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Medical Forum / Diseases and Disorders / Prostate Cancer / July 2004

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Preparing for the big day

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FRANCIS BARTOLOMEO - 24 Jul 2004 01:45 GMT
There's a lot of firsts going on for me right now. I've never posted to a
newsgroup before and I've never had any surgery before.(Other than an
appendectomy about thirty years ago!) I haven't posted before but I've been
listening in on you guys quite a bit since my PSA and Biopsies showed me
that I'd better prepare. After having the Biopsy  found Positive by 2 out of
3 Pathology labs (positive at Johns Hopkins and AFIS) I made the decision to
have an RP. I'm 65 and in pretty good health. Still working at a pretty
strenuous job (Letter Carrier-USPS) with no problems. I've gotten a lot of
good advice and advance warning of whats to com from all of you. Its really
been helpful.

Here's the thing. My surgery hasn't been scheduled yet. I'm quessing the 1st
or 2nd week in Sept.. I'll be donating my own blood, so that has to be done.
Do any of you have any suggestions as to what I can/should do in the
meantime to get my body ready for this trauma? Is there a good diet I should
follow? How about Vitamins or other supplements? Are there any magic potions
that will help with the recovery and healing? Just asking!!

I'm really nervous about this. Thanks for any help.
Beverley - 24 Jul 2004 03:02 GMT
Well, if your route is a walking route you are probably way ahead! Start
doing your Kegels now! (Do you know what a Kegel is?) Eat right! I won't get
into the vitamins but a once-a-day multivitamin is an excellent idea for
anyone. A little extra Vit E shouldn't hurt either. Stay away from
snotty-nosed kids prior to surgery - you can't go into surgery if you're
sick! And if you are on an aspirin a day regime you might want to check with
the doctor and discontinue that 2 weeks prior to your surgery. The healthier
you are the better you will do with any surgery.
Bev

> There's a lot of firsts going on for me right now. I've never posted to a
> newsgroup before and I've never had any surgery before.(Other than an
[quoted text clipped - 15 lines]
>
> I'm really nervous about this. Thanks for any help.
MH - 24 Jul 2004 03:12 GMT
> Well, if your route is a walking route you are probably way ahead! Start
> doing your Kegels now! (Do you know what a Kegel is?) Eat right! I won't get
[quoted text clipped - 4 lines]
> the doctor and discontinue that 2 weeks prior to your surgery. The healthier
> you are the better you will do with any surgery.

I was taking Vitamin E daily, as well as aspirin, but had to stop the
Vitamin E about 10 days before surgery, too.  It seems that both act as an
anticoagulant.

Otherwise, exercise is what most of us would recommend, I believe...
especially walking.  As Bev said, if you are a walking mail carrier, you are
already in good shape!  I spent the six weeks before my surgery
walking/running... and working out in the gym just a bit.  I had never had
any surgery of any kind at age 51, but all went well.

Look at Joe Shaw's list of post op paraphernalia... and be sure to get the
pants that snap on the side.  You will find them SO helpful after surgery.
You can find them at Target or Walmart.... or if you want more expensive, at
most sporting goods stores.  They are great to have when you are dealing
with the catheter!  They were some of the best advice I got.

Make some memories ..... you didn't mention if you are married.  But whether
alone or with a partner, enjoy your erections and your sexual energy.

By the time the day of surgery came around, I was completely calm.  I knew
that I was in good hands..... and just let things happen as they needed to.
We'll be rooting for you..... be sure to keep us posted!!

MikeH
Wakeley Purple - 24 Jul 2004 04:26 GMT
...
> I'm really nervous about this. Thanks for any help.

Chiming in about the excercise: Staying in good shape sure helped me. You'll
have some bad days right after surgery while the catheter is in. After the
tube comes out you should start to feel better quickly. I started back
running easily a few weeks post-op, and ran a personal best 13.1 mile race
about 3 months later.

Best wishes for a quick recovery.

Signature

Wake

PSA 3.8, 11/2003 @58yrs
Biopsy positive 5% in 1 of 10 cores
T1c Gleason 3+3
RRP 1/12/04
Pathology agreed with biopsy + Negative margins
PSA - 4/29/02: <0.1

Leonard Evens - 24 Jul 2004 15:17 GMT
> There's a lot of firsts going on for me right now. I've never posted to a
> newsgroup before and I've never had any surgery before.(Other than an
[quoted text clipped - 13 lines]
> follow? How about Vitamins or other supplements? Are there any magic potions
> that will help with the recovery and healing? Just asking!!

