Medical Forum / Diseases and Disorders / Prostate Cancer / July 2004
Preparing for the big day
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FRANCIS BARTOLOMEO - 24 Jul 2004 01:45 GMT There's a lot of firsts going on for me right now. I've never posted to a newsgroup before and I've never had any surgery before.(Other than an appendectomy about thirty years ago!) I haven't posted before but I've been listening in on you guys quite a bit since my PSA and Biopsies showed me that I'd better prepare. After having the Biopsy found Positive by 2 out of 3 Pathology labs (positive at Johns Hopkins and AFIS) I made the decision to have an RP. I'm 65 and in pretty good health. Still working at a pretty strenuous job (Letter Carrier-USPS) with no problems. I've gotten a lot of good advice and advance warning of whats to com from all of you. Its really been helpful.
Here's the thing. My surgery hasn't been scheduled yet. I'm quessing the 1st or 2nd week in Sept.. I'll be donating my own blood, so that has to be done. Do any of you have any suggestions as to what I can/should do in the meantime to get my body ready for this trauma? Is there a good diet I should follow? How about Vitamins or other supplements? Are there any magic potions that will help with the recovery and healing? Just asking!!
I'm really nervous about this. Thanks for any help.
Beverley - 24 Jul 2004 03:02 GMT Well, if your route is a walking route you are probably way ahead! Start doing your Kegels now! (Do you know what a Kegel is?) Eat right! I won't get into the vitamins but a once-a-day multivitamin is an excellent idea for anyone. A little extra Vit E shouldn't hurt either. Stay away from snotty-nosed kids prior to surgery - you can't go into surgery if you're sick! And if you are on an aspirin a day regime you might want to check with the doctor and discontinue that 2 weeks prior to your surgery. The healthier you are the better you will do with any surgery. Bev
> There's a lot of firsts going on for me right now. I've never posted to a > newsgroup before and I've never had any surgery before.(Other than an [quoted text clipped - 15 lines] > > I'm really nervous about this. Thanks for any help. MH - 24 Jul 2004 03:12 GMT > Well, if your route is a walking route you are probably way ahead! Start > doing your Kegels now! (Do you know what a Kegel is?) Eat right! I won't get [quoted text clipped - 4 lines] > the doctor and discontinue that 2 weeks prior to your surgery. The healthier > you are the better you will do with any surgery. I was taking Vitamin E daily, as well as aspirin, but had to stop the Vitamin E about 10 days before surgery, too. It seems that both act as an anticoagulant.
Otherwise, exercise is what most of us would recommend, I believe... especially walking. As Bev said, if you are a walking mail carrier, you are already in good shape! I spent the six weeks before my surgery walking/running... and working out in the gym just a bit. I had never had any surgery of any kind at age 51, but all went well.
Look at Joe Shaw's list of post op paraphernalia... and be sure to get the pants that snap on the side. You will find them SO helpful after surgery. You can find them at Target or Walmart.... or if you want more expensive, at most sporting goods stores. They are great to have when you are dealing with the catheter! They were some of the best advice I got.
Make some memories ..... you didn't mention if you are married. But whether alone or with a partner, enjoy your erections and your sexual energy.
By the time the day of surgery came around, I was completely calm. I knew that I was in good hands..... and just let things happen as they needed to. We'll be rooting for you..... be sure to keep us posted!!
MikeH
Wakeley Purple - 24 Jul 2004 04:26 GMT ...
> I'm really nervous about this. Thanks for any help. Chiming in about the excercise: Staying in good shape sure helped me. You'll have some bad days right after surgery while the catheter is in. After the tube comes out you should start to feel better quickly. I started back running easily a few weeks post-op, and ran a personal best 13.1 mile race about 3 months later.
Best wishes for a quick recovery.
 Signature Wake
PSA 3.8, 11/2003 @58yrs Biopsy positive 5% in 1 of 10 cores T1c Gleason 3+3 RRP 1/12/04 Pathology agreed with biopsy + Negative margins PSA - 4/29/02: <0.1
Leonard Evens - 24 Jul 2004 15:17 GMT > There's a lot of firsts going on for me right now. I've never posted to a > newsgroup before and I've never had any surgery before.(Other than an [quoted text clipped - 13 lines] > follow? How about Vitamins or other supplements? Are there any magic potions > that will help with the recovery and healing? Just asking!! Your doctor will certainly give you the usual warnings, such as no aspirin or other NSAIDs for some time before surgery. Walking or other physical exericise, within reason, beyond your usual routine, could help. Vitamin E and Selenium are currently being tested as ways to prevent prostate cancer, and they might conceivably help avoid recurrence. But they probably won't do much good within a month or so of surgery. Also, Vitamin E is one of the things surgeons want you to stop for a period before surgery.
