Medical Forum / Diseases and Disorders / Prostate Cancer / January 2005
Sex or Chocolate?
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Clarence Crow - 12 Jan 2005 00:32 GMT Hi again all
I was recently exchanging posts with a married woman in another ng, who is also a type 2 Diabetic like myself...
She commented that Chocolate was never an issue for her until she was told she couldn't have it. I mentioned that in this ng Sex and the deprivation of it seems to be a parallel issue. She replied "I would probably react the same way LOL".
I cannot pass an opinion here since I'm almost 70 and stoned on ADT, plus my wife and I have slept in separate rooms for years :-)
Any opinions from males AND females?
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Clarence Crow - 13 Jan 2005 00:47 GMT >Hi again all > [quoted text clipped - 12 lines] > >Any opinions from males AND females? Y'ALL stayin' away from this one !!
Too close to the bone?
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No Spam - 13 Jan 2005 01:50 GMT > >Hi again all > > [quoted text clipped - 16 lines] > > Too close to the bone? End of this month is seeding+3 months. Chocolate, caffeine, citrus come back into my diet.
My doc and I decided to skip the 3rd 4-month Lupron shot. I'll see him in 4 months for another PSA eval.
Anyone know how long it takes for this stuff to flush out? I'm hoping that the joint pain will fade soon, ditto the other side effects.
Marshall Schuon - 13 Jan 2005 07:43 GMT >End of this month is seeding+3 months. Chocolate, caffeine, citrus >come back into my diet. [quoted text clipped - 5 lines] >hoping that the joint pain will fade soon, ditto the other side >effects. _______
Y'know, I have seen other stray mentions here about dietary concerns, but none of the doctors (urologists, rad onc) have ever mentioned anything about it to me. Throughout my 45 days of radiation and now 13 months of Zoladex hormone therapy, I have continued to slurp my daily coffee and my nightly scotches. Are you guys telling me I ought to have cut those out and been more miserable than I've been??
Marshall
No Spam - 13 Jan 2005 13:30 GMT > >End of this month is seeding+3 months. Chocolate, caffeine, citrus > >come back into my diet. [quoted text clipped - 13 lines] > daily coffee and my nightly scotches. Are you guys telling me I ought > to have cut those out and been more miserable than I've been?? The theory is that caffeine (in chocolate too), alcohol, spicy foods, peppers, tomatoes, and a half dozen other things, irritate the bladder and urethra. If you're having trouble "going", those things make it worse.
This applies to rad patients and primarily seedings. My doc (and his fascist dietitican and even more strict and scary rad-nurse) said to cut that stuff out, or else the burning, stinging, can't go, can't stop, would be worse.
Some things are on the banned list because you tend to drink a large volume and they make you have to pee, really, really bad. Iced Tea, beer. Not the effect you want when the Flomax isn't helping all that much. Unless you want to make a visit to the ER for a catherization.
Other things inflame the Prostate, counter the Decadron and Aleve. You're hopping on one leg, running the water in the sink and still can't get started.
Peppers and spicy food contribute to the "pee a stream of fire" feeling. They gave me Pyridine for a couple days to help with the stinging.
They gave me a very restricted 1 month diet (this is post seeding). I'm at 2.5 months and feeling pretty good.
Although the 2nd phase of the diet is supposed to run to the end of Month 3, the rad-doc said that it would be OK to sneak a little contraband into my diet, but one item at a time and don't go nutz over it.
I've had some bite-sized chocolate, a cup of real coffee, a bowl of chili, some slices of tomato. Not all at once of course. I can't say that I've noticed any adverse symptoms. As I'm off the diet at the end of January, I can wait.
I figure, in two weeks, I'll have a big bowl of chili, a chocolate bar, some real coffee, maybe even TWO cups.
That's the story. It's a post seeding thing. It's also "loose science". The diet that my team gave me was different from the diet in Grimm-Blasko-Sylvester, even though on of my team wrote a chapter in the book. The book says no apples, no apple juice. The team said apples were OK.
Marshall Schuon - 14 Jan 2005 09:08 GMT >> >End of this month is seeding+3 months. Chocolate, caffeine, citrus >> >come back into my diet. [quoted text clipped - 59 lines] >in the book. The book says no apples, no apple juice. The team >said apples were OK. _______
I think I would have been more concerned about the dietary thing if I'd been having troubles. I guess I am very lucky in not experiencing streams of fire and not having to hop around to start the flow. A pair of FloMax capsules every night have taken care of any stoppages, and I am willing to cope with having to go two or three times at night because of the scotch. But I am puzzled that none of the doctors ever said anything about diet.
