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Medical Forum / Diseases and Disorders / Prostate Cancer / January 2005

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Recently Diagnosed With PC

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Tate - 30 Dec 2004 04:15 GMT
Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
this support site for information of what to expect.

Here's what I do know:

60 years Old
No history of High PSA or symptoms

PSA checked 12.5 in Oct.
No lumps or Nodules

PSA checked 7.5 in Nov
No lumps or Nodules

PSA checked 9.5 in Dec
No lumps or Nodules

Dec 22 Ultra Sound and Biopsy showed Cancer in left side of Prostate.

Meeting with Doctor 12/31 to go over reports and decide best course for
treatment.

>From all I have read and researched, total removal of Prostate would be
best for my situation. Any other help or suggestions I can take with me
to the Doctor's review would be greatly appreciated.

Needless to say "I am scared as can be". But, will not give one inch to
allow Prostate Cancer destroy me.
Thanks in advance for any replies.

Tate
James A. Honeychuck - 30 Dec 2004 08:35 GMT
Welcome Tate.

That's right, for a man of your age with those numbers, radical
prostatectomy is what many doctors recommend.

But if you read thousands of pages of medical information on the
prostate cancer web sites, and the studies which c palmer posts here,
basically the results are about the same with radioactive seeds.  So it
will probably be your choice.

When you talk to the surgeons, use the term "nerve sparing" often.

Guys here are reporting good results and an easy time of it with
laparascopic radical prostatectomy.  Be sure to ask how many procedures
the surgeon has done.  LRP takes a lot of practice.

Make an informed choice, and don't look back.

jimhoney
standard (big incision) RRP age 52, cured, no significant aftereffects

> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.
[quoted text clipped - 27 lines]
>
> Tate
Tate - 30 Dec 2004 12:41 GMT
Thanks Jim for the follow-up and encouragement of your successful
Radical prostatectomy. "Nerve Sparing" is now part of my vocabulary and
definitely a topic for tomorrow's review with the Doctor.

Thanks again, Tate

> Welcome Tate.
>
[quoted text clipped - 3 lines]
> But if you read thousands of pages of medical information on the
> prostate cancer web sites, and the studies which c palmer posts here,

> basically the results are about the same with radioactive seeds.  So it
> will probably be your choice.
[quoted text clipped - 9 lines]
> jimhoney
> standard (big incision) RRP age 52, cured, no significant aftereffects
James A. Honeychuck - 30 Dec 2004 12:52 GMT
The list is quiet at this hour because many of the posters are in the US
or Canada.  But they will be asking you where you are located, so please
tell us.

I don't think I gave proper credit in my first post.  c palmer informs
us of many types of studies, but I fail to recall who is the prime
advocate for radioactive seeds.  Hopefully you will get those opinions
later today.

jimhoney

> Thanks Jim for the follow-up and encouragement of your successful
> Radical prostatectomy. "Nerve Sparing" is now part of my vocabulary and
[quoted text clipped - 31 lines]
>
> aftereffects
Steve Kramer - 30 Dec 2004 14:30 GMT
Bev?  I think he's calling you.

> I don't think I gave proper credit in my first post.  c palmer informs
> us of many types of studies, but I fail to recall who is the prime
> advocate for radioactive seeds.  Hopefully you will get those opinions
> later today.
Steve Kramer - 30 Dec 2004 14:28 GMT
Tate,

You closely mimic my first thoughts and the first posts of many, many people
that I've seen come across this NG in the last few years.  I regret
welcoming you to the club.

As to your options, aside from your PSA, your numbers are great.  At 60
years old, you have the complete menu of treatments from which to choose.
Some of us were too young to select radiation or too old to select surgery.
You can go with whatever is best for you.

Your PSA is only slightly higher than what I would call a great number.
Your Stage, which you did not give, sounds like T1a, which is also great.
You also did not give your Gleason, a very important number.  But, assuming
it is 3+3=6 or 3+4=7, you are in a great position for a cure.

Better than that, without palpable nodes, you would seem to be a perfect
candidate for nerve sparing which, if it works, may reduce or eliminate the
impotence most of us suffer.

You already have the right attitude, non Illegitimi carborundum.  Now, find
out what your Stage is and what your Gleason is.  Buy Dr. Patrick Walsh's
Guide to Surviving Prostate Cancer and read it thoroughly, at least up to
the treatment option chapters.

You can also get second opinions.  You can get a second opinion of your
Gleason Score to aid you in your decision.  But, by all means, if you're
dealing with a surgeon, get an opinion from a radiation doc.