You might "make hay while the sun shines" in the lovemaking department, because it will be a while after surgery before that is possible. It might also help take your mind off the upcoming surgery.
> I'm really nervous about this. Thanks for any help. It is natural that you should be nervous, but try to relax. The surgery itself will be something of a non-event. The danger of your not surviving the surgery is so small, it is not worth even thinking about. You will wake up, be unfcomfortable for a few days and then begin the recovery. After the catheter comes out you should progress relatively quickly. There will be the post surgical pathology report to worry about and then further down the line the first post surgical PSA. And then there is the matter of waiting for the various side effects to resolve. It may be up to a year or more before evertyhting gets resolved. So put your mind to something else and let the doctors do the worrying.
Good luck.
kastons - 24 Jul 2004 17:21 GMT My advice is to to your best to not get too stressed out over the up comping event. Keep fit by walking and eating healthy. Forget about it as best you can. Enjoy an active sex life. Everyone tells me I had a great attitude both going into the surgery and coming out of it. Even though you're going to have a physical experience, a positive mental state will help you get through it.
Good luck to you, Sandy K.
Steve Kramer - 25 Jul 2004 17:23 GMT First, Francis, don't be nervous. Quite honestly, the operation is the easiest part of the whole process, and definitely easier on you than your family.
Second, take Iron until you've donated all the blood you're going to donate.
Third, walk. I know you say you're a letter carrier. If you are still one that actually walks his route, then you have it. If not, walk. I was doing two 17-minute miles each day before surgery and immediately after losing the catheter. When my doc walked into the room I was in at his office, he said, "excuse me" and almost walked out. He didn't recognize me because I was in much better shape than he figured. So walk!
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 non illegitimi carborundum
> There's a lot of firsts going on for me right now. I've never posted to a > newsgroup before and I've never had any surgery before.(Other than an [quoted text clipped - 15 lines] > > I'm really nervous about this. Thanks for any help. frankB - 26 Jul 2004 00:33 GMT Thanks to all of you for your advise and encouragement! It's much appreciated. As of now I'm still carrying mail and yes it is awalking route..in an old part of the city with plenty of steps. It's a great job when the weather's good. The best part is I'm on my own most of the day. Your mind does look for things to occupy it and once I counted the steps I go up and down each day! Believe it or not I counted over 1700 steps!! Any how, I was hoping that would be to my benefit.
By the way, have any of you heard anything about laproscopic prostate surgery? My brother said he heard about it but didn't know any details.
Also... a little more background on me. My wife and I live alone but we have a son and two daughters who live close by. Another son lives in W.VA. My wife is into chemotherapy for colon and bladder cancer. It's really wiping her out and I'm really concerned about how my surgery and convalescence is going to be handled. One daughter is an RN and she is wearing herself to a frazzle seeing to my wifes needs and mine. She insists on going to every doctors appt., test and whatever with us. She honestly feels we're not capable of understanding the doctors orders etc. All my kids will do all they can and more but I feel terrible that they have to give up so much time to themselves an their families. I will speak to my doctor about how much in home care my wife and I can get if we need it, but it would help to hear if any of you have the same situation.
Thanks again. You all are a big help!!
> First, Francis, don't be nervous. Quite honestly, the operation is the > easiest part of the whole process, and definitely easier on you than your [quoted text clipped - 36 lines] > > > > I'm really nervous about this. Thanks for any help. MH - 26 Jul 2004 01:30 GMT > By the way, have any of you heard anything about laproscopic prostate > surgery? My brother said he heard about it but didn't know any details. Hi, Frank...
First of all, I'm sorry to hear about your wife's illness. I'm sure this must be really a lot to deal with right now. There's no *good* time to have surgery, but it just complicates your life (and hers and the kids) a bit more. As most have told you, however, the surgery is really much easier than you can imagine it to be. And the fact that you walk everyday is a real PLUS!!
