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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2004New starter
Hello all I'm a new starter to this ng and have been diagnosed with a Stage 2 prostate cancer and am awaiting a response from Fremantle Hospital, Western Austalia, Oncology Dept, to introduce me to a Radiotherapy Program recommended by my Urologist. I suspect it's Broad Spectrum, but not sure as yet. The Urologist said the only machines were at either Sir Charles Gairdner or Royal Perth. I would like to hear from any other West Australians (if in this group). Alternatively, any comments on this Treatment would be welcomed. Personal Profile: 69 yrs old, Type 2 Diabetic, Osteo-Arthritis, Irritable Bowel Syndrome, Hypertension etc. etc. (under medication for all of this). Still working (a little less lately). Wife complained of "dribble" on the toilet floor. PSA went from 5, 2 yrs ago to 18 & 15 this year. External U/Sound revealed enlarged Prostate plus retention of some Urine DRE by Urologist revealed lump. TRUS at Fremantle "Same-Day" Theatre confirmed Stage 2 Cancer - contained within the Prostate. Urologist wrote referral to Fremantle Oncology. All of this has taken nearly 3 months to get to this stage, and I'm feeling the need to get something moving on it, but that's the wheels of the Public Health system, here. :-( -- Please reply to this ng as: -- my email adress is programmed to deny access to all without passwords. -- Regards -- Clarence Crow Welcome Clarence. As my treatment was surgical and I'm not in Australia, all I can say is best wishes to you for a complete cure. jimhoney standard RRP age 52, cured, no significant aftereffects > Hello all > [quoted text clipped - 35 lines] > > -- Clarence Crow I would like to hear from any other West Australians (if in this group). All of this has taken nearly 3 months to get to this stage, and I'm feeling the need to get something moving on it, but that's the wheels of the Public Health system, here. :-( ======================= hi clarence - welcome to this club you didn't want to join. we do indeed have some from your area. they haven't chimed in lately, but i'm sure they probably check in from time to time. sorry to hear about the slow moving time table. the waiting is the hardest part of all. best of lucky on your treatment. ~ curtis knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." Clarence, just tried to contact you but for some reason the message was udeliverable. I am in Perth and would welcome any contact if I can be of any help. > Hello all > [quoted text clipped - 35 lines] > > -- Clarence Crow >Clarence, just tried to contact you but for some reason the message was >udeliverable. I am in Perth and would welcome any contact if I can be of >any help. Brendan My POP e-mail address is nevdev@westnet.com.au Regards "Clarence" >> Hello all >> [quoted text clipped - 35 lines] >> >> -- Clarence Crow -- Please reply to this ng as: -- my email adress is programmed to deny access to all without passwords. -- Regards -- Clarence Crow Hi there Get in touch with the radiation oncology dept at Charlie Gairdner Hospital. Cheers Hel from WA you might want to start here http://www.scgh.health.wa.gov.au/departments/radiation_oncology/clinical_trials.html I have been on this trial since Jan 04 and have just finished HDR brachytherapy after EBRT and 6 months hormone treatment.I have 3 more zometa infusions then hopefully all is done. All treatment is totally free on this trial. Look for this : 03.04 A Randomised Trial Investigating the Effect on Biochemical (PSA) Control and Survival of Different Durations of Adjuvant Androgen Deprivation in Association with Definitive Radiation Treatment for Localised Carcinoma of the Prostate. Description: Randomised to one of four arms: Arm A: (STAD) LH-RH analogue for 5 months prior to and during first month of RT Treatment (total of 6 months). No bisphosphonate therapy. Arm B: (STAD) LH-RH analogue for 5 months prior to and during first month of radiation treatment (total of 6 months). Bisphosphonate therapy - Zometa 4mg IV 3-monthly x 18 months. Arm C: (ITAD) LH-RH analogue (as STAD) but continued for further 12 months (total 18 months). No bisphosphonate therapy. Arm D: (ITAD) LH-RH analogue as for STAD arm, but continued for further 12 months (total 18 months). Bisphosphonate therapy - Zometa 4mg IV 3-monthly x 18 months > Hello all > [quoted text clipped - 35 lines] > > -- Clarence Crow >Hi there >Get in touch with the radiation oncology dept at Charlie Gairdner Hospital. > >Cheers >Hel >from WA Thanks for the response, but my Urologist shied off the "seeds" due to the size of my Prostate at the moment. He feared there would be more constriction. I now have my initial appointment at Fremantle October 8th :) Regards Clarence >you might want to start here >http://www.scgh.health.wa.gov.au/departments/radiation_oncology/clinical_trials.html [quoted text clipped - 61 lines] >> >> -- Clarence Crow -- Please reply to this ng as: -- my email adress is programmed to deny access to all without passwords. -- Regards -- Clarence Crow > I would like to hear from any other West Australians (if in this > group). Clarence, I suggest you ask the doctors if they will put you on hormone therapy (HT) immediately. Hormone therapy involves some pills (usually Casodex) and perhaps an injection (Lupron or Zoladex). There are several reasons for doing this: 1. It can be done without waiting to schedule time with an oncologist, or time on a radiation machine. 2. It starts treating the cancer immediately. In your case this is important because you already have a pretty high PSA. HT will normally stop the cancer from growing, or greatly slow it down. I doesn't work forever, but it will work for the months you may have to wait to get your case treated properly. 3. Recent studies have concluded that patients receiving HT before and during radiation have a higher success rate than patients receiving radiation alone. You're more likely to be successful with radiation if you've had HT. Best of luck. Alan Hello again Just wanted to thank all the respondents to my post last night for the welcome and interest shown. I've yet to learn all the "jargon" and abbreviations, but will soon pick it up. Just to let you all know, I've finally got my initial appointment with Fremantle Radiation Oncology AM, October 8. Where it goes from there will be on a "weight for age" basis, taking all factors into account, re my age, health and state of the prostate etc. etc. At least I'll be able to question them on a few pointers I've picked up here and on other websites. -- Please reply to this ng as: -- my email adress is programmed to deny access to all without passwords. -- Regards -- Clarence Crow > Hello again > [quoted text clipped - 3 lines] > I've yet to learn all the "jargon" and abbreviations, but will soon > pick it up. Welcome to the group, Clarence. Hope you'll keep us posted. As to the jargon, be sure to check out www.phoenix5.org . It's the best site out there for information about anything prostate related! Take care! MikeH |
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