My internist (who is about my age (56) and who has been my Dr. all of my
adult life) called me at 5pm and said that he got the bone scan.
This is the bone scan from last week that showed something suspicious in
a rib (another one had an old fracture but this rib was different)
He read the report and he felt that I should get an MRI.
I told him that the surgeon said to ignore it and do nothing.
He said that he would still want an MRI.
I had asked for his opinion...and he gave it to me.
So then I called the surgeon's office in a panic and left a message
about what had happened.
The nurse called me back and said that the surgeon still feels that I
don't need an MRI.
That was his opinion.
I said OK and left it as is.
Then...all night I'm going crazy thinking about what I should do.
If "I" were giving advice...I'd say get all the tests you could.
The surgeon told his nurse that I didn't need it and no matter what it
showed...he'd operate anyway cuz he wouldn't believe it.
He felt it was not a metastases.
I am so messed up.
With surgery scheduled for monday,this would put things off and would it
possibly help?
I WANTED my internist's advice and he gave it to me.
I ask myself...is the surgeon being pig-headed in that he can't be
wrong?
Or is he so experienced that he must know that it's not in the bone?
I'm very confused now and don't know what to do.
Even if the place in the rib that was consistant with metastases is
true...wouldn't I have the prostate removed anyway?
(I know I don't HAVE to but it seems that it's suggested by the
literature).
Thanks,
Ron B.
Chicago
Steve Kramer - 16 Mar 2005 12:25 GMT
I think you need to talk to the radiologist. Neither of your docs can
answer the question for you first hand.

Signature
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA .07 .05 .06 .05
non Illegitimi carborundum
> My internist (who is about my age (56) and who has been my Dr. all of my
> adult life) called me at 5pm and said that he got the bone scan.
[quoted text clipped - 54 lines]
>
> Chicago
Heather - 16 Mar 2005 18:01 GMT
The men are right on this. Ron's rotator cuff injury showed up on the bone
scan, as did some small spots of arthritis.
Rest easy......Heather
> I think you need to talk to the radiologist. Neither of your docs can
> answer the question for you first hand.
[quoted text clipped - 57 lines]
> >
> > Chicago
James A Honeychuck - 16 Mar 2005 12:44 GMT
Ron,
As several of us have indicated, you have a golden opportunity here,
Gleason 7 with no palpable tumor and no statistical reason even to get a
bone scan, much less worry about some inconclusive finding. And you've
got one of the finest surgeons in the country to do your RRP.
Don't screw this up. Tell your GP you'll get back to him in a few
months about that MRI. Have your surgery, get cured now.
jimhoney
not a doctor
> My internist (who is about my age (56) and who has been my Dr. all of my
> adult life) called me at 5pm and said that he got the bone scan.
[quoted text clipped - 55 lines]
>
> Chicago
Dave LaCourse - 16 Mar 2005 13:47 GMT
>Ron,
>
[quoted text clipped - 8 lines]
>jimhoney
>not a doctor
Ron, I concur with what Jim says; getting that damn tumor out of your
body is the most important thing in your life right now. Your surgery
is scheduled for the 21st, so focus all your efforts on that day.
Dave
judamd@aol.com - 16 Mar 2005 16:57 GMT
I can't recall off hand what your numbers are but if you're a typical
T1c with PSA on the low end of the scale and Gleason in the middle
range, the chance of any cancer having spread to your rib is zip.
There was a guy on the group (actually his wife did all the posting) a
couple of years ago with "hot spots" on a couple of his ribs and he was
all in a dither. Of course it was nothing, probably the result of old
sports injuries. When PCa spreads it almost always goes to the bones
nearer the prostate first, not the ribs. Bone scans are becoming less
common anyway unless there are other indications such as high PSA or
the doc needs to make a payment on his new BMW at the expense of your
insurance. Listen to your surgeon, get the surgery, you'll be fine.
Dave Perry
> My internist (who is about my age (56) and who has been my Dr. all of my
> adult life) called me at 5pm and said that he got the bone scan.
[quoted text clipped - 54 lines]
>
> Chicago
Unquestionably Confused - 16 Mar 2005 18:26 GMT
on 3/16/2005 5:01 AM Ron B said the following:
> Or is he so experienced that he must know that it's not in the bone?
>
[quoted text clipped - 5 lines]
> (I know I don't HAVE to but it seems that it's suggested by the
> literature).
In addition to what I e-mailed you earlier off list and what everyone
else here has expressed as their opinion, here's one more thing to consider.
When I was scheduling my surgery with Dr. Catalona a bit over 5 years
ago (Taa Daa! Today is the fifth anniversary of my RRP and we're still
trying to find any trace of PSA and failing miserably<g>) one of the
first things I was told by his office was that he wanted a bone scan.
This was never mentioned by my urologist who made the DX.
That tells me that Dr. C does value the bone scan as a diagnostic tool.
It also tells me that with his years of experience in treating PCa, he
probably forgotten more about PCa than most internists will ever know.
If he says it's not PCa, I'd go with his thoughts. BUT... it MAY be
something else so it needs to be looked into if only for your piece of
mind. One step at a time, Ron. Lose the PCa in the prostate, then
check out the ribs. It makes absolutely no sense at all to delay the
RRP or worry about the rib at this point.
Even if it IS PCa that's spread to the rib, you still want to remove the
bulk of the tumor as the first step in your fight against this enemy.
Good luck on Monday and we'll raise a glass to you five years hence when
you claim a "likely victory" over PCa.