Your doctor will certainly give you the usual warnings, such as no
aspirin or other NSAIDs for some time before surgery.  Walking or other
physical exericise, within reason, beyond your usual routine, could
help.   Vitamin E and Selenium are currently being tested as ways to
prevent prostate cancer, and they might conceivably help avoid
recurrence.   But they probably won't do much good within a month or so
of surgery.  Also,  Vitamin E is one of the things surgeons want you to
stop for a period before surgery.

You might "make hay while the sun shines" in the lovemaking department,
because it will be a while after surgery before that is possible.  It
might also help take your mind off the upcoming surgery.

> I'm really nervous about this. Thanks for any help.

It is natural that you should be nervous, but try to relax.   The
surgery itself will be something of a non-event.  The danger of your not
surviving the surgery is so small, it is not worth even thinking about.
 You will wake up, be unfcomfortable for a few days and then begin the
recovery.   After the catheter comes out you should progress relatively
quickly.   There will be the post surgical pathology report to worry
about and then further down the line the first post surgical PSA.  And
then there is the matter of waiting for the various side effects to
resolve.   It may be up to a year or more before evertyhting gets
resolved.   So put your mind to something else and let the doctors do
the worrying.

Good luck.
kastons - 24 Jul 2004 17:21 GMT
My advice is to to your best to not get too stressed out over the up comping
event.  Keep fit by walking and eating healthy.  Forget about it as best you
can.  Enjoy an active sex life.  Everyone tells me I had a great attitude
both going into the surgery and coming out of it.  Even though you're going
to have a physical experience, a positive mental state will help you get
through it.

Good luck to you,
Sandy K.
Steve Kramer - 25 Jul 2004 17:23 GMT
First, Francis, don't be nervous.  Quite honestly, the operation is the
easiest part of the whole process, and definitely easier on you than your
family.

Second, take Iron until you've donated all the blood you're going to donate.

Third, walk.  I know you say you're a letter carrier.  If you are still one
that actually walks his route, then you have it.  If not, walk.  I was doing
two 17-minute miles each day before surgery and immediately after losing the
catheter.  When my doc walked into the room I was in at his office, he said,
"excuse me" and almost walked out.  He didn't recognize me because I was in
much better shape than he figured.  So walk!

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum

> There's a lot of firsts going on for me right now. I've never posted to a
> newsgroup before and I've never had any surgery before.(Other than an
[quoted text clipped - 15 lines]
>
> I'm really nervous about this. Thanks for any help.
frankB - 26 Jul 2004 00:33 GMT
Thanks to all of you for your advise and encouragement! It's much
appreciated.
As of now I'm still carrying mail and yes it is awalking route..in an old
part of the city with plenty of steps. It's a great job when the weather's
good. The best part is I'm on my own most of the day. Your mind does look
for things to occupy it and once I counted the steps I go up and down each
day! Believe it or not I counted over 1700 steps!!
Any how, I was hoping that would be to my benefit.

By the way, have any of you heard anything about laproscopic prostate
surgery? My brother said he heard about it but didn't know any details.

Also... a little more background on me. My wife and I live alone but we have
a son and two daughters who live close by. Another son lives in W.VA. My
wife is into chemotherapy for colon and bladder cancer. It's really wiping
her out and I'm really concerned about how my surgery and convalescence is
going to be handled. One daughter is an RN and she is wearing herself to a
frazzle seeing to my wifes needs and mine. She insists on going to every
doctors appt., test and whatever with us. She honestly feels we're not
capable of understanding the doctors orders etc. All my kids will do all
they can and more but I feel terrible that they have to give up so much time
to themselves an their families.
I will speak to my doctor about how much in home care my wife and I can get
if we need it, but it would help to hear if any of you have the same
situation.

Thanks again. You all are a big help!!
> First, Francis, don't be nervous.  Quite honestly, the operation is the
> easiest part of the whole process, and definitely easier on you than your
[quoted text clipped - 36 lines]
> >
> > I'm really nervous about this. Thanks for any help.
MH - 26 Jul 2004 01:30 GMT
> By the way, have any of you heard anything about laproscopic prostate
> surgery? My brother said he heard about it but didn't know any details.

Hi, Frank...

First of all, I'm sorry to hear about your wife's illness.  I'm sure this
must be really a lot to deal with right now.  There's no *good* time to have
surgery, but it just complicates your life (and hers and the kids) a bit
more.  As most have told you, however, the surgery is really much easier
than you can imagine it to be.  And the fact that you walk everyday is a
real PLUS!!

