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Medical Forum / Diseases and Disorders / Prostate Cancer / November 2004

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Scary: Docs call my case "verrrry interestiing!"

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I P Freely - 22 Oct 2004 20:23 GMT
Had my final pre-surg visit with the hospital yesterday. Three nurses and
two surgeons have now exclaimed surprise, awe, fascination -- even
hand-wringing glee in one surgeon's case -- over their first RRP and colon
resection combination. It's got the attention of the U of W surgical board,
which, I hope, will lead to exceptionally close scrutiny. But, hey, it's
just one cut and one surgical team switch, so it beats two compete
procedures and the risks of metastasis in the meantime.

Heck, next time they find a reason to go ab-diving, I think I'll have them
evaluate every other little piece of me in the region before they open me
up; the fewer times I get filleted, the better, IMO.

I.P.
Donna5657 - 22 Oct 2004 21:07 GMT
Wow, it is overwhelming.  My father had the same surgery last March.  He also
had two teams, the prostate was started, then the colon team went in and did
their thing, and then the prostate part was completed.  About 8 hours.  If you
have any questions, please feel free to email me.  He had his surgery done at
University of Illinois.  
Clarence Crow - 22 Oct 2004 22:29 GMT
>Had my final pre-surg visit with the hospital yesterday. Three nurses and
>two surgeons have now exclaimed surprise, awe, fascination -- even
[quoted text clipped - 9 lines]
>
>I.P.
WoW...as I just started my my PCa treatment yesterday, my Rad
Oncologist commented on some residual impacted gallstones I've had
since Xmas 1988. No surgery was decided then, only a change of diet.
I think he's earmarked them for removal by another surgical "team"
further down the track. ATM, I'm just happy to be in the PCa treament
zone at last since seeing my GP in early May, 2004


-- "if you can see it coming, head it off at the pass, else put the wagons in a circle"
-- Please reply to this ng as:
-- my email adress is 100% faked to prevent proliferation of SPAM!!
-- Regards

-- Clarence Crow
JerryW - 22 Oct 2004 23:56 GMT
Amazing!!!

Signature

JerryW
jweindel at flash dot net

2/11/04 PSA 2.6, Suspicious DRE (age 62)
2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe
5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes
Tumor organ-contained; lymph nodes clear, seminal vesicles clear
Both nerve bundles spared
7/13/04 PSA <0.1
10/12/04 PSA <0.1

> Had my final pre-surg visit with the hospital yesterday. Three nurses and
> two surgeons have now exclaimed surprise, awe, fascination -- even
[quoted text clipped - 9 lines]
>
> I.P.
Steve Kramer - 23 Oct 2004 02:53 GMT
Will you have to have a temporary clostomy?

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron (1 mo) 07/21/2003 @ 48
PSA  .07 .05 .06
Lupron (3 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50)
non illegitimi carborundum

> Had my final pre-surg visit with the hospital yesterday. Three nurses and
> two surgeons have now exclaimed surprise, awe, fascination -- even
[quoted text clipped - 9 lines]
>
> I.P.
Donna5657 - 23 Oct 2004 05:01 GMT
Are both cancers primary?
Bill Denton - 23 Oct 2004 14:55 GMT
I've often thought that, considering the expense and risk of and
infrequency w/ which most people have general anesthesia, the
opportunity should be exploited to the fullest extent. Why not have a
plastic surgeon doing that face lift at one end while the uro is doing
his thing at the other? I casually mentioned to a resident prior to my
RP that they ought to go ahead and do a colonoscopy while they were
down there, and he said he would check into it. It didn't happen but
why not get an uncomfortable, invasive procedure like that done when
you are under? Hey, if I'm out of it, go ahead and get it all over w/.

Bill Denton
RP 2/12/02
Memphis
Alan Meyer - 23 Oct 2004 15:59 GMT
> I've often thought that, considering the expense and risk of and
> infrequency w/ which most people have general anesthesia, the
[quoted text clipped - 5 lines]
> why not get an uncomfortable, invasive procedure like that done when
> you are under? Hey, if I'm out of it, go ahead and get it all over w/.

Interesting idea Bill.  It decreases the total trauma to
the body (only one anaesthesia instead of two) but it
increase the trauma that you have to recover from
at one time.

I wonder if the patient would feel "Ouch my face and
my belly both hurt!",  or "Hmmm, my face hurts so much
I didn't even notice my belly hurting."

