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Medical Forum / Diseases and Disorders / Prostate Cancer / February 2005

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Kevin Farrell - 18 Feb 2005 12:22 GMT
Hello to all out there,
I have the typical bad-luck run-of-three going on: marriage broke down
(explosively), lost my job, now PC. And all in a 5 month space. Sigh, could
be worse I guess.

I was just given the good news by my Urologist 2 days ago:
Age 43
T1C
Gleason 3+3=6
PSA 3.6

He's recommending surgery and gives me a 50% chance of avoiding impotence.
The 97% chance of living is very good, though. Mind you, he told me I had a
1% chance of infection after the biopsy, and I managed to win that one...got
violently ill, and not recovered yet.

The impotence thing is very important to me, as I have just started a new
relationship after a long non-intimate marriage (not divorced yet). So I'm
really disinclined to go with the knife.

I haven't read enough yet to know what to do, but will shortly. I still have
to calm my kids down about the whole thing - they really are stressing
badly. I haven't seen them because I got so sick with the secondary
infection.

Anyway, any guidance is most welcome, I need to focus in the right
directions as soon as I can.

I live in Sydney, Australia.
Kev
James A. Honeychuck - 18 Feb 2005 12:46 GMT
When it rains, it pours.  Sorry for your deluge of troubles.

How did the doctor know to look for PCa with a PSA of only 3.6?

Strongly recommend a second opinion on the diagnosis.  Not a second
biopsy, just a second reading of the slides.

That 50% chance of avoiding impotence is wrong wrong wrong.  Unless
that's the best that doctor can do.  You've almost certainly got an
organ-confined case, and a qualified surgeon should be able to identify
and spare both nerve bundles.  Your chances of impotence should be less
than 10%.

Don't rush your decision on treatment.  See another urologist.

jimhoney

> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 26 lines]
> I live in Sydney, Australia.
> Kev
Alan Meyer - 18 Feb 2005 17:09 GMT
> How did the doctor know to look for PCa with a PSA of only 3.6?
>
> Strongly recommend a second opinion on the diagnosis.  Not a
> second biopsy, just a second reading of the slides.

Jim,

For a 43 year old man, 3.6 is actually very high.  I had a 3.7 at
age 55 and my doctor said, "Below 4, that's normal, nothing to
worry about there."  She didn't even tell me to get another test
in a year.  Two years later my PSA was much higher and my Gleason
was 4+3.  I'm hopeful that my treatment worked, but it's a close
thing.

Kevin is lucky that his doctor was on the ball.

However your recommendation for a second reading on the slides is
always a good idea anyway.  A lot of insurance policies will pay
for it too.

> That 50% chance of avoiding impotence is wrong wrong wrong.
> Unless that's the best that doctor can do.  You've almost
> certainly got an organ-confined case, and a qualified surgeon
> should be able to identify and spare both nerve bundles.  Your
> chances of impotence should be less than 10%.

I think you're probably right about that, but a lot of good
doctors try to be conservative to avoid giving a guy unrealistic
hopes.  They seem to figure that you're better off being
seriously prepared for the possibility of impotence rather than
thinking the chances are low and it can't happen to you.

Unfortunately, there doesn't seem to be an agreed upon definition
of impotence either.  If a man can manage an erection about half
the time he tries, is he impotent?  If he can manage an erection
only with Viagra, is he impotent?  If he can manage sex once or
twice a week, but not more often, is he impotent?  And so on.

Maybe Kevin's doctor is using a conservative definition.

   Alan
Kevin Farrell - 20 Feb 2005 09:59 GMT
Good points on the impotence issue Alan. It's been playing on mind,
actually, because I don't exactly know what it means. I thought it might be
"complete", but maybe it's just "spontaneous". This is one question on my
fast-growing list.
To be fair to him, my doctor couldn't explain much to me that day, I still
had a temp of 40, and was not of clear mind.
As you guys reply and discuss, I'm gaining confidence. The newsgroup idea is
very powerful isn't it?!
Kev

On 19/2/05 4:09 AM, in article
1108746561.193153.59550@z14g2000cwz.googlegroups.com, "Alan Meyer"
<ameyer2@yahoo.com> wrote:

>> How did the doctor know to look for PCa with a PSA of only 3.6?
>>
[quoted text clipped - 37 lines]
>
>   Alan
Kevin Farrell - 20 Feb 2005 09:27 GMT
Thanks Jim,
Family history was the main tip-off (both Grandfathers and my Dad), plus the
GP said that 3.6 was outside the norm for my age.

