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Medical Forum / Diseases and Disorders / Prostate Cancer / September 2004RRP Sept 2, 2004
I got my schedule today and the surgery has been moved up one day to Sept 2nd. Not a big deal. Get it over with that much sooner. I have to make appts. to donate 2 units of blood to have on hand "just in case". Then on Aug 27th I go for the Pre-Op blood work, clearance from my Primary on the 31st and away we go! I'm stocking up on items from Joe's "post op shopping list". Very helpful. I went out tonite to get a pair of those pants he recommends, with snaps or zipper up the side and I couldn't find any. I tried WAL MART and Dicks sporting goods with no luck. I'll keep looking. By the way, my surgeon has me scheduled for a cystoscopy prior to the RRP. When he told me I didn't think anything of it. He said he wanted to be sure there were no surprizes. I'm not looking forward to it. But I don't remember anyone in the group mentioning this. Is this unusual? Just wondering. Lots of luck , Mike S. In a few days your anxieties will be over. We're in the same boat, you and I, and I tell myself that although I'm not looking forward to it I know it's for the best and if all these other guys can get through it, so can I,(WE). So hang tough!! I'll be waiting to hear the good news from you. Sincerely, Frank Bartolomeo > I got my schedule today and the surgery has been moved up one day to Sept > 2nd. Not a big deal. Get it over with that much sooner. I have to make [quoted text clipped - 17 lines] > > Sincerely, Frank Bartolomeo I had no cystoscopy here Frank. dunno what that's about, but every case is different I guess. Good luck with your surgery. It was two years ago this coming Dec 2 for me and all's well. Dale J.  SignatureEmail: dalej2@mac.com Hi Frank, Allen had a "pre-op" cystoscopy too (just yesterday as a matter of fact). Fortunately, we didn't realize that was part of the pre-op appointment, so he didn't worry about it in advance. He had one once before (a long time ago) and this one wasn't nearly as bad - relatively painless except for one part. You know, the part where they warn you that this is gonna hurt! Fortunately, it was very brief. No pain afterwards either - which was also different from the previous experience. Our surgeon said much the same thing - about no surprises. He checked the bladder for tumors and we were pleased to find out that there were none. That was the "good news" that I posted yesterday. He could also see the prostate - and confirmed that it was slightly enlarged and inflamed - no doubt from the tumor within. But no visible tumor on the outside - another piece of good news. So, I hope that yours turns out as well. It is a relief to get non-cancerous results at this point. Good luck!!! Debbie > I got my schedule today and the surgery has been moved up one day to Sept > 2nd. Not a big deal. Get it over with that much sooner. I have to make > appts. to donate 2 units of blood to have on hand "just in case". Then on > Aug 27th I go for the Pre-Op blood work, clearance from my Primary on It's a million times easier than you'd ever think it will be. Before you know it, it'll be like a bad dream. Good luck! SignatureJK Sinrod Sinrod Stained Glass Studios www.sinrodstudios.com Coney Island Memories www.sinrodstudios.com/coneymemories > I got my schedule today and the surgery has been moved up one day to Sept > 2nd. Not a big deal. Get it over with that much sooner. I have to make [quoted text clipped - 9 lines] > there were no surprizes. I'm not looking forward to it. But I don't remember > anyone in the group mentioning this. Is this unusual? Just wondering. I think it is usual. My surgeon happened to mention it, but just in passing. He said that occasionally they find something in the bladder requiring attention, but it just puts the surgery off for a day. He did it after I was put under and then just continued with the surgery, so if he hadn't mentioned it, I wouldn't have even known about it. But some surgeons prefer to do it as a separate procedure. I wouldn't be concerned about it. > Lots of luck , Mike S. In a few days your anxieties will be over. We're in > the same boat, you and I, and I tell myself that although I'm not looking [quoted text clipped - 3 lines] > > Sincerely, Frank Bartolomeo I had no pre-op cystoscopy. SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 non illegitimi carborundum > I got my schedule today and the surgery has been moved up one day to Sept > 2nd. Not a big deal. Get it over with that much sooner. I have to make [quoted text clipped - 17 lines] > > Sincerely, Frank Bartolomeo Me neither. SignatureJerryW jweindel at flash dot net > I had no pre-op cystoscopy. > [quoted text clipped - 22 lines] > > > > Sincerely, Frank Bartolomeo I guess I'm just lucky. Funny, I dred the cysto almost(maybe as much) as the RRP.! Here's another thing. I