I had a Laparoscopic Radical Prostatectomy in November of 2002.  All went
very well.  My surgery was done in Atlanta.  I researched all the different
options, and since I had never had surgery before, and because the surgeon
had done many of these surgeries and seemed to be a really great guy, I
chose that option.  But many of my friends here in this group chose the
traditional Retropubic Radical Prostatectomy, and they have done just as
well.  Some people elect to have radiation.... others use seeds.... others
choose seeds + radiation.  The point is that there are several *good*
procedures out there, and you just need to find the one you feel most
comfortable with.  There are pros and cons to each, I suppose.

If you want a good site for info on the LRP, go to www.krongrad-urology.com
.  I read a lot of the stories there on that site when I was looking into
the surgery.  There is also a site where you can actually *watch* the video
of the surgery being performed.  If you think you would want to see that,
I'll try and dig it up for you.  Just let me know.

Try to keep your mind occupied with other things.  You'll do well with the
surgery.  The most aggravating part, for me, was the catheter.  It wasn't
painful... just an inconvenience.  Once the old foley is taken out, you will
progress pretty rapidly back to good health...... and the cancer will be
GONE!!

Take care.... feel free to email if you have any questions....
MikeH (domiha@hotmail.com)
Beverley - 26 Jul 2004 03:48 GMT
When I heard "old part of city" I had to go back and re-read your first post
as my first reaction was OMG, my mailman??? You're in the DC area. I'm down
here in the SE corner of Virginia in a Historic district. Lots of steps!!
Probably half of my married life I have lived with mail carriers on foot.
I'm one of those who tends to leave the thermos with ice water on the porch
in the summer and coffee in the winter. I think the average mail carrier
around here loses about 15 pounds when they start this route.

Daughters who help are wonderful. Yes, it is often difficult to remember
everything and sometimes we think we understand what is being told to us and
then later go "huh???" So having her there is good. She's also trying very
hard to show her love.

Call your insurance company and ask them about in-home care. You might be
able to get more than you think. And you might even be entitled to domestic
help for a while, someone who can go grocery shopping or run the vacuum
cleaner. The insurance company will tell you what your doctor needs to order
for you to have help.

Another thought is call the local college and see if anyone there needs free
room and board in exchange for some domestic help: cleaning, cooking etc. I
know several young people who would have jumped at that opportunity. Choose
your new live-in carefully. My husband had a good friend who was a divorced
commercial pilot. He didn't like leaving his house empty for long periods of
time and he hated housework. So he called the local college. He got a great
young gal who was thrilled to work for board, in fact she was so good she
stayed long after she graduated.

Another thought call your local rescue squad and see if anyone there needs
room and board. When a single older gentleman in our neighborhood was about
to have major surgery he was concerned about coming home to a house alone,
especially at night. So I told him about a friend of my daughter's from the
rescue squad. The young man from the rescue squad stayed with him at night
for quite a while. Our older friend never needed any help but just knowing
someone was in the house put his mind at ease.
Bev

> Thanks to all of you for your advise and encouragement! It's much
> appreciated.
[quoted text clipped - 73 lines]
> > >
> > > I'm really nervous about this. Thanks for any help.
pbh1nospam@comcast.net - 26 Jul 2004 05:37 GMT
I recommend working out and getting into the best shape of your life as
well as going on a diet (if you have any excess weight to lose).  Being a
letter carrier, you probably would start from a high level of fitness to
begin with, but pushing it to the max and adding in some weight training
would be great.  I had an RRP on May 24 and I am completely convinced that
working out like a demon beforehand was extremely beneficial in a number of
ways.  Re diets, I have found South Beach to be wonderfully effective.  I
started about 5 weeks pre-op and have stayed on it ever since.  Tastes in
all things, including diets, vary, but this one has been great for me.

Re donating blood--did the doctor recommend this?  I would be interested to
hear what the experience has been of others in the group.  I was operated
on at Johns Hopkins and my surgeon said that blood donation was purely
optional.  I was told that blood is only actually needed in 5% of the cases
and that there was a potential downside in that blood donations can
sometimes prove a little debilitating.  (I was told that if I decided to
donate I should take three iron pills a day until the surgery.)  I thought
about doing it, but I was so intent on aggressively working out I didn't
want to do anything that might interfere with that.  I suppose I was just
assuming that I wouldn't need blood and betting on the safety of the public
blood supply if I did. Fortunatly I didn't need blood during the operation.
In his book (at 219-20), Walsh (also at Hopkins, but not my surgeon) is
somewhat positive about pre-op blood donation, but he says that there is a
difference of opinion among surgeons about this and there are no scientific
studies one way or the other.

Best of luck with the operation!

