hallo everybody in this NG!!
56 yrs, Italian, I underwent NSRRP Dec 2002, negative margins but blader
neck wit focal capsule infiltration.
threemothly ECO images so far negative, free PSA0.13 ngwith total PSA = 0
until May 2004.
In May total PSA rose to 1.1 ng with free PSA =0, in July2004 tot PSA was
2.7 ng and freePSA =0.
My uro is on holydays until Sept. (whow!!) aand I am worrying a lot....
relpy mails to the NG with comments/advises and personal case-histories are
welcome.
Thanks and best wishes to all
Raul
Beverley - 10 Aug 2004 13:32 GMT
Quite simply you have now bought yourself some external beam radiation
(EBRT). They will radiate the prostate bed area along with bladder neck.
This is usually very effective in killing off whatever cancer cells remain.
You will probably have something like 5 weeks of radiation treatments. They
also might give you some Lupron to starve any additional PC cells floating
around.
My husband had his EBRT every morning before he went to work. It's not
painful it is just inconvenient to squeeze one more thing into his busy
schedule. Since he was one of the first patients in the morning he'd just
walk through the door and they would take him right back to the room. He'd
drop his pants and they would zap him. The whole process took less than 15
minutes. He did this Monday through Friday for 5 weeks. Then left for work
and worked a full day after each treatment.
Towards the end he was getting tired, a normal side-effect. He'd go to bed a
little earlier at night and never missed a chance for a nap on Saturday or
Sunday. The other side effect that happened was after the EBRT was finished.
He lost his pubic hair giving him what I called his new youthful appearance.
The hair grew right back.
Maybe you can speed things up by contacting a radiation-oncologist? Or would
a member of your doctor's staff do that for you? As you already know often
the hardest part is the waiting for treatment to begin.
Bev
> hallo everybody in this NG!!
> 56 yrs, Italian, I underwent NSRRP Dec 2002, negative margins but blader
[quoted text clipped - 8 lines]
> Thanks and best wishes to all
> Raul
raul f. t. - 10 Aug 2004 21:54 GMT
Thanks a lot for the prompt reply.
I apologize for a missprint in the first mail. As a matter of fact, I
was to concentrate to put it down in English with the result of giving
false PSA value.
The PSA actual PSA values are total 0,11 instead of 1.1 and 0.27
instead of 2.7.
This, of course makes the scenario sligthly better , but my feeling is
that EBRT is anyway required. I wish I can skip Lupron
I will get in touch with a spec. radiotherapist as soo as possible for
an appointment.
> Quite simply you have now bought yourself some external beam radiation
> (EBRT). They will radiate the prostate bed area along with bladder neck.
[quoted text clipped - 35 lines]
> > Thanks and best wishes to all
> > Raul
Eduardo Bronstein - 11 Aug 2004 01:24 GMT
| This, of course makes the scenario sligthly better , but my feeling is
| that EBRT is anyway required. I wish I can skip Lupron
| I will get in touch with a spec. radiotherapist as soo as possible for
| an appointment.
Hi Raul,
I suggest you read this article:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt«stract
&list_uids22789
Regards.
Eduardo
raul f. t. - 10 Aug 2004 21:56 GMT
thanks for this prompt reply.
I apologize for a missprint in the first mail. As a matter of fact, I
was to concentrate to put it down in English with the result of giving
false PSA value.
The PSA actual PSA values are total 0,11 instead of 1.1 and 0.27
instead of 2.7.
This, of course makes the scenario sligthly better , but my feeling is
that EBRT is anyway required. I wish I can skip Lupron
I will get in touch with a spec. radiotherapist as soo as possible for
an appointment
> Quite simply you have now bought yourself some external beam radiation
> (EBRT). They will radiate the prostate bed area along with bladder neck.
[quoted text clipped - 35 lines]
> > Thanks and best wishes to all
> > Raul
ron - 10 Aug 2004 18:59 GMT
> hallo everybody in this NG!!