haven't heard anyone mention the effects of an enlarged prostate. The last few months have been a real pain. Up 2 or 3 times a nite and when i try to go it seems like it takes me forever to finish. I'm getting pretty good peeing half asleep. I can tell by the sound when I'm missing the target!! (Don' t worry Bev, I do the cleaning so don't go feeling sorry for my wife and I DO lift the seat!!) During the day I don't seem to have to go any more often than usual and when I do there's no problem. A good strong stream. To be honest, I know that the RRP will take care of the Cancer but I'm more interested in being able to pee normally. (I know a bunch of you are laughing now. You're thinking,"Just wait, buddy. You're in for a whole new set of problems!" ) But that's where my mind is now. It takes some of the anxiety away. Looking forward to hearing from Mike S. He was scheduled for today. Looking for good news there!! Keep in touch. Frank B. I had an enlarged prostate before my surgery, and it got to be a real drag, especially since I am relatively young, and I knew it wasn't going to get better on its own. I also had radar or sonar or whatever sixth sense enables you to find the toilet at 3AM. Peeing with the prostate gone is quite an experience. It's like pouring a glass of water into the toilet. I haven't urinated this freely in many years! I still have to get up a couple of times during the night, but it may be that my bladder hasn't completely stretched out (the nurse said it would have shrunk while the catheter was in place). I agree with you -- you might as well focus on the positive side effects and let the negative ones take care of themselves. Age 46 PSA: 1.4 (12/00), 2.0 (7/02), 10.3 (3/2/04), 6.0 (retest 3/18/04) Biopsy 4/5/04 cancer in 10% of one core Gleason 6 (3+3); clinical stage T1c Bone Scan negative; pre-surgery PSA 2.8 RRP 7/27/2004 Pathological stage T2a, Gleason 6 (3+3) > I guess I'm just lucky. Funny, I dred the cysto almost(maybe as much) as the > RRP.! [quoted text clipped - 18 lines] > > Frank B. You could try sitting then you don't have to worry about steering when you are half asleep. Nobody has to know. Bev > I guess I'm just lucky. Funny, I dred the cysto almost(maybe as much) as the > RRP.! [quoted text clipped - 18 lines] > > Frank B. Makes for a better day for the clean up crew too. Tom > You could try sitting then you don't have to worry about steering when you > are half asleep. Nobody has to know. [quoted text clipped - 28 lines] > > > > Frank B. I can pee sitting down, I can feel it and see it but when I lean over to flush I have to go more and then I pee as much again and with the lower pressure it is difficult to keep it centered, My dear wife is less than happy with this situation but when I suggested I do it in the bathtub she said that I could but it would only happen once and left it at that. Lewis Hender I have a deck and woods behind that. Problem solved. SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 non illegitimi carborundum > I can pee sitting down, I can feel it and see it but when I lean over to > flush I have to go more and then I pee as much again and with the lower > pressure it is difficult to keep it centered, My dear wife is less than > happy with this situation but when I suggested I do it in the bathtub > she said that I could but it would only happen once and left it at that. > Lewis Hender Hi Frank B This is Mike S. It was a piece of cake so far. Well maybe a stail, hard piece of cake. No complication thus far. Way way easier than I expected (that said with 2 weeks of hind sight). Make sure to ask for a huggie pillow and if they give you PCA Morphine use it. Keep a sence of humor It will help when they ask you to A) get out of bed and B) walk the skinny lady down the hall. The staples come out today as well as the "fire hose" and I get the pathology report. You will be fine, you have my thought and prayers. Keep in touch Mike S Mike, Today it happened. I pray for your comfort and recovery. Mine was 12/15/2003 and ED is the only thing left that has not healed yet. Other than that, I would call myself 100%. Todays medicine they will have you walking tomorrow and playing golf in 2 weeks. It may be cancer and just the mention of the "C" word you think doom and gloom, but if I was to get cancer, I would hope for PCa. It is slow growing and one of the most cureable. Chin up, you have a whole troop cheering for you. MrBill age at diagnosis 48 PSA 1.4 Gleason 3+3=6 T2a robotic RRP 12/15/03 PSA 4/2/04, 7/8/04 = <.1 age 49 > Hi Frank B > This is Mike S. It was a piece of cake so far. Well maybe a stail, [quoted text clipped - 9 lines] > You will be fine, you have my thought and prayers. Keep in touch > Mike S Hi Gang, Well the time is almost here and I think I'll just cancel the whole thing!! (Just kidding) But the thing is I feel great now. .If I was suffering pain from some