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Medical Forum / Diseases and Disorders / Prostate Cancer / March 2005

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Penis Erection Fustrations

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Sonny - 12 Mar 2005 16:00 GMT
In early November I has RP (removal of the prostate) and the pathologist
report indicated a Gleason 6, no margins, and no indications of seminal
vessel penetration.  Two lymph nodes were removed and were clean.  My PSA
going into the surgery was 3.7 also with a Gleason of 6.

After 6 weeks the incontinence appears to be under contained with only
infrequent "squirts".

About a week ago I had my firs post-surgery PSA with a reading of .006,
which the doctor obviously said that it was undectable.

On the other side, however, I am not able at all to achieve any "hardness"
whatsoever.  I have tried Viagra with no success at all as well as the other
"helpers" (ie. Cialis and Levitra).

So I got my doctor to authorize to authorize and Obson Erecaid (Vacuum
Therapy System).

I've played around with it for a couple of day, and so far I'm not happy for
several reasons:  First, to get any sort of a temporary erection, I have to
really pump and to be frank once "Willy" gets to an acceptable hardness, it
really hurts.  Second, when I apply the "rings" at the base of the penis
before removing the plastic tubing, that's not a problem.  But, once the
tubing is removed the rings doesn't seem to keep the blood in and within a
minute or so I'm back to a soft state with "Willy".  And to make it worse
the rings begins to hurt such that I lose total concentration.  When I go to
a larger ring, the erection goes away within 30 seconds.  Finally, because
the rings do hurt, I have a hell of a time removing them and almost reach a
panic state.

So, I plan to go back to the surgeon and look into injections.  I have
lurked here on the board and have a basic understanding.  But, if anyone
could give me some tips on where the injections are to be administered and
the specific names of the drug, I'd appreciate it.  I have read that the
so-called tri mixture works for some, and others have better luck with other
drugs.
Finally, and assuming you use the ultra thin needle, does the injection hurt
like hell and end up resulting in the same distraction as the tight rings
with the pump?

I'm hopeful that maybe within a year or two I'll be able to acheive an
erection without assistance!

Sonny
John Loomis - 12 Mar 2005 16:21 GMT
Hello Sonny,
   You are trying many things and that is good.  Nerve damage takes a while
to recover.  I took about 2 years.......
I was 49 when I had RP.  One nerve side saved.
Viagra did not work, and the vacuum device kinda was like a toy, and helped
some....but was not the best.
The Dr. offered prostaglandin injections....
They show you how to do it...
The needle does not hurt......(bark is worse than bite)
The shot goes in at an angle 45o on either side of the penis.
The erection can be great and also can be uncomfortable.
Best time I had was in the morning so that I could get up afterwards and
walk of the medication so to speak.
At night afterwards I would lay in bed with a throbbing penis, and sometimes
it was very uncomfortable until it subsided.
I can tell you though, it helps with blood flow, and I do not need anything
now and maybe a small piece of viagra to help...
Good wishes.
John Loomis
> In early November I has RP (removal of the prostate) and the pathologist
> report indicated a Gleason 6, no margins, and no indications of seminal
[quoted text clipped - 40 lines]
>
> Sonny
jhhtexas@ieee.org - 12 Mar 2005 16:58 GMT
> Hello Sonny,
>     You are trying many things and that is good.  Nerve damage takes a while
[quoted text clipped - 40 lines]
> > But, once the tubing is removed the rings doesn't seem to keep the blood
> > in and within a minute or so I'm back to a soft state with "Willy".
And
> > to make it worse the rings begins to hurt such that I lose total
> > concentration.  When I go to a larger ring, the erection goes away within
[quoted text clipped - 15 lines]
> >
> > Sonny

I talked to my urologist earlier this week. He said that two years is
the norm for full recovery of erectile nerves (if they do). It has been
9 months since RRP for me. I see slight improvements with time. Levitra
really helped this morning when I took it. I got up with a natural
erection for the first time since surgery.
Howard and Hope - 23 Mar 2005 15:44 GMT
I am  7 weeks out of Robotic surgery and  seem to be in same boat ?? Mr
weener is still short and dead???...no Viagra..no pumps needles as
yet..too early ? Question I have not seen yet..if and when mr weener
wakes up and wants to "Play"...are we able to..how do I put this? CUM
????? Orgasm? will anything come out ?..I heard that if there is any
semen it goes into bladder??? CURIOUS...I guess no question is too
stupid... Howie
Chalee - 23 Mar 2005 17:16 GMT
Good morning, Howie and Hope,

