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Medical Forum / Diseases and Disorders / Prostate Cancer / August 2004

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Dry Orgasms--A Pale Reflection of the Real Thing

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Jim Hammond - 22 Jul 2004 04:54 GMT
I am a newbie to prostate cancer, having only been diagnosed in May
with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
next 3 months prior to my next appointment) to get the penile blood
flowing. My experience after 3 dry orgasms (with very limited
semi-erections) is that they are a pale reflection of the "real thing"
(with a prostate). It is over very quickly without the "point of no
return" feeling that the prostate feedback loop provides to the brain
prior to ejaculation. My scrotum has a dull ache afterwards without
the normal release of sperm. There was a minor afterglow, but not
nearly as intense as it used to be. According to the pathologist, my
cancer was 100% localized in the prostate and there is a very good
chance it is now history. I guess I will have to resign myself to live
with this orgasmic pale reflection from now on.
jk - 22 Jul 2004 05:13 GMT
> I am a newbie to prostate cancer, having only been diagnosed in May
> with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 9 lines]
> chance it is now history. I guess I will have to resign myself to live
> with this orgasmic pale reflection from now on.

 First of all Jim, guess what? You don't have cancer anymore. For most,
that's plenty. 2nd... it's only been a few weeks for you after major
surgery. Here's a good analogy.... how does it feel to eat 2 hours after the
dentist has numbed your mouth? Trust me... orgasm is mostly in the mind.
Once you start to get it up, and start feeling better about things, you will
fall off the cliff just like you used to. My dry and limp orgasms were
terrific the more I practiced them. How old are you? Age does make a
difference in recovery time and magnitude I believe. I'm now 54 and it's
been 2 years post RP for me now, and I can get fully erect and have
wonderful dry orgasms. No more tissues needed either! I still feel very very
slow improvement all the time, so relax and get busy! Good luck.

Signature

JK Sinrod
Sinrod Stained Glass Studios
www.sinrodstudios.com
Coney Island Memories
www.sinrodstudios.com/coneymemories

Al - 22 Jul 2004 13:21 GMT
*I am a newbie to prostate cancer, having only been diagnosed in May
*with an RP 4 weeks ago. My surgeon has prescribed stimulation over
the
*next 3 months prior to my next appointment) to get the penile blood
*flowing. My experience after 3 dry orgasms (with very limited
*semi-erections) is that they are a pale reflection of the "real
thing"
<snip>

I also concur that with given time, your orgasms should improve. I had
RRP Feb 03 and have enjoyed dry orgasms now. It's definitely not the
same as wet, but...I'm alive w/o cancer and that's a huge relief. I
also like the ability to get intimate with my mate, without having to
stop to put on a condom. No orgasms, no unwanted pregnancies. I can
live with that. So, hang in there, and keep stimulating those nerves.
They may surprise you real soon. If they don't, I'd suggest talking to
your urologist, but like JK mentioned, your emotions play a good part
in this.

Al
Please be quiet if replying via email,
flames will be deleted promptly.
I won't even read the whole message...
Beverley - 22 Jul 2004 13:59 GMT
Jim, you are ahead of the curve as most men think they can't even have an
orgasm if they are dry and limp. So you at least know this is going to
happen. Four weeks is a very short time so give yourself some more time.
Keep practicing, don't get discouraged. Hopefully you have a willing partner
to help with this exercising. Everyone is different but frequently the guys
will say that what they are experiencing post-treatment is often more
intense and lasts longer. Yet it is different but not in a bad way, just
different. You've had some nerve damage which has to heal and that can take
a while. Time is going to make a big difference.

The important thing is the cancer is gone. That means you will have lots of
time to play with it. Some of the guys will suggest magazines, video, etc.
to help get the mind in gear. (Any excuse will do. LOL) If you have
progressed this far at only 4 weeks post-op you are going to be just fine.
Practice makes perfect!
Bev

> I am a newbie to prostate cancer, having only been diagnosed in May
> with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 9 lines]
> chance it is now history. I guess I will have to resign myself to live
> with this orgasmic pale reflection from now on.
Dave Perry - 22 Jul 2004 14:53 GMT
Keep working it Jim.  I am one year post-op and find that my orgasms
are getting to be as good if not better than before.  Had one a few
weeks ago that I would rate as the best ever - I almost fainted.  As
with you, the first few were nothing special.  The dry part seems to
be of no consequence to me and the dull ache was never an issue either
since I had a vasectomy years before.  Besides, I don't think the
sperm comes from the scrotal area during orgasm, that's just where
it's produced.  Of course, Willie is still limp and I have to
manipulate it differently but on the whole (no pun) things are looking
pretty good.
Dave Perry

> I am a newbie to prostate cancer, having only been diagnosed in May
> with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 9 lines]
> chance it is now history. I guess I will have to resign myself to live
> with this orgasmic pale reflection from now on.
Doug Taylor - 22 Jul 2004 14:54 GMT
>I am a newbie to prostate cancer, having only been diagnosed in May
>with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 6 lines]
>the normal release of sperm. There was a minor afterglow, but not
>nearly as intense as it used to be.

This is another of the side effects they don't really tell you about
before treatment.  Console yourself with the knowledge that the result
is the same for patients who undergo EBRT.  Yes, it is true as others
have posted, that orgasms are largely in the head, but those who
discount the physiological aspect are sugar coating reality, IMO. A
diminished sex life is inevitable after PCa treatment, pure and
simple.  Even if you can get it up, what used to be a climax is now an
ante-climax.  So, focus on satisfying your mate and have a vicarious
orgasm :-)

The good news remains that you are most probably cured of cancer and
that you will adjust to your new situation.  Nothing you can do about
it except count your blessings and move on.  There are better fates;
there are worse fates; our fate is ours and we can handle it.

