 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Prostate Cancer / March 2005PC Reference Cards/Seminars
I ?lurk? this NG everyday, but very seldom participate because there isn't much you ?regulars? don't cover with any requests for info or support that come in on a daily basis. However, I am inspired by this NG to help out in some way (similar to what you participants are feeling, here) to folks that aren't aware of this group - or, even aware of their vulnerability to this ugly ?bastard.? On my last visit to my urologist's office I suggested that they hand out a card to every new patient with a few necessary tidbits of information (references) that would be helpful to their upcoming journey into ?the club nobody wanted to join.? Dr. Walsh's book, this news group, and a couple of those web sites you folks continually recommend would be a few of those pieces of useful information. In that it is a ?business?, I'm not sure they will actually hand them out - however, I have, since, received a call from his office asking me if I would call one of their ?clean? RP patients that was having a very difficult time with some SEs to walk him through this support group process. Which I did and which I think helped him a bunch. I can only hope that this is an indication that when I present a stack of cards to my urologists office that they will, in fact, hand them out - BEFORE RP. In that effort, I would like to ask this group for their recommendations as to what pertinent references should be included on such a card. (Shouldn't EVERY urologist's office hand out some sort of list of handy references??) Plus, I am a rather ?social? creature and I think I could hlep by offering ?free? talks to churches, clubs, business meetings, etc. in my locale to put on semi-informal Power-Point presentations of PC awareness - and, avoidance. I can come up with plenty of facts from Dr. Walsh's book and the other sources as to what it is, the probability that any man will get it, and what to do after you find out you have it. It's the prevention of it that I would really like to dwell on for the younger men - which we all were a few ?short? years ago - when we (at least I didn't) knew absolutely nothing about this or what was growing inside us. Yet, I know very little about what would be proper and factual in avoiding PC. Anybody got any ideas where I can get more facts on prevention? Thanks, Paul A worthy cause. I've never read anything definitive on prevention. I have noticed that no medical or medical advice organization campaigns on the theme of PCa prevention, only early detection. You should probably follow that line of thought too. jimhoney > I “lurk” this NG everyday, but very seldom participate because there isn't > much you “regulars” don't cover with any requests for info or support that [quoted text clipped - 35 lines] > > Paul Oh, for sure, Jim. I forgot to include that - but, it was one of the first things that I'd get across to a group... PSA, PSA, PSA.... Paul Aside from the natural human element exhibited by most docs, I'd also imagine that in today's letigious society, they might be plumb scared to pass out a card referring a patient to some one, forum, newgroup or website. Let's take this one for instance. Can you imagine a practicing PCa doc poking his nose in when one guy was talking urine treatment and then later to see I.P.'s tirades on HT and RT? No, I doubt that an doc would take that chance. It's a shame too. It sure makes things easier when you talk to those who have been through it.  SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3bN0M0 Seminal Vesicle involvement, Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > I "lurk" this NG everyday, but very seldom participate because there isn't > much you "regulars" don't cover with any requests for info or support that [quoted text clipped - 6 lines] > card to every new patient with a few necessary tidbits of information > (references) that would be helpful to their upcoming journey into "the club > nobody wanted to join." Dr. Walsh's book, this news group, and a couple of > those web sites you folks continually recommend would be a few of those > pieces of useful information. In that it is a "business", I'm not sure they > will actually hand them out - however, I have, since, received a call from > his office asking me if I would call one of their "clean" RP patients that [quoted text clipped - 9 lines] > Plus, I am a rather "social" creature and I think I could hlep by offering > "free" talks to churches, clubs, business meetings, etc. in my locale to put > on semi-informal Power-Point presentations of PC awareness - and, avoidance. > I can come up with plenty of facts from Dr. Walsh's book and the other [quoted text clipped - 9 lines] > > Paul >Aside from the natural human element exhibited by most docs, I'd also >imagine that in today's letigious society, they might be plumb scared to >pass out a card referring a patient to some one, forum, newgroup or website. <snip> Exactly! Both my Rad Onc and PC Physician (GP), guffawed loudly when I espouse anything I've gleaned from the net, albeit a kosher website or a usenet group. They just say the net's full of misleading crap! So I asked them each, did they reserve the right to mislead me and feel their positions were under threat? Just more GUFFAWs and "Gerroutofheah" or I'll bill you for a double appointment! -- Reader to complete... -- Please reply to this ng as my email adress is fake: -- Regards -- CC Steve, Unfortunitly, I think you've hit the nail on the head! Tom > Aside from the natural human element exhibited by most docs, I'd