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Medical Forum / Diseases and Disorders / Prostate Cancer / June 2004RP 9 years later
G'day Gents I am posting this because its the typeof story I wanted to read during my first few days, weeks, months, years after RP surgery for prostate cancer. I was always looking for soneone's story who had survived years after RP. I had been monitoring my PSA since I was 38 years old because my father was dying of Prostate cancer, he was 76 when he died. My initial PSA reading was 4.0 and varied around 4.0 and 5.0 for until in 94 it went to 8.0. My doctor at the time said he wasn't all that concerned but beacuse I of my previous results and the fact my father died of this cancer he sent me for a biopsy. Four of the six biopsies were cancerous. I had radical prostersectomy a few months later at aged 42. The bad news is I have been impotent ever since and have to use a catheter usually every couple of weeks. The good news is am not incontenent, I can have a root with an injection and am alive to write the e-mail. I am now 53 years old and am unable to get my golf handicap below 19. Latest PSA <0.1 Yahoo Good luck to you all cheers greg hi greg - welcome to the club you didn't want to join in the first place. glad you are proof of what's in store for some of us down the road. we can use all the input we can, so feel free to jump in anytime you want. ~ curtis knowledge is power - growing old is mandatory - growing wise is optional "Many more men die with prostate cancer than of it. Growing old is invariably fatal. Prostate cancer is only sometimes so." That is exactly the kind of news we like to hear! Thanks. Give us a shout next year too, please.  SignatureProstate Cancer Survivor (so far), not a doctor PSA 16 10/17/2000 @ 46 Biopsy 11/01/2000 G7 (3+4), T2c RRP 12/15/2000 PSA .1 .1 .1 .27 .37 .75 EBRT 05-07/2002 @ 47 PSA .34 .22 .15 .21 .32 Erection 05/12/2003 @ 48 HTbegins 07/21/2003 @ 48 PSA .07 .05 Lupron 7/03, 8/03, 12/03, 4/04 > G'day Gents > [quoted text clipped - 28 lines] > cheers > greg > G'day Gents > [quoted text clipped - 28 lines] > cheers > greg Welcome aboard. Looks like you have seniority here as far as the length of time after treatment and still getting the <0.1 we all hope for. The impotence is a bummer-quite possibly some newer treatments can be of help. Good luck to you too and keep your eye on the ball. Age - 69 8/12/02 - PSA 3.7 10/13/03 - PSA 4.69 11/11/03 - PSA 4.8 11/18/03 - Biopsy - 10 cores one core-25% of core-Gleason 4+4=8 all other cores benign tissue 12/10/03 - Consult - Oncologist 12/16/03 - Consult - Radiation Oncologist Treatment Plan - Northeast Ga Cancer Center HT - started 12/17/03 - Eulixen & Lupron (2nd 4 mo Lupron-4/26) 2/10/04 - Started - Flowmax and Megastrol Radiation - IMRT to begin 3/30/04 - 42 treatments Now that's what we like to read! Congratulations, and many more. >snip> * *I had radical prostersectomy a few months later at aged 42. So did I, and I'm 43 now. *The bad news is I have been impotent ever since and have to use a catheter *usually every couple of weeks. Hmmm, wonder if they weren't using the nerve sparing procedure back then? My guess it no, but I'm not a doctor. *The good news is am not incontenent, I can have a root with an injection and *am alive to write the e-mail. Right on! I'm probably as far as I'm gonna get with mine. But your news is very encouraging! Especially the "alive" part. * *I am now 53 years old and am unable to get my golf handicap below 19. * *Latest PSA <0.1 That's so cool!!!! I hope mine stay like yours has, and yours keeps on groovin' like it is. Al Please be quiet if replying via email, flames will be deleted promptly. I won't even read the whole message... Hello Greg: Great to hear from you. Yes, it is important for others to hear from those who have gone before. Best of luck to you for continued <0.1 PSA's. Thank you. David S. > G'day Gents > [quoted text clipped - 28 lines] > cheers > greg G'day Greg, Good to hear from you and your experience - a fellow inhabitant of the land of OZ it tickled my fancy to see the very local (I think) use of the word "root"!!! I look forward to this day!! But then I'm 66 and just 3 weeks out from my rp. However I have experienced my first "dry" orgasm. Whoo too much information!!! Anyway it was re-assuring and I hope all goes well for you. Fred > G'day Gents > [quoted text clipped - 28 lines] > cheers > greg I had Rp in 1999. I was 49, and am on a halfway mark..... Erection works and better with about 25mgs of viagra, no peeing myself but dribble after peeing, and when I do pee it seems not much. I am fine, run 4 miles in 45 minutes or less, work hard, love my wife, and do like sex. Good for you, and I hope I can post also in another 5 years about my 0.01 or less.... Great Wishes, thanks for the note of encouragement, John Loomis > G'day Gents > [quoted text clipped - 28 lines] > cheers > greg |
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