   Alan
I P Freely - 07 Nov 2004 00:53 GMT
No bowel bag. Both procedures went by the book Thur 28 Oct, with no
complications yet other than a catheter replacement after one plugged
yesterday. If I worked in an office, I'd be back at work this Monday.

Both are primary. The PC Gleason grade was an 8, but surgical margins were
negative. The carcinoid tumor was very large but was detectable in only 2 of
35 lymph nodes removed for pathology. They hope it's history, will track it
aggressively.

As for the colonoscopy while under, I don't notice them wide awake. I've had
two with zero drugs, and find them much less noticeable than your basic
everyday toe stub or lip bite. I could read a magazine during a colonoscopy
if I weren't so occupied watching the doc's screen and kibitzing the
process. Then I put on my pants and drive back to work or play. The
"secret"? Fart. Let the gas out. Our colons perceive only stretch; as long
as we let the gas flow freely (as it does while we're under), there's no
stretch, thus no pain, not even when they cut out a chunk for biopsy or
polyp removal. But if I were due for one and were under anyway, may as well
get a twofer.

As for avoiding surgery . . . that wasn't even in my treatment decsion tree.
I tend to sleep through invasive surgeries, so that part's a loss. Then I
spend a few days in recovery, then I go home until I can take care of
myself, then I go back to work or play. SO FAR, my surgeries (half a dozen,
including inner ear removal, shoulder repair, and this surgery) haven't been
a big deal. I have yet to feel any pain from this surgery other than from a
few hiccups. DRUGS, man, DRUGS! I was walking around the ward upright two
days post-op, around the third floor three days out. Just don't expect
reliable comprehension and thought.

I.P.
Doug Taylor - 24 Oct 2004 15:00 GMT
>Had my final pre-surg visit with the hospital yesterday. Three nurses and
>two surgeons have now exclaimed surprise, awe, fascination -- even
>hand-wringing glee in one surgeon's case -- over their first RRP and colon
>resection combination.

Wish it had happened that way for me.  Opted for EB radiation
treatment for PCa, concluded April '03, then found out I had to get a
colon resection due to diverticulosis in Oct. '03.  

Part of my decision not to undergo RRP was to avoid surgery.  Whoops.
And of course the radiation damage to the rectum limited the amount of
colon that could be removed.

Gotta be better to get it all done at once, and have one recuperation
period.

Best of luck.
nospam@please.com - 25 Oct 2004 08:14 GMT
I got my PSA test back in May  (170!) and 6 weeks later a biopsy
showed every sample of my prostate cancerous, at t the Gleason 4+3
rating.

Well, tomorrow I go in to discuss surgery on November 2.
One might say, great, finally going to get all that prostate cancer
removed.

But the operation is to remove a tumor on a kidney, perhaps the entire
kidney! While they are at it, the will look around for evidence the
prostate cancer has escaped (the radiation guy bets it has, the
prostate surgeon thinks it might not have.

Am I wrong in being depressed that half a year later we still aren't
even looking at a prostate cancer treatment?  I was seriously
depressed before being diagnosed, and all this waiting has not helped
much. I can't get any kind of estimate of my life expectancy out of
the docs. I presume that within a few weeks of the upcoming operation,
they might have enough info to finally tell me something.

Meanwhile, should I be getting a flu shot, assuming I can find one?

iOn Fri, 22 Oct 2004 12:23:18 -0700, "I P Freely"
<fuhgeddaboutit@spamdam.com> wrote:

>Had my final pre-surg visit with the hospital yesterday. Three nurses and
>two surgeons have now exclaimed surprise, awe, fascination -- even
[quoted text clipped - 9 lines]
>
>I.P.
Danny McCarty - 25 Oct 2004 19:56 GMT
>Subject: Re: Scary: Docs call my case "verrrry interestiing!"
>From: nospam@please.com
[quoted text clipped - 20 lines]
>the docs. I presume that within a few weeks of the upcoming operation,
>they might have enough info to finally tell me something.

No, you are not wrong.  Nevertheless, keep busy.  I play on the computer, dance
in The Nutcracker, read, joke with the other patients, ta-ta!  I had surgery
two months after  biopsy, but it didn't work and I am still fighting, three and
a half years after surgery.  Prognosis is difficult.  My doc said he would keep
me alive 10 years.  8 of those to go...;-}

>Meanwhile, should I be getting a flu shot, assuming I can find one?
>
[quoted text clipped - 14 lines]
>>
>>I.P.
Steve Kramer - 29 Oct 2004 01:52 GMT
Yes, you might be depressed.  But, you are getting treatment, right?  If
this is Chris, you're on Lupron, right?