In the end, I think you will settle on surgery, but it's very important,
especially if impotence and incontinence reduce your quality of life in the
future, to know that you had all the information and made the right
decision.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron (1 mo) 07/21/2003 @ 48
PSA  .07 .05 .06
Lupron (3 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50)
non Illegitimi carborundum

> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.
[quoted text clipped - 27 lines]
>
> Tate
I.P. Freely - 30 Dec 2004 18:11 GMT
I'd also strongly recommend reading several other PC books, including Strum
(from the PCRI website @ $14.95), Marks, Grimm et.al., and Oesterling &
Moyad. The used book stores, new book stores, libraries, and internet book
sources are full of PC books., and I've read, skimmed, or studied parts of
most of them. Each book covers different ground, and each paid for itself in
knowledge I've used for decisions. No WAY a doctor's half-hour consult can
match that; at best it adds knowledge gained since the books were printed,
answers questions you come in with (pages of them, in my case), and lets the
doc know your priorities; your treatment is YOUR choice. The books also
alert you to necessary things most doctors ignore, such as osteoporosis and
other side effects of various treatments. You have plenty of time to
research this stuff as long as you place it WAY up on your priority list;
there's TONS of reading in store even if you have a really good doctor you
trust.

And keep in mind . . . surgery's no big deal. You sleep through it, wander
through the next few days in a drug-induced daze (if you have pain, your
doctor's not doing his job), and may need diapers for weeks to months.
Nerve-sparing surgery has fewer and nicer SEs than radiation.

I.P.

> Buy Dr. Patrick Walsh's
> Guide to Surviving Prostate Cancer and read it thoroughly, at least up to
> the treatment option chapters.
No Spam - 30 Dec 2004 14:56 GMT
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.

Look hard at all your treatment options.   Meet with doctors who
specialize in surgery and radiation.  If you can talk to patients,
even better.  

I went the three stage route.  Hormone/chemo, 25 sessions of IMRT
external beam radiation, and a Palladium-103 seeding at the end of
October.  

This is an "easier" treatment than RP surgery.  I actually walked
out of the outpatient center, no pain meds, not even a bandaid on
the implant site.  

The side effects are minimal.  The worse part for me is having to
"go" every 2 or 3 hours and feeling tired all the time.  I suspect
it's because my sleep is interrupted and they took coffee, tea, and
pepsi off my diet.  It could also be the radiation increasing the
dead cell debris.  

The first week and the first month, I was on medication to help the
pee'ing. The first week, they had me popping pills every 4 hours.  

I'm at the end of month two, post implant, and I take one Aleve and
one flomax a day.  

This approach might not be for everyone but according to my docs,
radiation's 10 year survival stats are the same as RP.

My PSA trend is:

10+, 1.3, 0.8, 0.0.

The urologist called it a T1, no symptoms. . The radiation
oncologist called a possible T3 because he thought there might be
extra-capsule extensions.   Gleason 7=4+3, relatively aggressive and
high grade.

Negative bone scan.  MRI looked confined.

Don't go by my experience.  Read all you can, ask lots of
questions.  Make the best decision for yourself.

Good luck to you.
Stephen Jordan - 30 Dec 2004 16:23 GMT
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.

Welcome to the club no one wants to join.

Please advise:

Gleason grade of tumor
TNM stage as determined by DRE (digital rectal examination)

Such information will help to judge your status.

There is a number of informative websites. The one I recommend as first
resort is that of the Prostate Cancer Research Institute:
http://prostate-cancer.org/index.html

Presently, I'd recommend that Tate take a deep breath and try to unwind
a bit. PCa is usually a slowly-developing disease and there is probably
no rush.

Tate should not permit himself to by stampeded into making a treatment
decision before he has all the facts in hand.

Tate's life has probably fundamentally changed now that he has been
diagnosed. He must prepare himself through study of the literature and
consultation with knowledgeable people to take charge of his case so
that the decisions he must make will be well-founded and well-informed.

Good luck, and please keep us up to date.

