I realize that this is off topic by a wide margin, but I still request your
support. Some of you may remember my mention of a brother dx'd with ALS a
few weeks ago.
It was unknown to me until today, that my oldest son had become involved
with a local ALS support group; primarily due to his uncle's affliction.
Some of this group are local to the Austin, TX area and may wish to
participate in the up comming walk in Austin on 10/23/04 or contribute to
ALS research at the following address.
http://walk.alsa-south-tx.org/site/TR?pg=personal&fr_id=1011&px=1009901
I certainly appreciate any help you may provide to research into this
disease (from what I've learned so far, it makes Cpa seem like a walk in the
park).
Tom
Doug Taylor - 28 Sep 2004 01:47 GMT
>I realize that this is off topic by a wide margin, but I still request your
>support. Some of you may remember my mention of a brother dx'd with ALS a
[quoted text clipped - 11 lines]
>disease (from what I've learned so far, it makes Cpa seem like a walk in the
>park).
Amen. My business partner has been dying of ALS for close to 5 years.
Watching his muscular function slowly waste away toward an inevitable
death by suffocation has helped me immensely putting my comparatively
trivial struggle with PCa and its side effects in perspective. His
surprisingly optimistic attitude in the face of this truly terrible
and cruel disease has been an inspiration. There is no cure, no
treatment, and no positive or encouraging news on the horizon.
Indeed, PCa is a "walk in the park" compared to many fates.
My heart goes out to your brother and his family.
Danny McCarty - 28 Sep 2004 23:32 GMT
>Subject: OT - ALS Walk
>From: "Tom C" thomcu@verizon.net
[quoted text clipped - 18 lines]
>
>Tom
My mother's brother died of ALS, after surviving 8 years. I was off to college
and the Air Force most of that time and didn't see him much. Most ALS patients
don't live that long. Being paralized most of that time is worse than what most
of us experience until the very end.