serious problem and I knew that surgery would relieve it I'd be looking forward to it. But all I can think is I feel great now and I'm electing to feel like S##T In a few days. That's the problem with this, You really have to keep reminding yourself that you're sick and something has to be done. Oh well .. that's my thoughts for the day. I can't thank you all enough for the help you've given me. I'm more prepared than I ever could be thanks to you. I'll try to get back to you all as soon as I can. Till then ......... GERONIMO Frank > I got my schedule today and the surgery has been moved up one day to Sept > 2nd. Not a big deal. Get it over with that much sooner. I have to make [quoted text clipped - 17 lines] > > Sincerely, Frank Bartolomeo Frank, Good luck. Just keep your eye on the prize! SignatureJerryW jweindel at flash dot net 2/11/04 PSA 2.6, Suspicious DRE (age 62) 2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe 5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes Tumor organ-contained; lymph nodes clear, seminal vesicles clear Both nerve bundles spared 7/13/04 PSA <0.1 > Hi Gang, > [quoted text clipped - 37 lines] > > > > Sincerely, Frank Bartolomeo Hi, Frank..... Good luck with the surgery. Soon the most difficult part will be behind you... and you'll get on with living the rest of your life! May it be a long one! Take care! MikeH > Hi Gang, > [quoted text clipped - 16 lines] > > GERONIMO <snip> Best wishes! Hope your recovery is uneventful. Al Please be quiet if replying via email, flames will be deleted promptly. I won't even read the whole message... Concur!!!! After 3 years of operation, radiation and hormones, I have still yet to experience my first symptom of prostate cancer. SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 non illegitimi carborundum > Hi Gang, > [quoted text clipped - 37 lines] > > > > Sincerely, Frank Bartolomeo Hey guy's Finally made it back to you. First of all, everything went (I'd have to say) great. With all the info you all gave me there were absolutely no surprises. RRP was right on time , 12:30 Thursday and I was out of recovery and in my room by 7:00 PM. Pain didn't set in until after the effects of the anesthesia fully wore off. After that I could handle it with the Lortabs. I was discharged Sunday with minimal pain. I'd really have to say the whole thing was not bad at all. Now I have to tell you the kicker! Wednesday night, the night before my surgery, I had to call 911 to get my wife to the hospital!! You might recall she is undergoing Chemo for colon cancer. She was suffering from severe abdominal pain. I spent the night with her in the emergency room and when she was finally admitted, I went home- took a shower- managed to get an hour sleep and went back to the hospital for my surgery. Talk about going crazy. I really thought about postponing my surgery but we both would be in the same hospital and I had no idea at the time the seriousness of her situation, my daughters thought it would be foolish to cancel. It sure made their life's more interesting. Well, I'm home and she's still in. She's on the 6th floor and I was on the 8th. I was able to go down to see her while I was in. There's some kind of blockage the MDs are trying to take care of without surgery. She is not a candidate for surgery. Got some good news tonight. My daughter called and said my wife had a BM which is what the MDs were hoping for. Hoping for the best. And here I am Home Alone !! My kids are really strung out between the two of us but her situation needs a lot more care than mine. As long as I don't overdo it I'm ok. Any how, that's my tale of woe. But you know what??? Things could be a lot worse.!!!! I'll be back with more soon. Thanks again all. Sincerely' Frank B > Hi Gang, > [quoted text clipped - 37 lines] > > > > Sincerely, Frank Bartolomeo FrankB I am so glad it went as expected. Now expect it to get beter and beter every day. This healing thing is remarkable. I am not sure I would have been able to handle a situation like yours, as I am so hi maintence when I dont feel well that I need the suport of my wife. I shall now turn my thoughts and prayers to your wife and hope for the best for her. Thanks for letting us know that you r ok and home. OK>>>WHO's NEXT!!! %^) Mike S Welcome back, Frank. Glad to hear everything turned out OK with you, so far, but sorry to hear about your wife. Keep us posted on both fronts. We're pulling for a speedy recovery for both of you. SignatureJerryW jweindel at flash dot net 2/11/04 PSA 2.6, Suspicious DRE (age 62) 2/23/04 Biopsy: Gleason 3+4=7, T2a, left lobe 5/18/04 RRP, Path: Gleason 4+3=7, T2c, both lobes Tumor organ-contained; lymph nodes clear, seminal vesicles clear Both nerve bundles spared 7/13/04 PSA <0.1 > Hey guy's > [quoted text clipped - 87 lines] > > > > > > Sincerely, Frank Bartolomeo |
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