As my Bobby and I have observed to date, it is possible to have orgasm
even without erection with "proper" stimuli. but with out the prostate,
the semen can't be ejaculated--so no CUM- hence the "dry" orgasm.
However, the orgasm can be extremely intense once you come to terms
with apprehension about how it's going to feel, etc.  It can be really
good,  but it's just gonna be "different".  Forever, I've heard and
studied that the majority of sexual arousal is between your ears and
with a caring partner that's more than possible.
judamd@aol.com - 23 Mar 2005 17:18 GMT
You can have orgasms with or without an erection.  Without an erection
you have to manipulate Willie kind of like a walnut between thumb and
fingers but what the hell, it works.  There is no semen since that is
produced in the prostate and the prostate is gone.  Sperm stays trapped
in the testicles and is eventually absorbed.  Nothing comes out except
perhaps a squirt of urine.
Dave Perry
smu53@aol.com - 24 Mar 2005 01:57 GMT
Howie,
I learned to do the injections pre-op, and started using them for real
on day 13 post op. I'm very glad did. As a result, my sex life has been
excellent post RP. That includes orgasm, which is very intense, and now
lasts longer than preop.  I've regained about 75% of my erectile
capacity ( on no drugs) over a year. The pills now work, but I prefer
the shots because they are covered by insurance, and they work better.
If I use a big dose, I can have sex twice on the same erection. It gets
very easy to do the shots after some practice. They work great once you
get the dose right. Why people wait is a complete mystery to me. By the
way, the only thing you will ejaculate form here is urine, if you are
not careful. You may eventually be dry. I am.The semen producing parts
are gone. Steve U
Steve Kramer - 24 Mar 2005 10:11 GMT
Initially, I had little fluid escape which was almost certainly urine.
That's not bad.  It's sterile in fact.  And, in fact, your wife has been
peeing on you during sex for years, more than likely.

After awhile, the urine ceased to escape about the time I was more or less
continent.

Every once in awhile, I'd have a stick solution actually pump out.  It felt
familiar, but not the same quantity.  You have only one gland left producing
any 'ejaculant'.  I think it's called the Cowper gland (don't know why I
can't ever remember the name).  It has always been there producing just a
little, but soon it will be your only chance of an emission.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05

non Illegitimi carborundum

> I am  7 weeks out of Robotic surgery and  seem to be in same boat ?? Mr
> weener is still short and dead???...no Viagra..no pumps needles as
[quoted text clipped - 3 lines]
> semen it goes into bladder??? CURIOUS...I guess no question is too
> stupid... Howie
ckh - 25 Mar 2005 01:58 GMT
> Initially, I had little fluid escape which was almost certainly urine.
> That's not bad.  It's sterile in fact.  And, in fact, your wife has been
[quoted text clipped - 8 lines]
> can't ever remember the name).  It has always been there producing just a
> little, but soon it will be your only chance of an emission.

At almost 6 months post-rad, and 2 months after the end of Lupron,
the erections are returning. They're just not as urgent and solid as
before the treatments.

The two emissions were like "thirds".  That is, about a quarter the
normal amount.  I expect that this will diminish over the years.

The trick for me is to appreciate what I have and not worry about
what's missing or lost.

This modest performance is with no Vitamin-V.   My doc gave me a
couple sample packs of 50's but I haven't tried them yet.   I'm
guessing that they will help a lot and that as the remaining
prostate cells die off, that I'll need the pills to replace the
fading hydraulic urgency.  

 
Leonard Evens - 12 Mar 2005 21:00 GMT
> In early November I has RP (removal of the prostate) and the pathologist
> report indicated a Gleason 6, no margins, and no indications of seminal
[quoted text clipped - 40 lines]
>
> Sonny

Your pump should have come with instructions to use practice with it a
couple of times a day for two weeks or such before even trying to put on
the rings.  There are some tricks in getting it to work right.  First
you have to be sure there is enough of a seal so air doesn't enter while
pumping.  You  have to take a step at a time and you shouldn't expect a
usable erection immediately.   The tissues have to have some time to
recover if you haven't had an erection for a while.  Also, don't try for
an impressive erection but rather one that will work with some guidance.
 My pump, made by the same company, came with an 800 number, which you
can call for advice.  I found them very helpful.  As to the rings, it
may take some time to get the right ring or combination of rings.

