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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2004

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BobS - 20 Aug 2004 01:12 GMT
I came back from the hospital today from the robotic laproscopic
surgery. Preliminary data indicates no spread, but this is obviously
dependent on the prostate biopsy. The operation lasted about 4 hours.
I wernt to sleep quickly and woke up in the recovery room feeling
surprised that it was over. The incisions are not very sore at all! My
main problems are the catheter and the fact that the pelvic drain is
still emitting fluid and thus will remain in until probably the time
thst the catheter is removed (next Thursday).  Both the pelvic drain
and the tip of the catheter are leaking bloody fluid, which makes it
hard to decide what to wear. I am currently wearing an adult pullup,
which takes care of the catheter and my underrshirt is stained.
Hopefully the pelvic drain will stop oozing soon.
My main problem with discomfort is with the catheter. If anyone has
any suggestions I would appreciate them. The hospital toilet seat had
an open front and therefore when the catheter was adjusted to be
comfortable normally, it was also comfortable to sit on the toilet. At
home we have an elongated toilet with a closed seat and the catheter
has to be longer to go over the seat and down to the bag. So far I
have just changed the position of the catheter when I use the toilet,
but this is not really a good solution.
Thanks for all of your good wishes and prayers!!!
BobS
MH - 20 Aug 2004 01:17 GMT
Glad to see that you are back at home, Bob!
The most difficult part is behind you now....

I wish you a speedy recovery!
MikeH :)

> I came back from the hospital today from the robotic laproscopic
> surgery. Preliminary data indicates no spread, but this is obviously
[quoted text clipped - 18 lines]
> Thanks for all of your good wishes and prayers!!!
> BobS
JerryW - 20 Aug 2004 01:35 GMT
Bob, welcome home. Glad to hear everything went well, so far.

Don't know what to tell you about that damned catheter. I just kind of
experimented around trying to accommodate it as best I could. My bigger
problem with it was sleeping in the bed with the big bag hanging off the bed
frame on one side when I wanted to turn and sleep on the other. The tube
wasn't long enough! And I was constantly worrying about inadvertently
pulling it out. Also, I developed some minor irritation from the catheter
that a little bit of polysporin ointment seemed to relieve. Mine was in 14
days. With your robotic lap procedure, I imagine you won't have yours in
that long.

Signature

JerryW

jweindel at flash dot net

> I came back from the hospital today from the robotic laproscopic
> surgery. Preliminary data indicates no spread, but this is obviously
[quoted text clipped - 18 lines]
> Thanks for all of your good wishes and prayers!!!
> BobS
Larry Preuss - 20 Aug 2004 09:13 GMT
> Bob, welcome home. Glad to hear everything went well, so far.
>
[quoted text clipped - 4 lines]
> wasn't long enough! And I was constantly worrying about inadvertently
> pulling it out.

Why not plug it and drain intermittently, as I do, rather than use a bag?
      Larry
JerryW - 20 Aug 2004 19:20 GMT
Never thought about trying that.
Signature

JerryW

jweindel at flash dot net

> > Bob, welcome home. Glad to hear everything went well, so far.
> >
[quoted text clipped - 7 lines]
> Why not plug it and drain intermittently, as I do, rather than use a bag?
>        Larry
JerryW - 21 Aug 2004 00:01 GMT
Larry,

Just a followup question to a physician. As I said, I hadn't even thought
about plugging the foley and collecting urine in the bladder instead of a
bag. As I thought about this, and how much sense it made to do it that way,
I wondered if there was any possibility of compromising the anastamosis by
letting the bladder fill so soon postoperatively, particularly in an
overnight situation. Would the filling bladder create an urgency to urinate
long before actually filling the bladder to the point of stretching it?

Just curious in Texas.
Signature

JerryW

jweindel at flash dot net

> > Bob, welcome home. Glad to hear everything went well, so far.
> >
[quoted text clipped - 7 lines]
> Why not plug it and drain intermittently, as I do, rather than use a bag?
>        Larry
Larry Preuss - 21 Aug 2004 00:16 GMT
> Larry,
>
[quoted text clipped - 7 lines]
>
> Just curious in Texas.

