Medical Forum / Diseases and Disorders / Prostate Cancer / January 2005
Recently Diagnosed With PC
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Tate - 30 Dec 2004 04:15 GMT Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing this support site for information of what to expect.
Here's what I do know:
60 years Old No history of High PSA or symptoms
PSA checked 12.5 in Oct. No lumps or Nodules
PSA checked 7.5 in Nov No lumps or Nodules
PSA checked 9.5 in Dec No lumps or Nodules
Dec 22 Ultra Sound and Biopsy showed Cancer in left side of Prostate.
Meeting with Doctor 12/31 to go over reports and decide best course for treatment.
>From all I have read and researched, total removal of Prostate would be best for my situation. Any other help or suggestions I can take with me to the Doctor's review would be greatly appreciated.
Needless to say "I am scared as can be". But, will not give one inch to allow Prostate Cancer destroy me. Thanks in advance for any replies.
Tate
James A. Honeychuck - 30 Dec 2004 08:35 GMT Welcome Tate.
That's right, for a man of your age with those numbers, radical prostatectomy is what many doctors recommend.
But if you read thousands of pages of medical information on the prostate cancer web sites, and the studies which c palmer posts here, basically the results are about the same with radioactive seeds. So it will probably be your choice.
When you talk to the surgeons, use the term "nerve sparing" often.
Guys here are reporting good results and an easy time of it with laparascopic radical prostatectomy. Be sure to ask how many procedures the surgeon has done. LRP takes a lot of practice.
Make an informed choice, and don't look back.
jimhoney standard (big incision) RRP age 52, cured, no significant aftereffects
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. [quoted text clipped - 27 lines] > > Tate Tate - 30 Dec 2004 12:41 GMT Thanks Jim for the follow-up and encouragement of your successful Radical prostatectomy. "Nerve Sparing" is now part of my vocabulary and definitely a topic for tomorrow's review with the Doctor.
Thanks again, Tate
> Welcome Tate. > [quoted text clipped - 3 lines] > But if you read thousands of pages of medical information on the > prostate cancer web sites, and the studies which c palmer posts here,
> basically the results are about the same with radioactive seeds. So it > will probably be your choice. [quoted text clipped - 9 lines] > jimhoney > standard (big incision) RRP age 52, cured, no significant aftereffects James A. Honeychuck - 30 Dec 2004 12:52 GMT The list is quiet at this hour because many of the posters are in the US or Canada. But they will be asking you where you are located, so please tell us.
I don't think I gave proper credit in my first post. c palmer informs us of many types of studies, but I fail to recall who is the prime advocate for radioactive seeds. Hopefully you will get those opinions later today.
jimhoney
> Thanks Jim for the follow-up and encouragement of your successful > Radical prostatectomy. "Nerve Sparing" is now part of my vocabulary and [quoted text clipped - 31 lines] > > aftereffects Steve Kramer - 30 Dec 2004 14:30 GMT Bev? I think he's calling you.
> I don't think I gave proper credit in my first post. c palmer informs > us of many types of studies, but I fail to recall who is the prime > advocate for radioactive seeds. Hopefully you will get those opinions > later today. Steve Kramer - 30 Dec 2004 14:28 GMT Tate,
You closely mimic my first thoughts and the first posts of many, many people that I've seen come across this NG in the last few years. I regret welcoming you to the club.
As to your options, aside from your PSA, your numbers are great. At 60 years old, you have the complete menu of treatments from which to choose. Some of us were too young to select radiation or too old to select surgery. You can go with whatever is best for you.
Your PSA is only slightly higher than what I would call a great number. Your Stage, which you did not give, sounds like T1a, which is also great. You also did not give your Gleason, a very important number. But, assuming it is 3+3=6 or 3+4=7, you are in a great position for a cure.
Better than that, without palpable nodes, you would seem to be a perfect candidate for nerve sparing which, if it works, may reduce or eliminate the impotence most of us suffer.
You already have the right attitude, non Illegitimi carborundum. Now, find out what your Stage is and what your Gleason is. Buy Dr. Patrick Walsh's Guide to Surviving Prostate Cancer and read it thoroughly, at least up to the treatment option chapters.
You can also get second opinions. You can get a second opinion of your Gleason Score to aid you in your decision. But, by all means, if you're dealing with a surgeon, get an opinion from a radiation doc.
