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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2004USToo
Anyone here attend USToo meetings in your area?? I went to a first meeting last night... and was a bit disappointed. Just wondering if anyone here belongs to a really good organization like that? Take care! MikeH I like the Us Too mtg here -- good speakers, well-attended, effectively led. However, there are other support groups you might try, such as Man to Man, under auspices of American Cancer Society. There's also a group called Malecare Inc. at some hospitals (I'm not personally familiar with this one). You might consider checking individual hospitals in your area or use this website to check in your area: http://www.cancerfacts.com/SupportGroups.asp?CB=14 > Anyone here attend USToo meetings in your area?? > I went to a first meeting last night... and was a bit disappointed. [quoted text clipped - 4 lines] > Take care! > MikeH I belong to a prostate cancer group that is pretty good. It was started by Robert Young. Though, I rarely attend. It's pretty good and it also has meetings on separate nights for wives.  SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 non illegitimi carborundum > Anyone here attend USToo meetings in your area?? > I went to a first meeting last night... and was a bit disappointed. [quoted text clipped - 4 lines] > Take care! > MikeH What area are you from? The group I belong to is GREAT. We meet the 3rd Tuesday of every month at the Las Colinas Medical Center, Irving, TX. There is always a Dr. residing to oversee the program and able to answer any questions that the designated speaker for the month cannot answer. If you get there early, the sponsoring pharmaceutical company provides catered food for the group. I think that probably encourages the numbers. We have different speakers every month that pertain to every aspect that can effect or enhance the PCa patient. All are welcome and spouses included (they are effected by PCa and need support also). If Irving Texas is not too far, Come on Down! MrBill > Anyone here attend USToo meetings in your area?? > I went to a first meeting last night... and was a bit disappointed. [quoted text clipped - 4 lines] > Take care! > MikeH > What area are you from? > If Irving Texas is not too far, Come on Down! > MrBill Thanks, MrBill.... but Irving is quite a distance from Georgia. :)) MikeH Sounds like you've got a great group. Seems that varies from place to place. Some groups are terrific and some just so-so. What is important is the amount of information the group can provide and the amount of support they can give. We are very candid out here (newsgroup) in mixed company, how does that go when you are face to face? You guys just don't see me blush, I'm not sure I could be as forthcoming face to face. Although there are so many guys out here I'd love to meet but then I've known most of them for quite a long while. I can't imagine being so "open" in mixed company. Bev > What area are you from? > The group I belong to is GREAT. We meet the 3rd Tuesday of every [quoted text clipped - 18 lines] > > Take care! > > MikeH > We are very candid out here (newsgroup) in mixed company, how does that go > when you are face to face? You guys just don't see me blush, I'm not sure > I > could be as forthcoming face to face. Although there are so many guys out > here I'd love to meet but then I've known most of them for quite a long > while. I can't imagine being so "open" in mixed company. I certainly think wives should be included. Interesting, tho, that someone mentioned that there is a group that has a separate group *just for wives*.... but there is none mentioned *just for the guys*. Was kinda hoping. MikeH Mike, Our "Man to Man" group meets every third Tuesday. Men only. We discussed groups that have "coed" meetings, but most felt more comfortable discussing some of these issues just among us guys. Interestingly, one of the guys who had attended a mixed support group meeting said most of the men were pretty quiet...not the wives, though! This is not to say we don't all realize that PCa is not just something that happens to us...it happens to our loved ones as well. Fortunately, Bev, "you guys" don't see me blush, either. I've just gotten used to discussing some of these things with my wife...not sure I'm up to discussing them face to face with several other guys' wives. SignatureJerryW jweindel at flash dot net > > We are very candid out here (newsgroup) in mixed company, how does that go > > when you are face to face? You guys just don't see me blush, I'm not sure [quoted text clipped - 9 lines] > > MikeH There doesn't seem to be a Man to Man group in the Augusta area. Just the USToo. Would be nice to have a *guys group* to share and sound off with. Take care! MikeH > Mike, > [quoted text clipped - 14 lines] > of these things with my wife...not sure I'm up to discussing them face to > face with several other guys' wives. Mike, I believe Man to Man is sponsored by the American Cancer Society. Have you tried them for the location of a group near you? SignatureJerryW jweindel at flash dot net > There doesn't seem to be a Man to Man group in the Augusta area. > Just the USToo. [quoted text clipped - 22 lines] > > of these things with my wife...not sure I'm up to discussing them face to > > face with several other guys' wives. Hi, Jerry.... Yes. The closest Man to Man group is in Atlanta. I live in Augusta. The only group here is the USToo group that I attended. But maybe it will be better the next time. MikeH :) > Mike, > > I believe Man to Man is sponsored by the American Cancer Society. Have you > tried them for the location of a group near you? Jerry, I don't think you are alone when it comes to discussing things with your wife. I think the communications between many couples lack. Then something like PC will either force the issue or cause serious problems due to lack of communications. Being able to talk about it is half the battle. Just being able to say "what can I do?" or "how can I make it better?" makes a big difference. But discussing things behind closed bedroom doors or with the cloak of the internet is a whole lot different from being face to face with strangers. Or maybe worse yet, if you live in a small town running into people you know. There is this whole macho thing attached to PC. Men have a self image that they don't think about but rather assume. They don't want anyone, especially the other sex, to think or know that their "manhood" has been compromised in any way. Wondering, too, how many men or women lurk here hoping to find some information that will help them because they cannot bring themselves to discuss any of it? This is a difficult subject for most of us to tackle openly. And if you polled the newsgroup you'd probably find the vast majority of the contributors to be well-educated with good communication skills and we often find it difficult to find the right words. So what happens to the father of four who digs ditches for a living, probably never finished high school, doesn't own a computer, and thinks vas deferens is some fancy French food? What we need is not just a good support system but we need men to get out there and talk to their friends, fellow members of their places of worship, etc. I doubt there is a woman alive who is not aware of breast cancer but how many men know nothing about prostate cancer? We've got to get this subject out of the closet!! But we are right back to the problem that the biggest side effect of treatment is such a taboo subject especially in mixed company. Bev > Mike, > [quoted text clipped - 27 lines] > > > > MikeH |
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