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Medical Forum / Diseases and Disorders / Prostate Cancer / February 2005

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Thanks To alt.support.cancer.prostate Group

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Tate - 16 Feb 2005 21:10 GMT
I would like to thank the alt.support.cancer.prostate Group and members
for the great information and support.

My surgery was a success and I am in recovery with minimal issues.
Thanks a million guys.

Chronological of my PC.

I am 60 Years Old.

12/22/04 Diagnosed with PC, PSA 12.5, Gleason 7
02/03/05 Radical Prostate Surgery
02/05/05 Discharged from Hospital
02/11/05 Surgery Staples Removed
02/14/05 Catheter removed
02/16/05 Jackson Pratt Surgical Drain removed

Cancer contained within Prostate, no surrounding tissues or organs
indiczate presence of Cancer. No Radiation or Chemo will be required.

After Catheter was removed I wore Men's Depends briefs for 2
days/nights. Today I am in a Men's Boxers Short Liner with no
Dribble, but will use the Depends Briefs at bedtime just in case, until
I have full control. This is amazing to me, but I can contribute to
kegeling exercise since 12/22 and as of today to prevent major leakage.
I feel I'm getting better each day.

The information from the Group in preparing for surgery and after has
been super and I give much of my success to the group. I had the
attitude going into this adventure, PC was not going to kill me or
screw my life up for long. Even had couple nights of Night time
Erections starting. I had to get out of bed so they would subside, it
was painful, after all surgery was just 2 weeks ago. But, an Erection
starting this soon is super good event. I'm not naive enough to think I
am not going to have to use Viagra or one of the others, but not going
to give up either.

If any one going into their PC adventure now would like to communicate,
I can give more details of what I did before, during and now in
recovery. My Best Advice is to walk everyday and Kegel 24 hours before
and after surgery, it did pay off for me. I am walking 2 miles a day
and surgery was 13 days ago. I hope to be back to 5 mile a day walks by
week number 4.

Good luck to all and I will continue to post my recovery and advice of
value.

Thanks again Guys, your help was super.

Tate
Sandy K. - 16 Feb 2005 21:23 GMT
> I would like to thank the alt.support.cancer.prostate Group and members
> for the great information and support.
[quoted text clipped - 46 lines]
>
> Tate
Sounds like you're doing super!! I had an erection at 16 days post RRP, so
you're not alone.  Kegels 24 hours after surgery?? With the cath still in??
Ouch!!  Keep walking and keep up the good attitude.

Sandy K.
James A. Honeychuck - 16 Feb 2005 21:37 GMT
I also had it on good medical advice that Kegels should not start until
the catheter is out.

But I can't argue with Tate's results.

jimhoney

> Sounds like you're doing super!! I had an erection at 16 days post RRP, so
> you're not alone.  Kegels 24 hours after surgery?? With the cath still in??
> Ouch!!  Keep walking and keep up the good attitude.
>
> Sandy K.
James A. Honeychuck - 16 Feb 2005 21:36 GMT
Congratulations on your great results, Tate.

jimhoney
Client - 17 Feb 2005 13:19 GMT
This is the best newsgroup I have ever seen on the net.  That, to my
surprise and chagrin, includes those dealing with religious matters.  There
is a lot of hate and anger out there.  I hope it never infects this group.

Good luck to you!

> I would like to thank the alt.support.cancer.prostate Group and members
> for the great information and support.
[quoted text clipped - 46 lines]
>
> Tate
I.P. Freely - 17 Feb 2005 17:08 GMT
Oh, there's a lot of hate here. But because it's all focused on the same
rat-bastard nemesis, it unites us.

I.P.

> This is the best newsgroup I have ever seen on the net.  That, to my
> surprise and chagrin, includes those dealing with religious matters.  There
> is a lot of hate and anger out there.  I hope it never infects this group.
arfey - 18 Feb 2005 20:53 GMT
a little over a month ago I was diagnosed with PC
age 69 in good health and athletic-
Psa of  16.3  the second biop showed 3 tumors in rt. side of prostate
Gleason of 3+4 -7--Slightly enlarged prostate. Tests-Scan and Neuclear
radiology showed nothing spread to bones or outside prostate.  Physician
hasn't yet called me for appointment-What's your experience with time
after results?
I.P. Freely - 18 Feb 2005 21:34 GMT
My numbers were not unlike yours, and my first 3 or 4 docs said they'd wait
a month or two but not three to act. Even the surgeon who ultimately gutted
me said (and he gets paid by the year, not the operation), "If it were my
prostate, I'd get it out yesterday, but a month or two won't hurt you. It's
been growing in there for well over a decade."

But I still stayed in the driver's seat, coordinating tests and results and
appointments and research (my reading) and schedules and doctors and
hospitals to keep the wheels spinning as fast as I could keep up. I'd e-mail
a doctor here, phone one there, call an imaging department, hand-carry
stuff, ask for referrals by name, schedule follow-ups before a CT was even
performed (postponed appts give docs breathing room anyway), etc. About the
time the research and tests converged on a no-brainer initial treatment for
me, the two surgeons (two cancers) and an OR slot all came together on one
date just a week later.