10% sounds much more palatable, and a second opinion will be sought.

Kev

On 18/2/05 11:46 PM, in article
jslRd.235352$w62.64444@bgtnsc05-news.ops.worldnet.att.net, "James A.
Honeychuck" <jimhoney@worldnet.att.net> wrote:

> When it rains, it pours.  Sorry for your deluge of troubles.
>
[quoted text clipped - 43 lines]
>> I live in Sydney, Australia.
>> Kev
Leonard Evens - 18 Feb 2005 13:17 GMT
> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 15 lines]
> relationship after a long non-intimate marriage (not divorced yet). So I'm
> really disinclined to go with the knife.

Some things to remember.

1)  All methods of treating prostate cancer may lead to impotence.  With
surgery, there is usually immediate impotence, but in a large number of
cases, erections return in 3 months to a year.  Sometimes, particularly
in older men, it can take up to 2 years or more.   After radiation,
impotence can develop up to 2 years after treatment.

2)  If you choose surgery, the skill and experience of the surgeon is
crucial.   Skilled surgeons have very high success rates for avoiding
impotence in young men like you, 80 percent or higher.  If your surgeon
can't do better than 50 percent, you should consider finding another
surgeon.  Travelling to another city for treatment might be worth it.

3)  Impotence can be treated by a variety of mechanisms.  It doesn't
have to lead to an end to your sex life.   I was impotent for 18 months
following surgery, but my wife an I managed reasonably well, having sex
without about the same frequency as before my surgery.   I used a VED or
pump.   There are also other methods.   (I was 67 at surgery, so my
chances of avoiding impotence were much lower than yours should be.)

> I haven't read enough yet to know what to do, but will shortly. I still have
> to calm my kids down about the whole thing - they really are stressing
> badly. I haven't seen them because I got so sick with the secondary
> infection.

There is a new book on the subject by Glen Bubley entitled something
like "What Your Doctor May Not Have Told You about Prostate Cancer".  It
is written by an oncologist who does neither surgery nore radiation
treatment for early prostate cancer, so perhapsy he can give unbiased
advice.  A standard reference is Patrick Walsh's Guide to Surviving
Prostate Cancer.

Your cancer is such that it ought to be possible to cure you without, at
your age, major side effects.  Educate yourself and find the best
doctors you can to provide treatment.

Good luck.

> Anyway, any guidance is most welcome, I need to focus in the right
> directions as soon as I can.
>
> I live in Sydney, Australia.
> Kev
I.P. Freely - 18 Feb 2005 18:31 GMT
And don't forget that if your neurovascular bundles are involved, you WILL
be impotent, 'cause they gotta go no matter what the treatment. The only
exception I can think of is if you elect surgery and the sural nerve graft
works.

I.P.
Kevin Farrell - 20 Feb 2005 10:00 GMT
Thanks I.P.
I have no idea what you're talking about...but I've no doubt that I will
understand soon enough.
Kev

On 19/2/05 5:31 AM, in article ABqRd.4563$i16.2820@fe03.lga, "I.P. Freely"
<fuhgeddaboutit@noway.not> wrote:

> And don't forget that if your neurovascular bundles are involved, you WILL
> be impotent, 'cause they gotta go no matter what the treatment. The only
> exception I can think of is if you elect surgery and the sural nerve graft
> works.
>
> I.P.
Kevin Farrell - 20 Feb 2005 09:33 GMT
Thanks Leonard,
Clearly, things aren't as potentially bleak as I first imagined. I'll check
out those books.
Kev

On 19/2/05 12:17 AM, in article 376dnT82pO5jd4jfRVn-2Q@comcast.com, "Leonard
Evens" <len@math.northwestern.edu> wrote:

>> Hello to all out there,
>> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 60 lines]
>> I live in Sydney, Australia.
>> Kev
David S. - 18 Feb 2005 14:19 GMT
You don't know it now Kevin, but you are in good shape.  Stick around here
long enough and you will know what real trouble is, e.g., there are guys
here in their early 40's with metastases, guys who cannot work because of
conditions like osteoarthritis, and the list goes on.

