anyone here have a port? (hickman or broviac or ?)

Thread view:

Enable EMail Alerts

Start New Thread

Thread rating:

Lorelei - 13 Dec 2004 16:39 GMT

I was wondering if anyone here has a port. I know that most of you (thank
God) are still in the curable stage and I haven't found Phoenix5 to be a
right fit, but I was looking for any info even 2nd hand.
1. did the placement require an overnight stay?

2. how grueling is the maintainance of the site?

thanks for any info anyone has.

Signature

Lori
Devoted wife of Curtis, Stage 4 Prostate cancer at age 40
PSA 865 Dec 30,2003
44 Feb 23,2004
17.3 Mar 15,2004
18.9 Apr 16, 2004
17.3 may 15,2004
14.59 =))) July 10, 2004
28!!! Oct 5,2004
37 Oct 27, 2004

Appt at 1300 today to find out where we go from here. Chemo?

mets to bone and lymph, Left Lower Lobe [?]
Lupron Q3months
Casodex 50 mg daily (stopped)
Zometa qmonth
Ketoconazole + hydrocortisone (he stopped these, made him nauseous)
Probable Taxotere/Thalidomide by Christmas
http://community.webshots.com/user/lorismiller

Reply to this Message

Steve Kramer - 13 Dec 2004 19:59 GMT

My BIL has a port for his lymphoma. They did it in the doctor's office. He
will have it 18 weeks.

The first day or two, he couldn't imagine having the thing for 18 weeks. He
could hardly move. Even at the time, he said he was just sore and that it
was probably perception. A week after installation, he was at the driving
range. He hardly notices it now.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Lupron (1 mo) 07/21/2003 @ 48
PSA .07 .05 .06
Lupron (3 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50)
non Illegitimi carborundum

> I was wondering if anyone here has a port. I know that most of you (thank
> God) are still in the curable stage and I haven't found Phoenix5 to be a
[quoted text clipped - 4 lines]
>
> thanks for any info anyone has.

Reply to this Message

Lorelei - 14 Dec 2004 03:47 GMT

> My BIL has a port for his lymphoma. They did it in the doctor's office.
> He
[quoted text clipped - 14 lines]
>>
>> thanks for any info anyone has.

thanks Steve, I read this to Curt.
Lori

Reply to this Message

gourd_dancer - 13 Dec 2004 23:55 GMT

Lori, I have a port. Nothing to it. Went in at 7:00 am outpatient clinic of
local hospital. Procedure done in 30 minutes under a general. Went home at
11:00 am. Allows you to fish, swim, shower, etc.....not like a "long line"
in the arm where you have to cover, protect, etc. Maintenance is pretty
simple....take Warfarin once a day to keep blood clots from forming. Port
can be accessed same day that it is put in.

Mike

Reply to this Message

Lorelei - 14 Dec 2004 03:46 GMT

> Lori, I have a port. Nothing to it. Went in at 7:00 am outpatient clinic
> of
[quoted text clipped - 14 lines]
>>
>> thanks for any info anyone has.

thanks, I read this to Curt.
Lori

Reply to this Message

Danny McCarty - 15 Dec 2004 22:37 GMT

>Subject: Re: anyone here have a port? (hickman or broviac or ?)
>From: "gourd_dancer" mnospam@sbcnospamglobal.net
>Date: 12/13/2004 5:55 PM Central Standard Time
>Message-id: <a_pvd.46508$Qv5.16383@newssvr33.news.prodigy.com>

Lori, I have one, too. Most of the Insertion day was waiting for the
surgeon..The incision where the port is inserted under the skin should be kept
clean and dry for a few days. You need to flush out the port with an injection
of about 10 cc of heparon(sp?) at least once a month, but they flush it out
before every infusion anyway. My wife flushed out the port every week when she
removed the adriamycin pump, rather than having to make an extra trip downtown.
..

>Lori, I have a port. Nothing to it. Went in at 7:00 am outpatient clinic of
>local hospital. Procedure done in 30 minutes under a general. Went home at
[quoted text clipped - 13 lines]
>>
>> thanks for any info anyone has.

Reply to this Message

Lorelei - 16 Dec 2004 06:10 GMT

> >Subject: Re: anyone here have a port? (hickman or broviac or ?)
>>From: "gourd_dancer" mnospam@sbcnospamglobal.net
[quoted text clipped - 12 lines]
> removed the adriamycin pump, rather than having to make an extra trip
> downtown.

Thank you. At this point the doc is leaving it up to Curt and the IV nurses
but I can tell that they are having trouble getting in his vein every month,
so with the increase in frequency (qmonth down to q3wks)
Having these responses has eased his mind a bit. My desk is in the living
room so I give him the highlights while he watches sportscenter : )

Signature

Lori
Devoted wife of Curtis, Stage 4 Prostate cancer at age 40
PSA 865 Dec 30,2003
44 Feb 23,2004
17.3 Mar 15,2004
18.9 Apr 16, 2004
17.3 may 15,2004
14.59 =))) July 10, 2004
28!!! Oct 5,2004
37 Oct 27, 2004
Dec 9 - 45
Dec 13- 43
mets to bone and lymph, Left Lower Lobe [?]
Lupron Q3months

Will be starting Taxotere with Decadron and Zometa Q3weeks starting 12/21
Casodex 50 mg daily (stopped)
Zometa qmonth
Ketoconazole + hydrocortisone (he stopped these, made him nauseous)
Probable Taxotere/Thalidomide by Christmas
http://community.webshots.com/user/lorismiller

Reply to this Message