This is a very good thought, Jerry, and I don't know the answer. My
situation is not as above. I have a long-term stricture problem related
to my EBRT, and have self-cathed for two years. A week ago I was unable
to cath: I probably began a false passage. I am wearing an indwelling
for two weeks while the false passage heals, and am using a plug in my
catheter rather than bagging it. There is no bladder consideration in
this circumstance, so it may well be that dependent drainage is
necessary at that stage. In 1988, when I had my TURP, I was on dependent
drainage and did not use a plug.
     Larry
JerryW - 21 Aug 2004 00:34 GMT
Larry,

Thanks for the clarification. I do now remember you talking about being
self-cathed with long term stricture following EBRT. The father of one of my
co-workers had a similar kind of problem with EBRT following RP. Over a
period of about two years, I guess, he developed increasing stricture (from
scarring?) and was self-catheterizing. Earlier this year he had to have a
port put in...is doing OK now.

Signature

JerryW

jweindel at flash dot net

> > Larry,
> >
[quoted text clipped - 18 lines]
> drainage and did not use a plug.
>       Larry
Glenn Enoch - 21 Aug 2004 00:49 GMT
Or giving yourself a bladder infection.

On 8/20/04 4:01 PM, in article
0pvVc.5771$FV3.3188@newssvr17.news.prodigy.com, "JerryW"
<jerryw@seemysig.net> wrote:

> Larry,
>
[quoted text clipped - 7 lines]
>
> Just curious in Texas.
Larry Preuss - 21 Aug 2004 02:37 GMT
> Or giving yourself a bladder infection.

Glenn, the factor mainly responsible for bladder infection is incomplete
emptying: at least that is what I was taught. There should be no more
risk to infection due to intermittent emptying of the bladder via a
plugged indwelling catheter - versus continuous dependent drainage -
than there is in the case of intermittent emptying of the normal bladder
in the normal way in youth and health.
    Larry

> On 8/20/04 4:01 PM, in article
> 0pvVc.5771$FV3.3188@newssvr17.news.prodigy.com, "JerryW"
[quoted text clipped - 11 lines]
> >
> > Just curious in Texas.
David  S. - 20 Aug 2004 03:03 GMT
Bob:
   On the catheter, I bought a velcro strap that was made for the Foley.
It cost four or five dollars.  The velcro was for attaching the strap around
my leg, and it had a setup to hold the tube just above where the connector
was at.  The idea was to secure the Foley so if the tube got caught on
anything it would disconnect at the point where the tubes joined and it
would not pull the catheter out.  With this you could also switch sides as
needed.   I also had some ointment that helped, but make sure it will not
damage the tubing.  There are different types of catheter tubes, and some
can be affected by petroleum based products.
   When I sat on the toilet the Foley leaked badly.  I always had a wad of
toiler paper that I held around the end of my penis to absorb the urine as
it came out.  It did not just drip, but sometimes would spurt out quite a
bit for a foot or more.  That sure surprised me the first time it happened.
   I had the catheter in for three weeks.  I pray you have a more
reasonable doctor who removes the damn thing in a week or at most two.
   Best of luck to you.
   Thank you.
David S.

> I came back from the hospital today from the robotic laproscopic
> surgery. Preliminary data indicates no spread, but this is obviously
[quoted text clipped - 18 lines]
> Thanks for all of your good wishes and prayers!!!
> BobS
pbh1@comcast.net - 20 Aug 2004 03:56 GMT
Retaping to change the catheter position is an option.  Re the velcro, I
told the doctor I wanted to use it, but he said not to because of the
potential danger of blood clots with a strap around the leg.  Don't know
how significant this concern is.  My experience: the catheter was just
plain uncomfortable, but by shifting my legs/body I could move into
positions that were relatively better.