One thing you need to do is gear up for some serious decision making on the
PCa treatment.  I would highly recommend that the impotence be a secondary
consideration as you evaluate your alternatives.  I know at your age that
does not sound reasonable.  I've heard guys say that they would rather die
of cancer rather than be impotent.  That attitude is what is not reasonable.
For one, as others will no doubt tell you, your chances of long term
impotence with nerve sparing surgery, by a experienced competent surgeon, is
a lot less than 50% (note the emphasis on nerve sparing surgery and
experienced surgeon).  Second, there are a lot of alternatives to treat the
impotence.  Some guys here have bragged about their implants, no premature
ejaculation problems there, and how they keep all the widows in the
neighborhood happy (I know a couple I would like to make happy, but my wife
would never hold still for it).

Read, study, keep a positive attitude.  Seek out the best medical advice you
can get and once you have made the treatment decision do not look back.
And, by the way, you have found a great place to discuss your PCa problems.
A great bunch of people here.  Personal experience in all the treatment
options, and I have not seen anyone try to "sell" one approach over the
other.  Just the facts ma'am.

Good luck to you.  BTW, pay attention to the comments from the wives.  I
don't think you will find any telling their husbands to avoid a treatment
because of the possibility of impotence.  As you enter a new relationship I
would try to find one like that.

Thank you.
David S.

> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 26 lines]
> I live in Sydney, Australia.
> Kev
I.P. Freely - 18 Feb 2005 18:35 GMT
ANY well-studied attitude is reasonable, IMO. It's his body, his life, his
priorities, and I'm assuming he's taking his wife's druthers into
consideration. (OTOH, if she wants his pud more than his heartbeat . . . he
must have one hell of a pud!)

I.P.

> I've heard guys say that they would rather die
> of cancer rather than be impotent.  That attitude is what is not reasonable.
Kevin Farrell - 20 Feb 2005 09:42 GMT
You're a funny bloke David, maybe you had "humour-sparing treatment". Yes, a
few replies are indicating that the choice of surgeon is vital, so I'll find
out who's the best out there, while I study-up.
By the way, my new lady is very supportive. I guess I feel like I'd be
letting her down somehow. This is all very complicated isn't it? Certainly
not a singular issue of survival.
Thanks for the advice David.
Kev

On 19/2/05 1:19 AM, in article cv4thf$5mm$1@gargoyle.oit.duke.edu, "David
S." <buttercupsdad@dog.net> wrote:

> You don't know it now Kevin, but you are in good shape.  Stick around here
> long enough and you will know what real trouble is, e.g., there are guys
[quoted text clipped - 64 lines]
>> I live in Sydney, Australia.
>> Kev
John Loomis - 18 Feb 2005 14:25 GMT
Hello Kevin,
   I would favor surgery only because I had it done in 1999 and I was
49........I have regained all normal physical aspects that a man could want
and have also rid myself of prostate cancer so far.
Explain to your kids what is going on and a little education on the matter
will clear up their uncertainty.
Walking prior to surgery and after surgery is beneficial.
Good wishes, and good luck.
John Loomis
> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 30 lines]
> I live in Sydney, Australia.
> Kev
Kevin Farrell - 20 Feb 2005 09:48 GMT
Thanks John,
Yes, I saw the kids this weekend (they live a few hours drive away from me)
and they are much better now that we've spent time together (me too by the
way).
I was only just thinking today that I should work on my fitness prior to
treatment.
My "gut-feel" is that surgery is right. I understand (in a basic way) how
radio therapy works, but can't help feeling that I would be lighting many
long fuses in other organs that are exposed to the radiation. With luck I
should live another 40 years, and I really don't want to be chasing cancers
around my body for the rest of my time.
I'll read-up and see if my feelings about this change.
I'm glad yours is good news, it's helpful to hear it!
Kev

On 19/2/05 1:25 AM, in article cv4ts402sat@enews2.newsguy.com, "John Loomis"
<jloomis@mcn.org> wrote:

> Hello Kevin,
>   I would favor surgery only because I had it done in 1999 and I was
[quoted text clipped - 39 lines]
>> I live in Sydney, Australia.
>> Kev
No Spam - 18 Feb 2005 16:13 GMT
> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 26 lines]
> I live in Sydney, Australia.
> Kev

good day,

Here's the good news.  At your age, staging, Gleason, all the docs
are itching to treat you because you will probably add to their
positive statistics.

