I'm only a couple days from the 4 month mark. First PSA after 6 weeks came
back .008 (down from about 114 - not a typo), second one to be taken in two
weeks.
I've found that I still can't make it thru a business day (desk job, some
walking) with only pads. Even being careful, I leak enough out the sides
with normal movement of body parts to wet my briefs, then shirtail, then
pants, unless I change pads at least every 2 hours. Not good. Went to
the plastic diapers, PLUS a pad, and have no worries. Can get away with 2
pad changes during business hours this way. At nights, it's briefs and a
pad, as there's almost no leakage.
My uro (not the surgeon I used) put me on Ditropan in February for three
weeks, hoping it was bladder spasms. Did nothing.
I'd say there's been minor improvement, but I can't really quantify it.
The only truly good days are when I consume less fluids, and good is still
not good.
Today I went back to the uro and he mentioned a penis clamp. Kind of
looks like a square of soft plastic with a round hole in the center for
the penis. You then fold it in half, and it clamps closed, with
apparently adjustable pressure, on the penis. Never heard mention of
these things, but it looked very inexpensive and worth a try.
Anybody out there using these clamps?
I'm bummed about my incontinence being this bad after 4 months. I can
only keep a sense of humor. Among family, I joke a lot, believe it or
not. Got to live with it, so might as well make it livable.
On the ED front, there are stirrings, but not much more. Cialis does
nothing at all. Haven't tried Viagra yet. Levitra, after several
attempts, produced one evening of surprising results recently, but not
near enough for penetration - just more solid and full. My SO was quite
surprised and encouraging. She's a keeper.
Tried the pump a few times, but never got near enough of an erection for
penetration, so stowed it.
One observation I'd like to get some feedback on. The days after I take
Cialis or Levitra, I swear the leakage is less - noticably so. Anybody
else see that side effect??
Unquestionably Confused - 31 Mar 2005 05:00 GMT
> Today I went back to the uro and he mentioned a penis clamp. Kind of
> looks like a square of soft plastic with a round hole in the center for
[quoted text clipped - 3 lines]
>
> Anybody out there using these clamps?
I was fortunate in that I regained continence pretty quickly and, except
for those little stress squirts that occasionally caused grief during
the first nine months or so post-op (actually pretty rare but...) I was
dry throughout the day by three months. Went to trimmed Maxi-pads
before I went through the first box of Depends.
I do recall, however, some of the extensive reading I did in preparation
for a worst case scenario that it was recommended to refrain from using
physical means (Texas Catheters, clamps, etc) if at all possible.
Unless something was radically wrong with your surgeons skills, your
problems are likely related to a lack of muscle tone and "training" your
remaining urethral sphincter to do the work of two. Then too, if there
is nerve damage involved that is delaying recovery of continence, the
rate of regrowth/recovery for nerves is painstakingly slow. Glaciers
have been known to move faster<g>
Good luck on your recovery and congratulations on that PSA reading!
David S. - 31 Mar 2005 14:08 GMT
For the first week to ten days I had no control at all, but then it got
better. I used the Depends Guards and for the first month or so was going
through six per day. For some reason I never leaked while lying down so
sleeping was no problem (I am not a stomach sleeper though). For months the
norm was 4-5 pads per day. My uro prescribed Ditropan, Oxy something
patches (same medication as Ditropan I think) and finally Detrol LA. None
helped the leakage at all. With Ditropan I had severe dry mouth and a
couple times almost choked trying to swallow food. Hated that stuff. Then,
unrelated to the RRP (I think) my primary care doc prescribed Prozac. It
took over a month, but gradually the leakage got better and I ended up with
one pad a day. Everyone laughed at me at first, but then the uro told me
that they do in fact prescribe medications "in the family of drugs as
Prozac" for incontinence. He put me on a different medication, but that one
made me feel like I had a buzz on, so I went back to the Prozac. Twice now I
have gone off the Prozac, and after a month or so the leakage gets worse.
And, of course, it got better after going back on the drug, although it
takes 4-6 weeks to see the effect. Very slow for sure, but that is all I
need to believe that it is what is helping me keep to 1-2 pads per day, 3 on
weekends when I am out in the garden lifing bags of mulch and so forth. I
am an office worker by the way, so I spend my day in front of a pc. I offer
this just as a suggestion. As far as I am concerned the Prozac does nothing
for me in terms of mood or making the world look wonderful (what sucked
before still sucks), but it certainly did help me in the incontinence
department.
On the clamp, everything I have ever read says that once you rely on
artificial devices you will start to lose whatever natural control you do
have, so that is a last resort. Some guys here have reported using them
while playing golf and the like, they do not wear them all the time. You
might try that, but be careful about using one all day. There are several
types out there. Some much smaller and some easier to use than others. Do
a Google search to see what you can find.
Good luck to you. My RRP was in August of 2003 by the way and I will be 58
this September.
Thank you.
David S.
> I'm only a couple days from the 4 month mark. First PSA after 6 weeks came
> back .008 (down from about 114 - not a typo), second one to be taken in two
[quoted text clipped - 39 lines]
> Cialis or Levitra, I swear the leakage is less - noticably so. Anybody
> else see that side effect??
dennis - 01 Apr 2005 01:17 GMT
Hopefully you notice a big difference soon...
On Saturday, it will be 5 months since my RRP, and I only wear a pad a
couple of days a week, and even then they are only damp at the end of
the day...
I felt, like you do, that it will never end, but keep the faith, and
one day your pants will be dry, and you wonder how it happened!!
In article
<38aca190bed84f4dbf4e02357c213758@localhost.talkaboutsupport.com>,
> I've found that I still can't make it thru a business day (desk job, some
> walking) with only pads. Even being careful, I leak enough out the sides
[quoted text clipped - 3 lines]
> pad changes during business hours this way. At nights, it's briefs and a
> pad, as there's almost no leakage.

Signature
---
dennis
Age: 55
Diagnosed: Aug. 2004
PSA 4.6
Gleason Score 3+4=7, T2c
Biopsies: 7/10 Positive, both lobes involved
RRP: 11/2/04
Nerves Saved: 1.5 bundles
First Post-OP PSA (12/20/04): < 0.01
Second post-op PSA (03/12/05): <0.01
I. P. Freely - 01 Apr 2005 04:00 GMT
I've ran like a faucet for 4 months post-op, with no noticeable improvement,
but now I'm changing diapers only because they're getting rank, not because
they're getting full. And that's with me spending many hours a day doing
pretty heavy labor in the yard. I'd guess I've dried up by 80-90% just in
the last 2-3-4 weeks. The difference I can feel is that FINALLY both I and
my subconscious can feel leakage before it passes the point of no return.
You'll get there.
I.P.
Tdub - 01 Apr 2005 04:58 GMT
I.P., I think you're going to have to change your "name"!
I. P. Freely - 01 Apr 2005 07:20 GMT
> I.P., I think you're going to have to change your "name"!