Paul

> Bob:
>     On the catheter, I bought a velcro strap that was made for the Foley.
[quoted text clipped - 39 lines]
> > Thanks for all of your good wishes and prayers!!!
> > BobS
John Loomis - 20 Aug 2004 04:03 GMT
Sounds like you are in good hands.  The discomfort of original surgery, and
catheter will be a slight memory in 3 weeks.
Hang in there, and no one likes the catheter.........
You need to relieve yourself via catheter........get used to it, wash, and
lubricate the point where the tube enters.  Use double antibiotic. salve.
You are going to be just fine!
You made it pat the biggest hump!
John Loomis
> I came back from the hospital today from the robotic laproscopic
> surgery. Preliminary data indicates no spread, but this is obviously
[quoted text clipped - 18 lines]
> Thanks for all of your good wishes and prayers!!!
> BobS
Glenn Enoch - 20 Aug 2004 12:31 GMT
Congratulations on your progress so far.  I agree with previous
posters that a certain amount of bother with the catheter just goes
with the territory.  Remember to rinse your undershirts with cold
water, hot water will set a bloodstain (tip courtesy of my wife).
When you say that there is fluid leaking from the tip of the catheter,
I assume you mean from the tip of your penis.  This happened to me
whenever I had a BM.

I am assuming you got some extra adhesive leg supports for the
catheter tube when you left the hospital -- mine were called
"cathsupport," I think.  I held the connection of the catheter tube to
the bag tube on my leg and stood up, sat down, spread my leg (like I
was sitting on the toilet) before placing the leg support.  This gave
me some assurance of slack in the tube.  However, I don't think it was
ever that comfortable when I was on the toilet seat, so I took the
tube out of the leg support and held it in one hand to make sure it
stayed straight, unkinked and slack.

> I came back from the hospital today from the robotic laproscopic
> surgery. Preliminary data indicates no spread, but this is obviously
[quoted text clipped - 18 lines]
> Thanks for all of your good wishes and prayers!!!
> BobS
Sandy K. - 20 Aug 2004 14:52 GMT
I too used some kind of a bandage on my leg to hold the cath tube in place.
When using the toilet, my natural tendency was to have my penis point down
into the bowl - however, with the cath, it's not necessary.  It was a
strange feeling, but it'll be a memory in short time.

As for sleeping in bed witht eh darn thing - I gave up on that.  I decided
that the reclining chair was my friend - I slept there as long as I had the
cath in.   Also asked my doc to give me something to help me get through the
night - as a restful night's sleep is important for the healing process.

Good luck,
Sandy K.
Al - 20 Aug 2004 21:53 GMT
*I came back from the hospital today from the robotic laproscopic
*surgery. Preliminary data indicates no spread, but this is obviously
*dependent on the prostate biopsy. The operation lasted about 4 hours.
*I wernt to sleep quickly and woke up in the recovery room feeling
*surprised that it was over. The incisions are not very sore at all!

Welcome back! I can't suggest anything about the blasted Foley except
be extra careful. Time will pass quickly and soon you'll be having <.1
PSA checkups.

Al
Please be quiet if replying via email,
flames will be deleted promptly.
I won't even read the whole message...
frankB - 20 Aug 2004 22:19 GMT
Boy, I'm really enjoying all this talk about the Foley, Catheter, straps,
leaking fluids, irritation, etc. Thanks guys, something else for me to think
about!!! Just kidding,  The more prepared I am the better prepared I'll be.
(Make sense??)

Gald everything looks upbeat, Bob. Keep us posted.

Frank B. (RRP 9/2/04)
m_spivack - 01 Sep 2004 22:32 GMT
Frank
You r in my thoughts and prayers> I know you will be fine.  As for the
catheter.  I have had 2 once before the RRP and the one after RRP.  The
before one was agrevating a heck.  Needed pain meds to sleep.  The post
RRP was cath was not irritating at all, just a drag to keep track of.
Someone here painted a picture of his dog on the night bag so that when
he went for walks it was like walking his dog.  I am not as artistic I
just told people I was walking my puppy.

I am sure you have kept yourself busy reading this and other site so I
am confident you are prepared.
Please let us know when you get home and have the energy to post.
 
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