?Don't look back.? Wow, can I relate to that great piece of advice I just
read on this board.. Because that's exactly what I'm starting to do? arg?.
(I should have checked into this NG waay before now?)
A few months ago I found out I had a PSA of 10.4 and a quick trip to a
urologist (w/ biopsy) proved a cancer with small spots of up to 7 on the
Gleason scale. As a rather young (acting) and otherwise healthy 63 year old
(with a lineage of lot's of old folks still around) my pee doc highly
recommended radical prostate removal (to ?get it all?) - which occurred
November 12th, 2004. OUCH!!!
Post op results (8 days after the surgery) were ?looks like we got it all?
(pathology of surrounding lymph node and other tissue proved ?clean?) , PSA
of 1.47 (which the doc claims is ?expected?), and ?the cancer was contained
in the left side of the prostate, so we had to take those nerves. But, we
left the ones on the right.? Which I thought was great news - because I was
a fairly horny old dude prior to this whole debacle - and, couldn't wait to
?get back in the saddle.? I pretty much could stop my flow right in the
doc's office when the cute little nurse ?yanked? the cath out (thar's a
treat.. lol) during that 8 day later check up. I haven't used ?pads? since,
but from time to time a strain or ?one too many? martinis causes an
unexpected ?gush?.. arg?
It's been 7 weeks and I feel quite well other than I still have a rather
sore belly (he went in the ?front door?) and some very tender areas inside
to the touch. So sore and tender that I haven't felt comfortable enough to
go back to exercising (light weights, stomach crunches, lay back bicycle,
etc.) even on a very light basis.
I think I prepared myself very well physically for this whole process by
losing 20 of my 195 pounds during the 4 weeks prior to the surgery and
reducing my cholesterol from 230 to 123 with rigorous exercise, drastic
reduction of fat intake in my diet, and the help of 10 mg Lipitor tablets
each day. And, mentally, though I was scared out of my mind about the
surgery itself - I thought I was ?ready to rumble? the cancer and ?put up?
with the consequences of the aftermath of prosectomy (I hope I'm spelling
this correctly.) Especially after my pee doc told me about him being able
to ?save? some of my nerves?.
Common sense tells me that after what my insides have gone through that it
is going to take quite awhile for the body to heal up and adjust to the ?new
arrangement? down in my innards. But, that hasn't stopped me from looking
down at grumpy old purple Charley everyday (not even close to as purple as
he was that first week after the surgery, though) and wonder just how long
it is going to take for him to come back around. But, so far he just
?hangs around? in a little bit of pain - and, won't even ?wink? at me.
Which is fine - because, like I said, I know it will take time? But, that
doesn't keep the old mind from starting to wonder if it might never happen?
or, what would life have been like if I hadn't opted for the operation?.
And, all kinds of silly thoughts like that. Which is why I appreciated the
?don't look back? advice. As, I needed this right about now.
So, if I can't ?look back? I've got to ?look forward??.. to WHAT?? (lol)
Have any of you guys that have had complete removal (w/ nerve sparing) got
any advice for me as to just how long it might be before old Charley can
join the ranks of the ?well enjoyed?' (lol)
(I know I'm treating this very serious topic with lot's of levity, but, hey,
if I don't laugh at it a little bit - it'll drive me nuts?)
Thanks in advance for any advice you might have,
Paul
kastons - 30 Dec 2004 23:14 GMT
Paul -
Sounds to me like you've got a great attitude about the whole process. As
to how long it could take to get "Charley" going again - everyone's
different. I'm 47 y/o had nerve sparing surgery this past June. With the
assistance of my loving wife, I got my first erection 16 days post-op. I am
on a 9 month regimen of 10mg Cialis every other day. I take a full dose of
20mg on those days when we want to make it work. Others have said it can
take upwards to 18 months.
Good luck to you.
Sandy K.
> "Don't look back." Wow, can I relate to that great piece of advice I
just
> read on this board.. Because that's exactly what I'm starting to do.
arg..
> (I should have checked into this NG waay before now.)
>
[quoted text clipped - 7 lines]
> Post op results (8 days after the surgery) were "looks like we got it all"
> (pathology of surrounding lymph node and other tissue proved "clean") ,
PSA
> of 1.47 (which the doc claims is "expected"), and "the cancer was
contained
> in the left side of the prostate, so we had to take those nerves. But, we
> left the ones on the right." Which I thought was great news - because I
was
> a fairly horny old dude prior to this whole debacle - and, couldn't wait to
> "get back in the saddle." I pretty much could stop my flow right in the
> doc's office when the cute little nurse "yanked" the cath out (thar's a
> treat.. lol) during that 8 day later check up. I haven't used "pads"
since,
> but from time to time a strain or "one too many" martinis causes an
> unexpected "gush".. arg.
[quoted text clipped - 17 lines]
> Common sense tells me that after what my insides have gone through that it
> is going to take quite awhile for the body to heal up and adjust to the
"new
> arrangement" down in my innards. But, that hasn't stopped me from
looking
> down at grumpy old purple Charley everyday (not even close to as purple as
> he was that first week after the surgery, though) and wonder just how long
[quoted text clipped - 3 lines]
> Which is fine - because, like I said, I know it will take time. But, that
> doesn't keep the old mind from starting to wonder if it might never
happen.
