This is my first post. I am four weeks post RRP. I have been observing
the site for about a week and find it very helpful. Thanks to everyone
for being so open with discussion of the issues. David S. and I had
the same doctor and surgery on the same day. David was the morning
surgery and I was the afternoon. We met last week when we were having
the catheters removed. David referred me to this site.
Summary:
- Age 62 (May, 2003)
- PSA 6.3 with 5.9 recheck May 1, 2003
- Biopsy with Gleason grade of 3+4=7 results May 22, 2003
- Bone scan May 28 immediate reading indicated spot on tip of one rib
left side. Additional x-rays taken same day. Doctors concluded
unlikely to be a problem.
- Urologist reviewed options May 29. Due to size of prostate external
beam was suggested to reduce size followed by implants. Surgery was
another option. He gave no real guidance. When I inquired about nerve
sparing surgery I got a vague answer stating "with all the blood the
nerves are hard to see". Alarm!
- Researched and concluded with my excellent health the surgery was
the option of choice. (Out of the body and into the bucket.)
- Researched facilities and doctors and selected the urologist of
choice. Met the urologist on June 9. He reviewed biopsy results, bone
scan, etc. and recommended surgery.
- Three units of blood were accumulated prior to surgery.
- Surgery August 1, 2003. My blood supply to the area was unusual and
vessels very large. Five units of blood were required. The left nerve
bundle was becoming involved; thus, only the right nerve bundle was
saved.
- The tumor was organ confined. Cancer was on the left side
predominately and involved 15%. Gleason grade 3+4.
- Catheter removed August 21. (Three weeks after surgery.) Leakage was
experienced around the catheter during the last week.
I am very happy with the final urologist. When searching I was looking
for skill, experience and results and not personality.
The surgery is difficult. The past four weeks have been hard
emotionally and physically; but, there has been little significant
pain. It just has been telling me what not to do. I am not one to have
much pain. My wife is special, very understanding and helpful. I find
it very hard to just take it easy. Significant leakage after catheter
removal, very weak erection and loss of length are all somewhat
depressing. However, after four weeks I am sitting here preparing this
post and I can truly say I feel great and optimistic. Leakage is much
improved with the greatest problem being when standing still. The
Depends take care of the issue. I use the Depends underpants at night
and the pads during the day. I am down to about one pad during the day
compared to four just a few days ago. Sexual desire is certainly not
reduced. In fact I think it is greater. A fully satisfactory erection
is not possible as yet but I believe that will happen in a reasonable
time frame. A climax is possible.
I believe that my results were aided by the loss of about 30 pounds
between my PSA detection and surgery. I also did exercises for stomach
muscles and rode my exercise bike about 12 miles per day every day for
three months prior to surgery. As a side effect my blood pressure was
lowered significantly and my regular doctor reduced my pressure
medication and is considering eliminating it. I have missed using the
bike during recovery but have started it again but on a lower
resistance.
Best wishes to all,
Steve M
MH - 29 Aug 2003 18:34 GMT
Hi, Steve M......
Glad to hear you are finding the group helpful.
Sounds like you have made some very good choices for yourself... and you are
pleased with the outcome. That's great!
The continence will return... just give it time. I'm 9 months post op with
both nerves spared and still waiting on sexual function, but others tell me
that can take up to two years, so am trying to keep that thought!
I wish you continued good recovery. Thanks for sharing!
MikeH
> This is my first post. I am four weeks post RRP. I have been observing
> the site for about a week and find it very helpful. Thanks to everyone
[quoted text clipped - 59 lines]
> Best wishes to all,
> Steve M
c palmer - 29 Aug 2003 19:13 GMT
hi steve - thanks for the input. you never can tell, there may be
someone reading your post and finding comfort and that in itself is
rewarding.
you coming along fine. the hardest part is mental focus. got to stay
on target. we expect so much to happen and it takes its slow sweet time
and we want it to happen now. like you said, you lost the weight, rode
the bike and still, although you have bounced back, you have had a
tough time with it.
the great news is that you are on the road to recovery. you are getting
better, and will continue to get better. all this will seems like a
speed bump in the road of life.
so, jump in and write when ever you feel like it. everyone cares and
can offer some comfort. it's a great feeling!!!
congrats on your 4 week post op mark.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
David S. - 30 Aug 2003 02:22 GMT
Steve:
Well I am glad you decided to jump in. We are trying to increase the
number of "Steve's" to balance out the number of "David's" around here.
Steve, as I recall you are clean shaven, right? We keep statistics on
that kind of thing.
