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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2004

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Life After SI

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Ron Carter - 11 Sep 2004 14:10 GMT
On May 7, 2004, I had a seed implant at the Massey Cancer Center in
Richmond, Virginia.  Just a few days ago, I returned from a
backpacking trek on the Inca Trail in Peru.  And just a day before I
left, I received the results of my first post-implant PSA:  0.4 down
from 4.6 at the time of the implant.  So for now, things are looking
very good indeed, although as you all know, with radiation, it takes a
year or more to reach any degree of certainty as to whether the PCa is
on the run or not.

Being diagnosed with PCa was something of a gift in one sense.  I had
always wanted to hike the Inca Trail to Machu Picchu (as well as a do
a number of other things in my life) but had put it off in order to
save a little more money, complete other projects, keep appointments,
etc.  PCa brought me face-to-face with my own mortality, and I
realized that something is going to get me before too awfully long
(I'm 63 years old)--if not PCa, then something else--so I decided
that, from now on, if there's something I want to do and I can afford
to do it, then I'm on my way. And that includes all the things I've
always wanted to say to my wife and kids, good friends, and others but
never got around to it. Thanks to PCa, I think I'm living a more
authentic life these days, focusing on what really counts.  Too bad it
took a life-threatening disease to bring me around to this position,
though.

As many of you have said often in this NG, life is good.

Ron Carter
Beverley - 12 Sep 2004 04:07 GMT
Glad you are back. I want all the details of your trip!!

Hubby's appt in Richmond was moved to Sept 30. We were hoping to meet with
Biff but he can't make it that day. So we are all going to have to find
another day to catch up with each other.
Bev

> On May 7, 2004, I had a seed implant at the Massey Cancer Center in
> Richmond, Virginia.  Just a few days ago, I returned from a
[quoted text clipped - 23 lines]
>
> Ron Carter
Lorelei - 13 Sep 2004 01:25 GMT
> On May 7, 2004, I had a seed implant at the Massey Cancer Center in
> Richmond, Virginia.  Just a few days ago, I returned from a
[quoted text clipped - 23 lines]
>
> Ron Carter

I've always wanted to go to Machu Picchu. I'm glad you got to go. This whole
big fu'd up thing can be a sort of blessing if you use the time to LIVE.
Curt's been acting weird. (not just my observation) Like Brain mets?
MH - 13 Sep 2004 02:18 GMT
> I've always wanted to go to Machu Picchu. I'm glad you got to go. This
> whole
> big fu'd up thing can be a sort of blessing if you use the time to LIVE.
> Curt's been acting weird. (not just my observation) Like Brain mets?

(((((((((Lori)))))))))

So sorry to hear that Curt is acting strangely.  What does the doc say about
his behavior?

MikeH
Danny McCarty - 14 Sep 2004 21:16 GMT
>Subject: Re: Life After SI
>From: "MH" lkgmoiREMOVE@yahoo.com
[quoted text clipped - 12 lines]
>
>MikeH

One of my mets is in the bone on the back of my skull- next to the occipital
lobe.  No visual problems yet ;-}    
Steve Kramer - 13 Sep 2004 03:19 GMT
> I've always wanted to go to Machu Picchu. I'm glad you got to go. This whole
> big fu'd up thing can be a sort of blessing if you use the time to LIVE.
> Curt's been acting weird. (not just my observation) Like Brain mets?

Brain mets are somewhat common, especially if he has mets all over his body.
If his therapy is effective with the PCa in his body, then it should be
effective in reducing the brain mets if he has them.

Please keep us posted.  I know it's difficult, but I think it might help you
to some extent.  And, I know it helps us.
Lorelei - 13 Sep 2004 16:41 GMT
> Brain mets are somewhat common, especially if he has mets all over his body.
> If his therapy is effective with the PCa in his body, then it should be
> effective in reducing the brain mets if he has them.
>
> Please keep us posted.  I know it's difficult, but I think it might help you
> to some extent.  And, I know it helps us.

when he has all his tests done on sept 30. I am going to make sure that they
scan his brain. they never did the first time. His buddy that he golfed with
yesterday said that Curt was acting really weird. that he almost started a
fight with brad?? so unlike him. He doesn't seem to think anything was
unusual in their round (when I asked him how the round of golf went),. I met
them at Spectators after work to watch some VIkings (go vikes!) and Curt
seemed a bit squirrelly to me at the beginning but seemed to calm down after
I was there for a little while.. More will be known soon.
Lori
Steve Kramer - 14 Sep 2004 11:38 GMT
I assume you know that brain damage, pressure or other external factors to
any part of the brain can cause all kinds of conditions or behavior.  I
don't know what they all are, but an example is a man who was violent and
criminal all his life gets hit with a club on his forhead causing brain
damage.  He becomes an outgoing and friendly person the rest of his life.

There was a case in this County where a sheriff's deputy had an auto
accident.  He has severe head injuries and is in a hospital, probably for
life, because of his now suddenly violent tendencies.

Works on short term memory and long term memory too.  There are people who
had injuries that can remember 20 years ago, but can't remember what they
did yesterday.  And every day will forget what they did yesterday.

And, of course, there can be problems with different portions of the body
depending one where the damage or pressure is.

But, if he has brain mets, and the mets get smaller, the brain will usually
go back to working.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum

> > Brain mets are somewhat common, especially if he has mets all over his
> body.
[quoted text clipped - 14 lines]
> I was there for a little while.. More will be known soon.
> Lori
 
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