I used a pump for about 18 months before erections began to return, and
we managed pretty well with it.
Dave LaCourse - 12 Mar 2005 21:59 GMT
>In early November I has RP (removal of the prostate) and the pathologist
>report indicated a Gleason 6, no margins, and no indications of seminal
[quoted text clipped - 10 lines]
>whatsoever.  I have tried Viagra with no success at all as well as the other
>"helpers" (ie. Cialis and Levitra).

>Finally, and assuming you use the ultra thin needle, does the injection hurt
>like hell and end up resulting in the same distraction as the tight rings
>with the pump?

Patience, Sonny, patience.  It will take some time to recover,  but
there is no reason why you can not have sex now with injections.  

I had no problem with incontinence (it's been 8+ years now) from the
get-go, but sex was a little slower in coming.  There's lots down
there to heal.  I use Viagra (I'm 68, so I'd probably have to use it
anyway  d;o)   ), and although I'm not as good as I once was, I'm as
good once as I ever was.  d;o)  It just takes time.  An understanding
partner is a plus, and there are other ways beside coitus to achieve
sexual gratification.  You do not need an erection to reach orgasm.
And remember, when they took out the prostate and replumbed
everything, they also removed the dreaded "wet spot".  

So, things aren't as dark as you think they are.  Normal gratifying
sex will eventually come, even if you have to help it with injections
or drugs like Viagra.

Good luck and keep us posted.

Dave
smu53@aol.com - 13 Mar 2005 00:58 GMT
Sonny,
Definitly try the shots. I found that the apprehension about sticking
myself went away completly with practice. After a while you hardly feel
it. The anxiety makes it seem worse than it is when you are just
starting out. Being able to reliably get a 100% rigid erection that
will last for at least an hour, and that feels great is more than
enough to make up for any discomfort. By the way, I started out with
Caverject Impulse. The needles are much bigger than they need to be.
Now I use gauge #31 ultrafine needles. They are about are big as a
course hair and only about a quarter inch long.
I'm 51 and had no trouble at all pre-operatively. From what I have
read, the
shots don't depend on intact erectile nerves. They work by making the
blood
vessels dilate. Trimix contains alprostadil (generic name for the
active
ingredient in Caverject), papaverine and phentolamine. There are
multiple
formulations. You doctor can change the amounts of each drug. Not all
urologists are all that familiar with it. If your doc only uses one
mix,
then you might look around for someone with more experience with ED
treatment.  Caverject alone goes up to a dose of 20mcg in the
impulse system, and some guys use more than that. Papaverine varies
from
1-30mg, and phentolamine goes from about 0.25 to 1mg. I tried MUSE
which is
an alprostadil suppository that you put in your penis. I wasn't
impressed.
Using the injections, I was able to have intercourse again less than
two weeks post op. I think they also help speed up recovery. I'm
13months out now, And I've gotten a lot of function back, and steady
(but slow) improvement continues. I can have intercourse with no drugs,
but it is still much better with help. Pills work, but I like the shots
better.
Steve U
ronbruce@gmail.com - 13 Mar 2005 01:39 GMT
5 months post opp. and Viagra100 does nothing, 'cept give me a stuffy
head for many hours! I am 67 and reasonably healthy otherwise, but
don't like what I've read about injections. My doc gave me a script for
caverjet and suggested that when I get it he demonstrate using it.
However , it's $90 to see him every time, and although I would like to
see some action down there, it seems an expensive exersize.

As my surgeon said he had spared my nerves, is there a slim chance that
over the next twelve months or so , things might improve without the
aid of injections? Are there guys out there that this has happened
to????????

Ronaldo
smu53@aol.com - 14 Mar 2005 02:15 GMT
Ronaldo,
I was able to have intercourse using the pills at 5.5 months, and with
nothing at 6.5 months.  I still am much better with the drugs. Bimix is
much cheaper than caverject.
Steve U
Chalee - 20 Mar 2005 21:12 GMT
Hi Steve and/or any others that might have input.

This is my first time to post to the group @ the bequest of the man
that I love, Bobby.  He found this group some weeks back which has been
such a godsend to him.  I think prior to finding ya'll, he felt
isolated and not understood very well.  I have tried to be supportive,
but let's face it.  You guys have been there and I never will. But know
that  it's tough seeing someone you love so much trying to deal with
not only the cancer, but the it's aftermath. It effects your loved ones
and caregivers greatly.

