 2005 17:23 GMT We don't all think RP is the solution. In fact, new reader Sisu here, with a Gleason 7 case, is betting his very life that your reasoning is correct.
jimhoney
> why do all you guys think a rp is the solution. Cut it out, and therefore > the problem is minimized. [quoted text clipped - 3 lines] > longer life, but contributes to a lower > quality. Clarence Crow - 02 Apr 2005 19:30 GMT >why do all you guys think a rp is the solution. Cut it out, and therefore >the problem is minimized. [quoted text clipped - 3 lines] >longer life, but contributes to a lower >quality. "rp vs" what?
I agree that if your PSA and Gleason scores are in the Low to Medium range, tumour is supposedly OC, you are young and healthy enough, that RP may be a better option. (I've also observed this ng is skewed towards Yanks who've been sold on RP as "THE GOLD STANDARD").
OTOH, I have to live with my treatment regime of ADT, XRT and HDRB, because I'm none of the above.
WW does not seem an option IMHO, as it just defers some future therapy in most cases.
No form of treatment guarantees a Cure, as you see quite a lot of guys returning for Salvage Therapy of ADT and XRT, which can provide a stop-gap in some cases, until they go into, (perish the thought), Palliative Care.
In all cases, the Survivors suffer from a change to their QOL. In my case it is just an added burden to an already poor QOL caused by OA and NIDDM with all it's offshoots.
Most of us have seen a lot of stuff on the net, some good, some crap, but could not form a conclusive opinion on any of it.
Are you just trying to jerk our flaccid lariats?
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-- CC
Steve Kramer - 02 Apr 2005 20:40 GMT Hi, Barb. Welcome to our newsgroup. The ladies of prostate cancer patients are also welcome, regardless of the tripe they may spew forth.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3bN0M0 Seminal Vesicle involvement, Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05
non Illegitimi carborundum
> why do all you guys think a rp is the solution. Cut it out, and therefore > the problem is minimized. [quoted text clipped - 3 lines] > longer life, but contributes to a lower > quality. Rob Constable - 02 Apr 2005 21:37 GMT The only thing simplistic here is your argument...
c palmer - 02 Apr 2005 22:32 GMT From: beeh2003@yahoo.com (Barbara Harris)
why do all you guys think a rp is the solution. Cut it out, and therefore the problem is minimized. surgery only benefits the surgeon, ie., his wallet gets fatter. i have seen studies, showing that rp vs do nothing at multiple stages of diagnosis, does nothing to contribute to a longer life, but contributes to a lower quality. ========hi barbara - first - welcome to our club. everyone is entitled to their opinion.
but you did ask a very pointed question and for that i will try to be as brief in my answers. ------ first, cutting it out is not that simple. it IS the preferred method IF the cancer has not left the capsule. we are fighting for our lives and this method does offer the BEST method at THAT POINT IN TIME.
there are times when radiation offers the best option.
there is no one size fits all when one has prostate cancer. and it's not an easy choice to make when you are the one who has the cancer growing inside you.
your comment about - i have seen studies, showing that rp vs do nothing at multiple stages of diagnosis, does nothing to contribute to a longer life, but contributes to a lower quality. ========> that part is probably true because you are referring to the later stages of prostate cancer when it is no longer in a cure stage but treatable stage.
now, may i ask you one question? why is your interest so strong in prostate cancer? do you have a loved one who has it?
one thing that perhaps that needs to be stressed here is the fact that prostate cancer is the male version of breast cancer for the female side. they both are hormone driven and the treatments are basically the same.
so, my question back to you would be would you feel the same way if this was breast cancer growing inside you and your comment being.... Cut it out, and therefore the problem is minimized. surgery only benefits the surgeon, ie., his wallet gets fatter.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
Clarence Crow - 02 Apr 2005 23:14 GMT <snip>
>hi barbara - first - welcome to our club. everyone is entitled to their >opinion. > >but you did ask a very pointed question <snip>
Curtis, you're just too kind ;)
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Dave LaCourse - 03 Apr 2005 00:30 GMT >why do all you guys think a rp is the solution. Cut it out, and therefore >the problem is minimized. [quoted text clipped - 3 lines] >longer life, but contributes to a lower >quality. I see that you have 9 or 10 responses to your post, but no come-backs from you. Anyway, without a RP nine years ago, I would now be dead. Surgery offered the best survivability available *at that time*.
I pee straight and sex is great, so I don't see what your argument is.
I'm a survivor and I am very, very happy with the decisions my wife and I made when I was dx. OTOH, what would you do if your doc told you that the tumor in your breast was malignant and was termed "lethally aggressive"? Herbal treatment? Radiation? Voodoo? Or have your breast removed and live?