In the end, I think you will settle on surgery, but it's very important, especially if impotence and incontinence reduce your quality of life in the future, to know that you had all the information and made the right decision.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 G7 (3+4), T3bN0M0 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Lupron (1 mo) 07/21/2003 @ 48 PSA .07 .05 .06 Lupron (3 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50) non Illegitimi carborundum
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. [quoted text clipped - 27 lines] > > Tate I.P. Freely - 30 Dec 2004 18:11 GMT I'd also strongly recommend reading several other PC books, including Strum (from the PCRI website @ $14.95), Marks, Grimm et.al., and Oesterling & Moyad. The used book stores, new book stores, libraries, and internet book sources are full of PC books., and I've read, skimmed, or studied parts of most of them. Each book covers different ground, and each paid for itself in knowledge I've used for decisions. No WAY a doctor's half-hour consult can match that; at best it adds knowledge gained since the books were printed, answers questions you come in with (pages of them, in my case), and lets the doc know your priorities; your treatment is YOUR choice. The books also alert you to necessary things most doctors ignore, such as osteoporosis and other side effects of various treatments. You have plenty of time to research this stuff as long as you place it WAY up on your priority list; there's TONS of reading in store even if you have a really good doctor you trust.
And keep in mind . . . surgery's no big deal. You sleep through it, wander through the next few days in a drug-induced daze (if you have pain, your doctor's not doing his job), and may need diapers for weeks to months. Nerve-sparing surgery has fewer and nicer SEs than radiation.
I.P.
> Buy Dr. Patrick Walsh's > Guide to Surviving Prostate Cancer and read it thoroughly, at least up to > the treatment option chapters. No Spam - 30 Dec 2004 14:56 GMT > Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. Look hard at all your treatment options. Meet with doctors who specialize in surgery and radiation. If you can talk to patients, even better.
I went the three stage route. Hormone/chemo, 25 sessions of IMRT external beam radiation, and a Palladium-103 seeding at the end of October.
This is an "easier" treatment than RP surgery. I actually walked out of the outpatient center, no pain meds, not even a bandaid on the implant site.
The side effects are minimal. The worse part for me is having to "go" every 2 or 3 hours and feeling tired all the time. I suspect it's because my sleep is interrupted and they took coffee, tea, and pepsi off my diet. It could also be the radiation increasing the dead cell debris.
The first week and the first month, I was on medication to help the pee'ing. The first week, they had me popping pills every 4 hours. I'm at the end of month two, post implant, and I take one Aleve and one flomax a day.
This approach might not be for everyone but according to my docs, radiation's 10 year survival stats are the same as RP.
My PSA trend is:
10+, 1.3, 0.8, 0.0.
The urologist called it a T1, no symptoms. . The radiation oncologist called a possible T3 because he thought there might be extra-capsule extensions. Gleason 7=4+3, relatively aggressive and high grade.
Negative bone scan. MRI looked confined.
Don't go by my experience. Read all you can, ask lots of questions. Make the best decision for yourself.
Good luck to you.
Stephen Jordan - 30 Dec 2004 16:23 GMT > Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. Welcome to the club no one wants to join.
Please advise:
Gleason grade of tumor TNM stage as determined by DRE (digital rectal examination)
Such information will help to judge your status.
There is a number of informative websites. The one I recommend as first resort is that of the Prostate Cancer Research Institute: http://prostate-cancer.org/index.html
Presently, I'd recommend that Tate take a deep breath and try to unwind a bit. PCa is usually a slowly-developing disease and there is probably no rush.
Tate should not permit himself to by stampeded into making a treatment decision before he has all the facts in hand.
Tate's life has probably fundamentally changed now that he has been diagnosed. He must prepare himself through study of the literature and consultation with knowledgeable people to take charge of his case so that the decisions he must make will be well-founded and well-informed.
Good luck, and please keep us up to date.
Regards,
Steve J __ "Never give in--never, never, never, never, in nothing great or small, large or petty, never give in except to convictions of honour and good sense. Never yield to force; never yield to the apparently overwhelming might of the enemy.'' --Sir Winston L. S. Churchill
Mike - 30 Dec 2004 17:04 GMT Hi Tate,
I'm 47 years old and was diagnosed with PCa on 10.04. Stage T1c gleason of 3+3. Had full nerve sparing and no lymph node involvement. Had an RRP on 11/10/04. Since I was so young, there really wasn't any other viable option for me but surgery. I found the surgery painful and had a heck of a time with that damn catheter for 2 weeks after surgery. All in all, I would do it again. Pathology showed cancer in both lobes of the prostate which brought my stage up to a pT2c. I was very lucky that the cancer did not leave the prostate . By the way, my PSA reading prior to surgery was only 2.3. Quite low but still out of range for my age. Good luck with your decision. Remember, time heals all...
