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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2004

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feeling worse :(         (venting)

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Lorelei - 01 Sep 2004 16:45 GMT
things aren't going so great here at the Miller house. Curt is just looking
and feeling worse and worse. Again, the debilitating hot flashes are back.
The doctor's office and the pharmacy have different ideas of what his
Effexor dose is supposed to be. Dr- 37.5 mg bid   Pharm- 75 mg qd. Curt
called the doc's office and talked to a onoc. nurse (not our usual one) and
that's when we found the discrepancy. He started (on his own) taking 75 mb
bid. seems to have helped slightly.

He has put on a lot of weight. I need to get batteries for our scale, but I
can tell. He is up from a 34 waist to 38 waist. (36 are tight). He looks so
pale. He has "man-boobs". and everyone at our Country Club is very worried
because they only see him every week and they think he looks like crap. And
his golf game is going downhill. He was 1 under thru 9 then 5 over on the
back. the guys who golfed with him told me that he just lost his steam. (he
rides a cart) . They noticed the physical changes (he was in the club, we
were on the lanai).
He has his zometa 9/7/04 but isn't scheduled to see that doctor until Oct. I
do believe that he is finally going to get a second opinion with a less busy
doctor in the same cancer center.

He told me 2 days ago that when he was in his 20's and had to take a
pisstest, that he got a letter saying "go see your urologist" what could
they have detected in a urinalysis???? He apologized for that. I told him
that I never would have met him if things hadn't gone exactly the way they
did, and that I would never have gotten so mentally healthy nor would I ever
have been so secure in myself.

He says he won't be working at all this time next year.
Our 4th anniversary is Oct 14. I am throwing a HUGE party for our 5th. at
the Club where we got married, with the people who have been so wonderful.

My basement isn't finished, I have a rotting wall in my shower (why he had
to put a window in the shower, I will never understand) my 2 boys 4,13 share
a bedroom and will until our master is done downstairs. I am about to
solicit help from all our friends pretty soon if he doesn't get back at the
basement. it is framed and wired and plumbing is roughed in. needs bathroom
plumbing and sheetrock, taping and our friend who framed owes us all the
finish work.

He says that his Elk Hunt in Oct is his last time going (I don't know how he
is going to do it anyway. too tired all the time and slogging through the
mountains doesn't seem like a good idea)
Viagra is helpful but he rarely gets a real (boomboom) if you know what I
mean.

just needed to vent that out.  It's been 8 months since diagnosis.

Signature

Lori
Devoted wife of Curtis, Stage 4 Prostate cancer at age 40 diagnosed 12/30/03
also his birthday.
PSA 865    Dec 30,2003
       44     Feb  23,2004
      17.3  Mar 15,2004
      18.9 Apr 16, 2004
      17.3 may 15,2004
      14.59  =)))  July 10, 2004

mets to bone and lymph
Lupron Q3months
Casodex 50 mg daily
Zometa qmonth
http://community.webshots.com/user/lorismiller-date

MH - 02 Sep 2004 02:22 GMT
((((((((((Lori))))))))))

SO sorry things are getting more difficult.  Sometimes I think it just piles
up on us and we feel the weight of it more.  I hope that it's just temporary
and that you'll soon be feeling stronger again... and Curt, as well.  From
the way you describe him, Curt is a real fighter.  I have a feeling you will
have him around for a long while yet!

I'm glad you vented. I hope it helps to know that there are many people here
who care and who know what a difficult thing PCa really is.

Take care.. best wishes!
MikeH

> things aren't going so great here at the Miller house. Curt is just
> looking
[quoted text clipped - 18 lines]
> rides a cart) . They noticed the physical changes (he was in the club, we
> were on the lanai).
CDS in TX - 02 Sep 2004 02:27 GMT
Glad you took the time to vent. I am sure Curt will need a lot of your
strength in the coming months.
--CDS in TX (PCa treated with external radiation Nov 03- Jan 04).

> things aren't going so great here at the Miller house. Curt is just looking
> and feeling worse and worse. Again, the debilitating hot flashes are back.
[quoted text clipped - 59 lines]
> Zometa qmonth
> http://community.webshots.com/user/lorismiller-date
Lorelei - 02 Sep 2004 15:29 GMT
It just keeps getting better :((((
A friend of ours was killed in a motorcycle/deer accident last night. He did
not make it through surgery. My bro was supposed to golf with him tonight
(Tony) and Friday the band was supposed to play at a little roadhouse. My
BIL plays bass in the blues band. Next weekend was the annual Ellestock
blues festival at Tony's house. His wife was released from the hospital. He
never made it through surgery.
I am not trying to start a thread about Motorcycle safety. Just still in
shock.
My brother called me and had me call Curt. My brother and I talked a little
bit how lucky Curt and I are to have this time together, treasuring every
minute that we have, as opposed to Becky losing her husband so quickly. I
can relate a bit to that because my first husband died of Mental illness in
1992 and his dad came here from CA to take Ronnie home. He was buried there,
I know he is gone, but sometimes I think I see him, then I realize it isn't
him. (of course not)

Death just hovers around us all the time. Just waiting for a chance to get
us.

thanks for listening.
Steve Kramer - 04 Sep 2004 02:46 GMT
Continue to vent, Lorelei.  He's still in the fight.  Non illegitimi
carborundum!

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04

> things aren't going so great here at the Miller house. Curt is just looking
> and feeling worse and worse. Again, the debilitating hot flashes are back.
[quoted text clipped - 42 lines]
>
> just needed to vent that out.  It's been 8 months since diagnosis.
Beverley - 04 Sep 2004 05:36 GMT
Vent!!! It feels good and you are going through a whole lot more than most
of us ever will go through!

