I know what the literature says about Lupron with its many side
effects but until one actually experiences it they are mere words. As
for myself there is a total lack of enthusiasm for anything. Apathy
would be a good word. Getting charged up to exercise is extremely
difficult and I do need to exercise. This apathy seems to come in
waves along with bloating, extreme fatigue and a stiffness in the
joints despite the Celebrex I'm taking. One week will go by and
everything is fine but then suddenly it is almost like I have the flu.
Some people choose to medicate the heck out of themselves for such
symtoms while others like myself choose not to. My question is: has
anyone else experienced these "waves" or periods of time when the
Lupron's side effects are stronger? I admit it could be in my head,
but I was under the impression that the side effects would be more
constant; not so up and down. Oh well, maybe I am ready for the loonie
bin.
Chuck M
Vernon - 17 Aug 2004 12:59 GMT
Hi Chuck
It might just be depression. All of us, that follow this newsgroup and
have PCa, get depressed once in a while. Some of us for prolonged periods
and some for shorter. Some of us might pretend that we don't, but we all
do because of the gravity of our situation, and the total helplessness that
we feel in fighting against this SOB. Coping is something that goes with
where you are, your companions, job demands (or pleasures) and a host of
other things. It might be just as easy to use Prozac from your family
physician. I have TRIED to get away from it all by working, fishing, or
playing Unreal Tournament ;-)
Best wishes.
Vernon
> I know what the literature says about Lupron with its many side
> effects but until one actually experiences it they are mere words. As
[quoted text clipped - 13 lines]
>
> Chuck M
Olfart - 17 Aug 2004 13:10 GMT
> I know what the literature says about Lupron with its many side
> effects but until one actually experiences it they are mere words. As
[quoted text clipped - 13 lines]
>
> Chuck M
Hi Chuck;
You're not alone and definitely not nuts. I'm almost at the end of my 2nd 4
month shot and my symptoms mirror yours. I also had 42 IMRT (last one almost
3 mo ago) The Dr says that the combination of the 2 causes the extreme
fatigue although the Lupron is the main culprit. I'm due for another Lupron
"fix" at the end of this month and am going to try Viadur which is an
implant that lasts a year and gives a much more even distribution of the
drug according to my Uro. If I can get more info when I see him I'll pass it
along. Right now I need to take a nap so I can get up enough energy to tie
my shoes and go out for a few minutes. Hang in there.
George
Age - 69
8/12/02 - PSA 3.7
10/13/03 - PSA 4.69
11/11/03 - PSA 4.8
11/18/03 - Biopsy - 10 cores
one core-25% of core-Gleason 4+4=8
all other cores benign tissue
12/10/03 - Consult - Oncologist MD
12/16/03 - Consult - Radiation Oncologist
Treatment Plan - Northeast Ga Cancer Center
HT - started 12/17/03 - Eulixen & Lupron (2nd 4 mo Lupron-4/26)
2/10/04 - Started - Flowmax and Megastrol
Radiation - IMRT to begin 3/30/04 - 42 treatments - Completed 6/8/04
Alan Meyer - 17 Aug 2004 14:54 GMT
> I know what the literature says about Lupron with its many side
> effects but until one actually experiences it they are mere words. As
[quoted text clipped - 11 lines]
> constant; not so up and down. Oh well, maybe I am ready for the loonie
> bin.
Chuck,
Anybody who has cancer and doesn't get depressed is some
kind of superman. And on top of that, HT is known to cause
mood swings. So what you're going through is definitely not
due to being loonie.
I found the best antidotes to Lupron effects were plenty of rest
and plenty of exercise. Exercise was much, much harder. I was
running four miles in 36 minutes before the cancer. During the
Lupron I had trouble running one mile and couldn't make it in
ten minutes. But I did keep running, and when I couldn't run I
walked.
Exercise has many benefits. It relieves stress. It preserves
your body. It helps you retain the energy capacity you need for
daily life. It helps you to feel good about yourself. I recommend
it.
Alan
Steve Kramer - 19 Aug 2004 01:30 GMT
> I know what the literature says about Lupron with its many side
> effects but until one actually experiences it they are mere words. As
[quoted text clipped - 3 lines]
> waves along with bloating, extreme fatigue and a stiffness in the
> joints despite the Celebrex I'm taking.
As a 1-year user of Lupron, I'd like to answer this, but I just don't care.
Ha! Sorry. Lupron-apathy joke.
I very much understand your description. I walk 3 - 5 times a week 3 - 5
miles a week. I feel great! Better than I have every before. However, if
it weren't for someone pushing me to walk almost every night.... forget it.
You needs a pusher.
Chuck McClellan - 19 Aug 2004 11:31 GMT
> > I know what the literature says about Lupron with its many side
> > effects but until one actually experiences it they are mere words. As
[quoted text clipped - 13 lines]
>
> You needs a pusher.
I liked the joke; it's just about the way it is on Lupron.
At work I get all this walking in as well as doing things in the shop.
Exercise helps for sure but what gets me is despite all the sit-ups,
push-ups, walking and such I still go through these periods of
bloatedness. Michelin Man look out! They come and they go just like
the mood swings. Did I say mood swings? More like blithering
psychosis. Oh well...
Onward and upward with a sense of humor.
Chuck McClellan