Regards,

Steve J
__
"Never give in--never, never, never, never, in nothing great or small,
large or petty, never give in except to convictions of honour and good
sense. Never yield to force; never yield to the apparently overwhelming
might of the enemy.''
--Sir Winston L. S. Churchill
Mike - 30 Dec 2004 17:04 GMT
Hi Tate,

I'm 47 years old and was diagnosed with PCa on 10.04.  Stage  T1c gleason of
3+3.  Had full nerve sparing and no lymph node involvement.  Had an RRP on
11/10/04.  Since I was so young, there really wasn't any other viable option
for me but surgery.  I found the surgery painful and had a heck of a time
with that damn catheter for 2 weeks after surgery.  All in all, I would do
it again.  Pathology showed cancer in both lobes of the prostate which
brought my stage up to a pT2c.  I was very lucky that the cancer did not
leave the prostate .  By the way, my PSA reading prior to surgery was only
2.3.  Quite low but still out of range for my age.  Good luck with your
decision.  Remember, time heals all...
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.
[quoted text clipped - 27 lines]
>
> Tate
kastons - 30 Dec 2004 23:23 GMT
I too am a 47 y/o PCa survivor.  I was diagnosed last March - Gleason of 6
Stage T2a.  Had RRP in June, dealt with a few weeks of discomfort, stopped
using pads after 3 months and am doing well now.  The advice given here
helped me tremendously.  Read as much as you can - don't rush your decision.
Get a second opinion.  If treated early enough - all will be well.

Sandy K.

> Hi Tate,
>
[quoted text clipped - 39 lines]
> >
> > Tate
smu53@aol.com - 30 Dec 2004 23:32 GMT
Hi Tate,
Sorry about your misfortune
My prostate stuff is:
age 50 PSA 4.5
Bx showed High Grade PIN
5 months later PSA 5.6
repeat Bx 1/12 cores <1mm gleason 3+3=6 stage T1c
RLRP 2-11-04 at age 50
Favorable path, 5 small foci of 3+3, organ contained
Post op PCAs  <0.1
I was able to go home 20 hours later, and back to work day 6.
I have no urinary symptoms and I have most of my erectile function
back.
Knowing what I know now, I would definitely have the robotic surgery
again.

Get the Walsh book and read it. Check out Dr.Catalona's web site too.
Keep in mind that all the doctors believe in what they do. If you go to
a hammer, you will be seen as a nail! So its up to you to check out
your options, and decide what is best for you. Involve your significant
other, if you have one. This illness will be hard for everyone who
cares about you. They will all want to help. Let them. Good luck.
Steve
MH - 30 Dec 2004 23:15 GMT
Hi, Tate,

As others have said, welcome to the club nobody wants to join.  I can still
remember when I was just exactly where you are.... having just found out on
Sept. 13, 2002, that I had PCa.  I was 51.  I chose laparoscopic radical
prostatectomy.  At your age, you have several options, and you should look
at all of them.  In my case, I wanted it *out* of me.

I would offer the following sites for information:

www.phoenix5.org

www.krongrad-urology.com

www.rcog.com

Others may have sites that will offer information on other treatment
options.

I had never had surgery before.  The surgery, itself, was much easier than I
had imagined.  I had surgery one morning and left for home the next.  The
catheter was a nuisance.... but not painful.

Take time to look at all your options... and choose the one that is best for
*you*.  Then keep looking forward!  I wish you all the best!

MikeH
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.
[quoted text clipped - 27 lines]
>
> Tate
Tate - 31 Dec 2004 16:29 GMT
Today, 12/31, is the day I go in for a complete review of my Test
Scores and Options for treatment.

I want to thank all of you who have contributed information and support
and I will keep the group advised of my road to recovery. It will be
recovery, I will not accept nothing less.

This entire group is a truly a much needed resource of support and I
will write later today of my next steps.

Thank you again folks and I wish everyone a great New Year.

Tate

Full Thread can be found under title "Recently Diagnosed With PC"

> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing
> this support site for information of what to expect.
[quoted text clipped - 27 lines]
>
> Tate
wanginator95 - 31 Dec 2004 18:31 GMT
You need zinc to have your prostate function normally. Also OPC's are
great. If you are interested in specific supplements, then contact me
at wanginator95@hotmail.com or 904-505-4304.
I.P. Freely - 31 Dec 2004 21:12 GMT
DAMN!!!! You mean I could have avoided this death sentence if I had just
eaten more zinc?

Do you have any CONCEPT how much the people of this forum loathe you,
Wangeroo? When you get a good case of Gleason 10  PSA 100 T4 bone cancer,
get back to us.

I.P.

> You need zinc to have your prostate function normally. Also OPC's are
> great. If you are interested in specific supplements, then contact me
> at wanginator95@hotmail.com or 904-505-4304.
Rob Constable - 01 Jan 2005 17:07 GMT
Yep, that's what we are all worried about here..improving our prostate
function. In my case it's gone, but hey in case I get a cold maybe I
should get a year's supply of zinc for the bargain price of $200. But I
will only buy if I get the Ginsu knives...
 
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