Look at all your treatment options, take your time, think things
through.
jenniferb - 18 Feb 2005 17:00 GMT
Hi Kevin,

So sorry it's all hit at once, but happy to hear about your new
relationship.

As the daughter of someone going through the same thing, I can say that
educating myself is the only thing that has kept me sane, allowed me to
keep things in perspective and prevented me from becoming hysterical at
times.  (Incidentally, my father's stats are identical, except that he is
nearly 30 years older than you.)

Don't know how old your kids are...judging from your age, they are clearly
much younger than I (mid-30s), but explaining the facts, high cure rates
when caught early and your excellent stats, and maybe even encouraging
them to read about it themselves (if they're old enough) can help them to
not feel so helpless.  

My father's doctor told him, "This is just a little blip in your life."

Jennifer
Kevin Farrell - 20 Feb 2005 09:53 GMT
Thanks Jennifer,
They are 19, 18 and 13. The youngest one (a boy) and I had a fishing weekend
on the lake yesterday and today, and we're both feeling better now.
Good idea about the reading, I'll give them my books when I'm finished with
them.
Their lives are in real turmoil at the moment, so anything that can
alleviate their stress is great.
Kev

On 19/2/05 4:00 AM, in article
7533f83bfafc9c68b442721128e173f0@localhost.talkaboutsupport.com, "jenniferb"
<poca_hontas5@nospam.yahoo.com> wrote:

> Hi Kevin,
>
[quoted text clipped - 16 lines]
>
> Jennifer
Kevin Farrell - 20 Feb 2005 09:49 GMT
Thanks Mr Spam,
For once, I'm likely to be a positive statistic...what are the odds?
Kev

On 19/2/05 3:13 AM, in article ifgU75G3LLdo-pn2-Qr3YgIqkYnif@localhost, "No

>> Hello to all out there,
>> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 35 lines]
> Look at all your treatment options, take your time, think things
> through.
James A. Honeychuck - 20 Feb 2005 13:33 GMT
Hope Spam doesn't mind if I butt in here.  Kevin, these are your odds:

Organ Confined: 84(81-86)

Extraprostatic Extension: 15(13-18)

Seminal Vesicle Invasion: 1(0-1)

Lymph Node Invasion: -

http://urology.jhu.edu/prostate/partintables.php

The odds don't get much better than that.

jimhoney
standard radical retropubic prostatectomy age 52, cured, no significant
aftereffects

> Thanks Mr Spam,
> For once, I'm likely to be a positive statistic...what are the odds?
[quoted text clipped - 41 lines]
>>Look at all your treatment options, take your time, think things
>>through.
No Spam - 22 Feb 2005 10:23 GMT
> Hope Spam doesn't mind if I butt in here.  Kevin, these are your odds:
>
[quoted text clipped - 9 lines]
>
> The odds don't get much better than that.

That's good info.  My uro-doc and rad-doc both expressed similar
numbers even though in my case, I'm older than Kevin, and staged
worse.

If the cancer is organ confined, they'll nail it.  
MH - 18 Feb 2005 22:17 GMT
Hi, Kevin...

At your age, most all the literature is going to lean toward surgery, as it
is the *gold standard* for eradicating the prostate cancer.  But there are
differences even with surgery.  Read up on Retropubic Radical Prostatectomy
(the old standard), Laparoscopic Radical Prostatectomy (using laparoscopic
techniques to perform the surgery), and Robotic (or DaVinci) Radical
Prostatectomy, where the doctor actually manipulates robotic equipment to
perform the surgery.  I had LRP a little over two years ago.  I'm 54 years
old.  Continent.... and impotent.
At 43, your chances of regaining erections is much greater than for us older
guys.

In case you have not found it, look at www.phoenix5.org for lots of good
info.

Best of luck to you.  Keep us posted!