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. [quoted text clipped - 27 lines] > > Tate kastons - 30 Dec 2004 23:23 GMT I too am a 47 y/o PCa survivor. I was diagnosed last March - Gleason of 6 Stage T2a. Had RRP in June, dealt with a few weeks of discomfort, stopped using pads after 3 months and am doing well now. The advice given here helped me tremendously. Read as much as you can - don't rush your decision. Get a second opinion. If treated early enough - all will be well.
Sandy K.
> Hi Tate, > [quoted text clipped - 39 lines] > > > > Tate smu53@aol.com - 30 Dec 2004 23:32 GMT Hi Tate, Sorry about your misfortune My prostate stuff is: age 50 PSA 4.5 Bx showed High Grade PIN 5 months later PSA 5.6 repeat Bx 1/12 cores <1mm gleason 3+3=6 stage T1c RLRP 2-11-04 at age 50 Favorable path, 5 small foci of 3+3, organ contained Post op PCAs <0.1 I was able to go home 20 hours later, and back to work day 6. I have no urinary symptoms and I have most of my erectile function back. Knowing what I know now, I would definitely have the robotic surgery again.
Get the Walsh book and read it. Check out Dr.Catalona's web site too. Keep in mind that all the doctors believe in what they do. If you go to a hammer, you will be seen as a nail! So its up to you to check out your options, and decide what is best for you. Involve your significant other, if you have one. This illness will be hard for everyone who cares about you. They will all want to help. Let them. Good luck. Steve
MH - 30 Dec 2004 23:15 GMT Hi, Tate,
As others have said, welcome to the club nobody wants to join. I can still remember when I was just exactly where you are.... having just found out on Sept. 13, 2002, that I had PCa. I was 51. I chose laparoscopic radical prostatectomy. At your age, you have several options, and you should look at all of them. In my case, I wanted it *out* of me.
I would offer the following sites for information:
www.phoenix5.org
www.krongrad-urology.com
www.rcog.com
Others may have sites that will offer information on other treatment options.
I had never had surgery before. The surgery, itself, was much easier than I had imagined. I had surgery one morning and left for home the next. The catheter was a nuisance.... but not painful.
Take time to look at all your options... and choose the one that is best for *you*. Then keep looking forward! I wish you all the best!
MikeH
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. [quoted text clipped - 27 lines] > > Tate Tate - 31 Dec 2004 16:29 GMT Today, 12/31, is the day I go in for a complete review of my Test Scores and Options for treatment.
I want to thank all of you who have contributed information and support and I will keep the group advised of my road to recovery. It will be recovery, I will not accept nothing less.
This entire group is a truly a much needed resource of support and I will write later today of my next steps.
Thank you again folks and I wish everyone a great New Year.
Tate
Full Thread can be found under title "Recently Diagnosed With PC"
> Hi, I was diagnosed with Prostate Cancer 12/27 and have been reviewing > this support site for information of what to expect. [quoted text clipped - 27 lines] > > Tate wanginator95 - 31 Dec 2004 18:31 GMT You need zinc to have your prostate function normally. Also OPC's are great. If you are interested in specific supplements, then contact me at wanginator95@hotmail.com or 904-505-4304.
I.P. Freely - 31 Dec 2004 21:12 GMT DAMN!!!! You mean I could have avoided this death sentence if I had just eaten more zinc?
Do you have any CONCEPT how much the people of this forum loathe you, Wangeroo? When you get a good case of Gleason 10 PSA 100 T4 bone cancer, get back to us.
I.P.
> You need zinc to have your prostate function normally. Also OPC's are > great. If you are interested in specific supplements, then contact me > at wanginator95@hotmail.com or 904-505-4304. Rob Constable - 01 Jan 2005 17:07 GMT Yep, that's what we are all worried about here..improving our prostate function. In my case it's gone, but hey in case I get a cold maybe I should get a year's supply of zinc for the bargain price of $200. But I will only buy if I get the Ginsu knives...
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