Good luck.
--dt
Robert Austin - 22 Jul 2004 15:53 GMT
Having had an RP via the cryosurgery route that leaves absolutely no
nerves and if done right, I am evidently fortunate to have orgasms as
strong as ever.  I do miss the pleasure of feeling the ejaculate go.

I would enjoy more sex than I get and a once a week or so is a treat.
Maybe that is one reason in my case that makes sex so enjoyable.  If
high grade diamonds could be bought by the truck load as cheap as
gravel they would immediately lose their appeal.

When you add to the mix that the pleasure of sex, at least the experts
say, is mainly in the brain, and a bunch of other factors including
how you feel about your partner and how confident you are about
pleasing your partner as well as yourself, it's no wonder that we
experience things differently.

As the old adage goes, "One man's ceiling is another man's floor".

On a lighter note: Man: "Did I hurt you honey ?" Wife, "No, why," Man:
"I thought I felt you move."

Bob Austin

>>I am a newbie to prostate cancer, having only been diagnosed in May
>>with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 24 lines]
>Good luck.
>--dt
kastons - 22 Jul 2004 17:06 GMT
I too had RRP done just over 4 weeks ago.  I had my first dry orgasm about
one week after the catheter came out.  I've gotta tell ya, it was one of the
most mind blowing experiences I've ever had.  Probably because I didn't
expect anything to happen -but wow, it was quite the experience. My whole
body shook.   Since then, I've had 3 dry orgasms and while not the intensity
of the first, they're still pretty good.

As with everything with PCa, it is different for each person.  I figure the
fact that you've had an orgasm 4 weeks after surgery, you're doing great.  I
expect things will get better as time progresses.  Don't bum out about it -
look at the bright side - no more cancer and no clean-up afterwards!!

Sandy K.
Age 47
Jim Hammond - 23 Jul 2004 07:06 GMT
> I too had RRP done just over 4 weeks ago.  I had my first dry orgasm about
> one week after the catheter came out.  I've gotta tell ya, it was one of the
[quoted text clipped - 10 lines]
> Sandy K.
> Age 47

As a follow-on to my original post: Age: 66, PSA before surgery: 6.6,
Gleason score: 6, final pathology report, totally confined to prostate
with negative margins, lymph nodes negative. Yes, my wife of 32 years
is helping me with my sex therapy including effective oral
stimulation.
Steve Kramer - 25 Jul 2004 16:19 GMT
First, count yourself among the extremely lucky to have had 3 orgasms in
your first month post RRP.

But, work it for all it's worth.  I'm confident you'll get 80% to 90% to
100% of it back.

Signature

Prostate Cancer Survivor (so far), not a doctor
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000
PSA  .1  .1  .1  .27  .37  .75
EBRT 05-07/2002 @ 47
PSA  .34 .22 .15 .21 .32
Erection 05/12/2003 @ 48
HTbegins 07/21/2003 @ 48
PSA  .07 .05
Lupron 7/03, 8/03, 12/03, 4/04
non illegitimi carborundum

> I am a newbie to prostate cancer, having only been diagnosed in May
> with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 9 lines]
> chance it is now history. I guess I will have to resign myself to live
> with this orgasmic pale reflection from now on.
Jon Stone - 27 Jul 2004 05:31 GMT
Jim:

I'm at the 18-month mark since surgery, sincerely grateful and happy to be alive and presently cancer-free, but, despite go 'rounds with Levitra and Viagra, experiencing half-mast erections and truly unsatisfying climaxes. Although every one seems a little more reminiscent of the way they used to feel, so I remain ever hopeful. But I sincerely doubt, as do you it appears, that I'll ever have the plaster-cratering, box spring killing, thunderous orgasms I had right up to 2002. But I choose a half-full glass approach and I'm delighted I'm able experience SOME release, however feeble it is.

You seem to be lucky in comparison. For months after surgery my whole pelvic area felt like a crime scene. I couldn't stand to be touched there and the few orgasms we shot for were more pain than pleasure. It was becoming very traumatic. Turns out I had a hernia in the aftermath that went untreated for 5 months. I feel great now and feel that time is my friend. With the safe passage of every day comes another chance at some kind of physical and mental renewal. And even if the sex sucks compared to days of old, even bad sex is sex. It's more than I ever got as a teenager!

Hang in there and don't get discouraged. I did in the early going and it didn't do me any damn good. Learn from my mistake and don't waste time feeling you won't ever see improvement. I have a feeling you'll eventually have an improved sex life if you take matters into your own hands (a few times a day if possible!) and keep a healthy outlook.

Good luck.

Jon
> I am a newbie to prostate cancer, having only been diagnosed in May
> with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 9 lines]
> chance it is now history. I guess I will have to resign myself to live
> with this orgasmic pale reflection from now on
Fred P - 05 Aug 2004 07:59 GMT
my op was 15 May 2004. So far no erections but good orgasms if anything a
tad better than before! I'm 66 my friends describe me as a bit 'Polly Anna'
and I expect the best!!! You are doing well just 4 weeks after rp - for me I
didn't dare try until 6 weeks after and wow limp but nice...
"Upwards and Onwards"

Fred

> I am a newbie to prostate cancer, having only been diagnosed in May
> with an RP 4 weeks ago. My surgeon has prescribed stimulation over the
[quoted text clipped - 9 lines]
> chance it is now history. I guess I will have to resign myself to live
> with this orgasmic pale reflection from now on.
 
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