Paul

> There's a lot of firsts going on for me right now. I've never posted to a
> newsgroup before and I've never had any surgery before.(Other than an
[quoted text clipped - 15 lines]
>
> I'm really nervous about this. Thanks for any help.
frankB - 28 Jul 2004 03:22 GMT
Thank you all for the advise and encouragement. .Bev.. it's not DC where I
work but Beautiful Downtown BUFFALO, NY.  (Think I don't get a workout in
the winter??)

Any way, things are moving ahead, albeit slowly. I see the doctor this
Thurs. to go over the details and set the schedule.

I heard from my brother ( who DOES live in DC. (bev)) and he asked my if I
had heard about something called DA Vinci Robot!! Apparantly he saw a
commercial on TV regarding this being used at George Washington University
Hospital.  What do we know about this??

Thanks again.

Frank
Beverley - 28 Jul 2004 03:46 GMT
A couple of the guys have had a robotic RP.

Sorry when you said John Hopkins first, I figured you were in the DC area.

I know all about snow, I'm a transplanted Yankee. LOL
Bev

> Thank you all for the advise and encouragement. .Bev.. it's not DC where I
> work but Beautiful Downtown BUFFALO, NY.  (Think I don't get a workout in
[quoted text clipped - 11 lines]
>
> Frank
roadrunner-news-server=roadrunner - 28 Jul 2004 06:23 GMT
I am a new member of the club and have been lurking here since May.  I also
have never posted to a news group before, but thought that I might have some
useful information for you, Frank.

My Age is 64
PSA 9.0 in May 2004
Biopsy was June 9, 2004 (one core positive, gleason 3+4 = 7)
Stage T1c

I have chosen to have the Robotic Laparoscopic Surgery, using the  Da Vinci
Robot, and will be operated on in August. I live in Rochester, New York and
have chosen a surgeon that has considerable experience in this type of
surgery ( he has done more than 125). He has a good reputation and I
understand (from someone that I know) that he has had patients come to him
from the Buffalo area. My surgeon will be Jean Joseph, M.D. Here are some
links related to him. From my office visit with him, and also from speaking
to a couple patients that have used him he appears to have a very good
bedside manner also.

http://www.stronghealth.com/news/article.cfm?art_ID=323&serviceline=42
http://www.stronghealth.com/news/article.cfm?art_ID=496&serviceline=42
http://www.stronghealth.com/news/article.cfm?art_ID=492&serviceline=42
http://www.stronghealth.com/services/urology/dem&chron.cfm

Here are several general links about Robotic Laparoscopic Surgery.

http://www.cityofhope.org/urology/lrp.asp
http://www.henryfordhealth.org/body.cfm?id=39704
http://www.med.umich.edu/urology/PatientInfo/PatInfoPages/LapRP.htm

BobS

> Thank you all for the advise and encouragement. .Bev.. it's not DC where I
> work but Beautiful Downtown BUFFALO, NY.  (Think I don't get a workout in
[quoted text clipped - 11 lines]
>
> Frank
Steve Kramer - 29 Jul 2004 01:51 GMT
Bob,

You made a good decision.  I wish it were available to me in 2000.  You have
a great shot at a cure.  Let us know your date and I'll include you in my
prayers the night before.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum

> I am a new member of the club and have been lurking here since May.  I also
> have never posted to a news group before, but thought that I might have some
[quoted text clipped - 43 lines]
> >
> > Frank
Larry Wheat - 28 Jul 2004 11:10 GMT
Welcome, Frank!

   I and a few other guys here had Robotic Laparoscopic surgery. Mine
was in Arlington, Texas, in October 2003, and I'm pleased with the
result. I was checked out of the hospital within 18 hours of checking
in, de-catheterized in 8 days and back to work in 2 weeks.

    Here's a website that includes a streaming video clip of RLRP:
http://www.uant.com/robotic_surgery.html

Larry
Diagnosed age 59
PSA 22
Biopsy 8/12/2003
Gleason 4+3=7 (first opinion)
Gleason 4+5=9 (second opinion)
CAT scan negative
Bone scan and skeletal survey negative
Da Vinci Robot-assisted Laparoscopic Radical Prostatectomy 10/13/2003,
one nerve spared.
Final path report, Gleason 4+5= 9/10
Seminal vesicles positive
Lymph nodes negative
Padless 2/13/2004
PSA History:
07/20/2004  < 0.1
04/13/2004   < 0.1
01/09/2004   < 0.1
07/28/2003   22
12/14/2002   15.70
10/25/2000    4.51
09/26/1997    2.5
10/19/1993     1.3
01/16/1993     0.9

> Thank you all for the advise and encouragement. .Bev.. it's not DC where I
> work but Beautiful Downtown BUFFALO, NY.  (Think I don't get a workout in
[quoted text clipped - 11 lines]
>
> Frank
 
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