I don't know how well you would do with just one breast, but I live quite happily without my prostate. And, there's no wet spot after sex. d;o)
Dave
Glassman - 04 Apr 2005 05:23 GMT > why do all you guys think a rp is the solution. Cut it out, and therefore > the problem is minimized. [quoted text clipped - 3 lines] > longer life, but contributes to a lower > quality. I'd be very surprised if Barbara reads any of your responses, or ever shows up here again. Not quite a troll in the true sense of the word, but pretty close.
 Signature JK Sinrod Sinrod Stained Glass Studios www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories
Dave LaCourse - 04 Apr 2005 12:46 GMT >> why do all you guys think a rp is the solution. Cut it out, and therefore >> the problem is minimized. [quoted text clipped - 9 lines] >shows up here again. Not quite a troll in the true sense of the word, but >pretty close. I'm sure everyone is aware of that. But on the chance that she does come back, it is nice to re-troll. d;o)
Glassman - 05 Apr 2005 00:16 GMT > >> why do all you guys think a rp is the solution. Cut it out, and therefore > >> the problem is minimized. [quoted text clipped - 12 lines] > I'm sure everyone is aware of that. But on the chance that she does > come back, it is nice to re-troll. d;o) Trolls need attention to exist. Ignoring them is the only way to really combat them.
 Signature JK Sinrod Sinrod Stained Glass Studios www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories
Bob Anthony - 04 Apr 2005 05:25 GMT Guys, there isn't a "Barbara", I think it's a ruse. It's an absurd posting.
jenniferb - 06 Apr 2005 20:30 GMT I don't understand the term "troll." Would someone please explain? I'm only a daughter (vs. wife) of someone who is battling PCa; I hope my occasional posts do not offend anyone.
Ed Friedman - 06 Apr 2005 20:55 GMT > I don't understand the term "troll." Would someone please explain? I'm > only a daughter (vs. wife) of someone who is battling PCa; I hope my > occasional posts do not offend anyone. Jennifer,
In general a "troll" is someone who posts an inflamatory post to a newsgroup for the sole purpose of generating lots of responses - not to learn anything or to engage in a meaningful dialog. In your case, since you asked why bother with surgery without offering any alternatives, some people perceived that you must be a "troll", especially since many men on this newsgroup have undergone surgery.
To avoid such misunderstandings in the future, it is best to have more detailed posts and be willing to respond to people who disagree with you. E.g., if you had posted asking if there were any better options than surgery, and given the age, PSA, and biopsy findings of your father, then nobody would have doubted your sincerity.
Another option would have been to post with an alternative theory, e.g., by pointing out that the statistics shown by http://www.prostateweb.com/pdfs/ASCO_PCF_02_2005.pdf demonstrate that the treatment used by Dr. Leibowitz and Dr. Tucker has a far lower chance of death by prostate cancer than any study ever done with surgery, and the model presented in http://www.tbiomed.com/content/2/1/10 shows why in theory their protocol is the best treatment with the drugs legally available today, then you might have gotten posts that disagree with you, but again you would not have been accused of being a "troll".
Ed Friedman
jenniferb - 06 Apr 2005 21:07 GMT Ed,
Thanks for your response. Please note -- I did not make the initial "why bother" post. Someone named Barbara did. I read it and didn't know what it meant, and then was concerned that it had to do with participation by someone who doesn't actually have the problem discussed in the newsgroup.
Jennifer
Ed Friedman - 06 Apr 2005 21:14 GMT > Ed, > [quoted text clipped - 4 lines] > > Jennifer Jennifer,
That was very careless of me - I apologize. My browser is set not to show already read articles and I was too lazy to go back to the original post to double check the identity of the poster.
Sorry,
Ed Friedman
Dave LaCourse - 06 Apr 2005 21:57 GMT >I don't understand the term "troll." Would someone please explain? I'm >only a daughter (vs. wife) of someone who is battling PCa; I hope my >occasional posts do not offend anyone. Hello. Hope your dad is doing well.
A troll is a post meant to cause derision between the poster and those who are reading the newsgroups. Barbara's post was most certainly a troll. She condemned one means of treating prostate cancer and never really offered a "solution" to our problem.
A troll can also be a message posted simply to anger most and to see the different reactions. Belief it or not, there are "posting clubs" who will run contests among themselves to see who can get the most answers to their trolls. It's internet fun and games, and I usually treat it by trolling back.
Again, hope your dad is well. Can you tell us something about his PCa and treatment?