I had a Laparoscopic Radical Prostatectomy in November of 2002. All went very well. My surgery was done in Atlanta. I researched all the different options, and since I had never had surgery before, and because the surgeon had done many of these surgeries and seemed to be a really great guy, I chose that option. But many of my friends here in this group chose the traditional Retropubic Radical Prostatectomy, and they have done just as well. Some people elect to have radiation.... others use seeds.... others choose seeds + radiation. The point is that there are several *good* procedures out there, and you just need to find the one you feel most comfortable with. There are pros and cons to each, I suppose.
If you want a good site for info on the LRP, go to www.krongrad-urology.com . I read a lot of the stories there on that site when I was looking into the surgery. There is also a site where you can actually *watch* the video of the surgery being performed. If you think you would want to see that, I'll try and dig it up for you. Just let me know.
Try to keep your mind occupied with other things. You'll do well with the surgery. The most aggravating part, for me, was the catheter. It wasn't painful... just an inconvenience. Once the old foley is taken out, you will progress pretty rapidly back to good health...... and the cancer will be GONE!!
Take care.... feel free to email if you have any questions.... MikeH (domiha@hotmail.com)
Beverley - 26 Jul 2004 03:48 GMT When I heard "old part of city" I had to go back and re-read your first post as my first reaction was OMG, my mailman??? You're in the DC area. I'm down here in the SE corner of Virginia in a Historic district. Lots of steps!! Probably half of my married life I have lived with mail carriers on foot. I'm one of those who tends to leave the thermos with ice water on the porch in the summer and coffee in the winter. I think the average mail carrier around here loses about 15 pounds when they start this route.
Daughters who help are wonderful. Yes, it is often difficult to remember everything and sometimes we think we understand what is being told to us and then later go "huh???" So having her there is good. She's also trying very hard to show her love.
Call your insurance company and ask them about in-home care. You might be able to get more than you think. And you might even be entitled to domestic help for a while, someone who can go grocery shopping or run the vacuum cleaner. The insurance company will tell you what your doctor needs to order for you to have help.
Another thought is call the local college and see if anyone there needs free room and board in exchange for some domestic help: cleaning, cooking etc. I know several young people who would have jumped at that opportunity. Choose your new live-in carefully. My husband had a good friend who was a divorced commercial pilot. He didn't like leaving his house empty for long periods of time and he hated housework. So he called the local college. He got a great young gal who was thrilled to work for board, in fact she was so good she stayed long after she graduated.
Another thought call your local rescue squad and see if anyone there needs room and board. When a single older gentleman in our neighborhood was about to have major surgery he was concerned about coming home to a house alone, especially at night. So I told him about a friend of my daughter's from the rescue squad. The young man from the rescue squad stayed with him at night for quite a while. Our older friend never needed any help but just knowing someone was in the house put his mind at ease. Bev
> Thanks to all of you for your advise and encouragement! It's much > appreciated. [quoted text clipped - 73 lines] > > > > > > I'm really nervous about this. Thanks for any help. pbh1nospam@comcast.net - 26 Jul 2004 05:37 GMT I recommend working out and getting into the best shape of your life as well as going on a diet (if you have any excess weight to lose). Being a letter carrier, you probably would start from a high level of fitness to begin with, but pushing it to the max and adding in some weight training would be great. I had an RRP on May 24 and I am completely convinced that working out like a demon beforehand was extremely beneficial in a number of ways. Re diets, I have found South Beach to be wonderfully effective. I started about 5 weeks pre-op and have stayed on it ever since. Tastes in all things, including diets, vary, but this one has been great for me.
Re donating blood--did the doctor recommend this? I would be interested to hear what the experience has been of others in the group. I was operated on at Johns Hopkins and my surgeon said that blood donation was purely optional. I was told that blood is only actually needed in 5% of the cases and that there was a potential downside in that blood donations can sometimes prove a little debilitating. (I was told that if I decided to donate I should take three iron pills a day until the surgery.) I thought about doing it, but I was so intent on aggressively working out I didn't want to do anything that might interfere with that. I suppose I was just assuming that I wouldn't need blood and betting on the safety of the public blood supply if I did. Fortunatly I didn't need blood during the operation. In his book (at 219-20), Walsh (also at Hopkins, but not my surgeon) is somewhat positive about pre-op blood donation, but he says that there is a difference of opinion among surgeons about this and there are no scientific studies one way or the other.
Best of luck with the operation!
Paul
> There's a lot of firsts going on for me right now. I've never posted to a > newsgroup before and I've never had any surgery before.(Other than an [quoted text clipped - 15 lines] > > I'm really nervous about this. Thanks for any help. frankB - 28 Jul 2004 03:22 GMT Thank you all for the advise and encouragement. .Bev.. it's not DC where I work but Beautiful Downtown BUFFALO, NY. (Think I don't get a workout in the winter??)