I don't wait for physicians to phone me for appts unless I'm not ready yet
(e.g., research, more tests). I call the people who actually RUN their
practices -- their receptionists -- and schedule follow-ups (even initial
appts in a couple of cases) about when I expect to be ready. If my ducks are
slow in lining up, I'll call a couple of days in advance and postpone. Not
only have I gotten zero complaints about this approach, I've gotten praise
from MANY staff and physicians alike for it.

My admission ticket was universally accepted: "I've got Gleason 8 PC".
Whether it was sympathy or dollar signs in their eyes I didn't care, as long
as it worked. (Primarily, it tells them this is not a casual inquiry, and
it's my opinion that it was empathy, not bills, that garnered respect and
urgency.)

The result was completing a huge array of tests, discovering a whole 'nuther
cancer, consulting 7-8-9 doctors at 3-4-5 hospitals, getting both cancers
the hell out of my body, and feeling almost normal after surgery -- all
before my first post-biopsy doctor visit had originally been scheduled. The
process from biopsy to surgery took about 8-10 weeks (partly because the
second, unrelated, cancer discovery complicated things significantly), but
only because my involvement cut through the bureaucracy.

That was MY experience. I highly recommend it for several reasons.

I.P.

> a little over a month ago I was diagnosed with PC
> age 69 in good health and athletic-
[quoted text clipped - 3 lines]
> hasn't yet called me for appointment-What's your experience with time
> after results?
Leonard Evens - 18 Feb 2005 21:39 GMT
> a little over a month ago I was diagnosed with PC
> age 69 in good health and athletic-
[quoted text clipped - 3 lines]
> hasn't yet called me for appointment-What's your experience with time
> after results?

Most surgeons will want to wait at least month to six weeks after the
biopsy before surgery so that the rectal wall can heal.  You case seems
similar to mine except that my PSA was quite a bit lower, 4.5.  My
doctor said that he would be willing to wait several months if there
were a really strong reason, but there wasn't and I had my surgery about
six weeks after the biopsy.   Prostate cancers are slow growing and
usually there is no rush.  But you really need to discuss these things
with a medical authority.  The higher PSA might indicate that waiting
many months could be a mistake.
Dave LaCourse - 18 Feb 2005 23:18 GMT
>a little over a month ago I was diagnosed with PC
>age 69 in good health and athletic-
[quoted text clipped - 3 lines]
>hasn't yet called me for appointment-What's your experience with time
>after results?

Mmmmmmm.  When I was diagnosed with PCa 8+ years ago, the first thing
I asked when my wife and I spoke to the doc was, "What's my Gleason?"
My PSA had been in the mid 3s (3.4/3.5 for the past two years).  We
had pretty much made up our mind as to what treatment to do depending
on the Gleason.  We he said it was 9, we immediately scheduled surgery
and I was put on hormones/drugs to shrink the tumor.  (The tumor was
termed lethal and aggresive and probably would have spread before my
next scheduled physical.  As it was, the cancer was contained within
the organ.)  I gave a unit of blood every week for three weeks, and
surgery was on the fourth week after diagnosis.  He used the nerve
saving technique (yeah, way back then!) and everything is well today.

I think that you should probably be making a decision very soon as to
what you are going to do and get moving on it.  Your Gleason is
relatively high, as is your PSA.  I think you should act now.

Dave
arfey - 19 Feb 2005 02:08 GMT
Thank you for the suggestions.  I think I'll start the calls and help along
the process by calling the doctors rather than wait for their calls.
Steve Kramer - 21 Feb 2005 00:29 GMT
Extremely happy everything turned out so well for you, Tate.  Aside from
your age, your numbers were nearly identical to mine.  Please let us know
what your post-op biopsy results were when you get them.

Signature

PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
Seminal Vesicle involvement, Neg margins
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron 07/03 (1 mo) 8/03 (4 mo), 12/03, 4/04, 09/04, 01/05
PSA  .07 .05 .06 .05

non Illegitimi carborundum

> I would like to thank the alt.support.cancer.prostate Group and members
> for the great information and support.
[quoted text clipped - 46 lines]
>
> Tate
dale.j. - 23 Feb 2005 00:24 GMT
> I would like to thank the alt.support.cancer.prostate Group and members
> for the great information and support.
[quoted text clipped - 46 lines]
>
> Tate

Walking is good in more ways.  I've been on a walking running routine
for about 25 years.  Before that you couldnt get me to walk across the
street for a big mac.  Keep up the good work.  A glass of wine or a beer
at the end of the day won't hurt either.

Wishing you good luck with your Cpa and health for many years to come.

Dale j.

RRP at age 60, Dec 2, 02 and I'm still jogging, YEahoo!

Signature

Email:  dalej2@mac.com

 
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