hi folks - i went to the auto auction today and met quite a few people
who had asked me where i've been, what i've been doing, etc.
i told them the truth. i had prostate cancer surgery and i have been
recovering from it.
well, one gentleman, age 61, told me that he knew what he was going to
do. that he had listened to the doctor who had lots of experience in
prostate cancer and he said if you get it, just do nothing about it. he
said it's slow growing and if he lives another 9 years, that's fine with
him.
when i told him how the cancer grows, and how it spreads, he showed
some interest. but when i told him that they got it all and i'm
considered cancer free and a survivor, his mood changed completely.
after a couple more minutes of questioning by him, his parting comment
was that if he gets told he's got prostate cancer, he would be talking a
lot to me.
as he left, i thought to myself, what happened to the doctor who he said
knew a lot about it? i saw two schools of thought. one of just
listening to an authority and thinking that is the way to go, and two,
talking to someone who has had it. and the second school carries a lot
more weight with the person you are talking to. especially, if that
person has a loved one with prostate cancer.
i'm wanting to pass this one as i go out into the community next week to
try to make a difference. if everyone else wants to take the plunge, my
recommendation would be to go the church leader of your choice and talk
to them. see if they will put the facts in their handout. i just want
to save one life at a time, not convert the whole world.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
Ford Lightning - 29 Aug 2003 15:12 GMT
Hi Curtis,
I think that guy will do whatever the flavor of the month is! I just try
to advocate ..... GET TESTED!!! ...... If you want to talk about it, I'm
there,too. But get tested and catch it early, like I did. I don't think that
I can save lives, but sure want to give everyone a chance of having the best
outcome of PCa. I explain the first step is a simple blood test. You can't
imagine how many grown men don't know what a prostate is or that a simple
PSA could be the begining to a journey that we all have been on, here! Keep
up the good work and spread the word! I know that I will!
Lee
> hi folks - i went to the auto auction today and met quite a few people
> who had asked me where i've been, what i've been doing, etc.
[quoted text clipped - 32 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
jk - 29 Aug 2003 15:46 GMT
> hi folks - i went to the auto auction today and met quite a few people
> who had asked me where i've been, what i've been doing, etc.
[quoted text clipped - 32 lines]
>
> knowledge is power - growing old is mandatory - growing wise is optional
Curtis my experience tells me that this guy either didn't hear right,
heard what he wanted to hear, or made his own decision based on several
options. Logic tells me that no doctor would say such a thing.

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JK Sinrod NY
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www.sinrodstudios.com
Coney Island Memories
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c palmer - 29 Aug 2003 19:21 GMT
hi JK - i agree with what you said. he heard what he wanted to hear.
that is why i posted the observation. it was just what was said and the
response to it.
i do know that when i was teaching, i was told that i had to teach the
subject information three times before the student would understand it.
i was also told that you can say one thing out of the subject matter and
they would remember it.
classes for 4 hours long at the college and i could teach all of that
time, but if i told a joke related to the subject matter i was teaching,
all the student heard was a joke and that it wasn't related to the
class. they just said the teacher told a joke.
so, when i run into people like this person yesterday, and i've known
him for about 10 years, it was interesting to know what people think and
how they got to that point.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
Dave Perry - 29 Aug 2003 17:03 GMT
Hi Curtis, it looks like we have a lot of work to do. My wife
received a magazine yesterday from Johns Hopkins entitled "Advanced
Studies in Medicine" (Volume 3, Number 7 - July/August 2003)and I was
interested in a nine page article entitled "Issues in Prostate Cancer:
An Update and Review of Screening and Treatment Options". I was very
disappointed to see that the thrust of the article was directed to
older patients for whom watchful waiting is a viable option with no
mention that watchful waiting is not a viable option for someone in
his 40s. They cite studies that show people live as long without
treatment as with, etc., etc. which is true for patients in their 70s
and 80s but nowhere is there mention that virtually all untreated
younger patients will die of PCa without treatment. One of the few
references to younger men was when they stated "studies" indicate a
cut-off PSA of 2.5 is appropriate for younger men. Unfortunately, the
very next sentence states: "However, the total serum PSA test, when
used alone, is not specific for only prostate cancer ---" which
downplays the whole PSA thing. They did mention the value of PSA
velocity and that it is especially useful with the lower PSA scores.
The article does do a good job of discussing treatment options,
staging, etc., but if I had read this article back in May before my
biopsy I would have used it to reinforce my denial, not run that day
to get the biopsy.
I think we can do quite a bit to help our cause by educating our own
doctors. When I had a PSA of 3.6 at age 58, my doctor told me not to
worry, "as long as it's below 4.0 you're OK" even though I had had a
PSA of 2.8 just a year earlier. In his defense, he did insist I get a
biopsy when my PSA hit 4.9 at a time when I was convinced PSAs were of
no value, nothing but false positives, etc.. Now, after my case, he's
using PSA velocity to screen patients for biopsy, not just PSA. My
wife also works with doctors (some of them personal friends of ours)
who are now, thanks to me, taking lower PSA values a lot more
seriously.
Incidently, the article mentioned above cited the Walsh et al
statistics regarding side effects of surgery where Walsh claims "86%
reported normal sexual function" at 18 months post-surgery where other
physicians report typically about a 50% success rate with both nerve
bundles spared. My urologist told me before my surgery that Walsh
includes in his "successes" patients on Viagra and anyone else who can
get it up by any means whereas other studies do not. Apparently Walsh
would be right down there with the rest of the pack if he excluded his
Viagra patients.
Dave Perry
David S. - 30 Aug 2003 01:45 GMT
My annual physical is usually in January. My doctor went over the PSA
and the false positives in great detail, but always left the decision to do
the test up to me. Well, he convinced me that it was not necessary, and we
always did the DRE, so I never asked for the test. I want to see if he has
changed his tune when I see him next.
When I first started researching the prostate surgery I read that
Hopkins reports something like only 3% of men have long term incontinence,
but Harvard reports 50%. I forget the figure from the American Cancer
Society, but it was closer to the Harvard number. That kind of discrepancy
scares me.
Thank you. Have a great holiday weekend everyone.
David S.
> I think we can do quite a bit to help our cause by educating our own
> doctors. When I had a PSA of 3.6 at age 58, my doctor told me not to
[quoted text clipped - 18 lines]
>
> Dave Perry