Dave
jenniferb - 06 Apr 2005 22:18 GMT thanks dave.
my father is 72, excellent (aside from PCa) health, PSA: 3.8, Gleason: 3 + 3, stage 1. the biopsy was done in early March after a suspicious DRE. he is having robotic surgery in two days (friday).
at this point, i think he's dreading the required pre-surgery "menu" more than the actual surgery itself. also, his prostate has been enlarged and problematic for years, so i believe he's quite happy to finally be rid of it. thanks for asking. i'll post an update afterwards.
jennifer
Unquestionably Confused - 06 Apr 2005 23:05 GMT on 4/6/2005 4:18 PM jenniferb said the following:
> thanks dave. > [quoted text clipped - 6 lines] > problematic for years, so i believe he's quite happy to finally be rid of > it. thanks for asking. i'll post an update afterwards. Do that, Jennifer and best wishes to your father from me as well. You/He are correct, the preparation and contemplation of the surgery seem far worse than the realization as most here can attest.
When you report back, please do so with a fresh subject line rather than this or, God forbid, the old one, so that no one misses it. Some may have already filtered out the "CUT IT OUT..." to be spared even having to look at Barb's troll.<g>
James A Honeychuck - 07 Apr 2005 00:10 GMT I was wondering why he is bothering with surgery with Gleason 6 and a low PSA. Guess it will be a relief to be rid of that gland altogether.
Welcome Jennifer. Stay with us.
jimhoney
> thanks dave. > [quoted text clipped - 8 lines] > > jennifer Steve Kramer - 08 Apr 2005 22:24 GMT Ah, today! I hope everything went well.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum
> thanks dave. > [quoted text clipped - 8 lines] > > jennifer I. P. Freely - 06 Apr 2005 23:47 GMT >>I don't understand the term "troll." Would someone please explain?
> A troll is a post meant to cause derision between the poster and those > who are reading the newsgroups. Barbara's post was most certainly a [quoted text clipped - 4 lines] > answers to their trolls. It's internet fun and games, and I usually > treat it by trolling back. I once shut up a repeat troll by "outing him". Told the forum something like, "I know this guy personally --my kid goes to high school with him and he lives just down the block. He used to seem normal, but in the last few years he has become outright creepy. He walks down the sidewalk with his hand in his pants, and gets all out of breath when he stops to watch little kids playing in their yard. Some parents are getting ready to call the police on him. He made decent grades until middle school, when his limited IQ became a problem." And on and on it goes, trying to sound as familiar, casual, and credible as possible.
Now Barbara, as it turns out, has a police record. A little web sleuthing on her hidden return address revealed that HE is a closet drag queen. He fathered a little boy when he was 16, molested him at 17, and was sent to Juvie until he turned 18. He finally took his problem underground, and few of his current coworkers (he's a porta pottie sanitation engineer in a Kansas City stockyard) know he's a gay hooker, which pays his child support costs but little else, as he can't even do THAT well. He denies all this even to his sister and parents, but enough open gay bar cruisers have picked him out of lineups that his denials have been overruled by the court system. He manages to skate just past the fringes of the courts these days by doing most of his cruising on the internet, also with one hand in his pants (seems common among trolls); FOIA disclosure of his web habits show that he hits only selected forums, but lurks on MANY, most of them alt.porn types. The police watching his activities (they have detectives posing as needy kids online) said he only recently "discovered" this forum, probably when his search engine discovered out how much time we spent TALKING ABOUT OUR DICKS.
Now tell me . . . how many dry diapers in the house NOW?
I.P.
Steve Kramer - 08 Apr 2005 22:27 GMT Yeah, that should stop her
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum
> >>I don't understand the term "troll." Would someone please explain? > [quoted text clipped - 37 lines] > > I.P. I. P. Freely - 08 Apr 2005 23:15 GMT It has worked very well in the past with other trolls, with people who buy stuff online from individuals and then don't pay up, and with people who seem to enjoy sniping at others; why not again? Besides, sometimes writing fiction is its own reward.
I.P.
> Yeah, that should stop her > > "I. P. Freely" <fuhgheddaboutit@noway.nohow> wrote >> >> I once shut up a repeat troll by "outing him". . . . Steve Kramer - 08 Apr 2005 22:22 GMT Jennifer,
You're not a troll. Don't give it a second thought.
 Signature PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum
> I don't understand the term "troll." Would someone please explain? I'm > only a daughter (vs. wife) of someone who is battling PCa; I hope my > occasional posts do not offend anyone. jenniferb - 10 Apr 2005 00:09 GMT thank you steve. i've posted about my dad's surgery under a separate string...
tomrp@juno.com - 09 Apr 2005 02:17 GMT Yeah, cut that sucker out. Guess I'm a simple kind of guy, with Gleason 7 4+3. Worked for me, 3 years later PSA still .01.
Take care,
Tom
> why do all you guys think a rp is the solution. Cut it out, and therefore > the problem is minimized. [quoted text clipped - 3 lines] > longer life, but contributes to a lower > quality.
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