> or, what would life have been like if I hadn't opted for the operation..
> And, all kinds of silly thoughts like that. Which is why I appreciated the
[quoted text clipped - 11 lines]
>
> Paul
smu53@aol.com - 30 Dec 2004 23:53 GMT
Paul,
Definitly try the shots while you are waiting. I found that the
apprehension about sticking myself went away completly with practice.
After a while you hardly feel it. The anxiety makes it seem worse than
it is when you are just starting out. Being able to reliably get a 100%
rigid erection that will last for at least an hour, and that feels
great is more than enough to make up for any discomfort. There is some
evidence that getting erections with drugs helps us get function back.
I think it helped a lot . There is a short article in the Journal of
Sexual Medicine Vol 1 (Supplement) 2004, page 33 by by Rabani, Patel,
Scardino (all at Sloan Kettering) and Mullhall ( at Cornell) that
"After Nerve Sparing RP, erectile function continues to improve up to 4
years postoperatively." Good news!
Steve
wwcp@infinet.com - 31 Dec 2004 05:44 GMT
Sandy:
I have always tried to keep an upbeat attitude about all of life's
disappointments - but, I've got to confess that this is one of my tougher
ones to laugh about... However, IF I'm going to have to start taking all
those expensive ?helper? drugs I might just have to think bout answering
one of those SPAM e-mails I get inundated with everyday:
?Meester Paul, geet yer Viagra and Cialis tablits frum a vary reliable
on-line sourse?." (lol)
Steve:
I'm assuming you aren't talking about "shots" of Jack Daniels.. (Which I
would gladly partake in.. (lol) What shots are you taking? How deep does
that needle have to go???? (OUCH!!!) But, then again - an HOUR long
woody... humm. Right now in my condition - that would be worth a lot of
pain. But then, on the other hand - what do you do if the kids walk in on
you??? Hang a hat on him?? (Gladly - lol)
I'll look up that article at a medical library first thing next week.
Thanks so much to both of you guys,
Paul
smu53@aol.com - 31 Dec 2004 22:33 GMT
Paul,
I started with Caverject (generic name is alprostadil) at day 13 after
surgery. Keeping my sex life was very important to me, so I asked my
doc to show me how to use them pre-op. At first, I was using the
needles it came in. They are bigger than you need. The drug left me
with very bad stinging afterwards, so my doc swithched me to bi-mix,
which is Papaverine+Phentolamine. It is a generic, so it was cheap. I
switched on my own to small needles used by diabetics. They are gauge
#31 ultrafine needles. They are about are big as a course hair and only
about 1/4 inch long. If you ever had your finger picked for a blood
test, well the small needles hurt about 1/3 as much at most. A few
months later, I tried alprostadil again, and it didn't sting. The
erections are terrific with either bi-mix or alprostadil. It amazes me
that everybody doesn't at least try them. There are some potential side
effects, but they are not common. Not All urologists are comfortable
with them but they SHOULD BE! I'm about 10.5 months post RP, and have
about 85% of normal function back with the pills, but I still use the
shots because they are so good. I like them even better now that I have
a choice. If you want to, you can be rock hard for over an hour. I've
been that way as long as three hours when the correct dose was being
determined. They work for most guys, even if no nerves were spared, as
long as the circulation is ok. In my experience, the sex with them is
absolutely first rate. Good luck.
Steve
> Sandy:
>
> I have always tried to keep an upbeat attitude about all of life's
> disappointments - but, I've got to confess that this is one of my tougher
> ones to laugh about... However, IF I'm going to have to start taking all
> those expensive "helper" drugs I might just have to think bout
answering
> one of those SPAM e-mails I get inundated with everyday:
>
> "Meester Paul, geet yer Viagra and Cialis tablits frum a vary
reliable
> on-line sourse...." (lol)
>
[quoted text clipped - 12 lines]
>
> Paul
Outlivecancer - 10 Jan 2005 03:55 GMT
The shot that I took one time worked almost too well for four full hours.It was
a great pick me up-pun intended and now
with the pills and a loving wife things are getting back to good,so the shot
was mostly for hope,the other thing was quiting
smoking and drinking and eating well for the Gird and heart but to make this
mean something-as my uro said "increase circulation and smoking and clogged
arteries dion't.The change to sexual functioning can be sudden or gradual,don't
give up,I know the why me feeeling but hey cancer is no fun either,for me the
sex feels great because I love my wife,but it did take time to alter the
ejaculatory response as
a climax to the experience and do a different sensate focus.
Take Care.
Steve Kramer - 31 Dec 2004 18:08 GMT
> "Don't look back."
> So, if I can't "look back" I've got to "look forward"... to WHAT?? (lol)
> Have any of you guys that have had complete removal (w/ nerve sparing) got
> any advice for me as to just how long it might be before old Charley can
> join the ranks of the "well enjoyed?' (lol)
I did not have nerve sparing, but after RRP on 12/2000, I finally had an
unaided erection 5/2002. Nobody wants to wait that long, but sometimes,
that's what it takes.

Signature
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron (1 mo) 07/21/2003 @ 48
PSA .07 .05 .06
Lupron (3 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50)
non Illegitimi carborundum