Tdub - 16 Mar 2005 20:19 GMT
"you go guy" (that is, go into the hands (and grace) of Dr. C on Monday)
Ron B - 16 Mar 2005 21:06 GMT
Steve Kramer - 17 Mar 2005 03:34 GMT
> When I was scheduling my surgery with Dr. Catalona a bit over 5 years
> ago (Taa Daa! Today is the fifth anniversary of my RRP and we're still
> trying to find any trace of PSA and failing miserably<g>)
I sure is!!!!!!!!! Congratulations, confused!
Bill - 17 Mar 2005 16:15 GMT
"Even if it IS PCa that's spread to the rib, you still want to remove
the
bulk of the tumor as the first step in your fight against this enemy."
I am on record saying that Ron should proceed regardless of the bone
scan.
However, generally speaking, I'm not sure the above statement is true.
Any met is proof that the PCa is no longer localized and has spread
systemically. Therefore, any primary Tx that focuses on removing or
nuking the prostate will NOT be a cure. It is logical that elimination
of the primary tumor would have a beneficial effect since it eliminates
the biggest source of future mets and also future urinary
complications, but I have not heard that that is accepted as reason
enough to assume the risks associated w/ primary Tx.
I am interested in this topic because I wonder if RT to the bed would
be beneficial to me for recurrence even if the disease is in fact
already metastatic. It used to be that if you were metastatic they just
put you on HT but I sense that non-curative salvage Tx is gaining
favor. Anybody heard anything on this?
Bill Denton
RP 2/12/02
PSA .45
Memphis
Stavros Moschos - 16 Mar 2005 20:46 GMT
I absolutely agree with what all of the others have written. I won't repeat
their arguments, only to say that I have taken the same route. Something
showed up in a scan that could delay my treatment if attended to now, and I
have put it aside until later. Cancer comes first. And don't think that
scans are oracles. I was once told that a chest x-ray showed cancer and in
the end it turned out to be old scars from an early pneumonia. I have also
been in an experience where my GP was so zealous and wanted me to r eceive
certain tests and invasive treatments and my specialist thought it was all
unnecessary. The specialist knew best and I have always been so glad that I
followed his advice.
Let me join the others to put your mind at rest about this. If you have a
good surgeon, and I gather from the posts that you do, go with confidence
for your surgery..First things first. I am taking my own advice.
> My internist (who is about my age (56) and who has been my Dr. all of my
> adult life) called me at 5pm and said that he got the bone scan.
[quoted text clipped - 54 lines]
>
> Chicago
I. P. Freely - 16 Mar 2005 22:11 GMT
My first colon surgeon said the "5-HIAA urine test" was virtually useless in
detecting the presence of colon carconoids (a rare colon cancer). The
oncologist who ultimately did my colon surgery says it's the first and best
test available for it, and I now know the literature agrees with him.
I just don't take many doctors' word on many things anymore if something
vital depends on it; it's too easy to get broader opinions here and find
large bodies of facts at authoritative websites. The bigger problem occurs
when even the expert sources -- trials, universities, hospitals, medical
societies, etc. disagree with each other and with our own doctors and we
actually have to think, analyze, and make our own decisions . . . which is
exactly what my urology/oncology team advised me to do.
I.P.
>I absolutely agree with what all of the others have written. I won't
>repeat their arguments, only to say that I have taken the same route.
[quoted text clipped - 10 lines]
> good surgeon, and I gather from the posts that you do, go with confidence
> for your surgery..First things first. I am taking my own advice.
ckh - 17 Mar 2005 12:50 GMT
> My internist (who is about my age (56) and who has been my Dr. all of my
> adult life) called me at 5pm and said that he got the bone scan.
[quoted text clipped - 5 lines]
>
> I told him that the surgeon said to ignore it and do nothing.
Last winter (Feb 2004), I worked on my kitchen plumbing. For weeks
after that, I had a pain in my right side. I went to my doc who had
X-Rays shot, showed nothing but as long as I was there, he pulled
blood for a full-up panel.
PSA 10+, so he sent me to a Uro, who couldn't DRE anything but did
a, ugh, biopsy. Gleason 7.
As part of the pre-rad assessment, I had the MRI and bone scan. The
bone scan was lit up like two Christmas lights on my right side.
"Have you, ever, broken your ribs", the Rad-doc asked intently.
I don't know. I had this incredible pain, right here, after working
under the sink. It was from the edge of the baseboard, just the
weight of my body.
He relaxed, "you broke your ribs from the pressure."
I told my primary doc that.
He said, "Well, we should be certain" and sent me for more X-rays.
This time they put a tiny lead bee-bee right where I said the pain
was.
I don't think the few hundred bucks for additional X-rays is
anyone's BMW payment. It's just a good idea, a judgement call.
The Rad-doc took my story. My primary doc (who is a known
perfectionist) wanted to check it out. Similar to your situation.
I don't see why the additional imaging would delay anything.
It's also a little odd that if one of the 'benefits' of surgery is
the full organ biopsy and 'knowing', that there are so many calls
not to bother with the MRI.
Just go ahead with the surgery, they say. Why, only in one case in
a hundred or a thousand, who knows, would the MRI reveal that there
is no point to the surgery because the cancer has already spread.
Seems almost like a religeous thing. It's more important to join
the club... I realize that this is unfair but there definitely is
that underlying sense.
anywho.
Can't you do both? Have the MRI and have your chosen procedure?