I had called the doctor's office yesterday to ask about my continuing
pain in the peritoneum. The nurse called back this afternoon and said the
doctor was not concerned at this point, i.e., four weeks post-op. At least
I never had any bladder spasms, so i guess it kind of evens out, doesn't it?
No change in the incontinence yet. I am doing the same routine, pads
(Depends Guards) during the day and the underwear at night. No accidents to
report yet. As to erections, no sign of life there but I have not tried the
Viagra yet. I still have some soreness down there, my wife says that is
from the catheter, so I am in no hurry to try.
Welcome to this exclusive club. You passed the initiation on August
1st.. Enjoy the company. This is a great place to hang out.
Thank you.
David S.
> This is my first post. I am four weeks post RRP. I have been observing
> the site for about a week and find it very helpful. Thanks to everyone
[quoted text clipped - 59 lines]
> Best wishes to all,
> Steve M
Dale J. - 30 Aug 2003 02:42 GMT
> Steve:
> Well I am glad you decided to jump in. We are trying to increase the
[quoted text clipped - 14 lines]
> Thank you.
> David S.
Your're too soon for that erection stuff David.
Time heals all.
73
Dale J.
> > This is my first post. I am four weeks post RRP. I have been observing
> > the site for about a week and find it very helpful. Thanks to everyone
[quoted text clipped - 59 lines]
> > Best wishes to all,
> > Steve M

Signature
E-mail: dalej2@mac.com
Steve M. - 30 Aug 2003 20:55 GMT
David:
I hope the pain is getting much better. I experience little pain
in the peritonem if careful to avoid chairs that put pressure in the
area. I have certainly noticed that many chairs have a hump in the
middle that can cause problems. Also, the Depends add thickness in
that area which can causes extra pressure when sitting. This extra
pressure is when I notice pain. A minor adjustment relieves the pain
and pressure.
You are correct.I am clean shaven.
Thanks for welcoming me to the club. I was initially nominated
for membership by PCa.
Are you planning to work short days next week? I hope all goes
well.
Steve M
> Steve:
> Well I am glad you decided to jump in. We are trying to increase the
[quoted text clipped - 14 lines]
> Thank you.
> David S.
David S. - 31 Aug 2003 18:09 GMT
Steve:
Regarding the pain in my bottom, some days are better than others.
Yesterday was a bad day, today it is better. The ibuprofen does help for
sure.
What I am going to try to do with work is start half days but attempt to
organize myself so I can take files home and work there. The idea being to
avoid the commute each day. That is almost two hours of sitting on my sore
bottom, so if I can avoid that things will be better for me. I think my
boss will go along with that. Maybe I will have to make the commute only
2-3 times per week until I am back on my feet.
I know what you mean about the chairs. I have learned which one's
around here to avoid. Did they give you a cushion when the catheter was
removed? The thing they gave me was of no use. My wife went to the drug
store and bought a cushion for fifteen bucks or so that works just fine. I
am sitting on it right now. I can't say that I have had a lot of trouble
with the pads, but I do know what you mean when they bunch up down there.
Storming again. Just what we needed, more rain.
Have a good holiday everyone.
Thank you.
David S.
> David:
>
[quoted text clipped - 31 lines]
> > Thank you.
> > David S.
chuck@bottomache.com - 01 Sep 2003 19:34 GMT
Hi David: I had pain in the butt for quite a while. Doc suggested it
might have been due to the site of biopsy being pushed around during
surgery as the prostate resides immediately in front of that part of
the rectum that was penetrated by the biopsy. He also suggested that
it might have been because the biopsy site was still inflamed as well.
However, the pain did disappear quite suddenly after about a month. I
do remember a sign above my hospital bed that said "Nothing per
rectum." Perhaps indeed this area was irritated. It disappears and
slowly but surely things return to normal, well almost normal for me.
Chuck H.
Steve Kramer - 30 Aug 2003 20:43 GMT
Welcome to the club no one wanted to be in. Unfortunately, we already have
a Steve M. Maybe you can change your last name.

Signature
Steve Kramer
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .3 .4 .8
EBRT 05-07/2002 @ 47
PSA .3 .2 .2 .2 .3
Erection 05/12/2003 @ 48
HT 07/21/2003 @ 48
> This is my first post. I am four weeks post RRP. I have been observing
> the site for about a week and find it very helpful. Thanks to everyone
[quoted text clipped - 59 lines]
> Best wishes to all,
> Steve M
David S. - 31 Aug 2003 18:00 GMT
Steve:
Uhh, maybe we should warn you about Steve Kramer's sense of humor....
> Welcome to the club no one wanted to be in. Unfortunately, we already have
> a Steve M. Maybe you can change your last name.