> 56 yrs, Italian, I underwent NSRRP Dec 2002, negative margins but blader
[quoted text clipped - 8 lines]
> Thanks and best wishes to all
> Raul
Hi Raul...The question that you and your doctors need to answer is
whether your PCa is systemic or not. The answer to that question will
define the treatment path that you will follow. Your pre-surgical
stats (GS, PSA and TNM staging) along with blood tests like PAP, CGA,
CEA and NSE will help you answer the local / systemic question. It
would probably be a good idea to bring an oncologist who specializes
in PCa on board to help with the decision making process...Best wishes
and good luck, Ron
ron - 11 Aug 2004 01:30 GMT
Raul...In the above post, I misspoke when I said, "Your pre-surgical
stats (GS, PSA and TNM staging) along with..." I should have said,
"Your pre- (PSA) and post-surgical (GS, TNM staging) stats along
with..." ...Ron
> Hi Raul...The question that you and your doctors need to answer is
> whether your PCa is systemic or not. The answer to that question will
[quoted text clipped - 4 lines]
> in PCa on board to help with the decision making process...Best wishes
> and good luck, Ron
c palmer - 10 Aug 2004 21:59 GMT
hi raul - sorry to hear the rise in the psa. unfortunately, psa is made
by prostate cells, so that indicates something is going on.
as far as cases like this. i know of one. where the resection tissue
of the urethra had some pca on it. it took five years, but his psa is
starting to climb. his doctor told him that in all the times that he
has done this procedure with marginal tissue, his, was the first one
that went ahead and developed into more pca. he is scheduled for
radiation treatments of the prostate bed in september. the doctor was
very optimistic and that is what i'll pass on to you.
this event you have may be a setback, but you still have some good solid
proven treatments to kill the pca. the waiting game is the hardest
part.
~ curtis
knowledge is power - growing old is mandatory - growing wise is optional
"Many more men die with prostate cancer than of it. Growing old is
invariably fatal. Prostate cancer is only sometimes so."
Steve Kramer - 11 Aug 2004 02:28 GMT
PC,
You may have recurrnet PCa. I'd go so far and say you likely have recurrent
PCa. However, so did I and so did many others in this NG. Your doc will
probably want to radiate your prostate bed and bladder neck. If this
doesn't work, in a year or so, he will want you on hormone treatment. When
that fails, they'll go with chemo therapy. By then, there is a real chance
that a cure will be developed.

Signature
Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA .1 .1 .1 .27 .37 .75
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum
> hallo everybody in this NG!!
> 56 yrs, Italian, I underwent NSRRP Dec 2002, negative margins but blader
[quoted text clipped - 8 lines]
> Thanks and best wishes to all
> Raul
Alan Meyer - 11 Aug 2004 06:33 GMT
Ciao Raul,
Do not be too concerned about hormone therapy.
It is unpleasant but not very bad. Unless you take
hormones for a very long time, more than one year,
there should be little or no long term effect. Many
people take it for several years and still have no
long term after effects.
There is increasing evidence that hormone therapy
makes radiation more effective. Even if you just
take the hormone therapy for a few months, it may
add measurably to your chance for a cure.
Buona fortuna,
Alan
raul f. t. - 11 Aug 2004 22:40 GMT
Thanks for the comments/replies you sent me.
I've got an appointment tomorrow afternoon with a spec. oncologist: I
will see what he will advise.
thanks to your posts I'm more confident and ready to... this new
challange.
we shall overcome.
Bye,
raul
> Ciao Raul,
>
[quoted text clipped - 13 lines]
>
> Alan
Danny McCarty - 12 Aug 2004 04:59 GMT
>Subject: psa rise after NS-RRP
>From: "PC casa" toneatti.coletti@tin.it
[quoted text clipped - 13 lines]
>Thanks and best wishes to all
>Raul
March (April) May (June) July ? If it is 5 when your doc gets back, that is a
doubling time of two months. You will probably get a course of radiation. My
first PSA after surgery was 12, so you are doing better than I.