MikeH
> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 30 lines]
> I live in Sydney, Australia.
> Kev
Stephen Jordan - 19 Feb 2005 00:38 GMT
On February 18, MH wrote, in pertinent part:

> In case you have not found it, look at www.phoenix5.org for lots of good
> info.

It is a good source of information, BUT one should be aware that it has
not been updated in almost two years.

See also the site of Prostate Cancer Research Institute at
http://prostate-cancer.org/index.html

Regards,

Steve J
Kevin Farrell - 20 Feb 2005 10:04 GMT
Thanks Mike,
Do you know if all of these treatments are available in Australia?
Kev

On 19/2/05 9:17 AM, in article FPtRd.1278$K72.55@fe40.usenetserver.com, "MH"
<lkgmoiREMOVE@yahoo.com> wrote:

> Hi, Kevin...
>
[quoted text clipped - 49 lines]
>> I live in Sydney, Australia.
>> Kev
gourd_dancer - 18 Feb 2005 23:07 GMT
Best of luck with your decision Kevin. I see you have joined the 1%
Club.....As, I when the day after my biospy landed me in the hospital for
four days to deal with the infection.

I opted at age 56 for seeds and external radiation on the Peacock. I am
different in that my PSA never dropped after that...period....... A year
later I had a PSA of 32.3. Both Radiation Oncologists and Medical Oncologist
(who specializes in Prostrate Cancer) agree that no matter which primary
treatment I had, it was too late.......

After six months of Phase II Chemo and Hormone treatment in a Medical School
research trial; PSA is 0.5 for two months in a row and scans have returned
to a "clean" status.

My best advice is that Prostate Cancer is no party, you are a statistic of
1, and your decision is the best decision.

BTW, I still have solid erections, even with a testosterone score of 3.0.

Mike

> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 26 lines]
> I live in Sydney, Australia.
> Kev
Kevin Farrell - 20 Feb 2005 10:07 GMT
Sounds like good news Mike. Thanks for that.
Kev

On 19/2/05 10:07 AM, in article
DyuRd.6548$Uc6.1435@newssvr31.news.prodigy.com, "gourd_dancer"
<mnospam@sbcnospamglobal.net> wrote:

> Best of luck with your decision Kevin. I see you have joined the 1%
> Club.....As, I when the day after my biospy landed me in the hospital for
[quoted text clipped - 51 lines]
>> I live in Sydney, Australia.
>> Kev
Steve Kramer - 19 Feb 2005 01:18 GMT
Kev,

Re PCa, you really have no choice at 43 but to have surgery.

Re the rest of it, I'd give very serious consideration, knowing absolutely
nothing about it, to reinstating your marriage and/or your job if either are
possible.  PCa is almost an automatic depression-maker.  Losing your
marriage is one of the highest stressors imaginable.  Losing a job for a man
is one of the highest stressors imaginable.  You are seriously in danger of
overloading.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron (1 mo) 07/21/2003 @ 48
PSA  .07 .05 .06 .05
Lupron (4 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50), 01/05
non Illegitimi carborundum

> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 26 lines]
> I live in Sydney, Australia.
> Kev
I.P. Freely - 19 Feb 2005 04:26 GMT
OTOH, you have the time to research this stuff sufficiently to make a sure
decision now and, if necessary, later that you can sleep comfortably with.
If I had had a  s~h~u~d~d~e~r  JOB when I "got" PC, there's no way I would
have had time to research and manage it myself, and I think those activities
reduced the disease to a task rather than some mysterious monster I coudn't
fathom.

Hit this beast with both barrels (research and action) and see if that
doesn't put you in the driver's seat. There's nothing like a  **MISSION** to
take your mind off misery.

I.P.