He had his RP on Oct. 12, 2004. I am a nurse and keep telling him that
his recovery has been remarkable.  No incontinence, incision site
nicely healed ( he's a insulin dependant diabetic which can hamper the
healing process) Oh, let's do NOT  leave out the biggie. The doctor
believes he got it all inside the margins which means that we can
continue to share our lives. BUT, having had a wonderful sex life prior
to the surgery, the frustration to recover as much function as possible
has been a major issue to HIM.  I am still thanking God that he's
alive. So having said all that, he is 54 and I am 46.  We got the
Caverject -20 mcg- about 6 weeks? ago. The first time we were so
nervous (being a nurse over 20 years means little when it comes to this
:)  Finally injected--not all of the 20 mcg, about 1/2 to 3/4 of it.
Let me tell ya'll, it was quite "awe inspiring" :) to say the least,
but caused Bobby some discomfort. Then after a couple of hours, we
tried to figure what we'd say if we had to go to the ER!! you have to
find humor sometimes in the most unlikely situations !  but the
erection did dissipate after 2.5- 3 hours.

So then- being the "brilliant" twosome that we are - I drew out the
rest of it in a insulin syringe and stored it in a cool place. A week
later, pulled it out ( I realize this is probably against
recommendation of m.d. and pharmaceutical company--but it WAS NOT
cloudy-which indicates it should not be used) Injected small amount and
boom --lift off again, but with better result--lasted about an hour
without any discomfort. But, he said that the shot did seem to numb to
the point of losing sensation which I guess is a trade-off. I, like
other women, know how you fellas are on this topic !  :)

Then this morning,he asked that I inject what seemed to reasonable
amount--nothing happens.  30 minutes later, he's aggravated and says
hit him again with another like amount. Approximatedly, 1/4 of the 20
mcg vial--you draw it out of the back of the vial AFTER it's been mixed
with the dilutent, of course.  Oh, my gosh, within in 5 minutes, he's
having severe pain ( on the inside of penile area), incidentally, still
no erection.  I know that the injection site was ok. Had alternated
sides from left to right into the "spongy" sides- as recommended -
careful to avoid any veins.  The injection sites themselves caused
minimal discomfort at time of injection and for 3-4 minutes afterwards.

This was something totally new and a little scary.  This pain did go
away after about 25-30 minutes, but certainly got both of our
attention.  Don't want to unnecessary dissuade any fellas from
exploring this option, but have you or any of you others out there, had
a similiar experience with the Caverject or any injectables?  We are
baffled as to why the result was so ineffective AND painful.  Your
feedback would be appreciated.  I would NOT want him to do anything,
anything ever again that would cause the pain I saw in his face for
that 1/2 hour.  I apologize in advance if I have been too wordy.  But
remember, this discussion group stuff is brand new to me.  Thanks in
advance.
smu53@aol.com - 20 Mar 2005 22:44 GMT
Chalee,
It takes a while to get the dose right. I find that if I have used
Caverject within about 4 to 20 hours, I need much more. Also the
dose/response is not linear. That is, half the usual dose doesn't
produce half the erection. It does nothing! 90% of usual dose might
give 50% results. Twice the usual dose lasts 3 times as long. Also,
when I first started caverject, the erection would sting. Now it does
not. For a while my doc switched me to bimix (a mixture of papaverine
and phentolamine)which gave great results with little pain. Also, gauge
# 31 needles produce very little pain. The needles I started with were
like harpoons conpared to them. Work with your doc to find what works
for you. If the doc is not interested, find one who is knowledgable and
cares! It is well worth it to keep trying.
Steve U
> Hi Steve and/or any others that might have input.
>
[quoted text clipped - 57 lines]
> remember, this discussion group stuff is brand new to me.  Thanks in
> advance.
Chalee - 21 Mar 2005 02:16 GMT
Thanks so much for your timely response :)  Now that you've shared
about how there is not a direct correlation or as you stated that the
response isn't linear between dose/response, it makes some sense to me.
But if you reread my post, I was asking for Bobby, in case there's any
confusion.  :)  The doctor seemed to be somewhat blaise' when we went
to Bobby's follow up visit. He gave me a handful of viagra samples to
put in my purse--after he'd told us it might take four (4) years before
he had an erection. If then!#@   Yet I bet if it were him, he'd have a
different point of view! Incidentally, the viagra was not sucessful so
soon after surgery, either.   That doctor---What a guy!  I think the
assumption from a patient's perspective, is that it MUST work for
everyone else-- if that's all that was suggested by the urologist.
That's why it is so important to take a very active role in your own
healthcare. Don't leave it all to the doctor's. Dig for answers.

