Hello everyone,
Thanks for the many helpful posts this morning. I finally got to talk to
the doctor. The pathology isn't done yet, our doctor just went down to
hasten the pathologist a bit and looked at some of the pathology in
progress himself (with the pathologist). I verified that the margins are
clear (1mm) according to the doctor - but that the cancer was right up to
the 1mm mark. The capsule was penetrated in that spot. I don't have a
new Glison get - but it sounded like it might go up - I'm still praying it
doesn't. I think I'll just hang onto the good news of clear margins. I
have Protate for Dummies that I'll review tonight (I've read a lot of the
pre-surgery stuff most recently, but it has been a while since I looked at
the post surgery stuff). I'll also pick up the other book recommended.
Allen is home and resting - we just got home a little bit ago. He is in
some pain and the trip home wasn't great - but he seems to be settling in
(can't get comfortable though).
I need to go take care of him - I just wanted to post quickly and say
THANKS to all of you. More tomorrow.
Take care,
Debbie (wife of Allen, 50 years old, 8.4 PSA, 3+4 Glison, was T1C - now
T2C)
c palmer - 21 Aug 2004 07:33 GMT
hi debbie - i think the MOST important part you need to focus on is that
you are talking about something that is first hand experience now. no
hear say. hard core evidence. and again, the key to this is that it
may have been up to the capsule, but look at how many men have had
capsule penetration and still are cancer free after their surgery.
please keep in mind that the tissue separating the prostate from the
next organ is only the thickness of a tissue.
the path report will come back pT2c, what you need to pay attention to
is to see if the reconnective tissue was clear of pca. you already know
the margins are, did the surgeon remove any tissue past the margin?
all in all, i would say you still got a very good prognosis. the hard
part is over and now is the time to get on with the healing and then to
get on with life. you both have a lot to live for.
the pca just goes to show how fragile life is and how fast it can be
taken. we need to cherish the time we have on this earth.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
jimhoney - 21 Aug 2004 13:34 GMT
Debbie,
Forget about the Geason score now. That was a predictor for
diagnostic purposes, and to assist in choosing treatment.
Allen had clear margins, that's the important thing. So you have
every reason to anticipate undetectable PSA in 60 to 90 days, which
would be the clinical definition of cured.
Congratulations on making the right decision, and on your good
outcome.
jimhoney
standard RRP age 52, cured, no significant aftereffects
JerryW - 21 Aug 2004 17:53 GMT
Debbie,
Sounds like overall good news. The Gleason score post op might be rated a
little higher than pre op, but that is no longer an issue. It sounds like
they got it all. Undetectable PSA scores are what we're looking for now.
Your "Prostate for Dummies" may have been a good primer, I don't know, I
never read it. You and Allen are way past primers now though, and I don't
expect either of you is a "Dummy" :) I also suggest you get Dr. Patrick
Walsh's Guide to Surviving Prostate Cancer. It is excellent, in my opinion.
My Urologist recommended it to me before we even had the biopsy results
back. At that time, I also got Dr. Walsh's book: Prostate: A Guide for Men
and the Women Who Love Them for my wife to read. It is a more basic and
general discussion of the prostate.
The first couple of days back, Allen might be a little uncomfortable. He'll
very quickly start feeling better each day. Take care of him, and don't
forget to take care of yourself.

Signature
JerryW
jweindel at flash dot net
> Hello everyone,
>
[quoted text clipped - 21 lines]
> Debbie (wife of Allen, 50 years old, 8.4 PSA, 3+4 Glison, was T1C - now
> T2C)
Beverley - 22 Aug 2004 17:28 GMT
You might be looking at radiation to the prostate bed. I think they tend to
do that about six months after surgery. Often this is done as a safety net
just to make sure there are no renegade cells in the area. With his age,
etc. I'd definitely do a little research on it and then discuss it with the
doctor. You don't have to wait for a rise in PSA.
Bev
> Hello everyone,
>
[quoted text clipped - 21 lines]
> Debbie (wife of Allen, 50 years old, 8.4 PSA, 3+4 Glison, was T1C - now
> T2C)