How about a barn raising? Okay you aren't raising a barn but invite all your
friends over and have big cook-out! All the wives pitch in and help with the
cooking, food etc. They bring chips, macaroni salad, potato salad, homemade
pickles, tossed salads, brownies, cakes, cookies, etc. You supply the
hamburger, chicken, rolls, spare ribs, steaks, whatever, ketchup, mustard,
etc. You do coffee and ice tea, they bring their favorite soft drinks. Put
up a volley ball net or soccer goals in the back yard for the kids. Throw in
a keg for after the work is done! Kegs are not real expensive. It's the
deposit on the keg that tends to scare off some people. The guys bring their
tools, their strength, and their know-how. And you get the basement done in
one day!!! And maybe even the bathroom wall.

(How they do those home make-overs in 7 days??? Don't believe it!! You are
not supposed to paint over sheet rock mud for several days!! I wonder what
those places look like after about 6 months???)

Anyway you fire up the grill, find the boom-box and all the good music. Drag
out those paper lanterns and party afterwards!!! Everybody has fun. Schedule
it for Oct 9th and consider it your anniversary and call it an Anniversary
Barn Raising! What better gift could friends give to you?

Don't worry about the guys that don't know a hammer from a screw driver,
they can hold the sheetrock in place while someone else nails it. And it is
amazing what guys will learn from each other quickly!

I could teach you to mud a wall. If you can ice a cake you can mud
sheetrock! And you won't be tempted to lick your fingers!! LOL

What you need is to have everything right there ready for the "crew". Just
go to Lowe's and tell them what you are doing. And take your measurements!!
They can tell you how much sheetrock you will need, how much greenboard,
blue board if there is a fireplace or furnace, heater area) and how big a
box of sheetrock nails you will need along with how many buckets of
sheetrock mud. And if you have your measurements they can even tell you how
many running feet of wood trim you will need. Buy your doors, etc. Lowe's
will deliver!! Don't forget the outlets and switches.

Paint and outlet covers can be handled later along with floor coverings.
Just remember that black covers need black switches and outlets. LOL

I'm sure it is not helping Curt' self-esteem to see so much that needs doing
and he can't get it done by himself. But in one day - one big blow out party
can be lots of fun! Start in the morning with coffee, and a solid breakfast.
I've got some great recipes for breakfast for a crowd! Keep the coffee and
donuts going and then switch to lunch foods. Then as the afternoon wears on
everyone quits and has a good time.

Since his buddies are fellow golfers you can make party favors/door prizes
with a package of balls, a small gift certificate to the proshop, etc. Pull
the names from a golf hat and the last name gets the hat! Go talk to your
club. If they know Curt's circumstances they'll probably pitch in a few
extra things because it will be their way of helping! Don't forget the
wives!! They'll love drawing names for a variety of fun things, too! The
prizes can be silly and fun but nothing has to be really expensive. Maybe
one really nice guy thing and one really nice gal thing.

Build a bonfire if it is allowed where you live. Everyone loves a bonfire
and make real s'mores. I promise that night will be good for only one
thing - sleeping. But you'll both sleep better knowing so much was done in
such a short time!
Bev

> things aren't going so great here at the Miller house. Curt is just looking
> and feeling worse and worse. Again, the debilitating hot flashes are back.
[quoted text clipped - 42 lines]
>
> just needed to vent that out.  It's been 8 months since diagnosis.
Lorelei - 04 Sep 2004 07:00 GMT
> Vent!!! It feels good and you are going through a whole lot more than most
> of us ever will go through!
[quoted text clipped - 135 lines]
> > Zometa qmonth
> > http://community.webshots.com/user/lorismiller-date

If I could touch you right now, I'd kiss you! I am saving this post for the
morning when I'll be less emotional. What you are saying is perfect and I
KNOW they would do it. Why is the hard part ASKING for help???? I am going
to work the details out in my head (we  still need to buy the materials too)
but I keep thinking that I should *save* the favors for when I really need
them, but maybe I need them all throughout this fuckall deal that we have
been dealt./........new pic of me on my LC webpage. thanks for the
lifelines. You people here keep me sane (such as it is LOL).

Signature

Lori
Devoted wife of Curtis, Stage 4 Prostate cancer at age 40
PSA 865    Dec 30,2003
         44     Feb  23,2004
         17.3  Mar 15,2004
      18.9 Apr 16, 2004
          17.3 may 15,2004
           14.59  =)))  July 10, 2004

mets to bone and lymph
Lupron Q3months
Casodex 50 mg daily
Zometa qmonth
http://community.webshots.com/user/lorismiller

Beverley - 04 Sep 2004 15:50 GMT
Lori
Email me your phone number. I'll fill you in on how to word invitations to
your 4th anniversary barn raising!
Bev
Danny McCarty - 05 Sep 2004 03:38 GMT
>Subject: feeling worse :(         (venting)
>From: "Lorelei" curtandlori@earthlink.net
[quoted text clipped - 47 lines]
>
>just needed to vent that out.  It's been 8 months since diagnosis.

I am very sorry to hear that, Lori.  Curtis has been a constant encouragement
to me , and I thought I was worse off than he.  I just got my cast members
packet for the Nutcracker, my third season- my first was seven months after RPP
surgery.  I am not in much trouble yet.  Best wishes, and tell Curtis I'm
thinking of him.  
Danny
 
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