Bobby called the urologist after visiting this discussion group to ask
about injections..I think your responses in particular were helpful.
He got a very snide nurse that said, " WHAT  !@!#, you mean you haven't
had an erection YET? Two and a half to three months after surgery!
Like he was some kind of failure ! I could have choked her myself!
Then, after huffing, stated that she'd call him some in.  No in office
check off, demo on administration, etc. Nada.  This is where we used my
nursing skills ( although, I haven't been in a clinical setting in
years!) and just "figured it out".. Bobby is a benefits consultant..
He's convinced that the followups are not promoted after a short period
of time post-op..so the doctor moves on to the next paying customer.

These "specialists" would do well to have some sensitivity to this very
traumatic, life changing event.  Maybe appoint someone with in their
organization to kindly answer questions.. Certainly not Nurse
Cratchett! They would certainly pay for the extra TLC with referrals.

I know that your explanation will make him feel better about things.
The psychological part of this seems to me from a woman's viewpoint, in
many ways, as difficult as the physical.  Take care.
gourd_dancer - 21 Mar 2005 05:22 GMT
Comment: There is a belief, and I subscribe to it, that Viagra in low doses
help to mailtain blood vessels needed to carry blood to the penis for
erections. You might read up on on this low dose therapy.

> Thanks so much for your timely response :)  Now that you've shared
> about how there is not a direct correlation or as you stated that the
[quoted text clipped - 31 lines]
> The psychological part of this seems to me from a woman's viewpoint, in
> many ways, as difficult as the physical.  Take care.
ronbruce@gmail.com - 21 Mar 2005 09:19 GMT
Hi Chalee, I had my op the same day as Bobby. Surgeon said he spared
'some' nerves and the pathology showed that the tumor was contained in
'the margins', so that's a bit of luck.
I'm nearly continent, 5months later, but not doing well in the Erection
department.... tried 100mg viagra a couple of times , but no luck.
The Uro gave me a script for Caverjet, but he's so off hand about it
that I' haven't bothered to get it yet.
Sort of got the fingers crossed that a miracle will happen and things
will get better naturally.............

Ronaldo
Chalee - 26 Mar 2005 04:32 GMT
Wow, a kindred spirit.  October 12th was surgery day for you, too? We
didn't close our eyes the night before.. It was all kind of surreal. I
know I will never forget the day and I am sure that is quite an
understatement for ya'll.

I guess you read about our epidode last weekend with the
Caverject..Well, Thursday, Bobby saw his urologist for the PSA - of
course, no results yet. While visiting Dr., Bobby shared what his
experience had been with the Caverject. Dr. couldn't offer any
explanations as to why it had worked so well initially and then
nothing. When asked about alternatives, he blew right past the Bimix
and prescribed the Trimix.. We live in the not most progressive part of
the world, so we are limited on compounding pharmacies, i.e., where
they mix it up on site.

His experience when dropping off the rx wasn't good.. You know, you are
already are a little weirded out in this situation because of what kind
of medicine you are in there getting filled--anxious and a little ?
embarrassed.  More examples of lack of sensitivity.  Anyway, I picked
it up later when they did manage to get it mixed up..Eighty (80)
dollars later armed with ultra fine 31 gauge short needles, it's
cooling in the fridge as we speak.  Need to ask one of the veteran's
about longevity of the med-- I was disconcerted by the fact that it's a
multidose vial, but expires ? in one (1) month. Prescribed I cc dose to
start.

Dang, Bobby may look like a pin cushion in that length of time!  lol
He will get me for that one.. Ha.  I guess we will get back in the
laboratory soon!  I will say though, Ronaldo, everybody says the more
you exercise things the more improvement there seems to be...I look at
it like this.  We were born into a time when through the benefit of
modern technology and research, we are blessed to have many wonderful
life saving and life enhancing drugs. I believe in the theory of things
improving as your body heals, but if there's an aid to expeditite the
process, go for it.  Take care and Happy Easter to all.  Miracles DO
happen, you guys have had cancer and are still around to talk about it.
ckh - 22 Mar 2005 01:43 GMT
> Comment: There is a belief, and I subscribe to it, that Viagra in low doses
> help to mailtain blood vessels needed to carry blood to the penis for
> erections. You might read up on on this low dose therapy.