Marshall
No Spam - 14 Jan 2005 13:13 GMT > >> >End of this month is seeding+3 months. Chocolate, caffeine, citrus > >> >come back into my diet. [quoted text clipped - 70 lines] > > Marshall It's a local option thing. The rad-team gave me the diet when they laid out the post-seeding drug schedule, Decadron, Flomax, Aleve, etc. First few days, first week, I was taking a half dozen different meds on a precise, tapering schedule. It was a half dozen pages that they made me date and check off.
"set aside these 6 Decadron, if you get into trouble and can't pee, take ONE. Wait an hour, if you still can't, take the second...."
The diet was equally precise and complete. 4 pages of tables of food groups and when they could be re-introduced.
I did ask the Uro doc about it and he said, "These Virginia guys really do the diet thing. Up North, where I had my training, we didn't worry about the diet."
You and I lucked out. Might be our age (I'm 58), health (on the 1-5, how can you pee, quiz, I scored myself as 0 or 1), or just dumb luck. I heard from the doc, that a fellow who was seeded about the same time that I was, is still catherized and they're planning a surgical repair, in a few months.
I figure that the Food-Nazi diet is an attempt to shift the outcome a little. I followed it very strictly for the first two months and did well. I had two brief episodes where I had to "strain" to start.
I've added a slice of tomato here and there; a little orange juice, one or two cups of real coffee but generally am sticking to it.
Steve Kramer - 15 Jan 2005 12:42 GMT > The theory is that caffeine (in chocolate too), alcohol, spicy > foods, peppers, tomatoes, and a half dozen other things, irritate > the bladder and urethra. If you're having trouble "going", those > things make it worse. In my experience, coffee and beer are the worst.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3bN0M0 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron (1 mo) 07/21/2003 @ 48 PSA .07 .05 .06 Lupron (4 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50) non Illegitimi carborundum
jhlms - 13 Jan 2005 02:47 GMT Clarence, If I interpret it correctly, you equate PC as an Rx to discontinue any kind of sexual relations (however wild and crazy one might want it to be).......that's the farthest from the truth. Where did *deprivation* come into the equation?
jh
>>Hi again all >> [quoted text clipped - 23 lines] > > -- CC Clarence Crow - 13 Jan 2005 03:48 GMT All
My original (previous) post had some similes and innuendo in it, which none of you have picked up on.
Forget it !!!
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c palmer - 13 Jan 2005 07:13 GMT hi clarence - i've been having some tech troubles that i've think are straighten out, so i'm just seeing the post first time.
there is a lot of truth in what you've said. if gold was lying around everywhere and was almost as plentiful as dirt, nobody would give it a second thought. but deprived of it, now, you want some.
and i've noticed that with certain foods that the wife can't have because of her diabetes. she craves them very strongly, whereas, before her condition, she would walk right by them at the super market.
and that is probably true in the sex dept. it would be nice to see if you still could - because it has became a goal since the sex was taken away.
i don't how this would play out with women as menopause because it goes both ways.
some women has less sex drive while others get MORE sex drive. they think it has to do with the fear of not being able to be pg'ed.
for whatever reason - i'm sure they can write a ton of books on the subject - one way or the other.......
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
Clarence Crow - 13 Jan 2005 10:31 GMT >hi clarence - i've been having some tech troubles that i've think are >straighten out, so i'm just seeing the post first time. [quoted text clipped - 21 lines] > >~ curtis well curtis
I'm glad you could read the beach (old fisherman's term) :)
My wife and I spent a reasonable amount of years having fun in the conjugal bed, produced offspring and they even have offspring. We mutually decided to move into separate rooms many years ago, to give each other some space,which works out fine. She is still having menopausal problems and now we're sharing hot flushes for different reasons. She's 110% supportive of me in this PCa episode, attending the Clinic, asking questions, and even driving me when I'm a bit off from the ADT.
