Guys I have yet another question. I had LRP on Aug 24th. Doing fine
recovering. Urinary control is getting better. Erections are mostly OK.
BUT, Now I have to have radiation. When I got the path report the margins
at the urethra were positive and the gleason went from 3+3 to 9 (don't know
breakdown) so the Docs were not willing to wait for a change in psa but want
to do radiation immediately. Ok, so now the question. From those of you
with experience should I expect backsliding in the urinary control area as a
result of the radiation? I have read the stats on ED from radiation so I
have an idea what to expect there.
Thanks
Bob
diag 6/11/04 t2a gleason 3+3
LRP 8/24/04 T3a gleason 9
planning to be a cancer survivor
Based on my experience, you can expect urinary irritation towards the end of
your treatments and that can be mitigated by lots of walking and lots of
water intake. However, I fully expect that I will have a gradual
degradation of contenence due to radiation. It just seems to make sense
unless the body replenishes the cells as fast as they self-destruct.
However, if my Gleason was a 9, I don't think I'd consider continence in my
decision-making criteria. You need to be absolutely sure there are not
Gleason 9 cells left in your body.

Signature
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum
> Guys I have yet another question. I had LRP on Aug 24th. Doing fine
> recovering. Urinary control is getting better. Erections are mostly OK.
[quoted text clipped - 11 lines]
> LRP 8/24/04 T3a gleason 9
> planning to be a cancer survivor
Danny McCarty - 08 Sep 2004 16:49 GMT
>Subject: Re: post LRP radiation question
>From: "Steve Kramer" skramer@cinci.rr.com
[quoted text clipped - 29 lines]
>> LRP 8/24/04 T3a gleason 9
>> planning to be a cancer survivor
I second that, Bob. A Gleason of 9 means that the two largest percentages of
cells observed were Gleason 5 and Gleason 4, and Gleason 5 is the worst- you
don't want any of those 5s running around in your body.
Guys I have yet another question. I had LRP on Aug 24th. Doing fine
recovering. Urinary control is getting better. Erections are mostly OK.
BUT, Now I have to have radiation. When I got the path report the
margins at the urethra were positive and the gleason went from 3+3 to 9
(don't know breakdown) so the Docs were not willing to wait for a change
in psa but want to do radiation immediately. Ok, so now the question.
From those of you with experience should I expect backsliding in the
urinary control area as a result of the radiation? I have read the stats
on ED from radiation so I have an idea what to expect there.
Thanks
Bob
diag 6/11/04 t2a gleason 3+3
LRP 8/24/04 T3a gleason 9
planning to be a cancer survivor
==============
hi bob - i think that the main point of all of this right now should be
when you said -
"When I got the path report the margins at the urethra were positive and
the gleason went from 3+3 to 9 (don't know breakdown)"
since you don't know the breakdown, here it is in simple form. the
scale goes from 1 to 10 with 10 being the MOST aggressive growing cancer
cells. you have a 9. AND you had positive margins.
the question back to you would be - are you willing to take the chance
about not having radiation and if the prostate cancer were to come back
try to catch it and deal with it at that time or are you wanting to go
ahead - get radiated - and kill it or the kill the chance of it coming
back and suffer from any side effects that radiation may bring. i think
your last statement explains your view - planning to be a cancer
survivor. so, if you are planning on being a survivor, you have to go
with what it takes to save your life and forego the nice things in life
and hope you get them back at the end of the radiation.
it would be nice to keep the erections and the continence after the
ordeal is over, but these are the cards that are on the table with the
stakes as high as they are.
i'm in your corner for undetectable psa's forever.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
Robert Burns - 07 Sep 2004 20:45 GMT
Thanks Guys;
My question was not one of whether to have the radiation. That is a given.
I am 50 yrs old with 9 & 11 yr old son. I'll do whatever I have to do. My
real question was: What should I expect.
I'm being treated at City of Hope in Duarte CA. I think the docs there are
top notch. I go see the rediation oncologist tomorrow. I may get another
opinion but porbably not. City of Hope is as good as it gets from all
reports I have found. EBRT Vs IMRT are questions I'll ask tomorrow.
At a basic level, I was wondering if I should expect to be using these
%&#$**& pads for the next 20 yrs. When I start thinking of how hard my kids
have worked to get out of friggin diapers and now I'm gonna hafta wear
'em... That's when I get depressed. Of course, if that's what it takes to
seem my boys grow up. So be it. I'm still gonna bitch about it some
though.
Thanks again
MH - 08 Sep 2004 00:13 GMT
> Thanks Guys;
> My question was not one of whether to have the radiation. That is a
> given.
> I am 50 yrs old with 9 & 11 yr old son. I'll do whatever I have to do.
> My
> real question was: What should I expect.
When I start thinking of how hard my kids
> have worked to get out of friggin diapers and now I'm gonna hafta wear
> 'em... That's when I get depressed. Of course, if that's what it takes to
> seem my boys grow up. So be it. I'm still gonna bitch about it some
> though.
>
> Thanks again
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Bitch all you want, Bob! Sometimes it helps to just let it out!
We're all in the same boat.. to varying degrees.
IF the incontinence were to be an ongoing problem, what about an artificial
sphincter? I don't know much about these, but understand they *are*
available and can be implanted in serious cases of incontinence. Just one
more thing to ask your doc about!
I wish you all the best!
MikeH
Steve Kramer - 08 Sep 2004 00:53 GMT
Sorry. I'll focus on that question.
I had an RRP in 2000 and EBRT in 2002. I had my first erection in 2003 and
nearly total continence.

Signature
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum
> Thanks Guys;
> My question was not one of whether to have the radiation. That is a given.
[quoted text clipped - 14 lines]
>
> Thanks again