I'm 5 months past Rad and 2 months past the end of the Lupron.  In
the last two weeks, my libido has noticed that spring is coming.

Nothing "really big" has come up yet but there are stirrings and
I've managed several partials. Each one better that the previous and
the last was probably good enough to, ah, well, perform in a pinch,
so to speak.

As I was mulling over these developments, thinking back to the old
days. The thought came up, what about the idea of a refractory
period?

After an ejaculation, after emptying out the fluid, there was a
several hour to several day gap until the next time that things
tended to, ah, come up.  

Conversely, towards the end of periods of no activity, the urgings
and risings are more noticeable.

It's like, the generation of and pressure from fluid causes the
urgings and consequential erection.  

I'm sure there isn't a 1 for 1, direct causal relationship.  A lot
of it is psychological and when the psychology is right, such
newlyweds on a honeymoon, you can perform multiple times in
succession, even while running on empty.  

But, here we are, with much lower than normal fluid production, that
in itself should be responsible for the statistics of ED.

So what I'm saying is that maybe some of this isn't as bad as it
seems.  That one answer is to keep the romance in one's relationship
and, well, it's spring, the birds and the bees are calling.

Think back to that time in your 20's when you spent that weekend
with Trixey-Mae Hixon, you were good for, what, 9, 10 times?  

It's tough duty but we gotta be tough to beat this.
gourd_dancer - 22 Mar 2005 06:18 GMT
Yeah, but's tough going from 3-4 in succession at age 56 to 1 at age 58. But
then again after a year of Eligard (similiar to Lupron) I am amazed that I
even get that 1 time...........

>> Comment: There is a belief, and I subscribe to it, that Viagra in low
>> doses
[quoted text clipped - 39 lines]
>
> It's tough duty but we gotta be tough to beat this.
judamd@aol.com - 22 Mar 2005 18:47 GMT
Ah, those were the days.  A colleague of mine, about 20 years older
than I am, once told me that all you have left when you get old are
memories so they might as well be good ones.  Alas, where's Trixie-Mae
when you need her?
Dave Perry

> > Comment: There is a belief, and I subscribe to it, that Viagra in low doses
> > help to mailtain blood vessels needed to carry blood to the penis for
[quoted text clipped - 38 lines]
>
> It's tough duty but we gotta be tough to beat this.
Tom Cular - 22 Mar 2005 19:19 GMT
She's probably working at WalMart.

Tom

> Ah, those were the days.  A colleague of mine, about 20 years older
> than I am, once told me that all you have left when you get old are
[quoted text clipped - 46 lines]
> >
> > It's tough duty but we gotta be tough to beat this.
Heather - 22 Mar 2005 20:09 GMT
ROFL!!!  Good one, Tom.

Heather

> She's probably working at WalMart.
>
[quoted text clipped - 50 lines]
> > >
> > > It's tough duty but we gotta be tough to beat this.
Steve Kramer - 21 Mar 2005 12:51 GMT
My results with Caverject were mixed and generally unsuccessful.  However,
remember that mere injection is not always sufficient.  Stimulation after
injection, if you've used the correct amount, is required to keep it
functional.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05

non Illegitimi carborundum

> Hi Steve and/or any others that might have input.
>
[quoted text clipped - 57 lines]
> remember, this discussion group stuff is brand new to me.  Thanks in
> advance.
Chalee - 21 Mar 2005 16:20 GMT
Steve,

Your response is quite true..Made me actually giggle, but
let me assure you that being stimulated has NEVER been our problem! lol

> My results with Caverject were mixed and generally unsuccessful.  However,
> remember that mere injection is not always sufficient.  Stimulation after
[quoted text clipped - 75 lines]
> > remember, this discussion group stuff is brand new to me.  Thanks in
> > advance.
Leonard Evens - 21 Mar 2005 15:40 GMT
> Hi Steve and/or any others that might have input.
>
[quoted text clipped - 57 lines]
> remember, this discussion group stuff is brand new to me.  Thanks in
> advance.

I've never used injections, but I understood it may take a lot of
experimentation before getting it right.