But, to answer your question, a tumor anywhere outside your prostate is bad
news.  But, it's still not the end.  Maybe even terminally bad news, but
there are several treatments that will stave off death for awhile.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3bN0M0
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Lupron (1 mo) 07/21/2003 @ 48
PSA  .07 .05 .06
Lupron (3 mo) 8/03 (48), 12/03, 4/04 (49), 09/04 (50)
non illegitimi carborundum

> I got my PSA test back in May  (170!) and 6 weeks later a biopsy
> showed every sample of my prostate cancerous, at t the Gleason 4+3
[quoted text clipped - 38 lines]
> http://www.newsfeeds.com The #1 Newsgroup Service in the World! >100,000 Newsgroups
> ---= East/West-Coast Server Farms - Total Privacy via Encryption =---
I P Freely - 08 Nov 2004 21:52 GMT
>I got my PSA test back in May  (170!) and 6 weeks later a biopsy
> showed every sample of my prostate cancerous, at t the Gleason 4+3
> rating.

> Am I wrong in being depressed that half a year later we still aren't
> even looking at a prostate cancer treatment?  >

> Meanwhile, should I be getting a flu shot, assuming I can find one?

Wrong in being depressed after half  year? I don't think so.. My initial
docs @ PSA 8.8 and Gleason 8 told me a month of research
and decision-making would do no harm, but two months was more game-playing
than they would advise. Every moment them little cancer cells are mutating
and circulating, looking for an "M-class planet" that will accept and
nurture them. Once they find an accepting site, most likely a lymph node or
some bone, and take microscopic root, our clock starts ticking.

The VA wouldn't accelerate my flu shot to protect me while in the hospital
for surgery they're paying for, but the county said, "Sure, we'll allow you
the shot (61, otherwise healthy)". So I paid my $20 for flu insurance. The
docs wanted me to get it at two weeks pre-surg or well afterwards to avoid
interaction.

The post-op prostate and prostate bed autopsy/pathology will tell the docs a
great deal about your prognosis. That opportunity was one of the primary
reasons I chose surgery even before the unrelated colon cancer appeared. I
want to know all I can, becasue this is a classic case of "knowledge is
power". The more we know about our own case, the better we can fight it and
plan around it. I've been far too busy researching my case, its options, and
its potential affects of my lifestyle to even think about what it may do to
my LIFE. It'll take this stuff many years to kill me, and long before that
it will affect my day-to-day living.

But I tell ya, the VA was willing to move at a snail's pace. When they set
up my first specialty consultation > 3 months after my biopsy, I said
"enough of this" and took the bull by the horns. I began approaching
surgeons directly, with my Gleason score as my ticket in the door, and by
the time that initial consult rolled around (actually it hasn't; it's 15
Nov), I had undergone 10-12 tests (e.g., biopsies, MRIs, CTs, X-rays,
multiple blood and urine workups, other nuclear medicine scans taking days),
had at least 17 appointments with at least 10 doctors in 6 different medical
facilities spread over 230 miles under three different "HMOs" (VA, primary
insurance, and secondary insurance). We coordinated every step with the
appropriate HMO in advance, made sure my records made each appointment
(hand-carrying if necessary, especially with visits an hour apart or 230
miles apart), brought my X-rays and MRIs and CTs and OctreoScan and multiple
biopsy results with me to each new physician, made sure new docs had
previous biopsy samples if they wanted to re-evaluate them, proposed to two
surgeons in different departments that they combine two surgeries related
only by their anatomical proximity in my abdomen (the internet revealed both
surgeries used the same incision) so I had to get opened up only once, made
sure each physician's office had the direct phone numbers of my other
physicians' offices if they had any reason to confer with them, kept up with
very confusing billing and payments -- and, oh yeah - had two major
surgeries performed at once . . . all in about ten weeks. That would have
taken half a year, maybe much more, if I had just let it happen
spontaneously under my socialized medicine plan (the VA), and neither of my
problems had that much time to spare.

Of course, under the Democrats' published socialized health care plan (this
isn't a political comment; it's simply a fact gathered from reading the
plan), all those doctors and I would now be in prison for choosing each
other. We in this group can thank God that plan was belayed for at least
four more years.

I.P.
 
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