Any way, things are moving ahead, albeit slowly. I see the doctor this Thurs. to go over the details and set the schedule.
I heard from my brother ( who DOES live in DC. (bev)) and he asked my if I had heard about something called DA Vinci Robot!! Apparantly he saw a commercial on TV regarding this being used at George Washington University Hospital. What do we know about this??
Thanks again.
Frank
Beverley - 28 Jul 2004 03:46 GMT A couple of the guys have had a robotic RP.
Sorry when you said John Hopkins first, I figured you were in the DC area.
I know all about snow, I'm a transplanted Yankee. LOL Bev
> Thank you all for the advise and encouragement. .Bev.. it's not DC where I > work but Beautiful Downtown BUFFALO, NY. (Think I don't get a workout in [quoted text clipped - 11 lines] > > Frank roadrunner-news-server=roadrunner - 28 Jul 2004 06:23 GMT I am a new member of the club and have been lurking here since May. I also have never posted to a news group before, but thought that I might have some useful information for you, Frank.
My Age is 64 PSA 9.0 in May 2004 Biopsy was June 9, 2004 (one core positive, gleason 3+4 = 7) Stage T1c
I have chosen to have the Robotic Laparoscopic Surgery, using the Da Vinci Robot, and will be operated on in August. I live in Rochester, New York and have chosen a surgeon that has considerable experience in this type of surgery ( he has done more than 125). He has a good reputation and I understand (from someone that I know) that he has had patients come to him from the Buffalo area. My surgeon will be Jean Joseph, M.D. Here are some links related to him. From my office visit with him, and also from speaking to a couple patients that have used him he appears to have a very good bedside manner also.
http://www.stronghealth.com/news/article.cfm?art_ID=323&serviceline=42 http://www.stronghealth.com/news/article.cfm?art_ID=496&serviceline=42 http://www.stronghealth.com/news/article.cfm?art_ID=492&serviceline=42 http://www.stronghealth.com/services/urology/dem&chron.cfm
Here are several general links about Robotic Laparoscopic Surgery.
http://www.cityofhope.org/urology/lrp.asp http://www.henryfordhealth.org/body.cfm?id=39704 http://www.med.umich.edu/urology/PatientInfo/PatInfoPages/LapRP.htm
BobS
> Thank you all for the advise and encouragement. .Bev.. it's not DC where I > work but Beautiful Downtown BUFFALO, NY. (Think I don't get a workout in [quoted text clipped - 11 lines] > > Frank Steve Kramer - 29 Jul 2004 01:51 GMT Bob,
You made a good decision. I wish it were available to me in 2000. You have a great shot at a cure. Let us know your date and I'll include you in my prayers the night before.
 Signature Prostate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 non illegitimi carborundum
> I am a new member of the club and have been lurking here since May. I also > have never posted to a news group before, but thought that I might have some [quoted text clipped - 43 lines] > > > > Frank Larry Wheat - 28 Jul 2004 11:10 GMT Welcome, Frank!
I and a few other guys here had Robotic Laparoscopic surgery. Mine was in Arlington, Texas, in October 2003, and I'm pleased with the result. I was checked out of the hospital within 18 hours of checking in, de-catheterized in 8 days and back to work in 2 weeks.
Here's a website that includes a streaming video clip of RLRP: http://www.uant.com/robotic_surgery.html
Larry Diagnosed age 59 PSA 22 Biopsy 8/12/2003 Gleason 4+3=7 (first opinion) Gleason 4+5=9 (second opinion) CAT scan negative Bone scan and skeletal survey negative Da Vinci Robot-assisted Laparoscopic Radical Prostatectomy 10/13/2003, one nerve spared. Final path report, Gleason 4+5= 9/10 Seminal vesicles positive Lymph nodes negative Padless 2/13/2004 PSA History: 07/20/2004 < 0.1 04/13/2004 < 0.1 01/09/2004 < 0.1 07/28/2003 22 12/14/2002 15.70 10/25/2000 4.51 09/26/1997 2.5 10/19/1993 1.3 01/16/1993 0.9
> Thank you all for the advise and encouragement. .Bev.. it's not DC where I > work but Beautiful Downtown BUFFALO, NY. (Think I don't get a workout in [quoted text clipped - 11 lines] > > Frank
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