I used a pump for 18 months.  I was 67 at surgery, and my odds for
return of erections were 50/50 at best.   The pump is safe, and it works
for the vast majority of men.  It does have a few drawbacks, but you
might try it.  My pump was a bit more expensive than some others, but
the company (Timm) provided an 800 number for advice, and I found that
very helpful.  Fortunately erections began to return after 18 months,
and I can now manage without any aids, but I do better with 50 mg of
Viagra, possibly less if I could reliably split the 100 mg pills into
smaller sections.

Most important, the two of you should be ready to experiment to find
what works best.  Remember that he can have an orgasm even without an
erection.  And where there is a will, there usually is a way.
Chalee - 21 Mar 2005 16:27 GMT
Thanks Leonard for your reply. Bobby needs all you fellas reinforcement
about it taking time..We are very committed to experimentation. But
pain has a way of cooling anyones' jets pretty quick!  :)

But the will, the desire is most definitely there. So we will just keep
prodding along.
David S. - 14 Mar 2005 19:17 GMT
Hi Sonny:

You need to practice more with the pump.  You should find that the erections
hurt less over time (see below).  I did not have much success with the pump,
but I still have my Rejoyn pump and intend to try it again.  In my case it
seemed as if I were allergic to the rings.  The skin did not actually break
out, but using the second to the largest ring I developed painful skin
irritation, so at that point just stopped trying and went back to the
injections.

   Do you have a curvature with the erection?   If that is the case you
could have Peyronnie's disease.  That is a plaque build up in the penis
tissues and that can produce a painful erection.  You need to see your
doctor if that may be the case.  Unfortunately that seems to be somewhat
common with prostate cancer patients.  More good news, huh?

The first Caverject injection was very uncomfortable, so I assumed that I
was allergic to the drug that is used.  I think that was a mistake.  The
first trimix injection also hurt (not the injection itself, the erection)
but each time it hurt less.  I think it was just the tissues getting back in
shape.  That is why I suggest that you do not give up on the pump just yet.
Pump it up without trying to use the rings for awhile.  If you are able to
get to the point where it does not hurt, then start practicing with the
rings.  Note what I said about Peyronnie's though.  Be careful not to hurt
yourself.

The trimix works for me, at least I am able to get an erection sufficient
for penetration.  The syringe that they prescribed for me is just what
someone with diabetes uses for the insulin injections.  Tiny needle.  Not
much more than what a big mosquito would have.  I can feel the needle going
in, but it does not hurt.  They showed me to use one hand to squeeze down on
the penis and make the injection from the other side.   It is important to
put the needle on the side of the penis (the shaft, midway, not the head of
the penis).  Do not attempt to inject from the top or bottom of the organ.
That is where the vein and nerve bundles are, and that can get you into
trouble.  I am using 50 units on the insulin syringe scale.  I forget what
that is in mg's, but the doctor told me I can use more if necessary.  So far
that dosage produces a useable erection within five to ten minutes, and it
lasts for twenty or more minutes.  More than I need I am sorry to report.

Overall I am not really happy with the injections to be honest.  The feeling
is definitely not the same.  The erection is not "natural" and the pressure
is uncomfortable.  The injection itself is nothing, which surprised me for
sure, but the result is not turning the clock back to pre-RRP days.  It is
definitely not the same  :(( .

Good luck.  I would not recommend attempting intercourse the first couple
times you use the injections if you go that route.  You need to practice and
know what to expect.   A lot of guys here report very good results with the
injections, so do not take my non-glowing report as gospel.  You have to try
for yourself to know how it will go.  That is true for so much in this game.

Thank you.
David S.

> In early November I has RP (removal of the prostate) and the pathologist
> report indicated a Gleason 6, no margins, and no indications of seminal
[quoted text clipped - 40 lines]
>
> Sonny
anontoall@yahoo.com - 22 Mar 2005 10:53 GMT
Hi,
I'm 10 months post-RRP and I also just started on injections. First let
me say that you shouldn't get worried about ED only a few months
post-op; the nerves apparently take a long while to heal. Second, my ED
doc says there are many more problems with Caverject than trimix: many
more guys have pain or discomfort with Caverject. The trimix is also
about $76 for a 3 month supply (about 30 injections) -- I believe
that's cheaper than ceverject. The needle is not a big deal -- very
thin. It's mostly the psychological hurdle of sticking a needle in your
penis!

The doc also says you need to start early (as you have) after surgery
getting erections to keep the tissues/etc. in shape for when your
nerves DO heal -- he thinks of it as rehab. So you're doing the right
thing.
 
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