> Kev,
>
[quoted text clipped - 6 lines]
> is one of the highest stressors imaginable.  You are seriously in danger of
> overloading.
smu53@aol.com - 19 Feb 2005 15:36 GMT
Kevin,
Sorry to hear of your misfortune. Only you can decide what is best for
you. Take your time and read all you can. Most of the guys here did
that, and we came to different conclusions. Most sound happy with their
decisions, and you probably will be too.
I had a Robotic Laparoscopic RP in February of 2004. You could look at
the Hartford Hospitals website www.harthosp.org for information about
the procedure. They have a video of one of the operations that you can
watch on your computer, and the doctors explain everything. I went
there and I am very happy with my results.I was able to go home 20
hours later, and back to work day 6. Now I never leak, and a most of my
erection ability has returned. The worst part was waiting between the
diagnosis and the surgery.I picked surgery because I think it offers
the best chance of a complete cure. PSA is expected to drop to nothing.
You can have the pathologist go over the whole gland, not just tiny
pieces of it. Also, I wanted to take the hit on erection and continence
at the start and get it over with. If you get good results from
surgery, it lasts. Radiation is no walk in the park either. You still
have live prostate cells with cryo.
My PCa stuff is:
age 50 PSA 4.5
Bx showed High Grade PIN
5 months later PSA 5.6
repeat Bx 1/12 cores <1mm gleason 3+3=6 stage T1c
RLRP 2-11-04 at age 50
Favorable path, 5 small foci of 3+3, organ contained
Post op PCAs  <0.1
I hope you do well
Steve U

> OTOH, you have the time to research this stuff sufficiently to make a sure
> decision now and, if necessary, later that you can sleep comfortably with.
[quoted text clipped - 22 lines]
> of
> > overloading.
Kevin Farrell - 20 Feb 2005 10:25 GMT
Thanks Steve,
Very helpful.
Kev

On 20/2/05 2:36 AM, in article
1108827360.885617.59510@f14g2000cwb.googlegroups.com, "smu53@aol.com"

> Kevin,
> Sorry to hear of your misfortune. Only you can decide what is best for
[quoted text clipped - 64 lines]
>> of
>>> overloading.
Kevin Farrell - 20 Feb 2005 10:22 GMT
Oh yeah,
I'm on a mission all right I.P.
I want to set this train in motion soon...I have too much to do to have it
bothering me for too long.
Kev

On 19/2/05 3:26 PM, in article 5kzRd.4836$Xg6.3935@fe03.lga, "I.P. Freely"
<fuhgeddaboutit@noway.not> wrote:

> OTOH, you have the time to research this stuff sufficiently to make a sure
> decision now and, if necessary, later that you can sleep comfortably with.
[quoted text clipped - 22 lines]
> of
>> overloading.
Kevin Farrell - 20 Feb 2005 10:19 GMT
Gee thanks Steve,
You know what I am finding? You could throw anything at me right now and it
wouldn't make a difference. I seem to have hit my max stress plateau and
nothing makes it worse for more than a day or so.
FYI, my marriage is beyond all hope, but on the positive side, we are both
keen to settle our properties as fast as possible, and neither of us is
being unreasonable (for now at least). My job doesn't exist any more (I
worked on a TV show that was cancelled).
I do have a new lady that is very caring and supportive although, being a
performer (singer), she is often not around to help me. I have lot's of
small projects, so the money is starting to flow back in, and a new show
that looks seriously like it might get the nod this week.
Out of the ashes...
Kev

On 19/2/05 12:18 PM, in article gtwRd.33991$XY5.14117@fe2.columbus.rr.com,

> Kev,
>
[quoted text clipped - 6 lines]
> is one of the highest stressors imaginable.  You are seriously in danger of
> overloading.
Steve Kramer - 20 Feb 2005 11:43 GMT
> Gee thanks Steve,
> You know what I am finding? You could throw anything at me right now and it
[quoted text clipped - 9 lines]
> that looks seriously like it might get the nod this week.
> Out of the ashes...

All very unfortunate, Kev.  Aside from the new lady, assuming she'll stick
with you through this.

Since there is nothing that can be done about it, no choice but to accept it
as one hell of a test.

Try to remember this through your next couple of years:

1. Your numbers seem to indicate a good chance at a cure.
2. At your age, your incontinence will almost certainly end.
3. At your age, your impotence will almost certainly end.

