Hi folks
I am free of the staples and the catheter since 8/31. I feel great but
have a new challenge to deal with. I am urinating like clock work
every 2-2.5 hours and passing only about 175-200 CC at a time. Stream
is strong. I am essentially dry otherwise.
Is this the experience of other RRP folks and does it get any better
'cause I am loosing a lot of sleep.
David S. - 03 Sep 2004 01:23 GMT
As I recall I got up 2 to 3 times each night at first. That reduced to
2 times fairly fast, and now it averages once per night. Once in awhile I
get a whole night's sleep. In my case I am still incontinent a year after
the RRP. Only 1 to 2 pads per day, but I still leak. I have never leaked
when lying down, even from the start.
Good luck to you. It will get better. It just takes time.
Thank you.
David S.
> Hi folks
> I am free of the staples and the catheter since 8/31. I feel great but
[quoted text clipped - 4 lines]
> Is this the experience of other RRP folks and does it get any better
> 'cause I am loosing a lot of sleep.
Wakeley Purple - 03 Sep 2004 04:28 GMT
> As I recall I got up 2 to 3 times each night at first. That reduced
> to
[quoted text clipped - 5 lines]
> Thank you.
> David S.
That's about the same as me. 9 months post-op. I get up about once/night and
don't use a pad. I go all day at work without anything (I take some just in
case). However, if I know I'm going to have to stand, walk, or run for long
periods I wear one. I've gotten cheap and cut them in half, which works
just fine.
Occasionally I have a bad urge to go and I have to work hard to keep it in,
but so far no accidents away from home. On the other hand, when I'm home
I'm a little lax, and have wet myself just because I'm too lazy to go!

Signature
Wake
PSA 3.8, 11/2003 @58yrs
Biopsy positive 5% in 1 of 10 cores
T1c Gleason 3+3
RRP 1/12/04
Pathology agreed with biopsy + Negative margins
PSA - 4/29/02: <0.1
Mostly Dry - July '04
John Loomis - 03 Sep 2004 01:38 GMT
Drink lots of water.........and or fluids. Challenge the damaged area.
Walk. Don't just walk around the house walk a mile or 2. Serious. That
helps.
Practice kiegels...start and stop the stream.....
No-one wants to do this, and it is not easy. It works....
All experiences from all people differ.
I do know that all problems seem to get better with time.
I suggest to walk, drink lots of fluids, practice kiegels.....stop and start
pee pee
Work on that, and then let us all know your progress.
John Loomis
> Hi folks
> I am free of the staples and the catheter since 8/31. I feel great but
[quoted text clipped - 4 lines]
> Is this the experience of other RRP folks and does it get any better
> 'cause I am loosing a lot of sleep.
kastons - 03 Sep 2004 02:37 GMT
> Hi folks
> I am free of the staples and the catheter since 8/31. I feel great but
[quoted text clipped - 4 lines]
> Is this the experience of other RRP folks and does it get any better
> 'cause I am loosing a lot of sleep.
You've got to give yourself some time to re-stretch your bladder. As the
weeks go on your ability and comfort level will improve. My cath came out
6/28 and I'm only dribbling some - usually towards the end of the day.
Give it time, do kegels and drink the usual amount that you would normally
drink.
Good luck,
Sandy K.
JerryW - 03 Sep 2004 02:37 GMT
Mike, seems I went quite often right after the catheter came out as well. As
the anastamosis heals and the sphincter control becomes more involuntary,
I'll bet the urgency to urinate will lessen in frequency. Mine did pretty
quickly, I recall. But that being said, I am about three and a half months
post RRP, and I still get up about twice a night. This is not really
anything much different for me than before the surgery, so I don't think
that much about it. I quit using pads at all last week sometime. Have not
had any problems (yet).

Signature
JerryW
jweindel at flash dot net
2/11/04 PSA 2.6, Suspicious DRE (age 62)
2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe
5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes
Tumor organ-contained; lymph nodes clear, seminal vesicles clear
Both nerve bundles spared
7/13/04 PSA <0.1
> Hi folks
> I am free of the staples and the catheter since 8/31. I feel great but
[quoted text clipped - 4 lines]
> Is this the experience of other RRP folks and does it get any better
> 'cause I am loosing a lot of sleep.
Chuck McClellan - 03 Sep 2004 11:29 GMT
> Hi folks
> I am free of the staples and the catheter since 8/31. I feel great but
[quoted text clipped - 4 lines]
> Is this the experience of other RRP folks and does it get any better
> 'cause I am loosing a lot of sleep.
Give it some time for the bladder area to get "back on line" and it'll
get better. The bladder has to get used to "holding water" again, the
sphincter will remember how to function and things will calm down. My
problem immediately after removal of the garden hose was I had some
irritation which finally went away. I had just gotten back into once
or twice a night "pee nreaks" when they started me on EBRT and HT.
The radiation caused irritaion all over again and the HT gave me
(gives me)these hellish hot flashesthat wake me up almost every hour
on th ehour, but they are subsiding a bit now. It takes time. It's
also funny how everyone mentions walking and kegels. They're
right...walk...miles. It does help.
Chuck McClellan
ButtercupsDad@dog.net - 03 Sep 2004 18:24 GMT
ditto the walking. My doctor says that it is as good for me as
jogging (mabye better in terms of potential joint damage). In my
opinion there is also a psychological benefit to get out in the air
and see the sights. I never get bored with walking, and look forward
to it on the weekends.
> It's
>also funny how everyone mentions walking and kegels. They're
>right...walk...miles. It does help.
>
>Chuck McClellan
m_spivack - 03 Sep 2004 19:34 GMT
Thanks guys
I always feel better when I hear that it is normal and others have had
the same/similar experiences. I have been charting the frequency and
the time is getting longer between bathroom runs.
I agree that walking helps mind, body and spirit . I am up to 3 miles
per day
Once again, I love this NG
Mike S
Steve Kramer - 04 Sep 2004 18:43 GMT
I just walked in a local annual run/walk. Five miles in 85 minutes! That's
pretty damned fast to be pushing around 300 pounds. I feel great.

Signature
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum
> Thanks guys
> I always feel better when I hear that it is normal and others have had
[quoted text clipped - 7 lines]
>
> Mike S
Alan Meyer - 03 Sep 2004 19:53 GMT
...
> 'cause I am loosing a lot of sleep.
...
Here's a tip for you, if you're not already doing it.
After my radiation treatment I was getting up 5-7
times a night, urinating only 50-100 ml each time.
So I put a urinal right beside the bed. Then when
I felt the urge I got up, urinated, put the cover on
the urinal, and went right back to sleep. I think I
lost less sleep than when I got up, stumbled into
the bathroom, and walked back every time.
Alan