also > imagine that in today's letigious society, they might be plumb scared to [quoted text clipped - 57 lines] > > > > Paul Nekt week, I'll learn to spell ! Tom > Steve, > [quoted text clipped - 31 lines] > a > > > card to every new patient with a few necessary tidbits of information > > > (references) that would be helpful to their upcoming journey into "the > > club [quoted text clipped - 40 lines] > > > > > > Paul "Tirades"? Not according to any dictionary I've seen. In fact, doctors have praised my ADT SE tomes. And in today's litigious environment, docs had BETTER inform every pt about all the potential SEs of any treatment they discuss. I.P. > Aside from the natural human element exhibited by most docs, I'd also > imagine that in today's letigious society, they might be plumb scared to [quoted text clipped - 8 lines] > sure > makes things easier when you talk to those who have been through it. Over the years, many words have gotten negative press. Some, due to PC, have even undergone changes in their definition in dictionaries. Words mean things. I use them in accordance to what they mean, or at least I try. I considered "diatribe" but the requisite level of bitterness was questionable. Tirade n. [< It. tirare, to fire] a long, vehement speech of denunciation. So, do not be offended. Your posts are often long -- some of the longest I've ever seen here. However, some have been so informative, that I've actually read them. Indeed, I've saved one or two. They are vehement. You cannot deny you are intense about what you have to say about HT and RT. And, certainly, when it comes to asymptomatic salvage radiation or HT, you denounce the practice. I am sorry about your dictionaries. I use a Webster's. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3bN0M0 Seminal Vesicle involvement, Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > "Tirades"? Not according to any dictionary I've seen. In fact, doctors have > praised my ADT SE tomes. And in today's litigious environment, docs had [quoted text clipped - 15 lines] > > sure > > makes things easier when you talk to those who have been through it. There ya go again. "Denounce": condemn as evil, censure, threaten, accuse, etc. Source: Webster's unabridged. No, I've simply presented facts and sometimes discussed my personal decision based on them. A reader's emotional reaction to facts is not under my control. Sorry about the long posts. I seldom have the time to write short ones, which take longer. I.P. > Over the years, many words have gotten negative press. Some, due to PC, > have even undergone changes in their definition in dictionaries. Words [quoted text clipped - 17 lines] > > I am sorry about your dictionaries. I use a Webster's. I think you're stretching to find denounce as a condemnation of evil. But, I'm not getting out my unabridged Webster's. It's too damned heavy. SignaturePSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3bN0M0 Seminal Vesicle involvement, Neg margins PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05 PSA .07 .05 .06 .05 non Illegitimi carborundum > There ya go again. "Denounce": condemn as evil, censure, threaten, accuse, > etc. [quoted text clipped - 29 lines] > > > > I am sorry about your dictionaries. I use a Webster's. I DID get mine out (The Zoladex doubled my appetite; I needed a workout). Direct quote. I don't make stuff up, and as a professional writer I try to choose words carefully when I have time. I was offended, as the two-year assault I experienced from a couple of internet stalkers left me much more combative than I used to be. If no offense was meant, I'll take none. I.P. >I think you're stretching to find denounce as a condemnation of evil. But, > I'm not getting out my unabridged Webster's. It's too damned heavy. > > do not be offended. > "I. P. Freely" <fuhgheddaboutit@noway.nohow> wrote in ... >> There ya go again. "Denounce": condemn as evil, censure, threaten, [quoted text clipped - 5 lines] >> based on them. A reader's emotional reaction to facts is not under my >> control. >> > Words mean things. > > > I use them in accordance to what they mean, or at least I try. [quoted text clipped - 19 lines] >> > >> > I am sorry about your dictionaries. I use a Webster's. I was surprised how many people my recent PC talk drew from our neighborhood homeowners' association. Our Association newsletter contained informative, funny, enticing articles about the talk two months, one month, and one week in advance, plus an endorsement for the topic and for me by the very popular association secretary. The newsletter reaches over 300 homes of mostly middle-aged and/or retired people. How many people came to hear the talk, in the center of the neighborhood? Four. I've not by any means given up after just one try, but that wasn't earthshaking, was it? Glad I'm not on a crusade; if I were I'd feel as though I failed. It was for their convenience and benefit, so it's no skin off my nose, but it gave me the impression people are simply that ignorant and/or shy of the whole topic. We need to talk it up more so more people can catch this stuff earlier. THAT'S the way to "prevent" it, until a real, proven, prevention comes along: catch it while it's "easily" curable. I.P. <wwcp@infinet.com> wrote > > Plus, I am a rather "social" creature and I think I could hlep by offering > "free" talks to churches, clubs, business meetings, etc. in my locale to [quoted text clipped - 11 lines] > what would be proper and factual in avoiding PC. Anybody got any ideas > where I can get more facts on prevention? |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.