Write these down somewhere and refer to them often.  You will need to
reassure yourself to have any kind of a chance in your test.
Rebecca Ford - 22 Feb 2005 02:40 GMT
Okay, Kevin, I'm going to respond (very late because my modem went all
freaky for a few days) as a wife. My hubby was diganosed with a gleason 6
and a psa of 6.6 in May '03. He had just turned 42. Our kids were 4 and 7 at
the time and I was just 35. Scary to think of a lifetime with no hubby and
no father. I told him I'd rather a limp penis than a stiff body. He had the
surgery in June '03 and he managed a usable, Viagra-free erection at post-op
day 16, two days after the catheter came out. It's not exactly the same, but
it's still good. If anything, we appreciate each other and our ability to
have sex, be it intercourse or otherwise, far more than we used to. He has
no incontinence, although he does get the urge a bit more. His last psa came
in last week at .01. Bottom line, he's alive and still cancer-free and he
has been basically side effect-free.

I recognize that you are in a different situation as you aren't married
anymore and are just starting out with a new relationship, but PCa doesn't
have to be the end of the world. Take care of the physical part and let this
be a wake-up call to enjoy your life and live it to the fullest.

Incidently, my brother-in-law was diagnosed and had his surgery 6 weeks
after my hubby. He was 45 at the time. He ended up with a sural nerve graft
because one nerve bundle was affected. It took a bit longer for him as far
as both continence and erections go, but it's all back and he's cancer-free
as well.
Signature

Rebecca Ford

Steve Kramer - 22 Feb 2005 11:01 GMT
Good to hear from you again Rebecca.  Very good to hear Chris is doing so
well still.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05

non Illegitimi carborundum

> Okay, Kevin, I'm going to respond (very late because my modem went all
> freaky for a few days) as a wife. My hubby was diganosed with a gleason 6
[quoted text clipped - 19 lines]
> as both continence and erections go, but it's all back and he's cancer-free
> as well.
Rebecca Ford - 24 Feb 2005 01:06 GMT
Thanks, I've continued lurking the whole time, but I do tend to chime in a
whole lot less lately. Having some kid issues which is sucking away time and
attention.

Signature

Rebecca Ford

> Good to hear from you again Rebecca.  Very good to hear Chris is doing so
> well still.
[quoted text clipped - 34 lines]
> cancer-free
>> as well.
Kevin Farrell - 24 Feb 2005 07:41 GMT
Thanks Rebecca,
I'm over any worry now. Seeing the urologist Tuesday and will just go ahead
and get it fixed.
Your hubby's experience is very reassuring
Kev

On 22/2/05 1:40 PM, in article 37vkdkF5fnfkcU1@individual.net, "Rebecca
Ford" <rford@whooshnet.com> wrote:

> Okay, Kevin, I'm going to respond (very late because my modem went all
> freaky for a few days) as a wife. My hubby was diganosed with a gleason 6
[quoted text clipped - 19 lines]
> as both continence and erections go, but it's all back and he's cancer-free
> as well.
D M R Taplin - 25 Feb 2005 16:02 GMT
Dear Kevin,

Things come in threes so console yourself and also visit  www.rcog.com as a
possible solution. They have a very full website and I found them excellent
myself. You have a good chance of non-side effects recovery with your
presentation and Atlanta is a fine place to spend three months. Its a long
way from Sydney but well worth it all and borrow the money. I was in
Rockhampton, Queensland when I was first-indication diagnosed. Lots of good
women out there too and the change will be good for you in every way. have a
XXXX and ring RCOG. Just to get a position on this generally. Avoid radical
prostatectomy anyway is my suggestion!

Minerva

> Hello to all out there,
> I have the typical bad-luck run-of-three going on: marriage broke down
[quoted text clipped - 26 lines]
> I live in Sydney, Australia.
> Kev
Clarence Crow - 25 Feb 2005 18:09 GMT
>Dear Kevin,
>
[quoted text clipped - 9 lines]
>
>Minerva

You don't have to go to Atlanta for similar treatment.

TROG is based in Newcastle (just up the street lol)

http://www.ranzcr.edu.au/affiliatedgroups/trog/about/contact/index.cfm

-- Reader to complete...
-- Please reply to this ng as my email adress is fake:

-- Regards

-- CC
Steve Kramer - 25 Feb 2005 23:05 GMT
Welcome, D.

I've never heard of anyone questioning the propriety of RRP when a
43-year-old is diagnosed.  Can you please elaborate?

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05

non Illegitimi carborundum

> Dear Kevin,
>
[quoted text clipped - 44 lines]
> > I live in Sydney, Australia.
> > Kev

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