I really don't know what our sexual reactions would have been, if I was DXd, say, in my 40s. I notice a lot of posters in this group, give sex a lot of significance at that age and possibly have to take on a lot of trauma, when there's a forced withdrawal of it. I also believe there could be a raft of other issues floating around, like potential loss of job for the breadwinner, financial burdens and a complete forced change of life-style, leading to an uncertain future.
Then there's also a history in the group of RPs that didn't quite work out and the unlucky guys who have to then line up for ADT and RAD and perhaps even worse.
In a way, I'm lucky to be DXd at almost 70, have other ailments, which ruled out the RP.
One sigh of relief, yesterday, when I was told I could come off the Androcur tablets, which were really exacerbating ALL my other ailments. Even today, I'm feeling better and the edema has gone from my feet. I'm back at work tomorrow! :)))) +++++++++++++++++++++++++++++++++++++++++++++++++++++++++
I, too, had some tech troubles when some pal sent me a "tsunami victims' appeal" email...turned out to be an email address book harvesting scam. Took a while to clean out the crap, plus still getting a few emails from legit customers, but with nasty script viruses attached. Luckily I can knock them out with SpamKiller and send off a complaint (with mixed success).
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Beverley - 13 Jan 2005 17:14 GMT I think it is a matter of taking things for granted. We always assume we can have chocolate until we can't. Same thing with sex. But there is a deeper problem with sex. Men somehow grow up thinking that their manhood depends on their "display" and when something happens to that they have a very difficult time coping with the situation.
Fortunately for most everyone PC tends to hit older men who are not still looking for sexual pleasure 23 out of 24 hours a day. But most still want it to work at least once or twice a week or month.
I've been kicking around out here long enough to notice that the guys with the most difficult situation are the single males, followed by the married ones who are not exactly happily married or those who have uncooperative wives for many reasons including medical problems.
So for those still dating do they take a Viagra with the hopes they might get lucky? Do they pack the pump on the back seat of the car? And what do they say? "Excuse me but I need to spend a few minutes in the bathroom trying to make something usable out of what I have." Oh, that's real romantic. And then there are the guys who finally get it up only to have their wives tell them to go take a cold shower. Or a few who have had wives walk out on them because it wasn't exciting enough for them - which to me was just an excuse for a bad marriage anyway.
It's the happily married guys who either get it back or manage well enough because they do have a supportive partner. So it becomes quality over quantity. Big deal of all the wild passion seems to be gone. What is left is the natural love for each other and the willingness to share that love.
I'll be honest. I miss what we once had. The spontaneity is pretty much gone. It's work to do anything. So we've settled for less often knowing it is going to take more effort to do what should have happened naturally. And maybe because we can no longer take it for granted it becomes even sweeter and savored even more. Bev
> Hi again all > [quoted text clipped - 19 lines] > > -- CC c palmer - 13 Jan 2005 17:54 GMT boy, how true this is.............does this ring any bells.......
Now that food has replaced sex in my life,I can't even get into my own pants. I signed up for an exercise class and was told to wear loose-fitting clothing. If I HAD any loose-fitting clothing, I wouldn't have signed up in the first place!
When I was young we used to go "skinny dipping," now I just "chunky dunk."
Wouldn't you know it...
Brain cells come and brain cells go, but FATcells live forever!
knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." http://community.webtv.net/PALMER_ENT/doc
Clarence Crow - 14 Jan 2005 10:26 GMT >I think it is a matter of taking things for granted. We always assume we can >have chocolate until we can't. Same thing with sex. But there is a deeper [quoted text clipped - 32 lines] >and savored even more. >Bev You seem to have covered all the bases there, Bev.
It's an honorable thing to say "Till Death Do Us Part" in your wedding vows, but, really how many are still doing the whole 9 yards, after kids, mortgages etc.?
To contradict myself, my late, elder sister, who married later in life also discovered sex at the same time and kept at it up until she passed away 2 yrs ago, and she used to be a staunch church-goer, played the organ there and a lead soprano in the choir. It all went out the window when she married this rascally Farmer guy.
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Glassman - 14 Jan 2005 04:06 GMT > Hi again all > [quoted text clipped - 12 lines] > > Any opinions from males AND females? Since I'm an Atkins guy I don't do real chocolate, but I found sugar free. A month before I was about to lose my prostate, and the possibility to have a woody ever again, I broke my left wrist. The very wrist I used for 50 years to pleasure myself with. How's that for irony? I managed.... don't ask.
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